This is just wrong |
Post Reply 
|
Page 123 14> |
| Author | |
mainsailset 
Senior Member 
Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
 Post Options
 Thanks(0)
 Quote Reply
 Topic: This is just wrongPosted: Feb 01 2012 at 12:23am |
|
No matter your political leanings, the idea that Susan Komen has pulled their grant support for Planned Parenthood to fund cancer screenings is just plain wrong.
|
|
|
dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
|
 |
|
|
Katherine
Newbie 
Joined: Nov 15 2009 Location: Switzerland Status: Offline Points: 3 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 7:04am |
|
Sigh...
|
|
|
Diagnosed 7 November 2009 (age 42) with grade 3 TN IDC (2 cm) and TN DCIS. Two lumpectomies (for clear margins), 3x FEC, 3x taxotere and god knows how many rads.
|
|
|
|
|
Charlene
Senior Member
Joined: Aug 14 2010 Location: Atlanta, GA Status: Offline Points: 613 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 7:35am |
|
I will not support anything that benefits Susan G. Komen until this gets changed. Very disappointing!
I also think they are far too protective of the "for the cure" logo.
Charlene
|
|
|
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
|
|
|
|
123Donna
Senior Member
Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 8:22am |
|
< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">
So disappointing. No support for Komen from me either.
Edited by 123Donna - Feb 01 2012 at 8:53am |
|
|
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
|
|
|
|
mainsailset
Senior Member
Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 10:22am |
|
I wonder if there is an online petition being formed. I tossed and turned all night thinking of the women and their families who may now see their health jeopardized.
No one better than our community and those that share our situation understand the sheer terror of going down this road and to think of having any kind of funding pulled is just beyond imagination.
|
|
|
dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
|
|
|
|
mitymuffin
Groupie 
Joined: May 20 2010 Location: Asheville, NC Status: Offline Points: 67 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 1:07pm |
|
I agree with you!
|
|
|
Diag. Triple neg. 4/23/10 Stage IIB, 3.2cm, grade 3, 1/11 lymph nodes, lumpectomy 4/23/10, AC + T + Avastin, clinical trial 5103, Rads, age 59
|
|
|
|
|
cheeks
Senior Member
Joined: Jan 14 2011 Location: North Carolina Status: Offline Points: 676 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 1:31pm |
|
I agree -tooooo much politics everywhere right now especially with elections looming - what is the motivation for such craziness??
Blair
|
|
|
Lump found 11/08
DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
|
|
|
|
mainsailset
Senior Member
Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 1:43pm |
|
A friendly birdie sent me the link to this Credo petition, so here it is for all to add their names
|
|
|
dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
|
|
|
|
cheeks
Senior Member
Joined: Jan 14 2011 Location: North Carolina Status: Offline Points: 676 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 1:45pm |
|
M,
Thank the friendly birdie  signed, sealed and hopefully delivered and posted on my facebook for all my retired Medicaid eligibility coworkers to read. Breast cancer has nothing to do with whether a pregnancy is planned or unplanned - it's about the women. Blair
Edited by cheeks - Feb 01 2012 at 2:00pm |
|
|
Lump found 11/08
DX: 2/09 @52 TNBC L. Mast. 3/26/09, SN-, BRCA-, 4.5 cm (post surgical)T2NOMO Chemo: 4/09-10/09 Taxol x 12, A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018. |
|
|
|
|
ds21
Groupie
Joined: Dec 23 2011 Location: Michigan Status: Offline Points: 92 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 2:03pm |
|
This is unfortunate in so many ways. It must be divisive within the organization and will hurt participation in SGKF sponsored events which ultimately is going to hurt a significant source of funding for breast cancer research. I hope they reverse this action promptly.
David |
|
|
Co-survivor
|
|
|
|
|
ds21
Groupie
Joined: Dec 23 2011 Location: Michigan Status: Offline Points: 92 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 2:08pm |
|
@Mainsailset - the petition server is very slow to respond which is either a good sign, or someone is being nasty on the internet. Hope the former.
David |
|
|
Co-survivor
|
|
|
|
|
mainsailset
Senior Member
Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 2:19pm |
|
David, apparently the site is near to crashing with the high traffic it is experiencing. Here's another article http://www.huffingtonpost.com/2012/02/01/susan-g-komen_n_1247262.html The outrage is spreading so fast on this it is indeed viral. Luckily PP is noting that in the last 24 hours their donations have spiked tremendously as well as the discusion has opened the doors on awareness of the cancer screening value.
|
|
|
dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
|
|
|
|
Charlene
Senior Member
Joined: Aug 14 2010 Location: Atlanta, GA Status: Offline Points: 613 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 3:00pm |
|
Mainsailset--took me two tries, but I signed the petition and posted it to my FB page.
|
|
|
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
|
|
|
|
mainsailset
Senior Member
Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 3:55pm |
|
Makes me proud to see this community step up on this situation. I was a bit hesitant to bring it forth because of all the political hits that are being swung but then I thought that indeed the best way to remove the political heat is just to lay it out there as a human concern from the standpoint of 'there but for the grace of god go I'.
Hopefully that's the direction this wrongheaded decision will turn.
|
|
|
dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
|
|
|
|
christina1961
Senior Member
Joined: Feb 08 2011 Status: Offline Points: 165 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 4:05pm |
|
Signed and posted on my facebook but boy, did it start a firestorm! |
|
|
2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox.
|
|
|
|
|
mainsailset
Senior Member
Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 4:09pm |
|
Christina, maybe I can help, what kind of a firestorm?
|
|
|
dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
|
|
|
|
christina1961
Senior Member
Joined: Feb 08 2011 Status: Offline Points: 165 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 6:04pm |
|
Mainy,
Thank you! I've got people arguing on my page, posting articles, etc.. I just posted the article you provided, and politely presented my position.
|
|
|
2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox.
|
|
|
|
|
overwhelmed
Senior Member
Joined: Apr 06 2010 Location: Greenville, SC Status: Offline Points: 490 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 6:20pm |
|
Thank you. I signed this petition in the middle of the night last night when I was unable to sleep. From what I understand much of what Susan G Komen does relates to bc awareness. They don't donate a tremendous amount to research (I recall Caryn Rose saying this during the last October of her life. I remember it, because it took me by surprise). Isn't providing mammograms and exams part of awareness? Poor women and minorities are already more likely to die of breast cancer because the diagnosis comes too late (and those of us with TNBC know that we need to be diagnosed asap). This is a step backward. Politicizing breast cancer is sad.
< id="_npwlo" ="applicationpwlo" height="0">
|
|
|
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-
|
|
|
|
|
ds21
Groupie
Joined: Dec 23 2011 Location: Michigan Status: Offline Points: 92 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 6:35pm |
|
Whether or not they intended it, the Koman Foundation has stepped into a political firestorm
This is almost certainly going to impact their fundraising dramatically over the coming years. David
|
|
|
Co-survivor
|
|
|
|
|
dmwolf
Senior Member
Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
Post Options
Thanks(0)
Quote Reply
Posted: Feb 01 2012 at 6:57pm |
|
Boy does this piss me off. I just signed the petition and wrote them a letter.
|
|
|
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
|
|
|
|
Topic Options|
Post Reply
|
Page 123 14> |
Tweet
|
| Forum Jump | Forum Permissions You cannot post new topics in this forum You cannot reply to topics in this forum You cannot delete your posts in this forum You cannot edit your posts in this forum You cannot create polls in this forum You cannot vote in polls in this forum |