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Hello from Australia

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princesskim View Drop Down
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    Posted: Jun 08 2011 at 2:07am
A very warm hello you all from Australia..
 
I feel as I know many of you well already as I have been visiting these boards and watching your journeys since November, 2009.
 
My story goes this way;
In November 2008 I became aware that I carried the BRCA 1 mutation. As I was 52 at the time ,I had no hesitation in having a oopherectomy. I then decided to go down the prophylactic mastectomy path however time was against me- as part of the work up for that surgery, I was diagnosed with IDC in November,  2009. Bi Lateral Mastectomy followed in December. Pathology was 1.67cm TNBC SNB clear. Four rounds of AC followed and then 12 weekly Taxol. Radiation was not recommended.
Fast forward to November 2010 when I discovered a lump on my chest. CT scan revealed a recurrence to my Rotter's node with all other areas clear. My breast surgeon described the recurrence  as "vanishingly rare". Surgery to remove the node followed, together with a full Level 1 clearance. Even though my underarm nodes were not affected the surgeon had to remove them in order to gain acess to the rotter's node.
In December, 2010 I commence six cycles of Carbo/Gemzar. After the first three cycles were competed my practitioners decided to intersperse radiation which I completed at the end of May. Just last week I commenced Cycle 4 of the Carbo/Gemzar.
 
What has prompted me to finally introduce myself is that I wanted to say what an incredibly supportive and compassionate group of people you are. I have been to many dark places over the 18 months - places I know are familiar to many of you -  and I have played the "What if" game in my head too many times. 
 
For the most part though, life is good - just a whole lot different than how it was before.
 
A highlight has been the comfort and insight I have found reading your stories and sharing your many ups and downs. Donna ,our stories are very similiar and I feel I know you especially well -Denise with your incredible knowledge, and of course the irreplaceable Steve with your wisdom. compassion and concern for all.
 
In Australia we have a charity called "Wrapped with love". People knit squares which are made into blankets and then sent to needy people world wide. Many hundreds of blankets are sent around the world each year. You all remind me of that - wrapping each other with love, keeping each other warm and protected.
 
Best wishes and love to you all.
Kim
 
 
Diag Nov 2009 TNBC IDC 1.67cm SNB clear. B/L Mx ACx4 Taxol x12 Recurrence rotter's node Nov 2010. Surgery Dec 2010. Carbo/Gem Rads. Completed August 2011.
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TNBC_in_NS View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Jun 08 2011 at 6:06am
Welcome Kim! Welcome to our humble and loving foundation web site.  It is so uncanny how so many of us have travelled the similar journey and never met each other in person but so wonderfully help each other through the false alarms and the real alarms.
 
I have just been diagnosed with a new bc in the contralateral breast so have some major decisions to make.....but one step at a time...and the cake is made, one step at a time and the path of life flashes before me, one day at a time can mean the difference in connecting with someone we really need to meet and missing the moment... Enjoy all of your moments.
 
Thank you for sharing your journey with us/me! Sending you all the best hugs one can get through cyber space! HUGS, Helen in Nova Scotia Canada
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jun 08 2011 at 9:13am
Hi Kim,

I think our stories are very similar.  I sure hope the Gemzar/Carbo does the trick.  This disease can be so sneaky as you, me and Helen has found out.  I'm glad you decided to join us and we'd love to hear more from you in the future.  I love this community because it's the one place I can come to where I know everyone understands what I'm feeling.  It's so hard to explain to people that aren't traveling this path.  They truly do not understand and I guess I hope they never have to experience it either.

How are you handling the Gemzar/Carbo?  I found fatigue, lower WBC and wacky liver enzymes my biggest issues.  Please keep us posted.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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dmwolf View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Jun 08 2011 at 1:37pm
Kim, welcome!  I'm so glad you introduced yourself.  Congratulations on having soldiered through your recurrence and subsequent treatment and all the attendant fear and disquiet that goes along with this whole business.  I'm sorry you've had to go through so much, but can hear in your voice the emotional enrichment and increased compassion and gratitude for life that hitchhikes on the back of our suffering.
love,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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janet c. View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote janet c. Quote  Post ReplyReply Direct Link To This Post Posted: Jun 08 2011 at 3:47pm
Welcome Kim. I am glad you decided to join this site. It is amazing some of of the people have become such great researchers. Unfortunately sometimes more than some doctors.They are so knowledgeable and are always here to help even though some are going through so much themselves.Good luck to you.
Janet
dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds
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unklez View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Jun 24 2011 at 2:25pm
Kim
Welcome to TNBC Foundation.

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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