Xanax or Ativan? for PET scan |
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footballfan 
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 Topic: Xanax or Ativan? for PET scanPosted: Jul 25 2008 at 11:57am |
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Hello all!
I apologize for bringing up such a trivial, trivial topic with everything else that everyone has going on. I simply need some advice.
Those of you who have read my previous post "Bone Marrow Biopsy" have probably gotten the idea that I am not a fan of scans and tests. I fear bone marrow biopsies and spinal taps because of memories of when my little sister had them in the 1970s (leukemia).
BUT, I fear scans because I am extremely claustrophobic. I can't sit on the inside of a booth at a restaurant, can't sit in the backseat of a two-door caretc., and can't be restrained at all. I start to panic if I get wrapped up too tightly in my own blanket!
  I have had two MUGA scans, no fun but I survived. The machine wasn't "over my face". When I had a bone scan done it was full on panic mode. I was on the verge of jumping off the table but the nurse talked me through the entire procedure.
Now I need a CT scan and a PET scan. Yes, I get anxious even through a CT scan!
My doctor prescribed Xanax. I took two Xanax for my last MUGA scan, and it (the Xanax) didn't do a thing for me! When I had my bone marrow biopsy I took two Vicodan and two Ativan. The procedure went very well and I floated out of there. BUT, I wasn't trapped inside a machine.M greatest concern is the PET scan. Is it true that they wrap you like a mummy to keep you still? Is it the same machine they use for a CT scan or is the tube longer?
I am already crying, crying
 at the thought of this PET scan. I'm not sure what to take, Xanax or Ativan, nor do I know how much will be ENOUGH. When I talk to the doctor I try not to sound like a crazy woman. I tell him, in a calm voice, that my claustrophobia is bad, BAD, but I don't think he realizes how bad. Can anyone help me?
Thanks, Betty
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dx 9/07 40 yrs stage 2 grade 3 lumpectomy 11/07
1 pos. lymph node of 9 4x adriamycin, 6x cytoxan & taxotere 30 rad. treatments Mom dx Aug 1997 w/ tnbc, survivor, no recurrence |
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CarynRose
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Joined: Aug 04 2007 Location: Robbinsville, NJ, USA Status: Offline Points: 960 |
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Posted: Jul 25 2008 at 12:34pm |
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Betty,
You poor dear. It must seem to you like the tests and scans are worse than the disease. I'm so sorry you are going through this.
I can tell you from my own experience about PET scans and CT's . Now granted, I'm not claustraphobic, but if I tell you in detail about my scans, maybe I can ease your mind.
I've had a number of PET scans (and some PET/CT scans -- same machine, but they are able to do both scans at once and compare one to the other). I can't think of anything that would be considered wrapping like a mummy. You lie on a very narrow platform that will slide through the scanning part of the machine. When I lay on it, I was concerned that I would fall off it, it was that narrow. So, when they used the velcro straps to nessle me in, I was grateful -- it meant that I didn't have to use my own tense muscles to keep me in one place for the entire scan. They also gave me a knee pillow that allowed me to support my legs without it being hard on my back. That is the only thing that I can imagine that would be anything close to being wrapped. But, if you needed to move or to get up, there would be nothing to really stop you...the velcro would open.
Anyway, about a hour before the PET scan, they injected me with a radioactive tracer and I was told to sit in a darkened room, quietly for about an hour and drink at least a quart of water. This enables the tracer to go throughout the body. The reason that you need to be quiet and not move around is that movement like that would cause you to use your muscles and other parts and when you use them, their metabolism goes up. The faster the metabolism, the more tracer is absorbed and the more it will look like cancer (cancer has a very high metabolism and therefore lights up a PET scan). I usually fall asleep during this 'rest' time.
They come in to get you. You pee out the quart of water that you have just drunk and head to the PET machine. You get on the platform and get comfy with your arms over your head. The platform slides you through a donut shaped scanner. At no time is your entire body inside it (unless you are the size of a munchkin). With my arms comfortably above my head and my legs supported, I slide gently inside -- I'm usually asleep within minutes, but I'm told that the entire scan takes about a half hour.
As far as which drug to take, if they think you can take a med to calm you, and Ativan works for you, by all means, use it.
The only scanner that is the entire length of my body is the MRI. Many have a problem with that scan, but I'm weird, I usually sleep though it. I know of some who medicate before that test.
I hope this helps you.
