It is over..........................as Caryn would say....Thank you G-d.
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Posted 6 minutes ago
Dear Friends,
The light has dimmed and blown out...Caryn is now with the angels in heaven. The end was peaceful and serene and occurred at about 10:15 this evening.
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Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008
It was an honor to know Caryn...as others have written above she was an inspiration to me and countless others. She came from a family that had endured much. Her dad was a Holocaust survivor and also had the BRCA mutation that he passed to Caryn...
So, in some way we were cousins as we shared the same mutation.
After meeting her on another message board for a number of years I went to visit her the first time she was in CTCA. I think it was 3 years ago. I traveled to Philadelphia because I was drawn to her somehow.
I saw her in the corner and immediately knew it was her as she was typing on her laptop. She showed me around CTCA and then went for a radiation treatment. It was a long one but she came out and refused to let me drive, even though she looked bushed..Then we had a lovely dinner with Steve's wonderful parents (My condolences to you both as well). The next time I saw her I had dinner with her and Steve and got slaughtered as we played Jeopardy together..The next time I saw her was several months ago when I visited her again at CTCA. I read her the Lord's Prayer at that time but she was not having any of that and remarkably bounced back.
She had such a presence. Such strength. Such wisdom. Such a wonderful sense of humor and such intelligence. She also did not pull any punches about what she felt a BRCA+ woman should do regarding surgeries. I believe she saved many lives.
Caryn, I shall miss you and in some mystical way I believe you will continue to guide my advocacy work. You were a true champion and a mensch.
May you rest in peace, dear friend...
and Steve, you defined what it means to be a good husband and I use my highest compliment, mensch, for you, too. We, here, grieve with you.
My condolences to Caryn's brother and his family, as well and I can't find the proper words for her mom. The worst pain, possible. Losing a child.
love to all here...Caryn told me this site was wonderful and she was so right...we have a beautiful family and we have lost a precious member and she will always be remembered...always..
through my tears,
Steve
p.s. Nancy, again thank you for your dedicated postings...
Edited by steve - Yesterday at 11:02pm
I am a BRCA1(187delAG)+ grandson, son and father of women affected by breast/oc-my daughter, inherited the mutation from me, and at age 36, was dx 2004 TNBC 75%invasive quandrantectomy,PBM,LAVH/BSO
Funeral will be held 12 Noon on Sunday at the Louis Suburban Funeral Home on Broadway at the Fair Lawn/Elmwood Park border. Burial to follow at King Solomon Cemetery in Clifton.
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Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008
I first met Caryn online when she and I found out we both had cancer mets. She was and will always be an inspiration to me. May God grant her eternal rest. I will miss you, dear sweet friend.
Lisa B.
Diagnosed June 2004. Lumpectomy and radiation. BRCA2+. PBM w/DIEP Recon March 2005. Mets in chest wall June 2007. Chemo (Gemzar and Carboplatin) with radiation completed January 2008.
I'm sorry I never got to know Caryn Rose but I followed her journey and found her to be a pillar of strength and always here for others. She definitely was an inspiration to many of us.
My condolences to Steve and her family.
Caryn C.
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
QuoteReplyTopic: CarynRose Posted: Yesterday at 11:17pm
We will miss you Caryn, you taught us so much about this cancer fight. My regards to Caryn's family, peace to all of you.
Shelly Rae
4/09 age 47 Stage 3a, Gr 3,1 node micro AC4 Tx4 Rads x 33, done Dec.1,2009 Clear PET July sm. 3-5mm area watching, 6 o'clock RT breast hope it's a fat necrosis, found by ultrasound, not mamo. or PET
Winnie the Pooh must have been talking about Caryn when he said, "How lucky I am to have something that makes saying goodbye so hard." She was a special lady.
