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renee1822 View Drop Down
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    Posted: Oct 11 2010 at 4:20pm

Hello all,

I was just diagnosed Aug 18 with stage II triple negative breast cancer.  I had a lumpectomy on Aug 13 and then again on Aug 27 for more clear margin along with 4 lymph nodes removed all came back as negative.  I was told my lump was just over 2 cm, my doctor never mentioned what grade it was.    I had my first chemo on my birthday this year and this week will be number 3.  My dr. has me on adrymicin and cytoxan for 4 rounds and 4 rounds of something else that I can never remember.  I also had a bone scan and ct scan along with a muga scan all came back as fine.

I really not sure what to expect as treatments go on.  I have days where I'm ok and then other days I'm freaked out because of the triple negative dx.  How does everybody get by? I could use some positive energy right now, I'm feeling very nervouse about treatment number 3. 
Hugs to all,
Darlene
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unklez View Drop Down
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Points: 1000 		Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Oct 11 2010 at 6:10pm
Dear Darlene,

Sorry to hear of your diagnosis. However, I want to assure you that this website is the best place for finding patients, survivors and caregivers who are willing to share their experiences and help.

Glad to hear that bone and ct scan came back clear.

The 4 rounds of something else after adriamycin and cytoxan is most likely taxol.

MUGA scan is basically a test of heart valve function. They will probably do another MUGA after chemo.

Chemo especially the AC part is the hardest part of the treatment. The side effects from radiation are much more tolerable.
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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123Donna View Drop Down
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Points: 13510 		Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Oct 11 2010 at 7:15pm
Hi Darlene,

Just wanted to stop by and say hello and welcome you.  I know you're on an emotional roller coaster right now.  I had the same emotions and sometimes, still do.  You've found a perfect place to talk, ask questions and be with others that get what you're going through. 

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Hi Darlene,

I'm so sorry you have a need to visit this site, but it can be of immense help to you. Donna mentioned the emotional roller coaster you're on now. I had the exact same emotions and sometimes it was a minute by minute existence. Very emotionally and physically draining. I know that the steriods were part of my problem along with everything else.

I had my last treatment Nov. 15, 2006. So I am almost 4 years without recurrence. I wish I could tell you that I just skipped all the emotional ups and downs, but I didn't. It does get better with time.

I realize you are not in a place to really appreciated what I'm telling you today, but please take some reassurance that there is life beyond chemo and radiation.

Just keep posting with all of your feelings, fears, doubts, joys, etc. This site can be a beacon for you as you travel this journey.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Falcon View Drop Down
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Hi Darlene,
 
Stay strong and positive good thoughts and prayers are heading your way from all of us!
My daughter Jessica
Treated and Healed!!!!!
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Points: 401 		Post Options Post Options   Thanks (0) Thanks(0)   Quote TracyAMac Quote  Post ReplyReply Direct Link To This Post Posted: Oct 11 2010 at 8:50pm
Hi Darelene

Sorry you are here but as other said it is a great site for support from others as well as info and research info. Sounds like you are near the end of chemo - congrats! I am finishing mine this week.
Not sure how old you are and if you have kids but you might want to ask your onc. about genetic testing for the BRAC mutation (re risk of future BC or ovarian cancer)

Tracy in Toronto
TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial
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Judy g View Drop Down
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Hi Darlene,
Welcome!
I too had a/c then taxol then radiation.
I think it's a little different for everyone.
For me, I didn't overload myself with so much information at the beginning as I felt like I didn't want to scare myself, and I felt like I needed to know, just what I needed to know at that time.
As time as has gone, I've gotten more information as needed, again thats what works for me.
I started a blog, and that has really been a life saver because I could/can write about what ever I needed/need at the time.  anything from stupid people things that upset me, Dr.s treatment, good, bad all of it.  I have also learned to find a sense of humor, hard to believe, but it's there and that too helps.
Just find what makes you feel good and go for it.
:)
Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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conniec View Drop Down
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Points: 120 		Post Options Post Options   Thanks (0) Thanks(0)   Quote conniec Quote  Post ReplyReply Direct Link To This Post Posted: Oct 11 2010 at 11:02pm
Hi Darlene,
I'm a newbie too.  This site has been very helpful.  I have had lumpectomy, sentinel node biopsy and am now recovering from double mastectomy.  I start chemo in 3 or 4 weeks.  It's all happened so fast for me that there has not been a ton of time for emotional breakdown.  I get teary at times when something trigers it but I have been in attack and prayer mode to keep my head up and feeling strong.  You can post anything here and you will be surrounded by instant friends.  None of us would be on this site if we didn't feel good about verbalizing our fears and getting support from each other.  Your treatment sounds almost identical to the one that was outlined for me.  It sounds like you are right on track.  Perhaps hearing that many others are  on the same treatment schedule will boost your confidence.  Keep us posted.
Connie
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Points: 15 		Post Options Post Options   Thanks (0) Thanks(0)   Quote ssabouri Quote  Post ReplyReply Direct Link To This Post Posted: Oct 12 2010 at 12:02am
Hi Darlene
two years ago I was in your shoes, we have the same diagnosis. TNBC stage II, no lymph node involvement. Please rest assured that our kind of cancer responds very well to treatment. although you might feel nervous and sad, please do not think negatively, I know that its easier said than done but believe me it's possible and it makes a world of difference. I know we get hit by the chemo and get all ugly and bent out of shape, we lose our hair and eyelashes but so what. soon your chemo will be over , your hair is going to grow back, you are going to feel whole again, I promise. please drink plenty of water, eat as much healthy food as you can. a little bit of anxiety and depression is very normal and your doctor can treat it with ativan or xanax, don't worry about it, don't be scared. It will all be over soon and you'll have your life back, I promise. By the way have you had matectomy yet? it's agood measure, you might want to think about it.Clap
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Carol (Tenn) View Drop Down
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Points: 2707 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Oct 12 2010 at 5:41am
Good Morning,
I've been remiss in keeping up with all the forums and would like to take this opportunity to welcome all our new members.
As you can see by my stats, that I am a 2 yr survivor and had one recurrence. Yes, there is also life after a recurrence. It's been sixteen months since the second dx and I am doing well and adjusting to my new normal and you all will too.
Please let me invite you to visit the Spiritual Support thread if you'd like. We are just a bunch of prayer warriors praying for everyone in the fight. We also have a daily devotional.
Love and Prayers,
Carol
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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