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SusanE1104 View Drop Down
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    Posted: Jul 31 2009 at 5:20am
Has anyone else had problems getting their insurance to pay for Pet scans?  We have Anthem Blue Cross, and they've been great about all my claims except the Pet scans.  I've had two thus far, and they denied both saying they were investigational for breast cancer.  My doctor sent a great letter with our appeal, and they've now agreed to pay for the first one, but are still denying the second one saying it's not medically necessary.  My doctor says they're wrong.  We have a second level of appeal to go to and will persue that.  Just wondering if anyone else has had to deal with this.  I'll have another Pet scan soon.
Susan
Susan 62 1987 Stage 1   1/09 Stage IV bilat. mast. liver mets BRCA1+ Taxol & Avastin
8/09 NED
12/09 liver mets Taxol/Avastin
4/10 liver mets
11/22 Parp Car/gem
parp failed
2/2011 Ixempra
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2009 at 1:06pm
Hi Susan,
 
To answer your question, yes and I believe we have a thread somewhere discussing this very issue.
 
I have Fed Blue Cross and going thru c twice I have to admit they've been great but-----last January my new Onc ordered a PET.
 
Well the imagining place told me to expect BC to deny but they would appeal and hopefully they would get some money.  But-----I had to sign a contract plus pay $300 down to get it done and agreeing to pay if the insurance didn't but felt safe in their confidence.  I will not be so trusting next time.
 
What happened was I began payments towards my part.  A few months went by, I thought I was close to being done so called BC, found out an appeal had never been filed!  So called the imaging place and told them to get on the stick, what a racket, never again.
 
It finally went thru, the imaging place owes me money now.  It seems they only shoot out checks at certain times but yet they want your money pronto, I am waiting but haven't forgotten.
 
We also went thru this when hubby had a PSA test.  It was filed thru regular bc so of course no payment and they began hounding us for something we don't have to pay for.  I finally got this one straightened out also.  The lab company had our insurance info, pure d nonsense.
 
We have to be really on top of what comes in our mail.  Some of these companies, I believe, will try billing you and might not even file thru insurance.
A racket, a good way to make money from people who aren't paying attention.
 
I sure hope your second appeal goes thru, bet it does.  I have no idea why they are so stubbon when it comes to a PET.  Good luck and let us know how things play out for you.
 
Stage 2 2003
Stage 1 2007
BRCA 1+
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SusanE1104 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SusanE1104 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2009 at 2:53pm
Hi,  Thanks for your reply!  I got a letter today from Bc concerning our appeal.  They explained that they will pay for the first Pet because it was medically necessary for diagnosis.  They are denying the second one because they considered it medically unecessary because I hadn't finished my course of treatment, and the doctor wasn't considering changing my treatment.  How did they know he wasn't?  My oncologist's insurance clerk did the research for me and wrote a letter which the doctor signed.  I sent the appeal myself, but I had to wait weeks for the letter.  I bugged her about it a lot which I hated doing.  I am somewhat encouraged since the next Pet coming up is after I've finished a course of treatment.  I just hope we won't have to appeal it to get it paid.  We'll still go to the second appeal on the second one.  Maybe all we need is a letter from the doctor saying he was considering changing treatment. 
I, too, was asked for $500 down to get the second scan since they hadn't paid for the first.  They said they would take $100, but we paid the $500.  We've paid another $700 since then, and I hope we don't have to wait to get our money back if we ever get all the scans paid for.
We paid the radiogists $950 for reading the scans since they threatened to send it to a collection agency.  Now we will have to try to get a refund from them too.  It's a shame that patients with terminal cancer have to deal with this, but I don't see any hope of changing it.
Susan
Susan 62 1987 Stage 1   1/09 Stage IV bilat. mast. liver mets BRCA1+ Taxol & Avastin
8/09 NED
12/09 liver mets Taxol/Avastin
4/10 liver mets
11/22 Parp Car/gem
parp failed
2/2011 Ixempra
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 01 2009 at 5:22am

 Hi Susan,

 
Yes I think it could be crucial as to how the doc dictates the letter.
 
But it is honestly a shame patients have to endure this stress along with dealing with the disease. 
Most people don't have that kind of money sitting around that is extra.
 
I wonder how many have been turned down because of upfront cost??
 
