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trip2 
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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 Topic: Good news Bad newsPosted: Jun 15 2007 at 1:52pm |
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Well I received good news last week, my latest liver scan was clear. Whoohoo!!
Earlier they had seen 3 spots, sent me in for a biopsy and had me everyway but on my head and couldn't find them!
So new scan says A-ok but Onc says we'll keep watching. Due for another PET soon too. Had a little suspicious something there last time in my lungs.
My hair is starting to come out again. Thought it would be easier this time having been thru this before but not happening.
 So maybe out w/the clippers and razor and get on w/getting well.
What did the rest of you do to make it easier? The hair thing is a tough one for us.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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CalGal
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Joined: Jun 04 2007 Location: United States Status: Offline Points: 159 |
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Posted: Jun 15 2007 at 2:57pm |
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Hi Again,
Congrat's on the clear liver scans! That is great news! Hopefully the same for anything suspicious on your lungs. Bummer about your hair falling out ... You saw my post about the frozen gel products on the other thread ... darn, wished you'd heard about that before starting Taxotere ... From other women who lost their hair on Taxotere, you lose it on the front end, but for some, it starts regrowing while you're still on it. I understand the difficulty of losing your hair again. Although my hair is still short, it would be hard to lose it again. Even though I tried to prepare for the hair loss including pre-arranging with my hairdresser to cut it super short in the privacy of her home rather than the shop, my immediate reaction as soon as we left her place, was a hard cry. I mean balling with the seat reclined while my husband drove. I cried all the way home and then closed all the curtains. I did not want to leave the house. That really freaked out and scared my husband. He saw a long road of chemo ahead and felt I couldn't just stay like that ... That's the only time I thought he wasn't supportive ... I needed time to mourn ... While I knew I was more than my hair, it had been a part of my identity my whole life - the tall girl with long blonde hair. Plus, it was a public statement of the cancer, that I'd been very private about. Due to my husband's pushing, staying home only lasted 2 days and on the 3rd day, I sucked it up, put on a wig and a hat and went for a favorite beach drive (couldn't put the top down though ... what if the cap or wig blew off?!) Sorry, I don't have any suggestions to make the hair loss easier ... other than to say I understand that it's really difficult ... and maybe suggest some new head-coverings ... I prefer more casual and found some good ones at an outdoors hiking/backpacking store. CalGal |
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BRCA1
9/04 Bi-lat lump, clear SNB 38x Rad'tn 12/05 Recurr bc & mets to liver 06 the year of chemo NED for 13 mos until 7/07 Lung met. PARP trial until ... 2/08 Liver mets again |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 16 2007 at 5:29am |
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Calgal you always have something interesting to write, I would have never thought of an outdoors hiking/backpacking type store.
Although I live in a very rural area and the lack of stores is pitiful I do have this puter and occasionally go to a real city! lol
I do have some turbans ready though. I just don't like the wig thing, not for me, too hot and uncomfortable. My daughter loves hers.
yes you are so right, even when we are private people once you have on a head covering then there you are for all to see. Our closest town is tiny and I feel like I so stick out w/a turban on my head. The first time I never spotted another sole wearing one so maybe they do the wig thing.
Thanks for the congrats on the clear CT, what a relief although do we ever stop worrying????? I feel better though.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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*Kristi
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Joined: Jun 12 2007 Location: United States Status: Offline Points: 5 |
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Posted: Jun 16 2007 at 6:09pm |
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So great to hear about the clear scans! And for the hair, well, I'm expecting mine to start coming out any day now. It's been almost 2 wks since my first round of a/c.
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Kristi
My caner blog |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 17 2007 at 4:58am |
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Thank you Kristi!
I read some of your blog, it is great and put it in my favs so I can go back and read some more. Love the new specs.
 Kristi, I did it, I went in and cut mine down w/scissors and then grabbed hubby's shaver to do the rest and would you believe it had been unplugged so had to plug it back in and will finish today.
I just get to a point where the hair starts coming out and it gets annoying, hair everywhere. I felt a little more in control of things by just getting it done but it is so hard, there is no doubt about it.
If you haven't heard, the Look Good Feel Better programs are really nice to go to and they'll help w/make up and ideas for things to do w/your head, well that didn't sound right but you know what I mean. lol
They give you loads of fantastic name brand make-up and I hear some have scarves and wigs. Check for a program in your area. My clinic usually posts a flyer on the wall for the upcoming session. I'm going the 16th of July. Also this website will give you tips you can read online.
The eyebrows were my toughest challenge.