Hang in there,
Caryn
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Orig dx 6/03 - St.2a, IDC
gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Jul 25 2008 at 1:20pm |
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CarynRose,
That is a fantastic description! Even though Altoona seems to be about 20 years behind progress, we now have an "OPEN MRI" The name of the place is "611". I had one in January and it was not at all confining.
Nancy
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footballfan
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Posted: Jul 25 2008 at 1:49pm |
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CarynRose,
Thank you for the description. I had to laugh when you said, "At no time is your entire body inside it (unless you are the size of a munchkin)." I was asking my husband what they do for larger people. He is 6'3" and weighs 340 lbs! I'm 5'3", hoping this doesn't constitute munchkin size.
Oh, I really, really feel like the tests and scans are worse than the disease, but rationally I know that is not true. But, lately I rarely feel rational!
 I think my problem is twofold. If they would let me get on the machine, slide me in, and let me get myself out (so that I can see how easy it would be!), I'd feel more relaxed. I would know I have some sort of control. (Isn't this silly!!!
 ). And, secondly, I hate that there is no one in the room with me. I'm afraid the technician is going to forget about me. I'm afraid they are going to run down the hall for coffee and a smoke break, and I'll be in the machine more time than necessary.
Wow, can you believe I am 41 yrs old???
I am so glad I found this forum. I have been absolutely no help to anyone else, which I feel bad about
 , but at the same time I am glad there are people I can reach out to who understand.Thank you so so much!
Betty
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dx 9/07 40 yrs stage 2 grade 3 lumpectomy 11/07
1 pos. lymph node of 9 4x adriamycin, 6x cytoxan & taxotere 30 rad. treatments Mom dx Aug 1997 w/ tnbc, survivor, no recurrence |
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BrendaF
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Posted: Jul 25 2008 at 2:47pm |
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Betty, I sympathize, I'm somewhat claustrophobic, but PET scans are not too bad. I've never been strapped in, even with velcro. They always get me comfortable on the platform with a pillow under my head and one under my knees so they're slightly bent for comfort. And even though you are in a sort of tube, you can see out into the room just by moving your eyes without moving your head. They always play cd's, and the last two I forgot to take my own and they had had Simon and Garfunkel's The Sound of Silence. What awful music to play to a cancer patient, just because of the line in there "silence like a cancer grows." Somebody wasn't thinking about that one! The machine isn't noisy like an MRI machine, and even though the technician isn't in the room, at my test she comes on the speakers that are inside the machine every five or eight minutes and tells me how much time is left. If that makes it worse, you could say not to do that, and most probably don't do that anyway. The technician can always hear you if you call out or ask for something. The test itself takes 25 minutes. Wear comfortable clothes. I always take my stretchy pj bottoms and a t-shirt and wear my own clothes instead of hospital clothes, but I believe you can wear street clothes in a PET scan. I like pj's, though. Good luck!
I have scans next week, myself. CT on Monday, and bone scan on Friday. I'm anxious because I have a paralyzed right diaphragm that makes me really short of breath when I'm on my back. So, I'll probably take ativan for the bone scan, since you have to be quite flat for that one.
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Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
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Beth Anne
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Joined: Apr 24 2008 Location: Clairnbridge, Ireland Status: Offline Points: 376 |
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Posted: Jul 26 2008 at 6:18am |
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Hi Betty,
I have to agree with what everyone else said about the PET/CT scan it is not too bad comparied to MRI... I have had 4 PET/CT scans in the last 15 months and the only problem I have with them is the stuff you have to drink
 it didn't agree with my lower intestins... With all of that being said they did change the contrat stuff you drink on my last scan and I had a happy tummy Ativan is a great drug that should help you "float" through this scan as well.
So when you get to the scan why don't you ask if you can go in and look at the machine and go over what they are going to do. This may help you feel better about he whole thing...
 Take care and good luck with this...
Beth Anne
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Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
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ReneeST
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Joined: Jul 18 2008 Location: Seattle, WA USA Status: Offline Points: 60 |
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Posted: Jul 28 2008 at 11:50am |
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Betty,
I haven't had a PET Scan yet, but I can relate to your claustrophobia. We need to feel in control and not trapped. It is hard to get the medical professionals to understand this unless they, too, are claustrophobic.
However, I have found that calling the hospital or lab to schedule a time to just come in and look at the equipment and talk to the technicians has helped. That way, you can look at it and ask quetions without the fear of having to have the test.
