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bondande
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Topic: had my first chemo! Posted: Apr 03 2009 at 6:08am |
i had my first chemo april 1 09. i was fine. by evening i was a little queasy. sat on sofa propped up to sleep because laying down brought out queasyness a little. next day got my shot to keep blood count up. took my emend pill, my decadronpill. felt much better. this is day three. ate a good cereal breakfast, took my emend and decadron. im trying to be a good patient. i have the metalic taste you talk about, but its not bad. i will be getting chemo every two weeks for 16 weeks. then 4 weeks off before starting 5 weeks of radiation. should be done by 2nd week of october. my tumer was 3.8 cent. ( a biggy) not in lymph nodes. i am stage 2 a. triple neg. im concerned about my next treatments. im sure you get worse with each treament. am i right? its probably cumulative. i am willing to do anything to fight this but we all know about the fear of the unknown. you are all so great on here. your support will be appreciated . i am a little computer illiterate so bare with me. God bless all of you.
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trip2
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Posted: Apr 03 2009 at 6:33am |
Hi bondande and welcome.
I'm so glad you joined up with us and you are doing great with your post, don't even worry about your computer skills. 
It sounds like you have a good grip on things. Yes it will most likely be cumulative but it is impossible really to say for sure how you will be doing as you progress. We are all different.
Keep checking in and ask anything you like, we are right here!
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Stage 2 2003
Stage 1 2007
BRCA 1+
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Diane in AZ
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Posted: Apr 03 2009 at 6:41am |
Hi Bondande,
I'm Diane and I want to give you a big hug and welcome to our group. We've all been where you are (or are going through it now). What kind of chemo are you getting? It sounds like you're doing all the right things and yes, the effects of chemo will be cumulative but I'm sure your doctors will be monitoring you very carefully. Let them know about anything that goes wrong and I'm sure they will have a pill or a shot or something for it. My doctors always seemed to. Take your temperature several times a day. You'll be open for infections for a while and they need to catch those if they happen.
The good news is that you're on your way to the light at the end of the tunnel. If you're feeling down some days, just think of how those nasty little cancer cells are feeling!
Please come and post often. The ladies here are wonderful and so knowledgable. You'll get through this! 
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Diane
Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all
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Nancy
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Posted: Apr 03 2009 at 7:19am |
Bondande,
Sounds to me as though you have everything under control. Sleeping sitting up or in a recliner is one of the chemo tips. Helps keep those headaches to a minimal. Lori slept in a recliner after every chemo for at least 5 days and more. It stayed in the bedroom until she was finished with all tretments.
You are right again as to the cumulative effect. Now just remember to drink at least 3 liters of water a day maybe until Sunday or Monday. You want to flush all those chemicals out of your system.
By the way...you did great posting and all we want to do is hear from you...nothing else matters. 
One thing...make sure that you get the prescription for the "Magic Mouthwash", just in case you start to get mouth sores. Since your onc has made sure you have all the necessary scripts already, I am sure they will give you that.
Just rest/sleep when you feel the need, and get up and walk, and do whatever your body tells you that you can.
Hugs,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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bondande
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Posted: Apr 03 2009 at 9:15am |
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thanks so much for your quick responses. i will check in daily through this hoping i can help someone else as you all have done for me. maybe 25 years down the line , when i am still writing my messages, :) it will encourage someone. lets all pray for that cure! but cure or not, God is on my side, do or die. with him at the end of not my first choice ,which is survival, i cant go wrong. we all only have today. im going to enjoy it to the fullest and hope for the best in everything else. i am in HIS hands. God bless.
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HairSprayMom
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Posted: Apr 03 2009 at 11:48am |
Hi Bondande,
Welcome to this site! I have one suggestion for chemo if you are doing A/C. My Aunt Sara who is a nurse had breast cancer as well and she gave me this little helpful hint. Eat ice during your push and it will keep mouth sores to a minimum. It helped me a lot, nausea and mouth irritation were my biggest problems during chemo. Another thing I did was to visit my local health food store and buy Ginger to make tea(for the nausea). I tried all of the nausea drugs on the market and none of them worked as good as an old fashioned cup of hot ginger tea. Hope you feel better soon!!
