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mandy View Drop Down
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Joined: May 20 2009
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    Posted: May 20 2009 at 1:25pm
Hi, My best friend's diagnosed with triple negative breast cancer. Her sisiter was diagnosed 2 and 1/2 years ago and they were told at the time this was not hereditory. Now they're saying it is!!
I noticed there was a teleconference about new treatments that I missed. Is there anyway that I could get a copy of it to send to my friend?
 
Thank you,
Mandy
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Nancy View Drop Down
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Location: Altoona, PA
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Points: 3814 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 1:34pm
Hi Mandy and welcome,
 
I am so sorry to hear that your friend has been dx with TNBC, but you definitely have found the site for information which will help her.
 
Did you friend's sister ever have the BRCA testing? If not they both should now. 85% of BRCA1 gene mutations are TNBC. Here is a link for the FORCE website, and there is much information which may help your friend.
 
 
I will have to ask Pam to pull up the link for the teleconference, or maybe someone else will be able to tell you how to find that. In the meantime I will send you a private message with my email so that I can send you information for all the resources  here on the site.
 
Many hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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outnumbered View Drop Down
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Points: 525 		Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 3:55pm
Hi Mandy
 
Here is the link to the teleconference on the Living Beyond Breast Cancer website. 
 
 
It gives a lot of background on the sub-type and some targeted therapies they are looking into.  Also a lot of nutritional info.  You can also find a ton of info on the forum for news tips and resources.  Also if you google triple negative breast cancer studies you will get a ton of hits, which are probably all on the news forum. 
 
There was a teleconference last year and its up on this site (TNBC events, past events, 2008) here is the link to make it easier
 
 
I learned so much from that one when I was a newbie. 
 
Your friend is lucky to have someone like you in her life. 
 
HUgs and Best Wishes!!
 
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
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Terri View Drop Down
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Points: 578 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Terri Quote  Post ReplyReply Direct Link To This Post Posted: May 20 2009 at 6:50pm
Mandy,
 It looks like the ladies provided you with alot of info. I just wanted to chime in and say how impressed I am that you are researching for your BF.  Unfortunately for me, my best friend thought since I was diagnosed with stage 1 that it was no big deal and she bailed on me after a couple of chemo treatments. It was very heartbreaking and I felt so rejected at the worst time of my life. She still has no idea how serious Tn is (she never took the time to read the articles I sent her) and she had the nerve to tell me if SHE HAD CANCER she would just be positive and not worry about recurrence or mets. I never would have thought she could be so uncaring after our many years of friendship.
Your friendship is so important to your best friend now. Be there for her even if she acts like she`s so strong that she doesn`t need any help. I didn`t mean to bombard you with my BF issue, your post just kind of brought it all back.
 Bless you both and let us know how she is doing. Hug
 
Hugs, Terri
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED
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