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Chinese Herbs to prevent recurrence?

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LauraT View Drop Down
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    Posted: Aug 10 2010 at 4:32pm
Hi All,
 
I saw a Chinese medicine specialist and he prescribed a formula for me (immune-boosting and anti-inflammatory).  I researched the ingredients on the Sloan-Kettering herbs and botanicals lists and also on the web.  I did not see any real drawbacks as far as side effects or interactions with the supplements I am taking are concerned, but I have not talked to anyone who has firsthand experience in taking the herbs.
 
Anyone taking Chinese herbs?  Any knowlege of them that you can share?  In my pre-cancer life, I was always reticent to take vitamins or supplements, but now I am more willing!  At the same time, I don't want to cause harm or spend money on something that's not worth it.  Any input you have is much appreciated!
 
Laura 
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Aug 10 2010 at 11:08pm
Hi Laura,

Many of us are taking supplements and vitamins and also have changed our diets and life style looking for ways to prevent recurrences or at least in my case to be able to feel I'm doing something about it. You can look up a discussion titled Edge's CAM: http://forum.tnbcfoundation.org/edgescam_topic6149.html?KW=edge%27%27s+CAM
There is also another discussion about Vitamin D which has also been talked about a lot in this site.

My oncologist has in fact recommended that I take a bunch of vits and supplements including Vit C, D3, Calcium, Niacin, B Complex, CoQ10, Magnesium, Selenium, Probiotics and others. I also take by recommendation of my accupuncturist (and with my onc's blessing) a supplement called Zyflamend which is a blend of herbs that promotes healthy inflamatory responses from the body (it acts as cox II inhibitors - antiinflamatories). And I also follos Edge's CAM (you can read all about in the discussion I just mentioned (which my onc said was ok for me to do).

I would recommend that you run what you take by your oncologist. They know better about the drug interactions and also if you have any particular health concern that may be affected by any supplements (remember that just because they are natural doesn't mean they are not affecting your system just like regular drugs do...).

Best,

Natalia
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Aug 11 2010 at 2:19am
I took chinese herbs as recommended by my accupuncturist during chemo. I have no idea what they were. I would simmer them up as a tea and drink it. It looked like a bunch of dried twigs and leaves. I was so glad when chemo was over I immediately quit drinking the tea. It wasn't very tasty but I was willing to do what I thought might help.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 14 2010 at 12:59pm
Laura,

Did they tell you what these herbs were? The most recent Consumer Reports magazine talks about the most dangerous supplements. Make sure nothing you're taking is on that list. Definitely let your onc know what you're taking.

You might want to ask your question on the link Natalia provided for the Edges-Cam. You'll get more feedback. I've also gone to the NoSurrender website and asked the Edge my question. He graciously offered his advice.

Best of luck,
Donna

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 15 2010 at 5:58pm
Laura,

Here is the link to Consumer Reports most dangerous supplements.  A lot of them I've never heard of but at least one is a Chinese herb.

http:///www.consumerreports.org/health/natural-health/dietary-supplements/overview/index.htm

Here are the supplements to avoid:

http://www.consumerreports.org/health/natural-health/dietary-supplements/supplement-side-effects/index.htm




DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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LauraT View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LauraT Quote  Post ReplyReply Direct Link To This Post Posted: Aug 15 2010 at 7:30pm
Thanks Donna. I saw this report the other day. Fortunately none of the dangerous ones are in my supplements.
Laura
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 15 2010 at 7:36pm
I haven't heard of most of these supplements.  I'm glad yours wasn't on the list either. 

Hugs,

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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