Sending Love!
Regina
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39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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bondande
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Posted: Apr 03 2009 at 12:10pm |
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thanks for the info. my nurse did give me the ice during my treatment. i sure hope it helps. i picked up my wig today. i look a bit like elvis :) ive been a hairdresser for 34 years. im 54 , retired from hairdressing 4 years ago. thanks to all for input. love and hugs. bon and yes i am doing a/c then tax. then radiation. ill try the ginger tea. how do you make it.
Edited by bondande - Apr 03 2009 at 12:11pm
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HairSprayMom
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Posted: Apr 03 2009 at 12:38pm |
Here is a recipe for you. I used fresh ginger, but sometimes you can get tea bags already made up. Hope it helps you as it did me!
Ginger Tea Recipe
water, 4 cups
2-inch piece of fresh ginger root
optional: honey and lemon slice
Peel the ginger root and slice it into thin slices. Bring the water to a boil
in a saucepan. Once it is boiling, add the ginger. Cover it and reduce to a
simmer for 15-20 minutes. Strain the tea. Add honey and lemon to taste.
Regina
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39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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JanetK
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Posted: Apr 03 2009 at 6:44pm |
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I had my first chemo today as well, am on Taxotre and Avastin for 8 cycles, then 10 cycles of just avastin after my surgery. Im not sure if it is cumulative or not, I sure hope not cause I did really well today, just a little red face and a bit of nausea. I came home and slept for almost 5 hours. All my prayers,hopes and hugs go out to you. Janet
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TNBC feb 13,2009
2.6x 3.5
neoadjuvant chemo 8 rounds
Lumpectomy successful Oct 09
axillary node dissection Nov 09
still awaiting results
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trip2
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Posted: Apr 04 2009 at 5:57am |
Janet I haven't had Avastin but sure some of the
Avastin girls will step up here soon.
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Stage 2 2003
Stage 1 2007
BRCA 1+
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trip2
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Posted: Apr 04 2009 at 5:59am |
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Janet if you post a new thread re Avastin in the Talk forum I imagine more members will see your comments and chip in their experience.
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Stage 2 2003
Stage 1 2007
BRCA 1+
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cduvall1
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Posted: Apr 04 2009 at 4:28pm |
Guess what, Bondande, You have already helped 114 or more people because that is the number of readers who have read your post. You are already sharing. Keep coming back, even when you are way down the road and cruising on past the 3 year and 5 year marks!
Carol
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Carol
dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09
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bondande
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Posted: Apr 06 2009 at 5:41am |
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thanks for the recipe for ginger tea! im making it as i type. smells great. im still scared to death of the cummulative aspect of this. my first treatment was pretty uneventfull after the first two days which gives me a false sense of hope of things to come i think. how much worse is it going to get for me. i shaved my head saturday and love the look and so does my husband. said to never wear it long again ! he is the greatest. the fear of the unknown is so hard for me, as it is for all of us, im sure. i just feel like spitting it all out right now so excuse me if i ramble. is everyones first treatment not so bad? maybe its the support from the people around me that helps me so much. i feel so naive. i will laugh at this post some day im sure. i think im just having an anxious day about the future. thanks to all who have responded. God bless you all. bon
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HairSprayMom
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Posted: Apr 06 2009 at 6:34am |
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Hey Bon,
You hang in there. Unfortunately Chemo is a cumulative effect, but some tolerate it well, so don't throw in the chips yet. I took constant care of my home with hubby and 3 children, one who was only 2 at the time. Some days were better than others, but I could make myself push on through. It makes you feel better to keep yourself busy during treatment. I also took the opportunity to read, my favorite past time. Look for the positives, I know they are hard to see, but they are there! Keep posting and just press on, before you know it, treatment is over and you can start feeling good again.
