Hoping you have found your treatment team. But in case, you are still looking for additional information about oncologists knowledgeable about TNBC in the state of Washington.
Yesterday, I posted on http://forum.tnbcfoundation.org/topic10891.html about the C4YW: Annual Conference for Young Women Affected by Breast Cancer to be held in Bellevue, WA (on Seattle's Eastside) in Feb. I noticed that the workshop on TNBC will be given by Dr. Julie Gralow. Workshop Y | Triple-Negative Breast Cancer Julie R. Gralow, MD, Professor, Medical Oncology, University of Washington School of Medicine, Director, Breast Medical Oncology, Seattle Cancer Care Alliance, Member, Clinical Research Division, Fred Hutchinson Cancer Research Center (This is all I know).
Maybe some one else (in addition to Rach who posted above ) will see your post and post if they have information TNBC oncologists around Washington......or have information on David Dong, MD at Swedish.
Glad you found this website. Sorry, you/some one has a breast cancer diagnosis.
FYI: A member was looking for this thread today. Thought I would bump it up for new members.
Following was posted above on September 14, 2012:
Grateful for today wrote:
When one is looking for oncologists knowledgeable about TNBC, there are various resources. What is posted here is informational (general information) from members. These are not recommendations from the TNBC Foundation. The decision about your treatment team is yours.
Some things to consider when gathering information for your TNBC treatment team.
3. Some members have 2nd opinions when making decisions on their treatment plan. 2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated). If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.
4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist. Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises (when frequent travel to a NCCN or NCI center is an issue)
6. Some members newly diagnosed will post on this forum topic/thread asking for information about resources in their area. Some members will start a new forum/thread with a title like: Looking for TNBC MDs in the _________ area.
7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your own personal medical record.
In addition to the above, some considerations/information from members from recent posts are: (Physicians are medical oncologists unless noted otherwise)
I have to add my wonderful cancer facility, the other NCI facility in Texas (M.D. Anderson in Houston is the other). I started here in Dallas at a for profit hospital and received very poor care. Was lucky a friend insisted I go for a second opinion before beginning treatment - a life saving change I am sure.
UT Southwestern Medical Center Simmons Cancer Center, Dallas, Texas
All of my incredible Drs here, in addition to treating patients, are research scientists working on breast cancer projects. My surgeon studies genetic breast cancers - and he's a genius! I have not one single complaint about anything here - nothing - and I've been going for 5 years!
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads 6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
Please provide any new recommendations or changes to this list.
Grateful for today wrote:
FYI: A member was looking for this thread today. Thought I would bump it up for new members.
Following was posted above on September 14, 2012:
Grateful for today wrote:
When one is looking for oncologists knowledgeable about TNBC, there are various resources. What is posted here is informational (general information) from members. These are not recommendations from the TNBC Foundation. The decision about your treatment team is yours.
Some things to consider when gathering information for your TNBC treatment team.
3. Some members have 2nd opinions when making decisions on their treatment plan. 2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated). If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.
4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist. Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises (when frequent travel to a NCCN or NCI center is an issue)
6. Some members newly diagnosed will post on this forum topic/thread asking for information about resources in their area. Some members will start a new forum/thread with a title like: Looking for TNBC MDs in the _________ area.
7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your own personal medical record.
In addition to the above, some considerations/information from members from recent posts are: (Physicians are medical oncologists unless noted otherwise)
My oncologist, Dr. Charles Shapiro is moving to NYC. I am not sure where but he is a great triple negative oncologist and I am sad that he is leaving Ohio.
Dx June 06 stage 1 at age 46, no nodes, clean margins, Ki-67 at 54, Bilateral Mastectomy, 4 rounds AC, complete hysterectomy Aug O7. Mother and Grandmother both died of breast cancer dx in their 30's.
Any updates to this list? Additions/changes/deletions? Please reply and I'll add them to this list and repost.
When one is looking for oncologists knowledgeable about TNBC, there are various resources. What is posted here is informational (general information) from members. These are not recommendations from the TNBC Foundation. The decision about your treatment team is yours.
Some things to consider when gathering information for your TNBC treatment team.
3. Some members have 2nd opinions when making decisions on their treatment plan. 2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated). If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.
4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist. Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises (when frequent travel to a NCCN or NCI center is an issue)
6. Some members newly diagnosed will post on this forum topic/thread asking for information about resources in their area. Some members will start a new forum/thread with a title like: Looking for TNBC MDs in the _________ area.
7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your own personal medical record.