I did this for my MRI of the brain a few years back and they were very gracious about it. They allowed me to lay on the table and the technician and I agreed that she would put me in the tube and pull me right back out. It took a while for me to get on that dang table, but I did with the understanding technician's help. I had my husband there as backup in case the tech didn't pull me out. It's a control thing!
 This helped me tremendously. For my breast cancer MRI, I chose conscious sedation where they used Versed. I decided that my stress level was too high already given the recent diagnosis of BC that I needed to go this route.
Unfortunately, my shoulders were too wide to go through the machine and I didn't get the full dose of Versed. By the way -- has anyone heard of having shoulders too large for an MRI machine? Maybe that's another post. I'm not humongous, but I'm not "average" either.
Anyway, I was able to go to another hospital that same day which specialized in breast cancer. Their MRI machine is dedicated to breast cancer and I had absolutely no problem with my size. My husband was able to sit outside the tube and had a hold of my hand. I still had a little Versed in my system which helped some. If I didn't, I would have used Halcyon. I used this when I had the brain MRI.
The tests and scans have been worse for me than thinking about the cancer. Once they were over, I felt like I could breathe. I do have my surgery scheduled for August 20th, so I'll see if I am breathing on August 19th.
 Hugs to you, Betty, and all the rest of the claustrophobic people on this site. Thank you CarynRose and Brenda for the description on how the PET scan works. Just reading this helps alleviate some of the fears.
Edited by ReneeST - Aug 22 2008 at 6:10am |
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56 yo Seattle, WA Stage 1, Grade 3, 1.3 cm IDC Lumpectomy Aug 2008
SNB neg;4 rds Taxotere & Cytox. BRCA-2 Variant. 16 Rads Jan 2009 "Canadian Study" www.reneesbumpintheroad.blogspot.com |
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lifemystery
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Posted: Jul 28 2008 at 2:44pm |
 hello footballfan; i just had my pet/ct scan on july 16, 08. i also do not like closed in places. my pet/ct scan took about 1 hr 1/2, after the put my iv in it was liquids and radition. so that i could glow on the scan. the table was small. i closed my eyes and just kept talking to my self they did not strap me in i would not let them that would of made it worse. finally it was over thank god but i dont want to scar you but it was hard for me. however, nothing showed up so now i am in remission . good luck.
lifemystery - stage 3 - grade 3
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footballfan
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Posted: Jul 28 2008 at 4:30pm |
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Thank you, thank you, thank you all for describing all this for me. I had my cat scan today. Unfortunately I think I took the Ativan a little too late; one 45 minutes before then the other 15 minutes before. Luckily the test was quick.
Now tomorrow, the PET scan, I WILL be taking both Ativan about an hour before the test.
Renee, what a great idea to visit the machine ahead of the scheduled test. And what you said about your husband being there just in case the tech didn't pull you out.....I SOOO get that! The PET tech told me over the phone today that a family member can be in the room with me the entire time during the PET scan, so that really has eased my mind.
Thanks again!
Betty
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dx 9/07 40 yrs stage 2 grade 3 lumpectomy 11/07
1 pos. lymph node of 9 4x adriamycin, 6x cytoxan & taxotere 30 rad. treatments Mom dx Aug 1997 w/ tnbc, survivor, no recurrence |
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MarieM
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Posted: Jul 28 2008 at 7:13pm |
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Hey fan, interesting that we all have sortof different experiences. seems like every clinic has a slightly different procedure. for mine: they alway do my pet and ct at the same time, so they can merge them. i have to do a NO-carb diet the day before so that the radioactice stuff will attach only to cancer cells.
they give me a dose of valium while i'm waiting for tracer to go through (they absolutely insist on this, although i did talk theminto a smaller dose), so you don't move around too much.
they play any cd i want off a fairly decent list, and i just keep my eyes closed during the test.
Oh, and they make anyone waiting with me LEAVE as soon as they inject the tracer!
pet-ct's are the best test. I hate having them done, but i like knowing exactly where the cancer is.
I hope it goes well for you!!
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MarieM
dx 8/06 still kicking |
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flaes
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Joined: May 15 2008 Location: Westlake, Ohio Status: Offline Points: 47 |
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Posted: Jul 29 2008 at 5:30pm |
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Betty:
I had my PET scan two weeks ago and there was a node and something else that showed up on the scan so I have to have another one in November. The doctor said "she must be a nervous person" Give her some tranquilizers and have her take the test again. I have ativan and they gave me a stronger prescription - I did not fill it yet but it looks llike Klonapin? on the script.
