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Remembering Beverly Brehl

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123Donna View Drop Down
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    Posted: Mar 04 2014 at 9:07pm

Taken by breast cancer, vibrant professor leaves bedtime stories for young son

Before she died, Beverly Brehl knitted her preschooler a blanket decorated with every superhero emblem along with his own, called “Super Jack.” She hoped that when he wrapped it around himself, he would feel her love.

She recorded herself reading bedtime stories and singing to him. She made sure her husband, Jeremy Sundeaus, and her sister knew her values and passed them along: That Jack was to go to college, that he have an open mind, that he forge his own path.

In the end, the 36-year-old University of Utah assistant professor, who died of breast cancer Sunday, didn’t finish writing letters of advice to her 3½-year-old son to help him navigate a future without her.

“The letters are at the top of her to-do list,” said her sister, Pat Brehl, “but they were also the thing that scared her the most, that idea of having to let go of him and not be there.”

The Salt Lake Tribune profiled Brehl in 2012, highlighting her efforts to bring more awareness and funding to aggressive forms of breast cancer, which she said get overlooked during pink-ribbon campaigns that emphasize that cancer detected early is curable.

Brehl’s stage IV cancer — an aggressive and hard-to-treat form called triple negative — was found when she was 33 years old, far younger than the recommended age for regular mammograms.

“The frustration for her is that it’s almost like some victim-blaming that seems to happen with all of these different breast cancer awareness months,” Pat Brehl said. “When you’re diagnosed, it doesn’t mean you didn’t do everything you’re supposed to do.”

From the time she was diagnosed up until a couple of weeks ago, Brehl was willing to try any treatment to buy more time. An expert in early childhood, she was an assistant professor in family and consumer studies and knew her son’s age meant he may not remember her. She continued trying various forms of chemotherapy and radiation, to her liver, legs and hips as the cancer spread, and researched clinical trials she hoped to join.

“Her motivation all along has been her son and she just wanted to try anything that she could,” her sister said.

Brehl’s doctor, Saundra Buys, medical director of Huntsman’s High Risk Breast Cancer Clinic, says despite the interest and money put into treating metastatic breast cancer, doctors and scientists haven’t developed the tools to eradicate the microscopic cancer cells that remain after treatment and eventually overtake the body.

Brehl, she said, “was just really, really brave and wanted to live the best that she could despite this cancer. Everyone who worked in the clinic looked forward to seeing her … because of her openness and her enthusiasm about life and just the love she had.”

Her colleague and friend, Cheryl Wright, said Brehl kept teaching until last fall, when she learned the cancer had continued to spread.

“A lot of people’s memories are of this vibrant, funny, always smiling” woman, Wright said. “She was the most positive, optimistic person. She was going to beat this.”

Two days before she died, Brehl learned she had won the U.’s Early Career Teaching Award, a contest among faculty without tenure. In a letter of support, a student wrote she had never been so motivated as she was by Brehl. The student noted that when Brehl announced she was taking a leave, she smiled and promised to try to make it back for their final presentations.

Brehl’s friends and family say their job from now on will be to teach Jack about his mother.

“She’s left a lot of memories for him and he will, when he is old enough to realize everything, know that his mom was pretty special, very talented, a wonderful person,” Wright said. “And he’s going to be so proud of that.”

http://www.saratogian.com/general-news/20140304/taken-by-breast-cancer-vibrant-professor-leaves-bedtime-stories-for-young-son

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Annie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Annie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 05 2014 at 9:07am



    Talk about heartbreaking!   Another good reason to give Thanks for each and every day.   Take care all. Love, Annie
Annie TNBC Stage IIA Gr 3 1cm lesion 2/5 lymph nodes+ lumpectomy,FEC & D 30Rads finished(08/2009) BRCA- Chronic Cellulitis due to Radiation-- L.Mastectomy Jan 2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Mar 05 2014 at 4:55pm
A very sad story, indeed, and such a huge loss.  I can so relate to the statement about "blame the victim".  It's one of the things that bothers me the most when anyone is diagnosed with any type of cancer.  The truth is that no one knows with any absolute certainty (barring genetics) why one person develops a certain disease and the other doesn't.  I also appreciate her efforts to bring more funding to aggressive, advanced stage breast cancer instead of the silliness that is often associated with the pink ribbon campaigns.  God rest her soul.
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Mar 06 2014 at 4:51pm
Dear Donna,

I am not sure why I started to cry as I read this story. Perhaps it is the fact that my youngest daughter is a 33 year old teacher and that I have a two and half year old grandson. You would think that, by now, with all the previous situations I have lived through, that I would have developed a 'harder shell' (searching for the right words but I know you guys know what I mean) but I still find that I get emotionally upset with the unfairness of it all...The horrible injustice of a young woman losing her life to this horror...and a child growing up without the mother who adored him/her.

Sorry for my language, but it all sucks. 

Thank you for posting Beverly's story. I believe we are making progress to better understanding TNBC and first will come better treatment as we know what the various subtypes of TNBC and once we truly understand the biology hopefully a cure. In the meantime, it is what it is and sometimes the chemo works and sometimes it does not. 

I know up close and personal that the surgeries/chemo and, often, radiation therapy can work (although my daughter did not have XRT)..because this August my daughter will be ten years out.
Don't know why that is...we are just grateful that it is.

I have helped many women, over the years, who have passed and each time it hurts; what starts out as a phone call or email often morphs into a genuine friendship and I deeply feel the loss.

I asked a dear oncologist friend how she handled the grief and she said "it's going to hurt." I said "that's your advice? what do you mean?" and she said "you are a deeply caring advocate and it will hurt...I see some of my colleagues who put a glass wall around themselves to keep the grief out. The patients sense that and they also have told me that they know you genuinely care..."so my advice is keep doing what you are doing and it will hurt...and if the pain is too great stop doing it but don't try to change who you are."

So I think about what she said, fairly often, and have chosen to keep doing what I do....but it sure does hurt....even this story of a woman I don't know...hits a nerve...

hugs to you dear Donna, and to all here, you have my love,

Steve






Edited by steve - Mar 06 2014 at 4:54pm
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Melissa P. Quote  Post ReplyReply Direct Link To This Post Posted: Mar 11 2014 at 9:19pm
Gone too soon... No young child should lose their mother to cancer.



Beverly Brehl and her son, Jack, at Disneyland as she battled an aggressive
and hard-to-treat form of breast cancer called triple negative.
Beverly died Sunday, March 2, 2014.
"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"
mlsspaskvan.blogspot.com
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