Support Groups

In partnership with CancerCare, we are very excited to offer online and telephone support groups for those diagnosed with Triple Negative Breast Cancer. Each group will be moderated by a professional oncology social worker and will be 12 weeks in duration. Please email us your contact information and your group preference (online or telephone) at moderator@cancercare.org.

Edited by ArleneB - May 16 2010 at 9:51am

Hi! CancerCare is managing the support groups and they will contact you soon with more information.

- Arlene

Hi Cubby,

Glad you joined and you'll find some great support from this forum. 

I'd like to make one suggestion.  Can you repeat your post under TNBC Forums - Welcome From TNBC Foundation?  You can copy and paste it.  More of the members will see that post and reply to you.

It's very difficult to tell others, especially your husband, how much information you really can handle.  Some people want to know every little detail and news and others prefer not to know.  There is nothing wrong in either scenario.  It's how we cope with the situation.  It's OK if your husband is researching as much information on your disease, but he needs to understand the limits of what you want to know.  It's OK to say you don't want to hear anything at this time and you'll let him know when you're ready to talk about it.  He may be hurt at first, but hopefully when he understands that the information is doing you more harm than good, he'll keep things to himself.

Donna

Dear Cubby and Pmg,

Hello and welcome to you both.

Hello Cubby and pmg1959,

I have started a thread in the "Welcome New Members" forum of this site. It is titled ?Calling Cubby and PMG1959.

Please go onto that thread and post your messages.

We will be waiting to help in any way we can. I guarantee you that many ladies on this site will identify with you totally.

Love in Christ,

Lillie

Hi, I just found this site and am so excited! I am 44 and was diagnosed with TNBC on Oct. 8, 2009.  I do not know one other person with TNBC.  It is so nice to feel like there are others out there with the same thing.  I have had lumpectomy, mammo-site radiation, and am currently doing chemo.  I finished 4 cycles and thought I was done, but my oncologist said she went to a conference and they recommended 6.  I have one more to go.  My tumor was 1.2cm and they removed it with clear margins, lymph nodes clear.  So, after I finish chemo, I cant wait to sprout some hair.  I have heard there are some things that will make it grow faster.  When? Ovation? and even a supplement.  Anybody tried any of these products?  Had any luck? By the way, I have a 15 year old son, and 10 year old daughter.  So for the person questioning chemo, that was my reason..s.  I will do everything I can to make sure I am here for my wonderful children.  My husband is pretty cool too!

ADVICE NEEDED PLEASE

Dec 09 i had a lumpectomy left breast and all nodes removed whiuch were clear, tumour was 25mm so quite small, it was a grade 3 and had vascular spread but it hadnt spread out of itself (it that makes sense). I have only recently found iot was TNBC although I was told by oncologist it wasnt receptive to the 3 hormones, she didnt expand and i initially declined chemo thinking i had had a lucky escape!!! I also had my genes trested for BRAC1 and 2 because sister had breast cancer at 28, died at 38 and aunt had ovarian cancer died at 59. Have spoken to sisters husband whi said she was given pills and he thinks she was hormone receptive, but this was the 90s so i am not so sure - she had double mastectomy but no node removal (they didnt then), then it came back in her nodes, then came secondary in her bones.

Wendy,

When I convert 25mm, I get 2.5 cm.  If this is correct, I'd definitely talk to your doc about chemo.  You may need to see if you can find a specialist who knows more about TNBC.

http://www.lbbc.org/data/media/LBBCunderstandtriplenegative.pdf

I don't know what it means for testing negative for the BRCA gene, but have a family history of breast/ovarian cancer.  There could be other genes we're not aware of when you see a higher occurrence in certain families.  The good news is your negative for the BRCA gene.

Please let us know what your doctor recommends.

 

Hi,