They did not wrap me up - I just laid on the table and put my arms above my head as high as I could. I closed my eyes - they use the same machine for a PET/CT scan.
The part I did not like was drinking the barium - and having the whole colon cleanse thing going on.
Just close your eyes - see if they will pipe in some music and have happy thoughts.
Best of luck, let me know how you did.
Sue
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Dx 11/07, lumpectomy 12/07, IDC, 3cm, Stage IIB, Grade 3, 3/19 nodes, left mastectomy 1/08, ac x 4, taxol x 4. Also diagnosed with Multiple Sclerosis two years ago.
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footballfan
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Posted: Jul 30 2008 at 5:47am |
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Hello again! I had my PET scan yesterday. For some reason it was a very teary day for me. My Dad went with me. The techs were so nice. They had me lie on the table before the entire procedure began, and slid me in to show me what it would be like. Wrong, wrong, wrong! I think it made me more nervous. In the quiet room, after the injection, I took two Ativan. Half hour later I took another. They started with my thighs in the machine, then about every ten minues they'd move me in deeper....abdomen, chest, shouders, then head.
Funny, I had tears streaming down my face the entire time. My Dad would walk over and wipe them off, later the nurse would. And it wasn't as if anyone could hear me crying. It was all very silent. But when it finally got to my entire head under the machine, I was calm as could be. I am so weird!!
The lesson learned here, maybe next time I should try Xanax?
Sue, I didn't have to drink anything or have a colon cleanse with the PET scan. Just an injection. I did have to drink the barium for the ct scan, but no colon cleanse with that either, just an IV contrast.
Now I am off to the oncologist to see what it all means.
Thank you again for all our support. You just have no idea how much it has helped me!
Betty
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dx 9/07 40 yrs stage 2 grade 3 lumpectomy 11/07
1 pos. lymph node of 9 4x adriamycin, 6x cytoxan & taxotere 30 rad. treatments Mom dx Aug 1997 w/ tnbc, survivor, no recurrence |
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billie
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Posted: Jul 31 2008 at 9:36am |
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Hi Betty,
No ,the answer here is that because of your not likeing tight places and your explaining this to them, They should have ordered the newer machine test that was brought to our attention by Kimm. This way both tests can be done at the same time with more accuratsy.PET/CT double imaging.Then you would have had to only do one time of dosing heavely with ativan.
If my sisters cancer center has access to this machine then I find it quite possible that where you are located would also have access to one just like it.You will know if this is the right machine if they tell you to only eat certain foods prior to the test.Steak the day before.
Lotsof Hugggggssssss Billie
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Billie posting for sis Betty/67/caucasion female/diagnosed 2-27-08/gradeIII/7mm/invasive ductal carcinoma/T N /clear margins/node neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer
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base
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Posted: Aug 01 2008 at 9:19pm |
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Betty,
Congrats on getting through your PET scan. You totally rock!!!! While I can survive the PET scan sober, I cannot do this with the MRI..... I am semi-claustrophobic....to give you a gauge....The PET only slightly freaks me out (but I realize that I do better with it if I close my eyes when my head is in there), MRI is terrible (even talked to a MRI tech friend of a friend beforehand but was still mental), I don't like having my face under blankets, not a fan of airplane bathrooms, need an aisle seat, will NEVER go spelunking (sp? but videos are cool). If you need advice on how not to be totally traumatized in an MRI, I can give tips or random things I did to help cope but the biggest tip is some sort of drug. My phobia drug of choice.... VALIUM..... it is sad that I love love love this drug but it allows me to actually suck it up and get into a claustrophobic situation, which is an amazing feat in my eyes. Mind you the first time I had a MRI I took 3 pills (I think they are 5 mg?) before it worked, the 2nd time I took 2 and I cried for a bit and the tech had to help me calm down, but the third time I was a BIG girl, took my two Valiums and only shed a few tears. In summary, fear is fear, it is not rational, it sucks but, in this case, drugs can help. Another application for valium that my Dr suggested was to take one the night before chemo. 1. it helped me relax and 2. it is in the same class as some antinausea drugs. Hope the meeting with your oncologist went OK. huge hugs, Saskia |
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dx 6/06 @31
Stage IIIA, grade 3, ER-/PR-/HER2-, 5cm BRCA1and2 negative 6/06 4 dd A/C, 4 dd Taxol 10/06 lumpectomy, SNB 12/06 radiation |
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trip2
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Posted: Aug 02 2008 at 4:24am |
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Betty,
Even though it was a bit rough for you I'm glad to see you got thru the PET and I hope you get good news at your doctor visit.
