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123Donna
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Topic: Mammograms- New Govt Guidelines - Can't Believe! Posted: Nov 16 2009 at 6:13pm |
I'm furious!!!! My local news station just had a top story about the government's new guidelines for Mammograms. I'm sure all of us will be hearing more about it. What a bunch of Cr*p! If it wasn't for my annual mammogram, I know I wouldn't have caught my bc early. To me, it saved my life and I wasn't high risk - no family history, etc. http://www.ksdk.com/news/local/story.aspx?storyid=189791&catid=40 Here's part of the story covered on the air tonight:
By STEPHANIE NANO and MARILYNN MARCHIONE, Associated Press Writers
NEW YORK (AP) -- Most women should wait until age 50 to get
mammograms and then have one every two years, a government task force
said Monday in a major reversal that conflicts with the American Cancer
Society's long-standing recommendation of annual screening starting at
40.
Also, the task force said breast self-exams do no good and women shouldn't be taught to do them.
For nearly two decades, the cancer society has been recommending regular mammograms beginning at 40.
But the government panel of doctors and scientists concluded that
getting screened for breast cancer so early and so often is harmful,
causing too many false alarms and unneeded biopsies without
substantially improving women's odds of surviving the disease.
"The benefits are less and the harms are greater when screening
starts in the 40s," said Dr. Diana Petitti, vice chair of the panel.
The new guidelines were issued by the U.S. Preventive Services Task
Force, whose stance influences coverage of screening tests by Medicare
and many insurance companies. But Susan Pisano, a spokeswoman for
America's Health Insurance Plans, an industry group, said insurance
coverage isn't likely to change because of the new guidelines.
Edited by 123Donna - Nov 16 2009 at 6:14pm
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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musette green
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Posted: Nov 16 2009 at 6:33pm |
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I hope the insurance companies do not plan to adopt this guideline for mammograms. I am glad I was screened at 49 (and yearly since age 41). If I had been screened at 50, I most likely have a very murky future and a harder fight than I did have. They must be crazy and driven by the might dollar!
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DX 10/08. IIB,gr 3, 2.5cm. TNBC, BRAC1&2-, nodes+(left axillary, supraclavicular, ant. mediastinal & IM). Neoadjuv. chemo 4x C/T. Left mast.3/09,completed 40 rads 9/09. Reconstruction pending.
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lma
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Posted: Nov 16 2009 at 6:40pm |
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This makes me furious. If this was in effect 4 years ago, I'd be dead right now.
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Autumn10182001
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Posted: Nov 16 2009 at 6:44pm |
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I started my baseline mammo at 30 due to my aunt having BC, and, I never had children, smoked, was overwieght...etc. My first cancer was caught at age 39... and could not be felt, it showed on the mammogram... actually as they looked back, they should have seen it the year before at age 38.. this time it was found in a mammo, at age 49... the government are a bunch of idiots, it sounds like they are getting ready for a reduction of services for the new health care reform... they will do whatever they can to reduce the cost of the government public option, which soon will probably be our only option as employers are already cutting medical benefits.. just my opinion..
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DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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NINASUZIE
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Posted: Nov 16 2009 at 7:02pm |
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Can you also believe they're saying that Dr. Susan Love AGREES WITH THIS????? I just put this on my facebook page already to know that NO WOMAN BE DENIED ANYMORE HEALTHCARE OPTIONS! I had my first at 37 that was a fibroendenoma....that now is later an indicator of BC years later...so my "baseline" of no history or the younger women in their 40s, 30s, 20s....how about our 10 year old survivor out there?????? No SBE's....dear God I am making political calls already. This is very serious for us as TN! Every 2 years at age 50?????? I'm so angry I could spit nails.
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Suzie
**************
Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
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Sunris
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Posted: Nov 16 2009 at 7:08pm |
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Perhaps MANY MANY of us that are under 50 should stand on their front lawns & flash them our boobless / radiated (burned) / scarred breast as a reminder to them that there are MANY of us that NEEDED those mammos before age 50.
http://news.yahoo.com/s/ap/20091116/ap_on_he_me/us_med_mammogram_advice
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 Dawn Age 43 at DX DX 3-09 IDC 3.9cm TN-Stage2-Grade3 Taxolx9, FACx2, halted TX, Lump.8-25-09..rads x 8wks.