In addition to the above, some considerations/information from members from recent posts are: (Physicians are medical oncologists unless noted otherwise)
For DALLAS TEXAS I cannot rave enough about UT Southwesterns Harold C. Simmons Cancer Center. I fully believe if I hadn't switched to having my care there after my initial TERRIBLE malpractice worthy care at another Dallas facility I would not be alive today (SECOND OPINIONS SAVE LIVES!!). It is an NCI designated research facility and I have received stellar care there for 6 years. http://www.utswmedicine.org/conditions-specialties/cancer/
My care here is so far and above the care I received at the first facility, at one point in the beginning stages of appointments here my husband looked at me and said, "are we being punked? Can they possibly give this level of attention to EVERY cancer patient??!?!?" And the answer is YES THEY CAN! and they do. And as icing on the cake you can have all of your surgical or other hospital stays at Zale Lipshy University Hospital a stones throw away from the cancer center. It is the Ritz Carlton of hospitals! The hospital is so beautiful, the care there so exemplary, that again my husband and I felt like we'd stumbled on a beautiful medical secret - how can it be that EVERYONE isn't using this place? https://www.utswmedicine.org/hospitals-clinics/zale-lipshy/ http://www.utsouthwestern.edu/newsroom/news-releases/year-2014/nov/recognized-for-patient-satisfaction.html If you are in the early days of diagnosis - or if at any time you have the slightest feeling that you might want another opinion - GET A SECOND OPINION! We feel such a sense of urgency to start our treatment once we hear CANCER, TN, AGRESSIVE that often we skip this second opinion step. The absolute best decision I ever made was going for my second opinion.
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads 6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
I was treated at MD Anderson. Then I temporarily moved to Arlington TX to be treated by Dr. Karel Dicke at Arlington Cancer Center. I feel so much better after I came to Arlington. Dr. Dicke is a brilliant and passionate 74-year-old doctor. He used to be the head of the Bone Marrow Transplant department at MD Anderson. Dr. George Blumenschein, former head of Breast Center at MD Anderson, founded Arlington Cancer Center with Dr. Dicke many years ago. They were ahead of their time. They have been using Cisplatin for stage III and IV breast cancer for 20 or 30 years and had great results. The following are some of their old papers: http://www.researchgate.net/publication/13223020_Multimodality_therapy_for_locally_advanced_and_limited_stage_IV_breast_cancer_the_impact_of_effective_non-cross-resistance_late-consolidation_chemotherapy
In spite of his age, Dr. Dicke is very forward thinking and innovative. He has been using Caris and Foundation reports for years. He said that when chemo was first invented, doctors did not believe in chemo. Later, they all used it. When bone marrow transplant was first invented, doctors did not trust it; later they all adopted for certain cancers. Now many question Caris report and Foundation reports and do not use them. Years later, these tools will be the standard practice.
Dr. Dicke treats all kinds of cancers in addition to TNBC and other breast cancer. I feel good here because I am surrounded by many of Dr. Dicke's stage IV patients who are NED for many many years. Among them, many are stage IV breast cancer NED patients. According to Dr. Dicke, cancer treatment should be based on the protein expressed by the tumor and gene mutation instead of sticking to ACT or Carboplatin for breast cancer. If you are looking for an oncologist who goes beyond the standard of care, I would highly recommend Dr. Dicke.
Rebecca
DX IDC TNBC May, 2014, 4.7cm, 5.8cm on Taxol. Taxol 4 weeks, AC 6. double mastectomy OCT 2014. 1.8cm residual in breast and 3mm a lymph node. BRCA-. 11/17 Abraxane,5FU.11/20, rads, 1/19 FUMEPx2
Bumping for a new member asking about a recommendation for her sister in Texas. I don't know if there is a more updated list since Grateful for today...Judy helped compile a few years ago. Hopefully, someone better at finding things can help.
Blair
Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
I haven't seen any new posts/recommendations. Besides what I'll post below, Kellyless posted another recommendation for Texas. I think it's a couple of replies above this one.
TEXAS
Dr. Matthew Ellis recently relocated to Houston, Texas as the new director of the Lester and Sue Smith Breast Center at Baylor College of Medicine.
Lump found 11/08 DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
I highly recommend Dr. Kathy Miller at IU Simon Cancer Center for the treatment of TNBC. Dr. Miller graduated from Johns Hopkins School of Medicine and has been an oncologist, professor and researcher at IU Simon for years. She did an amazing job in my case, and when questions were raised about my TNBC status (path did first test and even though it showed 1 on IHC, they then did a FISH test which showed borderline results for HER-2 +), she went through a detailed chart to show me why my tumor was indeed triple negative and encouraged me to participate in a phase III clinical trial involving adding Carboplatin and Veliparib to Taxol and A/C. Clearly, it worked as I had clean sentinel lymph nodes and no residual evidence of disease (tumor was completely gone) after neoadjuvant chemotherapy. Dr. Miller can be found at IU Hospital's website. Her office is at:
Dr. Kathy Miller Indiana Cancer Pavilion, Suite 473 535 Barnhill Drive Indianapolis, IN 46202 317-944-3553
Dx 2-13-15, IDC 2-B, Gr 3, TNBC; Port 3-12-15; MRI 3-19-15 T 3.8 x 3.5 x 3.7 cm ALN 2.5 cm; MRI 6-17-15 T 1.2 x 1.2 x 1.4 cm ALN 1.2 cm; Chemo: 11 Taxol, 4 A/C; Lumpectomy/SLNB: 9-22-15 pCR; 19 Rads
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot delete your posts in this forum You cannot edit your posts in this forum You cannot create polls in this forum You cannot vote in polls in this forum