Let us know,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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BrendaF
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Posted: Aug 02 2008 at 5:39am |
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I had cT scans on Monday and they werent too bad, but I was extremely anxious about the bone scan yesterday. I have a paralyzed diaphragm and have serious trouble breathing lying flat on my back. I arranged for an oxygen cannula beforehand. When they gave me the injection I took an Ativan, and an hour and a half later I took a second one. Having the oxygen made such a difference. It is freaky when they do your head, though, and the camera is only a couple of inches from your nose. That's when I close my eyes.. It's different from PET, CT, or MRI because in those it's a tube, but for a bone scan it's a big flat platform right over your body like a panini press.
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Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
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paula
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Posted: Aug 02 2008 at 6:41am |
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My son takes Atavan for his aniety attacks. It works very well. The only side effect he has is sleepiness.
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DX Feb 4, 2004
Lft NST IDC, 1.1 x 0.5 x 0.4 cm, Stage 1, GR 3, 1 of 17 nodes CEF 2 of 6 cycles 30 Rads w 6 boosts Regina, Sk Canada |
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Beth Anne
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Joined: Apr 24 2008 Location: Clairnbridge, Ireland Status: Offline Points: 376 |
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Posted: Aug 15 2008 at 1:35am |
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Hi Betty,
Just checking in with you to see how you are doing. Did you get the results of your PET scan? I pray that you got good news.
I just wanted to let you know I have been thinking about you...
Take care,
Beth Anne
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Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
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footballfan
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Posted: Aug 15 2008 at 12:28pm |
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Beth Anne & everyone,
My CT & PET scans were clear, yayaya. AFter I received this news, I went to Myrtle Beach on vacation for a week. Such a nice, nice suspension of reality. I came back this past Sunday evening. Back to reality. Monday was a follow up exam with the radiologist, then Wednesday was back to the oncologist.
Bad news, but news we pretty much already knew; the nodule on my head was definitely a granulocytic sarcoma, which means I am highly, highly likely to develop acute myeloid leukemia (AML). Most people develop it within 10 months or less after the appearance of the granulocytic sarcoma. But, there have been cases, very few, of people who never developed AML.
He explained that going ahead and treating me with chemo as if I already have AML will only increase the odds of never developing AML by a very, very small amount. The chemo for AML requires a month long hospital stay from what I understand. He discussed my case with his colleagues and they were completely split down the middle between chemo and taking a "watch & wait" approach. So he left it up to me. I chose the watch & wait approach.
So now I have to have the lovely bone marrow biopsy at least once a month. He wants to stay on top of this and catch it as soon as it develops. But at least I know the perfect drug cocktail to get me through it, 2 Ativan & 2 Vicodin!
I chose the wait & watch approach because I want to give my body time to heal and get stronger in case I have to have the chemo down the road. And, although I know it's two completely different cancers, wouldn't you think that the chemo I had for the breast cancer would somehow factor into the pre-battle against AML? My oncologist mentioned that one of the drugs he uses against AML is extremely similar to adriamycin. I've already had four doses of that, so maybe it will help somehow.
 Who knows!That's my update. Thanks for thinking of me! I feel like I haven't been on the boards in forever. I really need to block out some time to catch up with what's going on here!
Betty
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dx 9/07 40 yrs stage 2 grade 3 lumpectomy 11/07
1 pos. lymph node of 9 4x adriamycin, 6x cytoxan & taxotere 30 rad. treatments Mom dx Aug 1997 w/ tnbc, survivor, no recurrence |
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Nancy
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Posted: Aug 15 2008 at 1:30pm |
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Hi Betty,
So good to hear that the Ct and PET scans were clear
As just an observer in all this, I know that I too would wait as you are doing. The body has to have time to repair itself. Percentages are what you have to look at.
To add to the cocktail, I would suggest a case of very fine wine.
Just my humble opinion, but I think they would have to zonk me, and really good wine would do it!  Did he tell you specifically what the drug is that he would use?
We missed you
, but going to Myrtle beach sounds like it was a winner. Too bad they don't have a "Dream Vacation" following every gals trteatments. Wouldn't that be great? Hugs,
Nancy
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