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Anybody see Farrah's Story?

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Jessie View Drop Down
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    Posted: May 18 2009 at 8:37am
I'm curious about your reaction to NBC's Farrah's Story ---- she certainly gets points for realism, except for the private planes and personal medical attention none of us could get.  And the presentation was totally opposite that being presented by Applegate, etc.
 
Question --- do you really think chemo drug decisions were made considering the HAIR ?  The implication was there at one point, but maybe I read more into it.
 
Am I the only one who watched it ?
 
Jessie
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dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2009 at 9:11am
I  missed it, unfortunately, but would love to see it if I can grab it off the web or if it shows again.    There is some conversation about this show in the recurrence/metastatic section, so you might check there if no-one responds.

I thought she allowed herself to be filmed bald and without makeup, though maybe I heard wrong.  So it would be strange if hair were the primary consideration.  Though I must say, if one gets to the point where cure is no longer possible, the thought of keeping one's hair is mighty appealing to me.  If one were going to die around the same time anyways, why not spend the rest of one's life recognizing the person in the mirror?  It sounds horribly vain, but I don't see why that shouldn't be one of many quality of life issues to consider.
d


Edited by dmwolf - May 18 2009 at 12:19pm
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jessie Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2009 at 9:36am
I could be totally incorrect because it wasn't clearly stated, but in showing her receiving chemo in Germany, after her cancer had spread to her liver and surgical attempts to remove the liver lesions had failed, it was discussed that this time she would be sacrificing her hair (as tho it was the first time) and I think her friend shaved her head.   I was surprised that she had undergone so many treatments of varying types and managed to keep her hair.
 
I'm certainly not making any judgement about decisions made --- lord knows there's no right/wrong to this.  I was simply curious and wondered if the chemo drugs given for anal cancer are so different from those given for breast cancer that saving the hair was an option.   
 
I applaud her for allowing herself to be filmed in such unattractive situations, but I'm not really surprised.  Of course she was a sex goddess and absolutely beautiful, but her acting was also top notch.  In her very best movies she played parts that required her being filmed in extremely ugly and unsexy situations.
 
I hope her film will further the research into anal cancer --- we certainly can identify with her frustration at having a cancer that isn't receiving as much attention and study as other cancers.
 
Jessie
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dbl mast 5/06,
systemic MRSA post surgery
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2009 at 10:17am
Ladies,
 
It aired again on MSNBC at 6 Pm last night, and I watched it. She has done everything possible to beat the cancer, but I do believe that when she was first dx, it was considered terminal. I wish they would have stated the drugs that she was given, and I'm with Denise on the keeping the hair as long as you can under her circumstances, of a terminal dx.
 
The really interesting part was that she received a treatment called "embolizing", which is a term I have never heard, or perhaps have missed?  It was so heart wrenching to watch her treatments, and yet I know that is what all of you feel when they are infusing, and especially those of you taking treatments for mets. She has given a true picture of the treatments for cancer, and I applaud and thank her for that, and I pray that her last days are not filled with pain.
Hugs,
Nancy
 
 
 
 
 
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Shelley Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2009 at 1:33pm
Several people I worked with watched it too.  They were too afraid to talk about it at lunch in front of me today.  So I brought it up.  They asked- "Is that what treatments are really like?"  Yep!   Thank you Farrah for showing the world how painful and tiring it can be. How we fight for our lives tooth and nail.  How confusing doctor appts, treatment plans, and medication can be.  Great show!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2009 at 2:46pm
What I want to know is - don't they have any "twilight sleep" or ever put anyone out for such painful procedures in Germany?  My God, some of her treatment seemed absolutely barbaric.  If that's how they perform "new and cutting edge" treatments in Europe, I'll stay here, thanks.
 
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote psblab Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2009 at 6:21pm

The German treatment did not seem up to par with ordinary US treatment?

 

Massive trouble with veins  ,,,, why no PORT ??

 

No hair loss until now and the doctor says, “Now were using the “A” chemo drugs they were held off due to Farrah’s image”?

 

Primary site cancer and colostomy was refused?

 

Everyone has to determine what they want to accept or reject for treatment and how aggressive they want to fight.  It was apparent Farrah was making the treatment decisions and has to accept the results. 

 

Unfortunately the media leaks occurred at UCLA but that does not change the fact they are a worlds top cancer treatment center.

 

Paul

 
I re-read my post it sounds cold and its not meant to be.     


Edited by psblab - May 18 2009 at 6:32pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jessie Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2009 at 6:19am
I have some of the same questions as Paul, so I'll risk sounding cold too.  Why no port ?  Why no 'feel no pain' drugs for the German infusion treatment into the liver ?
 
Did anyone catch the discussion on Larry King last night.  He had two cancer drs in the US, Farrah's German dr, and the CNN dr Gupta.  Much of the discussion pointed out that the standard chemo for anal cancer was almost 100% effective caught before mastastasis.  I read up on the standard initial chemo drugs for anal cancer and it is 5-FU and Mutamycin.  It does cause hair loss.
 
One of the US drs on Larry King questioned the wisdom of going to Germany for treatment.  She indicated the same treatments Farrah got were available here.
 
I'm afraid I too suspect Farrah opted out of the standard treatment at the critical time.  Maybe she was overconfident because of the high survival rate.  It was certainly her right to choose otherwise, but I do wonder ...................... 
 
I have a general question --- if someone is dying due to cancer in the liver (whether primary or mastastised from somewhere else) and there are too many lesions to remove, is it possible a liver transplant would help ?   
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2009 at 6:58am
No, Paul, you didn't sound cold at all - just realistic.  I wondered the very same things while watching it Friday evening.  Some priorities just didn't seem to take first place earlier in her disease, or so I thought.  God bless her, she did give it her all - just don't think she made the same decisions earlier on that I would have. 
 