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Sunris
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Posted: Nov 16 2009 at 7:21pm |
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http://www.breastcancer.org/opinion/mammography_guidelines.jsp
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 Dawn Age 43 at DX DX 3-09 IDC 3.9cm TN-Stage2-Grade3 Taxolx9, FACx2, halted TX, Lump.8-25-09..rads x 8wks.
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mainsailset
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Posted: Nov 16 2009 at 7:56pm |
I think perhaps this is the moment we ask the Forum to help us look into this and then create a Petition. Once one is correctly worded it can be passed along to some of the larger blog & then picked by the larger MSM. First step is to take investigate, find out who we can align ourselves with then get a well worded Petition together.
This has been in the works for awhile, not entirely brand new news but the harm that it could potentially do is simply immeasureable.
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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123Donna
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Posted: Nov 16 2009 at 8:06pm |
mainsailset wrote:
I think perhaps this is the moment we ask the Forum to help us look into this and then create a Petition. Once one is correctly worded it can be passed along to some of the larger blog & then picked by the larger MSM. First step is to take investigate, find out who we can align ourselves with then get a well worded Petition together.
This has been in the works for awhile, not entirely brand new news but the harm that it could potentially do is simply immeasureable.
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Great idea, how do we do this? Is this something we can ask the new forum coordinator, Arlene? Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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123Donna
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Posted: Nov 16 2009 at 8:11pm |
NINASUZIE wrote:
Can you also believe they're saying that Dr. Susan Love AGREES WITH THIS????? |
I saw Dr. Love on the NBC nightly news with Brian Williams and couldn't believe her support of the new regulations. It was all dollars and costs justification! No mention to the many lives that have been saved by early detection. How can they say routine breast exams are of no benefit either? I no longer respect her and will not be involved in her Army of Women campaign. Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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beachgirl6
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Posted: Nov 16 2009 at 8:15pm |
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Guess Obama is really going to solve the health care crisis....if no one gets a mammo then you don't have anyone getting diagnosed!!! What better way to have no health problems...no testing!!!!! Sure the insurance companies are going to jump on this one. Its already hard enough to get the testing that you need once you are diagnosed so lets make it harder!! If Dr. Love supports this then I'll cancel out of the Army of Women!!!
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mainsailset
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Posted: Nov 16 2009 at 8:16pm |
a better link http://www.associatedcontent.com/article/2398452/health_news_new_mammogram_guidelines.html?cat=5
So I'm going to send this link over to FireDogLake Blog as a start. There's a great many women attorneys on the site, the owner is a 3x bc survivor. Hopefully she will do what she does best and that is FIGHT!
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Terje
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Posted: Nov 16 2009 at 8:50pm |
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How about a provision in the new health care plan that says that if you have insurance when you become ill, it's a preexisting condition that must be cured before your insurance company is off the hook regardless of whether you continue to pay them or not.
That way the instant you get sick, you can stop paying your insurance premium and they still have to cure you.
Another provision should tie health insurance to a life insurance policy. For example if they can't cure you and you die, they have to pay someone $5M because they failed regardless of whether you continue to pay your premium or not once you're diagnosed.
If we did those two things, I bet the insurance companies would be pushing for mammograms twice a year starting at age 30.
It might push our insurance rates higher, but hey, if that's what it costs, then that's what it costs. At least the costs would be divided among all of us rather than just those who are sick and can't work. Isn't that what, "insurance" is all about anyway?
Edited by Terje - Nov 16 2009 at 8:52pm
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hhfheidi
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Posted: Nov 16 2009 at 9:19pm |
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I just took Susan Love off my Facebook. Now I'll cancel out ot the AofW too.
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123Donna
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Posted: Nov 16 2009 at 9:41pm |
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Me too. No longer going to be part of Army of Women.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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mainsailset
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Posted: Nov 16 2009 at 9:49pm |
Terje, I think you're confusing something here. Health Insurance Companies are businesses. They are responsible to their shareholders, not to the patients, plain and simple. They provide coverage funds after you pay your premiums based on the contracts you sign. They have no obligation to cure you, not one. Your medical team has the obligation to bring their best efforts to bear on curing their patients' ills. Both have the obligation to follow the law and I'll say for my doctors they have also followed their hearts, but as far as the insurance companies their only obligation is to fulfill their contract with you and to pay out monies to your health care provider.
