6 year Survivor |
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msm082455 
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Joined: May 15 2008 Location: United States Status: Offline Points: 22 |
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 Topic: 6 year SurvivorPosted: Aug 29 2010 at 7:30pm |
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I rarely post on this board, but read daily. Like Lisa before me, I just wanted to let everyone know, I am a 6 year Survivor of TNBC. My "anniversary" date was Aug. 27th. |
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Michele,PA,55
Dx 8-04,IDC, Gr.3,3 CM Lumpectomy w/SNB,9-04,clear margins,Triple Negative 4A/C,4TA,Rads, BRCA 1 & 2, negative |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Aug 29 2010 at 7:34pm |
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Michelle,
Thanks so much for posting. We need all the long term survivors to come back and let us know there is hope, even with tnbc. Congratulations  Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Aug 29 2010 at 8:10pm |
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My daughter...6th year anniversary NED, this past week...she was 36 when this started...
I love you, sweetheart...another 60 years, at least, in good health...
all the best to all, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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abcmom
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Joined: Dec 15 2009 Location: Summerville, SC Status: Offline Points: 738 |
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Posted: Aug 29 2010 at 8:14pm |
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That is so awesome!!
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Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11 |
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Shelly Rae
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Joined: Apr 25 2009 Location: US Status: Offline Points: 318 |
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Posted: Aug 29 2010 at 8:17pm |
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I love hearing good news like this! Congrats to you and Steve's daughter.
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4/09 age 47 Stage 3a, Gr 3,1 node micro ACx4 Tx4 Rads x 33, done Dec.1,2009 NED
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janey32960
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Joined: Jun 26 2010 Location: Massachusetts Status: Offline Points: 42 |
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Posted: Aug 29 2010 at 8:19pm |
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Michele and Steve,
Thanks for letting us know. It helps us who are going through treatment now, very encouraging.
Congrats Michele !!!
 Congrats to your daughter, Steve !!!
Thank you,
Janey
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Aug 29 2010 at 8:47pm |
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Steve,
Congratulations to your daughter also. Awesome! |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Lorene
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Joined: Jul 10 2010 Location: Alabama Status: Offline Points: 211 |
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Posted: Aug 29 2010 at 9:34pm |
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I don't know if I reported in on this site during my recent scare;, if so, I apologize for repeating. I recently had a core needle biopsy, then an excisional biopsy because of changes on my mammogram this summer. They both turned out OK, and and I will be a 9-year survivor in October!!!
Lorene
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dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Aug 29 2010 at 9:55pm |
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Lorene,
Hurray!!! Congratulations. We like hearing these stories over and over! |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Aug 29 2010 at 10:50pm |
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Wow! What AWESOME NEWS!!!
Congratulations to all of you on your Life in Survivalship!!!
Bless you all, Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Aug 29 2010 at 10:57pm |
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Michelle, Steve and daughter and Lorene:
You all rock!!!! Two or three line posts like these boost all of us 6 feet high! Gives us all so much hope. God bless you all.
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Aug 29 2010 at 11:03pm |
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WHOOHOO!! Continued NED to Michelle, Steve`s daughter and Lorene!! Thankyou for posting and God Bless.
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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SagePatientAdvocates
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Posted: Aug 30 2010 at 12:10am |
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Dear TNBCF family,
Often lost in all the difficult stories of recurrences and new primaries, in our marvelous TNBC family, is the fact that survival rates for women with TNBC are often better, after 5 year survival, than women with other forms of breast cancer.
I think staying positive and finding the beauty in each day are really important...There is no precision to any of this but often stories like Michele's and my daughter's and perhaps many others we never hear from because women go off the board when they feel support is not needed any longer....and certainly I understand that but this thread is very meaningful and I hope more post... In fact, some of your may know longer-term survivors...Please let them know about this thread and have them post.. The angst, worry and surveillance often create a high level of stress...I know my daughter is nervous every time she goes for her surveillance check-up but she has moved from every 3 months to every 6 months and now every year...She has told me "Daddy, I will never be the same. Having cancer, the surgeries and chemo were a life-altering experience." But she is here, helping literally hundreds of adolescents as a public middle school guidance counselor..and also created with a colleague a bereavement counseling group to ten young people who have tragically lost their parents to various cancers or other diseases/disasters over the last couple of years. It is good for the kids to know they are not alone and I am so proud of the work she is doing. She chooses not to post...but is a resource for every school teacher/staff member in her school and she has openly talked about her breast cancer and chemo experience in large staff meetings. My own feeling is that there must also be an environmental component to breast cancer and the amount of breast cancer, especially among young women, is astounding to me. In any event my heart is with all here...What a marvelous family we have and all the open hearts and generous sharing of knowledge/experiences is so very beautiful. Again, please try to stay positive and try to find the beauty in each day...maybe it's a child's touch, a loved one's embrace, a good book/concert/movie/favorite TV show, a special meal, a sunrise/sunset/vista, reading/writing a special post on this board or in your diary...the list is endless and to be honest my daughter would say somedays "Daddy I didn't find it yesterday" but she made it through that day...maybe that was the beauty...just the act of survival. To be honest, I was totally petrified when my daughter was diagnosed and the thought of losing her, after losing my mother, at age 46 when I was 20, shook me to my core...But here she is and she is fit and healthy and trying her best...We feel blessed, truly blessed...and at the same time I hate cancer with a passion that scares me, at times. Complex emotions. my love to all, Steve Edited by steve - Aug 30 2010 at 12:12pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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DonnaL
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Joined: Nov 04 2009 Location: Florida Status: Offline Points: 53 |
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Posted: Aug 30 2010 at 5:44am |
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This is wonderful to read!