Lee in Denver
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10 that ended my Taxol
Ugh, so sad to lose her. I hope there is some sort of afterlife, and that in it Caryn is restored to health, soaring high above the earth with beauty and wind and a deep vision into all things big and small rushing through her. (Like my dream about death). Soar on, Caryn. You savored every last drop of life and taught us do the same, at least some of the time. By example you taught us to tell the truth, even when it hurts, and to hold on to that humor, even when it seems that there is nothing to laugh about. I admired the heck out of you, and will try my best to follow your example of living life to the fullest even in the face of adversity. love, Denise
I am so sad right now...I also followed Caryn on this site and she was a strength to all of us. I will miss her so much. God bless her . Thank you Steve for taking care of her.
HUG
Rebecca
Age54 DX 12/07 Grand Junction, Colorado Lumpectomy 1/08/08 Stage IIIA grade3 5/19 nodes chemo 5/08 radiation 7/08 clear pet 9/08
Dear TN sisters, I am so sorry about the loss of Caryn Rose. She was a good friend and dear sister. May God bless her and comfort her family at this time. If ever there was an angel to fight for us in heaven, it is Caryn, that is for sure. Sending you all love, gina (nosurrender)
Steve and Caryn's family, I like Donna have tears and more tears. Steve, we thank you for sharing Caryn with us after she became unable to do so herself. She truly was special and so are all of you. Be kind to yourselves, grieve for her, lift up your heads and go on. She would want you too.
Sending love & sympathy to Caryn's family. A life cut way too short by this horrible disease. My prayers are with you.
Genie
DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 86% at biopsy KI-67 99% at MX 3 weeks later Bilateral mastectomy 4/1/08 Node-, BRCA 1/2- TX:Cytoxan/Taxotere x4, 3rd in family with TNBC
Caryn Rose, your spirit will continue to live in each and every one of us. You have impacted the lives of so many, many people.
When we are placid in our disease, we will enjoy our lives, as you taught us. When we may be faced with problems and much fear, we will fight, as you taught us. Through the beacon that was your light, you will continue to teach us.
There is a bright new star in the sky from this time forward.
Steve and family, may love surround you all, always.
Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 DD Taxotere every three weeks - rads x 33
God Bless you Caryn, Steve and your loved ones. I do not post much anymore but have followed every step of Caryn's journey and like everyone else here I dreaded this day and feel profoundly sad that such an amazing person has been lost so young--and that she had to endure so much in the final years of her life. I know I could never have faced Caryn's circumstances with the strength, candor and unselfishness she showed.
Sister DX'ed 11/08 Lumpectomy & SN biopsy 12/08 1.1 cm tumor, node neg (0/2) Stage 1 DD A/C x 4, Taxol x 4, completed 4/17/09 33 rads (incl 8 boost), completed 6/22/09
At some point last summer, I stumbled across Caryn Rose's thread and read every entry that morning. I believe it started with her discovery that the cancer had spread and continued through to a time where her daily sufferring was apparent. Her courage, strength, and humor was evident as she faced this terrible disease. She was such a force, and she impacted so many. Her time here has ended, but she lives in the hearts of so many.
God Bless all of you.
Lori
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds,DONE! 30 rads DONE 12/23! Avastin-18 rnds, will be done on 6/6/11
Thank you Lord for your mercy upon Caryn Rose, her Mother, Steve, Steven & all her Family!
Family ties have certainly been predominant in this journey back to You Lord!
How to live, love, enjoy, show compassion, have empathy, find the humour in everything and friendship has been so visible in this journey from the first moment until the last breath was taken by Caryn Rose. I hope that others will learn that when a commitment is made to each other, there is nothing that can break that commitment. NOT even death....
The life we were blessed to be a part of has left this world, but Caryn Rose's memory will live on in the lives of the many people she has touched right here at this foundation as well as in her daily life. My deepest sympathy goes out to all of you, through my tears for the loss you are feeling right now.