This is one of the reasons that a single payer system would have been, in my humble opinon, a much better system for our Congress to have adopted. As long as you have private industry providing insurance monies for your coverage they will be bound by the laws of commerce and as we all know, those laws do not include one that covers compassion, it's just not there.
The stories are all over the internet tonight on how this panel's opinion will likely change coverage for mammos, even though the panel indicates that they're not saying don't get mammos just know your risks.
In a warped sense this is even worse than not covering pre existing conditions, it's instead turning a blind eye on prevention.
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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outnumbered
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Posted: Nov 16 2009 at 10:05pm |
OMG, if it werent for mammos or especially in my case self exam, I would be 6ft under by now. I was 40 when I found it myself, and my best friend was 43 when she and a mammo found hers. I guess us younger pre 50 set are disposable, especially since TN is more agressive. I guess if we aren't here, there won't be costs associated with treating us! OOOOHHHH I AM SOOO MAD!!!!!!!
Oh I just want to rant!!!!!!!
Who can I write to on this nonsense?
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~Sara
DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG
BMX (nipple-areola-sparing) 8/5/08
Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09
BSO 9/3/09
NED since 08/05/2008
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Terje
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Posted: Nov 16 2009 at 10:07pm |
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Mainsail, I agree, the insurance companies are businesses are responsible to their shareholders and they also have to follow the laws.
That's why I'm suggesting that the law require them to cover conditions that arise while you're insured and continue to cover those conditions until you are cured of that condition.
To make sure they do their best to cure you, I suggested they add a requirement that all health insurance policies be tied to a life insurance policy.
It's up to use to choose the insurance with the largest life insurance policy tied to it.
In addition I believe we should have a single payer system and that system doesn't need to be perfect. The private health insurance will compete with it. The government run plan won't have the life insurance deal and probably won't cover as many treatments, but it should be free and everyone should qualify.
I actually found a link to a single payer health care plan that I really like on that site you linked me to (the first one), but it doesn't say anything about my two ideas above. I would like those to be included and then I believe it would be the perfect plan. I'm still reading it though. I'm at work now and have the web page open on my home computer. I'll read more tonight.
Edited by Terje - Nov 16 2009 at 10:08pm
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unklez
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Posted: Nov 16 2009 at 11:23pm |
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Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Darla
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Posted: Nov 17 2009 at 1:22am |
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Hello All,
I was shocked when I read the new guidelines. My cancer was diagnosed via a routine mammogram at age 40. You can bet the insurance companies will be all over this as well as Medicare and Medicaid. Who's to say who's "high risk"? Perhaps this panel should recommend routine BRCA testing - I don't think that would go over well with the private or govt. payers.
We really do have to do something as a unified group. We, as TNBC patients/survivors/family members are a unique group in terms of average age at diagnosis and TNBC is so aggressive. There has been so much press about TNBC lately and good research and now this is like a slap in the face. When you read the guidelines you can't help but feel that those doing the statistical modeling view us as nothing more than outliers. Are we really headed for a utilitarian model of health care delivery?
I can't wait to see the guidelines they come up with to determine who is high risk. Most BCs are not genetic, so will a family history of BC no longer be considered sufficient to warrant mammograms beginning at age 40? What about race? We know that TNBC disproportionately affects minorities but many of us are white, will the guidelines be different for different racial groups?
I am sorry to go on such a rant - but it's so upsetting to read that a procedure that saved your life is essentially not cost effective and thus should be discontinued. I understand about false positives and unnecessary anxiety and biopsies, but what is more important, reducing anxiety or reducing cancer deaths? They should be working on more accurate screening techniques and greater access to MRIs for younger women with dense breasts. Mammograms aren't perfect but until they develop better options they must allow us access to what we have.
And then, to top it off, they tell women that breast exams, either self or by a doctor are useless. One doctor who was responding to these guidelines in vehement opposition to them said something like (paraphrasing here) - They are telling women "don't get mammograms, don't do self-breast exams, and don't have your doctor do breast exams". It's crazy.
Darla
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