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DX IDC 10/23/09, Age 53
Tumor 2.0 cm, Grade, 3, 2 Nodes, BRCA 1 & 2 -; Clinical Trial with Taxol, Avastin and Adriamycin 11/2009-4/2010; Biateral Mastectomy & lymph nodes; Radiation; Reconstruction |
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scared
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Posted: Aug 30 2010 at 8:46am |
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That is wonderful news, congrats! Tell me though do you feel like you are, "Out of the woods"? Someday, I wish to feel like we are,but being only two years and three months NED, I am as always.... scared.
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Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Aug 30 2010 at 10:01am |
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What a great read this morning - all the survivor tales, and Steve's most eloquent (as always) reminder of looking for the beauty in each day.
Thanks for the good news start to my day!
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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Terri
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Posted: Aug 30 2010 at 10:48am |
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Steve,
Your daughter sounds like an amazing woman (not surprising
 ). It`s wonderful that she is doing so well and has the strength to be so involved to use her experience to help others, even if it`s not by posting here. I definitely feel like we should pay it forward to others and am like the resident breast cancer supporter to our clients at work when they or their loved ones have been diagnosed. I can`t believe how many are dx! They watched me go through my journey and work part time with a scarf on my head, skin a lovely shade of ash green, to the present, looking more like myself but still coming back physically and emotionally. Your point of long term survival for TN`s being better for after 5 years is true and it would be nice for those in that part of their lives to pop in here sometimes and remind us they are out there living their lives (Kirby comes to mind as one who does this).
Thankyou also for reminding us to find the beauty in everyday. This is not always easy when one is dealing with post tx issues like premature menopause hot flashes, sleep issues, and being constantly reminded by society what you`re missing out on because you can`t have children (due to chemo). These things tend to make me grumpy/bitter. But more and more I am trying to remember how lucky I am to just BE HERE, to truly appreciate the wonderfully simple pleasures like hugging my mom, laughing with/bickering with my dh, driving with my convertible top down during a beautiful sunset, and listening to my 16 year old cat purr as I scratch his chin and smooch on him.
Scared,
I am still scared too but as time goes on I don`t think about it as often as I used to. (Maybe only a few times a day instead of every few minutes!) With every normal mammogram and/or scan I try to visualize getting further away from DX and therefore further out of the woods. I may be fooling myself but I CHOOSE to look at it this way and hope my positive thoughts will guide my body to a long life of NED.
Love to all,
Terri
Edited by Terri - Aug 30 2010 at 10:52am |
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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CiGi
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Joined: May 12 2010 Location: Bound Brook, NJ Status: Offline Points: 223 |
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Posted: Aug 30 2010 at 11:39am |
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Thanks for the encouraging posts from longer term survivors. It really gives us a feeling of hope. Some days I feel so upset about the whole thing and then I read such positive posts and it's really uplifting. I have two more chemo treatments left so right now I'm still lost in the woods but slowly finding my way. Hope to see more posts.
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Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.
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gobluegirl90
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Posted: Aug 31 2010 at 10:04pm |
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Congrats to all of you long term NED's....
I love to hear these positive stories of living with NED for many, many years. It is very encouraging to those of us, like myself that are new to this TNBC and are still having many sad days, still in chemo (5 more weeks of Taxol togo) then radiation.
With so much to go still as far as treatments, these wonderful posts are needed for those in the beginning stages of this life long journey. I can not thank you enough.
Steve your words are so amazing, you should really write a book. I would buy it in a heartbeat.
Jennifer
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Age 38,Dx 4/8/10 IDC stage I, No Nodes, GradeIII, Brac I&II NEG lumpectomy, 2 nodes removed(neg)finished 4 AC& T on 10/1/10 33 Rads finished 10/2/10. Married 19yrs, 1 son 11yrs & 1 daughter 9yrs
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NONI
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Posted: Sep 01 2010 at 12:13pm |
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Okay ladies and gents first timer here but guess you guys need to hear some good news, here goes. I was 39 years old back in 1987 when first diagnosed. Back then if you were node negative you had NO chemo. So just had lumpectomy with 6 weeks radiation and never turned back. Seven years ago this month I did have a new breast cancer in the other breast and had a bi-lateral. My 34 year old daughter was diagnosed 6 months later. She had breast cancer in both breasts, she is now 6 1/2 years out and we are both doing great. So over 24 year survivor here and doing wonderful. The only reason I ever came back to these boards was for my daughter and to try and figure out this desease. What I have found out that being TN is not the worst thing and there are so many good things coming out about our specific diagnosis. I loved the fact I did not have to take Tamox and remember after 3 years ladies we have a much better prognosis, 8 years out and we are DONE. Hey time flys when your having fun, can't believe how 7 years just flew by. Many survivors that don't come here. My daughter is one of them and I know many ladies that are very long survivors. BREAST CANCER IS NOT A DEATH SENTENCE. This triple negative is new, I'll bet that many women that are 30-40 years out were never aware of there homone status. Twenty three years ago tamoxifen was in use and on my pathology report back in 1987 states my hormone status was negative. FYI, first time I was stage 1 second time stage 11. I refused chemo the second time, ya I know.....My daughter was stage 1 in both breasts and just had 4 AC.
GOD BLESS ALL OF YOU. I appologize for not coming on sooner.
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