"Grieve if you must, but not too long, for I am at peace and no longer feel the pain. Live your life to the fullest and in all things remember me." (An excerpt from my Mothers' eulogy)
Shalom,
Helen in NS
Helen in NS Diag @ 57TNBC 04/09SN 2.5cm Stage2gr3quad05/09TCx407/09 Comp10/09 Rad1612/09fin12/31/09 CT03/01/10 FU03/31/10 mammo CLEAR23/10 ref2Gyn/Onc 05/13Wait&see08/10lump?BRCA-12/10BoneScan ok
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
I have been following Caryn Roses battle and I know she fought with dignity, she was my inspiration and gave me hope with this disease, I know she is at peace and she fought this disease to the end. My thoughts are with her family and friends. She no longer has pain and is up with the angels. This is a very sad day.
diagnosed Sep08,TNBC IDC 5cm tumour, 1+ node, Mastectomy and Axilla dissection May09, 4 of Fec and 4 of Taxotare. 15 Rounds of Radiotherapy. 2.5 years from diagnosis. Reconstruction November2010.
Not long after I joined here, I found Caryn's thread and have kept up with her heroic battle since. She will be missed by so many and Steve and her entire family will be in my prayers. She leaves us a beautiful legacy of grace, humor, and spunk. I would love to have known her personally, but am thankful that I could know her through this forum. Love to her and those who love her.
Laura
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
Even though I never had the privilege of meeting Caryn, I somehow felt so connected with her as I helped my family navigate their BRCA mutation, decisions, and my sister's TNBC now metastasized to her bones, lungs and liver. Caryn was a true inspiration as is her husband. I only hope I can be that strong for my sister when the end is near. I pray for her family to somehow find a way to deal with this tremendous loss and to find comfort in how many lives Caryn Rose has touched.
Rosenberg, Caryn H. (nee Rosenblum), age 50, of Robbinsville, NJ, formerly of Bloomfield, NJ passed away on Wednesday, December 29, 2010 at her home, beloved wife of Steven J. Rosenberg, cherished daughter of Sandra Rosenblum of Monroe Township, NJ and the late David Rosenblum, loving sister of Steven H. Rosenblum and his wife Riesha of Fair Lawn, NJ, adored aunt of David Rosenblum, Sam Rosenberg, Andrew Rybczynski and Miriam Rybczynski. Caryn was a graduate of Rutgers University in New Brunswick where she earned a B.S. degree in Communications. Caryn was a corporate event planner for the New Jersey Economic Authority in Trenton, NJ and was a member of Facing Our Risk of Cancer Empowered. Services will be 12 Noon Sunday, January 2, 2011 at Louis Suburban Chapel, 13-01 Broadway (Route 4 west) Fair Lawn, NJ, burial will follow at King Solomon Cemetery, Clifton, NJ. Memorial donations in memory of Caryn H. Rosenberg may be made to Cancer Treatment Center of America, 1331 East Wyoming Avenue, Philadelphia, PA 19124.
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
My deepest condolences to Caryn's husband, family, friends and to everyone whose lives she touched, and to everyone who loved and cherished her. Her strength, courage and humor was deeply evident to everyone here, and her absence is a terrible loss to us all.
May her memory be a blessing.
Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes.
4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010.
I remember reading Caryn's posts when I first came here and feeling the light she emitted with her character and soul. What grace and strength! And heart, humor, and humility, too. Godspeed, Caryn. Thank you for everything you did and will continue to do. Your spirit lives on. Deepest sympathies to Caryn's family.
Did everything right; got screwed anyway. BRCA Negative.
...I sit here in bed and I think of the wonderful things people had to say about my beloved wife and I smile for the time we shared, and I weep for the time we will never have.
Although I saw with my own eyes that she was in the coffin, I know that she was above us and all around us, surrounding us with her gentle spirit...giving us all the will to continue on...to honor and to cherish her memory. And I have to believe that same spirit was, in part, if not wholly, responsible for making it rain as we turned into the cemetery, and for making it stop as we approached the grave site---just another reminder of who was still in charge :)
In the days, weeks, months and years to come, we will feel her in the sweet breezes, we will hear her in a favorite melody, we will think of her in passing conversation, in an overheard phrase...and we will know that she will never truly leave us.
