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Ms.Pat
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Topic: How often for checkups? What about diet? Posted: Nov 18 2008 at 2:10pm |
Hello Everyone--
Thanks for all your generous and sensitive replies....
Spoke with my radiation-oncologist today. He's an optimistic guy who thinks my chances of testing positive for BRCA genes are unlikely, although I have an appointment Dec. 9 with my other oncologist to talk about this. He emphasized that I've had "maximal" care and good physicians--which is true, I've been very happy with them.
He said, yes, the chance for recurrence is higher with TNBC. Looked it up and found out the chances of surviving five years without a recurrence are 77%--a little better than I first thought--not that I'm not still at the holy crap stage. Most recurrences occur during the first three years. Which makes me wonder if getting checked up every six months is wise--more like every four months would make more sense to me, especially after what I've been reading here. I think I'm going to ask for a mammo/sonogram three times a year now...
Other than that, gotta live one day at a time and hope for the best. What a cliche, but it's true.
Just curious--has anyone become a vegan since their diagnosis? I've been a lacto-ovo vegetarian for years. But I gotta wonder about the hormones, pesticides and antibiotics fed to most farm animals. I worked for the FDA many years ago and discovered that we've been giving cattle DES since the 1950s.
Pat
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Age 57, Diagnosed May 2008, Stage II; gr. 3; 4 A/C, 3 Taxol; lumpectomy Sep. 30, 2008; Radiation Oct. 28, 2008.
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krisa
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Posted: Nov 18 2008 at 2:51pm |
Pat, I thought DES was "outlawed" years ago. My mother's generation was given DES in a vitamin pill--to "prevent" miscarriages. My oncologist wants to see me every 3 months. The 77% is what my doctor told me.
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Ms.Pat
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Posted: Nov 19 2008 at 7:17am |
Hi Krisa--
DES for human use was outlawed many years ago. But we gave it to cattle throughout the 70's. I worked for FDA 78-79 and used to see the files there. I'm going to ask my oncologist about three-month checkups, too. I have a good friend who was a DES baby and her mother died of BC in the 60s--my friend had cervical cancer.
Pat
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Age 57, Diagnosed May 2008, Stage II; gr. 3; 4 A/C, 3 Taxol; lumpectomy Sep. 30, 2008; Radiation Oct. 28, 2008.
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trip2
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Posted: Nov 19 2008 at 7:34am |
Ms. Pat let us know what you find out. I'm not so sure 3 mammos a year would be good for you but interested in what your Onc has to say.
Usually you get a check-up every 3 or 4 months and then graduate to 6 months and then a year. My first time after my lumpectomy I had mammos ever 6 month. Once for both sides and the other was a single mammo. per year.
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Stage 2 2003
Stage 1 2007
BRCA 1+
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krisa
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Posted: Nov 19 2008 at 9:45am |
Pat,
The impression I had was that DES was banned for human and for animal consumption in the 70s.
I read "My Year Of Meats" by Ruth Ozaki (sp) and that led me to the DES digest group. I believe my mother was given DES in a vitamin form before she had me. My younger sister and I have more health problems and similar reproductive abnormalities than our older sister. My mother had a miscarriage before she had me. But, I will never know for sure, if she was given DES.
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chaya
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Posted: Nov 19 2008 at 11:11am |
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My healthcare plan calls for exams every 3 months - alternating with the onc and the radiation onc. I see the latter today for the first time since treatment. From what I can tell, I only get a mammogram on the times when I see him. When I see the onc, she asks for blood tests.
One of the things I'm most curious about is what about distance recurrence. Sure mammos will find more breast cancer, but they won't find mets.
I've been a vegetarian for about 15 years but refuse to take the drastic step of becoming a vegan - can't live without cheese.
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trip2
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Posted: Nov 19 2008 at 3:33pm |
Chaya,
When you are thru with your treatments than besides your check-ups, mammos and whatever else the doc might do you will need to be vigilant too.
If anything comes up that concerns you and stays around for two weeks then that is the time to call your Oncologist.
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Stage 2 2003
Stage 1 2007
BRCA 1+
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chaya
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Posted: Nov 19 2008 at 5:23pm |
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Pam - oh yes. When I saw the radiation doc today I asked about how you can tell if it's spread. He gave me a form for a tumor marker test.
One thing I've learned here & at bc.org, it that you have to be vigilant - they are not going to do it for you know matter how good you are.
I like having the two week roll - thanks,
susan
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trip2
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Posted: Nov 20 2008 at 6:35am |
Ok Susan dumb question here, what are you supposed to do with the tumor marker form? Does it give you an idea of the good and bad numbers so that you can look at your results to see how you are doing?
I know my Onc has me do bloodwork one week before exam.
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Stage 2 2003
Stage 1 2007
BRCA 1+
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jacquio
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Posted: Nov 20 2008 at 11:58am |
Hi, my onc group doesn't do scans and I see both rad and med onc every six months. I asked my med onc how I would know if something was wrong. He said, "You'll feel sick, may be throwing up..." He didn't say the 'two week' waiting period, but I've heard that my whole life and most recently from my regular internal med doc. If something doesn't lessen or go away after two weeks, go get it checked out.
