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This Crazy Cancer Journey

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    Posted: Apr 10 2009 at 5:39pm
This is a new thread just to vent and tell us what's going on with you, your family and anything else you want to talk about.  The good, the bad, the ugly.   We're here for each other  Cornelia (aka Connie)


Edited by cgraves3rv - Apr 10 2009 at 5:44pm
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dmwolf View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 6:35am
I liked the title 'today' for its neutrality, but I'm flexible :). 

Yesterday Joel and I went to yoga in the morning, then lunch with a friend, later a nap and a good book, and capped the night off with a play, 'Misallliance' by G. B. Shaw.  This morning we are getting packed up, ready to leave LA for home.  The four of us and three dogs, stuffed in our van once again (but this time with multi-bags of hand-me-down clothes and a tricycle for our niece), rolling down the 5 with music playing, conversation, occasional fights between the kids, and likely goofyness.

Monday I'll have my bone marrow extraction, where they'll look for cancer cells, and sometime later in the week I'll get a PetCT to find out what else might be going on.  Fear.

The big tent, big enough for everything.

Love,
Denise
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 10:32am
I had my hair trimmed and colored-------a year ago I was bald and feeling sorry for myself and now I am just feeling sorry for myself, but I know that the *Pat from SNL* hair style will soon be a thing of the past.

I ate some peeps last night( how desperate is that) and while I enjoyed the sugar it had a negative affect on my dreams...no more sugar!

I cut herbs from my Aero-grow garden--so easy!

That's it in a nutshell.
Heart
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 11:21am
Well I am flat on my bum while hubby is barbecuing chicken.
My ankles hurt so much they won't hold me very well, guess it is the neuropathy.
Tomorrow we are supposed to be deluged by rain and storms so doing our barbecue today because it is beautiful outside.
I'm so worried about my numbers being off wish I didn't have to wait so long for answers.
 
Krisa I too cheated with some green peeps! LOL


Edited by trip2 - Apr 11 2009 at 11:24am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 11:22am
Denise honey you of course will be in my prayers for "no cancer cells".Heart
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BrendaF Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 2:37pm

Tonight Saturn will be visible and the sky is clear. My kitchen smells of baking potato.  I bought two weeping cherry trees today.

Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
brain, lymph, pleura, bone mets. Started Xeloda 8/24/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cgraves3rv Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 4:44pm
Don't forget the "Today" thread Joan started is for the positive things I don't want to hijack again.  So keep supporting her Today thread.   You can do anything you want over here. 

Pam...don't you know the yellow peeps are still the best? 

Denise, somehow I see you, family and pets in the van rolling down the road like a flashback from the 70's.  Your description is priceless.  Also praying for no cancer cells.  Hugs to everyone.  Cornelia (Connie)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 4:49pm
Connie I did not know that but I will write a note to save for next year.  I was just curious about the green, they caught my eye. I'll never remember it otherwise.Wink
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 4:58pm
Cornelia, Pam and Krisa,
 
Take those damn peeps....yellow, green white...put them in a bag, and store them in the garage, or wherever. You can come back in a few years and although they may be hard, you could still eat them . Soooo can you imagine what is in them sweet ladies?Angry 
 
CANCER CELLS THRIVE ON THOSE LITTLE SUCKERS WHICH ARE ALL SUGAR AND PRESERVATIVES!!
 
STOP EATING THEM!!
 
Sorry...I forgot to use my inside voiceBig%20smile
HUGS,
Nancy
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DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cgraves3rv Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 5:19pm
Nancy, I knew it!  You would find out about our little Peep party and rain on it.  Well we get to have just one bad day don't we?  And actually I haven't had a Peep this year!  Pastries are my down fall and Starbucks White Chocolate Mocha latte.  But I have cut way back and now that I have mets I guess I'll have to cut them out.  Now are you satisfied?  And it is so depressing to read the food labels.  I get disgusted and throw it back on the shelf and try to pick the least offending food.  Cornelia  (Connie)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2009 at 6:36pm
Cornelia,
 
After raising 5 daughters...not much escapes meWink Gads! When I think of all the chocolate bunny's and then some hurling afterwards....what were we thinkingBig%20smile
 
Now...no sugar, no white flour, no water or anything else that comes in plastic, nothing that is in the tin cans, no veggies or any produce with the #8 on them. They are a product of Monsanto..baaaadd! Really bad!!
 
