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Plume
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Joined: Jul 15 2018
Location: France
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Points: 118
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Topic: a virus to the rescue? Posted: Nov 09 2019 at 5:48am |
Could it really, really be something as simple as this?
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strongtogether
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Joined: Aug 07 2019
Location: Australia
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Posted: Nov 10 2019 at 2:09am |
That would be so great. I have also read about a possible vaccine. Does anyone know anything about these two avenues?
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Plume
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Joined: Jul 15 2018
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Posted: Nov 10 2019 at 12:27pm |
Thanks for the article, strongtogether. I like to think that if enough research were done, someone somewhere will find something that could give us a bit of reassurance.
Goodness knows it's been hard enough having the diagnosis and the treatment without being told "that's it, there is nothing else to give you!"
I must admit that that was when I freaked out, when I realised at the end of radiotherapy that I wouldn't go on to have injections or pills like the other less unfortunate people.
It was the only time in the last 2 years when I felt utter despair and didn't care whether I lived or died. BUT, I have now fortunately got over that phase!!
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strongtogether
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Posted: Nov 10 2019 at 3:02pm |
@plume Have you considered a clinical trial? This one seems reasonable. It is phase III, which I understand means that it's safe, and it has proven effect. Since standard of care is to do nothing, this would appear to be a good idea. Your thoughts?
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Kellyless
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Joined: Jun 18 2009
Location: Dallas, Texas
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Posted: Nov 11 2019 at 10:28am |
21 injections over 2 years, That's a commitment! The challenge would be finding a convenient facility participating in the trial. You wouldn't want to travel great distances 21 times. Especially knowing there's a 50% chance you're receiving a placebo.
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IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads 6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Plume
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Posted: Nov 11 2019 at 2:59pm |
Hi strongtogether, I've only just seen your post and I found it very interesting because I have never ever seen the sort of criteria that have to be passed to be included in a clinical trial.
However, I agree with kellyless's remarks. If I felt "short changed" in anyway about my treatment or if I felt that recurrence was inevitable, then I would go for whatever was on offer, regardless of cost or convenience.
You will be glad to know that I have truly left behind those feelings of despair and the accompanying depression. Of course, I still think that recurrence is possible at any time and that I need to be vigilant at all times with regards to anything "unusual" happening in my body. I concentrate these days on keeping myself in good physical and mental condition: nutrition, excercise, sleep, meditation, etc. I make sure I keep all my follow-up appointments.
I find it quite satisfying to be able to keep my side of the bargain. The other side of it is, I guess, in the hands of fate or chance or God or maybe even my doctors!
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Marymom
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Joined: Mar 22 2019
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Posted: Nov 11 2019 at 4:26pm |
After treatment, I was like the Peggy Lee song...Is That All There Is! I think it is common for us...because we have no maintenance options. Then I realized I did have options. Those options were led by none other than me! I read about supplements, diet, exercise and the faith I have always had...just got stronger. The words,” Be Still” became my focus. I was still and listened and learned. My attitude today...is wow I really came through that. So, today I see you all, hear you all and celebrate you all! Now I hear the Helen Reddy song, “ I am Woman Hear me Roar” I guess I changed my tune! So, on that note...love you all and I pray for all those on this site everyday. I think sharing on this site is so important...we know we are just downright normal!💙
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strongtogether
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Posted: Nov 12 2019 at 5:16pm |
FullTilt wrote:
This is a very exciting result from the first patient in their Phase 2 trial using a monoclonal antibody CCR5 inhibitor (Leronlimab)! If you are interested in getting into this trial call me or email me and I will help. Ryan 785-332-5588 rwshay@hotmail.com
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That's really interesting fulltilt. I see it is used in the metastatic setting. Are there any plans for trials on M0 patients?
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strongtogether
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Posted: Nov 12 2019 at 11:33pm |
I'm not sure I understand. The trial is for metastatic cancer. I understand that you have met the doctors and they are excited, but there would need to be a different trial before people who are not Metastatic can join it. Is that your personal phone number that you have shared?
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