I am not a big make-up person but I find this helps as sometimes we are paler or feel awkward w/hair loss so think I'll do a little work on my face to make me feel better.
How are you doing on your AC so far? I had that 4 years ago.
Edited by trip2 - Jun 17 2007 at 5:00am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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*Kristi
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Joined: Jun 12 2007 Location: United States Status: Offline Points: 5 |
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Posted: Jun 17 2007 at 9:14pm |
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Hi Pam. Glad to hear that you bookmarked my blog! Another lady I know that was recently dx'd with bc told me about the LGFB program. I looked it up and found out that they do have them close by and the next one is July 2nd. So I'm gonna try to find out more tomorrow about registering and such. As far as the A/C, it's been a lot better than I had expected. But, I've only had one treatment, round #2 comes this Wed. I'm guessing that they might get a little worse each time? Or at least I have read this on a few other message boards. But, thankfully I am blessed to have a great circle of support. Between my family and my husband's, we have plenty close and willing to help out. It's really great to have them take the kids for a few days, that way I can rest as much as possible if I'm feeling bad.
Ya know, I have to say... even tho I was told that I was triple neg a while back, in the begining of all this, I didn't really understand what it meant. But, the more I have read about it, I now realize what it all means, and it's just down right NOT FAIR!
I mean here we are and no one knows what "drives" our disease, so if they don't know what drives then how the  can they find out how to stop it?!?! Man, I am really glad that there is places and people like this who are determined to find out more! Oh geez, I'll get off my soapbox now, lol! It just really ticks me off about the whole triple neg thing! |
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Kristi
My caner blog |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 18 2007 at 6:52am |
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Kristi I was like you my first time w/bc. I went almost 3 yrs. before I got ahold of my pathology report and began to study my situation. We really need to stay right w/the paperwork when we are dx but sometimes we are so overwhelmed by it all that we just do what we are told. I'm glad you are learning about your path! And you are right, it isn't fair and you can get on your soapbox all you want, maybe we all should get louder.
It sounds like you have a wonderful support system and that will help you so much. Good luck w/your treatment Wednesday, let us know how you are doing. I'm happy to hear so far so good. Things have improved since 03 when I was in treatment, they have more meds to help us get thru the treatments so that is great. Hopefully, you'll do well all the way thru.
My daughter who is 38 just finished ACT and she did really well except
for being tired. We're all different so may respond differently to chemo.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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lucky
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Joined: Jun 17 2007 Status: Offline Points: 107 |
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Posted: Jun 18 2007 at 12:41pm |
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Hi,
Congrats on the good news!!!!
 Well, within two weeks of my first dose of chemo back in October, my hair fell out. My eyebrows and lashes went also. It was wintertime so I didn't mind wearing a hat whenever I went out. It barely started to grow back
in late February. Then I had my double mastectomy and lymph node dissection this past March - and then started radiation in April. Well, that stopped my hair from growing back. So now I still have barely a 1/4 inch of hair on my head. I now decided to think of the advantages of not having hair or barely having some.
I get up in the morning - shower - shake my head
 - and I'm ready to go! Ahhhh ............. no mousse, gel, hair dryer, or hair spray to worry about. And - with it being summer like now, it feels really good to have a warm breeze on my nearly bald head. Now, when I am out - if I want - I put on a hat that gives me a more youthful look - like a baseball cap ( I'm 57 )
People tell me I look like a kid with it on and that kind of makes me feel good. And - I've noticed that wherever I go - shopping, or walking ...etc.
Everyone is wearing some kind of hat.
A friend of mine told me that " the hair is the least of anyone's problems." I thought about it - and you know what ?? She's right.
How's that sound ??
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 19 2007 at 3:52am |
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Lucky, thank you and you are so right, the hair is the least of our problems!
I did it, shaved it off over the week-end and already I see people outright staring at me or double taking, honestly, I think my wearing the turbans helps draw attention. If I wore a wig or hat then of course it wouldn't be so noticeable.
I love your attitude about the hair though, sounds like you have it figured out. I'm afraid of the hats, they look so cute on everyone else but I am worried about it covering my whole head, I'm just a bashful gal I guess.
I'm 60 and think the little do-rags look cute on the younger gals too but I'd never wear one myself, too much showing. I'm pitiful.
 I too had a double mastectomy and lymph node dissection in March and no reconstruction so dealing w/getting used to the flat look right now. I've been having trouble w/fluids so have been getting alot of aspirations but yesterday my Onc said he thought we were done so hopefully in a month or so I can finally get fitted!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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