CarynRose |
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Nancy 
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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 Topic: CarynRosePosted: Oct 23 2008 at 3:25pm |
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Ladies,
I just read CarynRose's carepage, and her hubby did the update. This morning when Caryn was brushing her teeth she could not spit to rinse, nor could she get her face to smile. He said she recognized what this might be and called 911 and had herself taken to Robert Wood Johnson.
She had a CAT scan and it showed nothing...( he jokingly said oh c'mon you know what I mean!). The story Caryn related to the medicos strongly suggest a TIA...mini stroke. She still has a dull headache and ringing in the ears and tomorrow they will do another test.
Her hubby said that prayers and warm thoughts are welcome.
Just thought you all would want to know.
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 23 2008 at 3:29pm |
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I just saw where Beth Anne posted about Caryn on the Welcome New Members forum. I just got on the site and didn't see it.
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Cheryl51
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Joined: Dec 31 2007 Location: El Cerrito, CA Status: Offline Points: 314 |
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Posted: Oct 23 2008 at 5:32pm |
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I just want to give a shout out to CarynRose....I'm sending love and light.
Cheryl51
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Diagnosed 3/07, Stage IIB, Grade 3, 2/10 nodes positive
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Beth Anne
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Joined: Apr 24 2008 Location: Clairnbridge, Ireland Status: Offline Points: 376 |
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Posted: Oct 24 2008 at 4:24am |
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Nancy,
Thank you for posting here... I am still trying to figure out how to start a new topic...   All my best for Caryn  Beth Anne |
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Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Oct 24 2008 at 7:31am |
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Thanks Nancy for posting,
Big hugs and warm wishes for a speedy recovery Caryn! I'm lighting a candle for you today and praying that this is a minor set back. My sister in-law had 2 strokes at 35 and has made a full recovery. This is my prayer for you.
Love,
Ronda
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DX 3/07 IDC Trip neg, stage 2b, SN biopsy 3 node neg. No vascular invasion, Mast 4/07 AC+T DD Finshed 8/07 BRCA 1, Proph Mast 10/07. Reconst & Prophy Hyst. 10/08
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 24 2008 at 2:00pm |
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Thank you Nancy,
CarynRose heal quickly! You are in my prayers.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 24 2008 at 2:52pm |
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Hey all,
Update on CarynRose.................I am typing what her husband Steve wrote.
Her dear hubby....says:
Caryn had her two tests today...MRI and MRA, and they came back clean. While the jury is "still out", per se, the MD's are calling this a definite vascular incident. In layman's terms, for some reason, blood flow was restricted to the brain, which affected the nervous system...at least that's my understanding of it. All of this seems related to the Avastin which definitely affects the growth of blood vessels. And, it turns out that the facial paralysis was really on the LEFT side (there's still no smile there and that cute dimple is gone).
Caryn is resting comfortably tonight and she and I were both able to get Reiki massages today (Thank you Misha and Deb). She'll be staying in RWJUH until at least Sunday. Phone calls, visits and prayers continue to be most welcome.
Steve
Warm wishes for a speedy recovery Caryn,
Hugs, Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Jessie
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Joined: Aug 07 2007 Location: North Carolina Status: Offline Points: 515 |
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Posted: Oct 24 2008 at 4:11pm |
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You're in my thoughts Caryn, also you, Steve. This has to be very scary for you. I'm so glad you have good doctors who are watching you closely. Hugs to you both,
Jessie
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IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06, systemic MRSA post surgery septic shock, heart attack triple bypass 1/07 no chemo due to infections and heart issues so far NED! |
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NancyJane
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Joined: Aug 25 2008 Location: Key Largo, FL Status: Offline Points: 241 |
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Posted: Oct 25 2008 at 4:14am |
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Dear CarynRose:
Know that you are in my thoughts and prayers. Much love and light being sent your way
 !! |
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41yr dx 7/25/08
Lumpectomy and ax node disection (38 nodes, all clean!) 8/12/08 T2 grd 3, N0, TN IDC BRCA1+ ACx4,Tx12 10/08-3/09 prophylactic hyst, ooph,mast & one-step recon 3/30/09 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 27 2008 at 4:34pm |
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Update on CarynRose... Just got this from Caryn's carepage from her hubby:
More news
Posted 7 minutes ago
Ok folks...here's the latest Caryn had the Lumbar Puncture (hereafter referred to as the LP) today. They (whomever 'they' are) did not find any proteins that would serve as an indicator of spinal METS (metastases), but they did record an elevated white blood cell count, which brings us back to..... ...an indication of some sort of (viral) infection. So we are back to Bell's Palsy or a similar condition brought about, most likely, by the use of Avastin. The theory is that the Avastin activated a chronic condition which previously lay dormant. Stay tuned to this channel for further updates....I now return you to your previously scheduled AOL , or other ISP, session. Steve No wonder Caryn is always in such an upbeat mood....no matter what....her hubby must be the greatest!!
 Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 28 2008 at 6:38am |
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Thank you Nancy!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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billie
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Joined: Mar 30 2008 Location: United States Status: Offline Points: 345 |
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Posted: Oct 28 2008 at 7:35am |
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Hey CarynRose,
We miss you terribly and we all wish you a fast recovery.Lots and Lots of Hugggggssss from all of us. Billie
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Billie posting for sis Betty/67/caucasion female/diagnosed 2-27-08/gradeIII/7mm/invasive ductal carcinoma/T N /clear margins/node neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 28 2008 at 5:27pm |
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Another update from Caryn's husband Steve, and on her carepage.
Oct 28th
Posted 2 hours ago
Dear Diary, After waiting for the cleaning ladies to finish here, I got over to the hospital. My parents had gone over several hours ahead of me. When I got there, two 'clown volunteers' were entertaining the room and I joined in. Apparently, Caryn had 2 clowns yesterday as well, so thanks to all 4 of you for lifting the spirits and for clowning around. I was also delighted to notice a significant increase in the non-indegenous flora (translated: flowers that people have sent) in the room, including a lovely arrangement from my Kingston co-workers. As for Caryn's condition.....well, 'they' are continuing to examine the spinal fluid for the root cause of what would appear to be Bell's Palsy. Caryn's face is definitely drooping more which means it'll be tougher to smile when people come to visit. Still looking into the 'dormant virus awakened' theory or the 'bacterial infection' theory. That's all for tonight, dear friend. Mom and Dad will visit in the morning and then drive back to MD, and I'll be there to visit after work. |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 29 2008 at 5:17pm |
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This just in from Steve...Please read!!!
Update
Posted 34 minutes ago
Hello All, We got some rather disturbing news today from the oncologist at RWJ. Apparently, further studies of the spinal fluid revealed the presence of atypical cells. To a cancer patient like Caryn, atypical =cancer. They are supposed to do a second tap tomorrow. Suffice it to say this is not at all good. At this point, I do not know exactly what comes next, but what I do know is that I MUST make this URGENT appeal to family and friends...Caryn is feeling very afraid and very small right now and she needs you...I am begging you...visit, call , send flowers, send cards, send prayers....please. Steve Edited by Nancy - Oct 29 2008 at 6:05pm |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Bunnysmama
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Joined: Jun 19 2007 Location: Newburyport, MA Status: Offline Points: 254 |
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Posted: Oct 29 2008 at 6:23pm |
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Nancy, I've been off the site for a while and just saw this posting. Please let me know how I can get in touch with Caryn. She has been so strong and positive for all of us, and she deserves to know how much love and support she has from us in return.
Caryn, you are in my thoughts and prayers.
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Dx 11/06 @ age 37
IDC Stage I, Grade 3 BRCA2+ |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Oct 29 2008 at 6:33pm |
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Another update from Steve....
Address
Posted 14 minutes ago
For those of you who have asked for it, Caryn's address is: Patient Caryn Rosenberg Room 4227 Thank you thank you thank you |
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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Sadie Rose
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Joined: Mar 28 2008 Location: United States Status: Offline Points: 96 |
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Posted: Oct 29 2008 at 6:55pm |
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Nancy- Thank you for sharing this information. I am getting a card out tonight.
Sadie
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Oct 30 2008 at 8:09am |
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Nancy thank you so much!
My card is on the way and CarynRose you are in my prayers that this second tap is a clear one.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Sadie Rose
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Joined: Mar 28 2008 Location: United States Status: Offline Points: 96 |
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Posted: Oct 30 2008 at 12:07pm |
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CarynRose,
Thinking of you today. Sending positive thoughts your way~~~~~~~.
Warmly,
Sadie
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Jessie
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Joined: Aug 07 2007 Location: North Carolina Status: Offline Points: 515 |
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Posted: Oct 31 2008 at 8:01am |
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Nancy,
Thanks for the address.
CarynRose and Steve,
I'm sending my prayers for your peace and strength.
Love and hugs,
Jessie
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IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06, systemic MRSA post surgery septic shock, heart attack triple bypass 1/07 no chemo due to infections and heart issues so far NED! |
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