And please take your vitamins, especially D3...at least 4000 iu's a day. OK you have to listen to you onc...but they really need to get educated as to what the vitamin D council says. Get those levels checked Cornelia, if you haven't already. For someone dx with cancer your levels should be in the 70's or 80's.
 
If you stick to fresh foods and whole grain flour. Bev says there is a pita bread called Joseph's that is whole grain with flax seed. She buys them at Shop N' Save.
 
Now...go brush your teeth, as I bet those peeps butts are still stuck in themWink
Hugs,
Nancy
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DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BrendaF Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 3:53am
People who eat the very best of diets and exercise, and think pure thoughts, all get cancer, too.  I've been growing organic vegetables and eating whole grains and unprocessed foods, and avoiding junk foods for almost forty years.
 
I still got mets.
Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
brain, lymph, pleura, bone mets. Started Xeloda 8/24/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Beth Anne Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 4:54am
But Nancy I love peeps! It's okay though Target was out of them last night... Maybe it's a good thing I can't driveLOLLOLLOL


Love you,

Beth Anne
 
Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV
CK3/09.Brain resection4/09 WBR
Dreaming of dancing with Ned!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 6:45am
Oh my gosh here comes Momma Nancy to ruin our peep party.
Well I tell ya if I can't enjoy a bit of sugar now and then my life would be miserable. 
Your grocery list of "no's" really makes a big cut into mine.  Hubby will be happy about the lower bill that's for sure.Geek
 
Did you mean nothing in a tin can?  Refresh my memory, why is that?
I could devour frozen vegetables is that ok?Tongue
 
Heck our fresh vegetables unless it's on sale is out of my pocket change budget!


Edited by trip2 - Apr 12 2009 at 6:48am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 6:57am
my mom is 93 and she always had a sweet tooth and loved her liverwurst and sausage (german through and through)never exercised and smoked for 35+ years...no cancer, stroke or heart disease.  she is in better health than her daughters.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 7:03am
Nancy, have you considered that the fact that peeps live forever and are able to withstand an atomic blast (like roaches) means it is EXACTLY what we should be eating?  Don't we want to be resilient like our little yellow friends, all yellow and perfectly bird shaped in the apocalypse?  I'm with Brenda on this one - just because cancer cells eat glucose doesn't mean we shouldn't have sugar.  Most everything we eat gets converted into glucose, albeit at different rates.  If anything, it's the glycemic index of whole meals (not individual foods) we should keep an eye on.  So, have your peeps with a big juicy steak or some peanut butter and you're set!

Love,
Denise (who eats some chocolate every day)
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 7:13am
Loved reading about your mom Krisa.Heart
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 8:03am
Pam,
 
I had posted this in the news forum a while back on the tin can issue, and it was from Beth Anne. The frozen veggies are much better for everyone. Fresh should be the first choice, but that is sometimes impossible or just not affordable.
 
I think almost all the info as to diets for anyone whether dx or not have stated that sugar is not something anyone should have in their diets. Pretty darn hard to even eat anything anymore as almost all processed foods contain sugar. I too have chocolate every day...the 70% cacao, dark chocolate. Love it! Can't seem to digest the milk chocolate anymore.
 
Brenda, Lori too has always led a very healthy lifestyle, as I have stated a million times in posts. That did not protect her from being dx with bc either. That's not to say that she should abandon what she is doing by any means.
 
Hugs,
Nancy
 
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 12 2009 at 8:34am

Thank you so much Nancy.  I didn't mean for you to spend time finding this, thought maybe it was something off the top of your head, appreciate your help!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Apr 13 2009 at 8:02am
Today I'm off to UCSF to have my bone marrow sucked through a straw by Hope Rugo.  Let's hope her technique is good, or that I am stoned enough not to care.  Let's also hope there is NO CANCER in 'dem bones.  (Though if there is, I am prepared to cope, sort of, as much as one can prepare...)

NO CANCER
NO CANCER
NO CANCER
CLEAN BONES
CLEAN BODY

(enough of my spoken prayer)

love,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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