My life has been blessed as never before and I am truly thankful for my nine years - ups and downs- with such a courageous, sweet, warm, loving, intelligent woman of valor.
Rest in Peace my love, my friend, my soul mate, my cherished partner
Caryn H Rosenberg 28 Jun 1960--29 Dec 2010
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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
Steve, that's so beautiful. She was lucky to have you in her life. I wish you well as you move into this next phase of life. Whatever happens, you can be proud of the way you have conducted yourself through grueling circumstances. You can know that you did all you could, that you cared for Caryn and loved her from the day you met to the day she died. You were there for her. If you ever wondered what sort of man you are, I hope you can feel in your bones that you have proven yourself to be a man of great integrity and love. Let that be a comfort to you, along with memories of your life with Caryn, your dear wife. love, Denise
So sorry to hear of Caryn's passing. She is at Peace now. God Bless her, and God Bless her husband and family - that they may know Peace too, in their grieving and beyond.
Caryn was a powerful force for this Forum, and others, as evidenced by the outpouring from friends and "strangers" (myself) alike. We can all draw from her strength, and hope to have her grace during our own battles with this disease.
Deepest sympathies to all her family and friends.
Deborah.
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
Your love for Caryn is so evident in all that you have done for and with her over your short but quality nine years together. Some people never experience what you two have... the soul mate part! So you have been very fortunate to have this...
My best friend Elaine who passed in September married Freeman and he lost his first wife just 6 years before they met. So he has two wives lost within six years. Needless to say he was devastated by both and still is to this day. If you ever need to discuss anything with him, let me know and I can hook you two up.
Also, Craig who's wife Diane (a member here) lost her battle with tnbc just the other day as well. You are never going to be alone any more, just log in and we are here for you too.
The days ahead will be difficult but we learn to adjust to the changes and it doesn't get better it just becomes more manageble....
Thank you for sharing and keeping us posted on your journey to the end of one day and today another new beginning. Caryn is just a whisper away....
...you've taken enough hits for a while, life throws you another one. My ex-wife called me this morning to tell me that our daughter, who some of you saw just this past Sunday, was hit by a car while crossing a street in Houston (she went back there only Wednesday afternoon, so not even a full 24 hrs later).
I don't have all the details as to who, how, where, why....what I do know is that Melissa is in ICU with broken ribs, a laceration on her skull, a concussion, broken neck and collarbone...
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
I just got off the phone, that's right--the phone, with Melissa, who called me on Mary's cell. She is OUT OF ICU and in a regular room. She is sheepish, chagrinned and all those other similar adjectives. The doctors will be putting her on solid food some time later today. As previously stated, she has a few cracked ribs, a broken clavicle (arm in a sling) and a body full of bruises.
The 'dad' in me could not help but giving a few 'lectures' (including to always make sure you have your bus pass, which is apparently what triggered the whole incident---also, never get into an accident while your dad is mourning his recently deceased wife), but the 'father' in me is weeping for joy at the recovery and prognosis.
On the lighter side, I received a huge Peace Lily today....I have a severely 'black thumb' so if anyone knows anything about the care and feeding of this plant, please post or e-mail me.
And lastly, but not leastly, on behalf of the families, I want to thank all of you who have sent condolences and warm memories of Caryn, and prayers for Melissa....they are all very much appreciated and I am very touched and consider myself very lucky to have such support in trying times.
Steve
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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
So Happy for Melissa! Way to go! She is from good stock and can't keep a good girl down!
Get some much needed rest now Steve and about the lily, my thumb is probably darker than yours so I am no help for that one...he, he, he....Check online with the name of it they may give you some pointers....
Great news and thanks for the update! We love to hear from you.....
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