16 yr Trip Neg WITH METASTATIC BC Survivor!!

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   Since my recurr & mets dx in 12/05, I've been searching for a long-time trip meg mets survivor .... and although I have not posted about it, the lack of finding her was disconcerting at best .... Finally, I met her!
I
attended the CA Breast Cancer Research Program conf in LA last
weekend.  I struck up a conversation with a woman at one of my tables ... 
She
was a 16 year triple neg mets survivor!   
I don't cry easily and I
almost did ...  it was such an overwhelming feeling of joy ... and FINALLY finding someone!  Of course, when she was first dx'd, it was only er/pr -
(no such thing as a triple neg).   She was dx'd with bone mets in 1991 at age 42 ... and she's still here doing great!
When triple
negs initially have mets, it's usually to the soft tissue rather than
bone, and my understanding is that soft tissue mets are more serious
... but I'm still so happy to have met her!   
I had attended the
MBCN (Metastatic Breast Cancer Network) conf last November at MSK, and
was most dismayed that there were no trip negs on their panel of
long-time mets survivors.  (Us trip negs were quite vocal about being
overlooked and I don't think that will happen again).
Thought you all might find some joy in hearing about the long-time trip neg mets survivor!
As
another mets friend of mine pointed out, it's likely that most
long-time trip neg survivors first off wouldn't know they are "triple negs" since that came about with the finding of one's HER2Neu status (which I believe was only in the last 10 yrs or so) ... and they would likely not be involved in bc activities,
since they would not be on any type of treatment.
CalGal 