Linda


Edited by LRM216 - May 19 2009 at 4:43pm
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2009 at 5:05pm
I for some unknown reason cannot watch these TV shows cancer patients put on TV.  It was on here on some channel, I saw the listing, my heart thumped a little harder and I moved along to see something else.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote txhart Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2009 at 6:11pm
you know, i cry when I read these posts. Although I finished my treatments in April, I still feel the pain (internally). I cannot imagine going thru that again, yet I have to imagine it because I always think about it coming back. Yeah, I know that's not the optimistic point of view, but sometimes I think it's the realistic point. SIGH.............
oh, on a happier note... I graduated with my masters degree on Saturday!! I went thru chemo, surgery, and radiatin thru my last two semesters of school. (patting myself on the back here :)
so so happy about not letting cancer keep me from school.
Linda
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IDC 2.7
Diagnosed 7/24/08
12 rounds Paclitaxel
4 rounds FEC, surgery Feb 3, 6 wks of rad

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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2009 at 7:22pm
Let us pat you on your back as well, Linda, that is magnificent.  Congratulations to you, what an accomplishment while struggling so hard through chemo, rads, and we all certainly know what comes with all that.  So very proud for you.
 
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote JanetK Quote  Post ReplyReply Direct Link To This Post Posted: May 19 2009 at 8:13pm
I wasn't remotely interested in watching it. This may sound selfish of me, but I feel that just because it's Farrah, her cancer is more important than mine. I understand that any exposure, on the air is good, but geesh, I lost my hair, have neuropathy, severe bone pain and all the rest that this insidious disease makes me endure. You don't see MY story, (or yours) on prime time tv.
I think we would be better served showing a bunch of our stories, making the world know that TNBC is a cancer all in it's own. That it affects and hits ordinary people. And make especially, the medical "proffessionals" aware of it's agressiveness and uniqueness of other breast cancers.
Ok, I'm off my soapbox for now. (but don't expect me to stay off of it for long!)

It's just my opinion, and I'm sticking to it.
Love and Hugs,
Janet
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2.6x 3.5
neoadjuvant chemo 8 rounds
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axillary node dissection Nov 09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jessie Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 4:49am
Linda,  what a story you have to tell !   You just blew away ANY excuse people might want to use for not finishing school or completing a goal !  What persistance you have !  ClapClapClap
 
Jessie 
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 5:19am

Linda you an amazing woman!  My congratulations, how neat is that I ask? Heart

 

 

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 10:13am
Dear Linda,
 
Many congratulations on all that you have accomplished. Sweetie, you are one remarkable womenClap How you got through all the treatments and surgery and getting you masters degree, just amazes me, but you can look back on this past year with pride.
Many hugs,
Nancy
 
 
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bunnysmama Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 12:02pm
First and foremost, Linda - CONGRATULATIONS!!!!!  Getting a masters degree in the most ordinary of circumstances is commendable, but for you to accomplish a goal like this with everything else you've had going on...it's truly inspirational.  Thank you for sharing your happy news!!
 
I also watched Farrah's Story, and while I had several of the same questions being asked here, overall I thought the program was very well done.  I watched it alone since my husband worked late on the night it aired, and in many ways I'm glad I did.  It was overwhelmingly emotional for me.  There were times when I just sat there sobbing, and it actually took me a couple days to really shake those feelings.  It wasn't because it was Farrah, although I truly admire her willingness to share such raw details about what she's going through.  It's more that she is just one of too many people facing this horrible disease and gathering the courage and strength to battle on, no matter what the prognosis or the treatment may be.  We have all had to find wells of fortitude in places we never knew we had it, and we've been forced to put to the test our primal instinct of self-preservation by fighting an enemy we can't see that is inside of ourselves.
 
I am a survivor and am considered NED, but I am only too aware that I am one of the lucky ones.  Watching the program brought back those early days of my diagnosis and the feelings of terror that this was happening to me.  I cried because of all the people who hear news that is far more dire than mine.  It is unbearable news, but you must go on no matter what.
 
I read that it was watched by close to 9 million people that night, and I hope that it opened people's eyes to what so many people are facing every day.  Despite the fact that we, on the inside, can find fault with some of what we saw, I think the overall message is a powerful one for poeple who may not have ever thought about what it means to be diagnosed with and treated for cancer.
 
Dx 11/06 @ age 37
IDC
Stage I, Grade 3
BRCA2+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 4:02pm
Very well said, Bunnysmama.
 
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Diane in AZ Quote  Post ReplyReply Direct Link To This Post Posted: May 21 2009 at 11:37am

Hi all,

Unfortunately, the same unfairness that brings cancer into our lives also separates famous people into a class of their own.  But in seeing Farrah's Story, I think that the perks that she (or any star) has is balanced, or even overbalanced, by the extreme public-ness that their lives become as a result of fame.  As I watched this, I thought how awful it is to have to deal with treatment (which we all know is bad enough) as well as having rude and insensitive people sticking cameras in your face while you're in pain.
 
That being said, I thought the program was well done.  I forced myself to watch it, even though I squirmed through more than one part.  At the end when she said, "Today I'm fighting for my life.  What are you fighting for?"  I know this was probably addressed to the non-cancer people who were watching, but it struck me in my soul.  So I salute you, Farrah, for your strength and courage in letting your story be told, hairy warts and all, and I salute you, my sisters in this forum, who fight every day in private.
 
There is a big advertisement along the side of one of the freeways here in Phoenix for Cancer Centers of America which says, "Those that say that winning isn't everything haven't had to deal with cancer."  Amen to that!  Let's hope that programs like this lead to a 100% for everyone.
 
Love you all!    Diane
Diane

Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all
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