Sending Love,
Regina
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39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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bondande
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Posted: Apr 06 2009 at 8:15am |
thanks regina for the words of encouragment. i sure hope you are doing well. best of luck to you and your family. hope your reconstuction has gone well too :) bon
Edited by bondande - Apr 06 2009 at 8:16am
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trip2
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Posted: Apr 06 2009 at 12:08pm |
Bondande, spit it out anytime, we are all here, we understand and it is perfectly normal for you to feel the way you do. The unknown is scary. Try not to look so far down the path and focus on today.
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Stage 2 2003
Stage 1 2007
BRCA 1+
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bondande
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Posted: Apr 07 2009 at 4:35am |
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hello, im just touching base today and im going to ramble a bit. this has been a reality check for me in my life. for the good i must say. it has brought my husband and i closer together, brought me closer to God than i have ever been before. i have a sense , now , that with God on my side, do or die, i am going to be fine. i sleep very well , probablly because i have given up my 2-3 glasses of wine with dinner i used to have almost every evening when my husband came home from work. we thought we deserved it i guess after a tough day. little did i know it was probably contributing to the cancer by lowering my defenses. haha. its still early in my treatment and i know i will have some horrible days with anxiety, doubt, worry, and just feeling sick and down and out about the whole thing, but today is a really good day and im going to enjoy it. im going to bake some cut out cookies for Easter dinner, get ready for my son and his girlfriends visit this weekend, and do something, im not sure what yet, for someone besides me. its been to much about me lately. maybe later i will need it , but not today. i think its always been to much about me in my life. ive never been much of a giver, more of a taker. im so glad im waking up. hopefully i wont lose these feelings of hope . i thank God for this forum. what i have learned from all of you about what to expect with this cancer is absolutely priceless. God bless all of you who check in with us and make us feel like we are not alone. as they say misery loves ( and needs) company. this probably isnt the right place to post comments like this. seems more like a blog post i guess, but it has done me some good. there i go, me again. oh well, prayers and best wishes to all of you. bonnie after reading this post again, the realization came to me once again that there are way to many I's in it. i must stop with the I, I, I stuff. well ,at least til tomorrow, anyway. :)
Edited by bondande - Apr 07 2009 at 4:40am
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HairSprayMom
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Posted: Apr 07 2009 at 6:44am |
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Hey Bon,
So glad you are feeling good today!!!! Wish I was there to have a cookie with you!
Sending Love!
Regina
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39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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gerriesue
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Posted: Apr 07 2009 at 7:48am |
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Hi, I just finished chemo a couple of weeks ago. Even though the effects were cumulative I found that my management of the symptoms improved as I went along. So by the last treatment I felt pretty good. I know everyone's been talking about nausea but constipation was one of my most difficult issues. I found taking two Colace at night and a senekot in the morning as well as eating 5 prunes a day helped. I also had to start on a prescription drug, Reglan to help move food out of my stomach. My whole digestive system seemed to slow to a stop from the anti-nausea drugs. My oncologist worked with me and we tried a lot of different things and this what ended up working. Hope this is a help to you if you experience any of these symptoms. Also, I found days 5 and 6 to be the worst as far as joint pain ( from the neulasta) and tiredness. I think I kind of crashed from the steroids that were given during treatment. I usually felt pretty good for the first couple of days, also due to the steroids I am sure. Best wishes to you. You will get through this. Hugs, Gerrie Sue
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57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane
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bondande
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Posted: Apr 07 2009 at 10:27am |
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isn't it funny how our emotions run wild with this stuff. i was so upbeat this morning, then this afternoon i went to Kohl's store and ran into the father of someone i went to school with whom i barely knew. he had lost his wife to cancer many years ago i found out. out of the blue i start tearing up. couldnt control it. he was so kind. just stood there talking to me like it was completely normal. im still crying while i type this. he wished me the best and said he hoped God would take this away from me. i just hate breaking down in front of others. going to church is so tough for me to get through, too. im not really feeling sorry for myself, i just cant not cry. i hope i can keep it together on Easter. im so upbeat most of the time. it really catches me off guard. hope you are all doing well today. its a rollercoaster. love ya. bonnie isnt it cool how we can sit down and relay all this crap on this forumm and get it off our chests and feel like someone out there understands..... blessings
Edited by bondande - Apr 07 2009 at 10:30am
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