Stage 2 2003
Stage 1 2007
BRCA 1+
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lady4law View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Aug 08 2009 at 3:55pm
I had no problem regarding my original PET, CT and Bone scans done before my mast, after my BC dx,  I had Health Net Insurance - at the time.

Since then I have had 4 sets of these scans (my normal -every 6 month scans) again, no issue. (Thank God)

The first 3 were still under Heath Net, however my husband's employer changed their provider to Anthem Blue Cross in March. Once again no issue when my May scans were requested.

I had a possible heart attack about 2 weeks ago and the ER Dr ordered another CT, as he was concerned with possible issues in my lungs. After waiting over 24 hours (maybe 36) to clear my system of the radioactive dyes, the treating doctor ordered another CT/PET with a drug induced stress test, again no issue regarding Anthem Blue Cross.

I am wondering if they will approve of my routine scans in November. I hope so cause I fear if Obama's health plan goes through, there will be no more scans for us BC patients and I want to,  at least, have one more.

My last scans showed lesions on my kidney, thyroid, sinus, mastoid, an area behind my eye, activity in my spine AND a number of mini-strokes. If I am denied, I hate to think of what will happen to me. At present I am seeing a neurologist, dematologist, eye surgeon, spine specialist plus my Onc , PCP, and pain clinic.

I have had injections in my spine 2 weeks ago, did not help, and will be having another set of them Thursday. Anthem Blue Cross approved 3 sets of these injections, and they are very expensive, so I wonder what they will or will not approve of next. They turned down my Dr's request to change my Gabapentin to Lyrica. Lyrica is a less dangerious drug but as it will cost $200 a month, I can't change.

I bet anthem Blue Cross is not happy with taking on me when my husbands company switch to them. My medical just since March is close or over $200,000. The CT/PETs have been over $30,000 a piece.

Please let us know what your outcome is. I live in Los Angeles.
Jean
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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SusanE1104 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SusanE1104 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 08 2009 at 4:11pm
Jean,  I got the results of our appeal just a few days ago.  They approved the first Pet scan because it was deemed medically necessary for dignosis.  They denied the second one, saying it was medically unecessary because I hadn't finished a course of treatment, and my doctor wasn't contemplating a treatment change.  Unfortunately, when the reviewer called my doctor he was in a meeting, and a nurse told gave him that information.  My doctor now says that he would have changed my treatment if I hadn't been responding...that's why he ordered the Pet.  So we will take our appeal to the second level now, and I'm hoping that my doctor will give me a statement saying that he would have changed treatment.  I'm surprised that you Pet/Ct scans cost 30,000.  Mine are less than $5,000, and that includes the $475 for the radiologist to read it.  I have another scan scheduled next Thursday.  My doctor said he would just order at CT scan of the liver since the insurance probably wouldn't pay, but I told him I wanted the PEt.  We'll just keep appealing and try to get them paid for.  It's disgusting that I have to do this.  My doctor says that he's only had one other patient that has had a problem getting their insurance to pay.  But I'll keep fighting even if I have to sue.  Sometimes just a letter from a lawyer will do the trick.
I sure hope you don't have any problem with yours.  I haven't had any problem with Anthem BC paying for any meds or chemo.  My chemo cost eight or nine thousand three times a month, and they never batted an eye lash about paying for that.
Good luck to you.  Let me know how things are going.
Susan
Susan 62 1987 Stage 1   1/09 Stage IV bilat. mast. liver mets BRCA1+ Taxol & Avastin
8/09 NED
12/09 liver mets Taxol/Avastin
4/10 liver mets
11/22 Parp Car/gem
parp failed
2/2011 Ixempra
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lady4law View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lady4law Quote  Post ReplyReply Direct Link To This Post Posted: Aug 09 2009 at 3:38pm
WOW Susan your prices in the south are so much lower than in Los Angeles.
My last CT/PET scans cost, $35,769.29 !
My exchange surgery, $120,339.97
My chemos were over $30,000 each (I think around $37,000)
We thank God we had insurance.
I wish they would approve of Lyrica, so I could get off the Gabapentin.
IBC/TN 6/07 Lymph, Chemo, Mast w/rec, chemo, 2 infect surg, exchg (2x) redo rec (2x) 4 new tumors esophagus, colon, chest, mouth, (10/11- 5th SUV7)"Activity" in spine hip
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