I find (so far, at least) that anything that is making me wonder (weird pain, for instance) that once I start focusing on it, it seems to get worse, but eventually I stop obsessing, and realize it's 3 weeks later and I haven't had it for quite a while. I think we are traumatized going through this and it takes a while to get our normal senses back whenever we get a scare.
My youger sister (51) and I have many more health (gyne) problems then our older sister (62). Makes me wonder about DES with our mom, too...She had uterine cancer when she was in her early 60s.
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Jacqui
11/9/07 at age 53, Stage IIb, grade 3, 1/10 nodes DD 4 x A/C and 4 x Taxol, 33 rads with boosts
8/2010 dx early stage endometrial cancer, total hysterectomy 9/3 via da Vinci robotic system.
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jacquio
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Posted: Nov 20 2008 at 12:02pm |
Hi, my onc group doesn't do scans and I see both rad and med onc every six months. The med onc does bloodwork. I asked my med onc how I would know if something was wrong. He said, "You'll feel sick, maybe throwing up, or nauseau..." He didn't mention the 'two week' waiting period, but I've heard that my whole life from my mother, and most recently from my regular internal med doc. If something doesn't lessen or go away after two weeks, go get it checked out.
I also read recently that tnbc is related to a bit higher chance of intestinal cancer. Maybe that's why he mentioned feeling nauseous.
I find (so far, at least) that when anything is making me wonder (weird pain, for instance), that once I start focusing on it, it seems to get worse, but eventually I stop obsessing, and realize it's 3 weeks later and I haven't had it for quite a while. I think we are traumatized going through this and it takes a while to get our normal senses back whenever we get a scare. And I can make myself scared about something daily.
Does it get easier the further from diagnosis we get? I hope so...
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Jacqui
11/9/07 at age 53, Stage IIb, grade 3, 1/10 nodes DD 4 x A/C and 4 x Taxol, 33 rads with boosts
8/2010 dx early stage endometrial cancer, total hysterectomy 9/3 via da Vinci robotic system.
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Diamond2Wheels
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Posted: Nov 20 2008 at 5:57pm |
Hi Pat
Yes, I no longer eat meat, fish, dairy (not even cheese!) It was the first thing that my oncologist asked me to give up...I said, Hey doc, I'm Italian and I love my cheese!
I gave it up...however, once in a while I'll sniff some fine grated cheese! Does that count?!  Naah, can NEVER go back to the society's way of eating any longer, it just doesn't work. I was born in the 50's so all that DES must be stored in my body from years of eating government approved crappy foods.
Eating RAW and my body naturally Purging from it however, is what I am doing now...ya see, every now and again I think I'm smart and return to eating flesh and dairy. THEN Those devil of a pac-men start in my breast all over again.....so back to the RAW eating I go...and Happily this time.
I to am going for a BRCA test for my daughter and my twin grand daughters sake. I pray I am not a carrier! Good luck to you on Dec. 9th.
So, we're in the 77% bracket! That is good news; however, I to am not over the holy crap stage either! I get checked every 3 months with a PET Scan & Sono's -they are great little devices aren't they?
Chin Up, Smiling Side Forward
Huggs of Love, 
Tia
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kirby
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Posted: Nov 20 2008 at 8:39pm |
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Yes Jacqui, it does get easier. I have even forgot some of the detail. I like to keep up...so I feel prepared....in case it does come back. I kept most of my wigs for that purpose too ! The fear tends to go away. Life isn't/ doesn't center around cancer. People know me that aren't even aware that that was my past. I still like seeing the onc 2X a year. I dropped the surgeon to 1X a year last year. Life goes on...
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kirby
dx Feb. 2001. Age 44 Lumpectomy
2cm. no nodes stage 1 grade 3
4 rnds AC, 35 rads
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jacquio
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Posted: Nov 21 2008 at 6:37am |
Hi, Tia,
Did your onc give you a specific reason for not eating cheese?
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Jacqui
11/9/07 at age 53, Stage IIb, grade 3, 1/10 nodes DD 4 x A/C and 4 x Taxol, 33 rads with boosts
8/2010 dx early stage endometrial cancer, total hysterectomy 9/3 via da Vinci robotic system.
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jacquio
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Posted: Nov 21 2008 at 6:40am |
Thanks, Kirby! I am surrounded by a family who believes in the power of positive thinking, but once in a while I need a kick in the butt from someone who actually truly knows.
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Jacqui
11/9/07 at age 53, Stage IIb, grade 3, 1/10 nodes DD 4 x A/C and 4 x Taxol, 33 rads with boosts
8/2010 dx early stage endometrial cancer, total hysterectomy 9/3 via da Vinci robotic system.
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Ms.Pat
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Posted: Nov 21 2008 at 6:58am |
Hey Tia--
You might want to check out the UN-Cheese Cookbook. I think giving up cheese is probably the hardest thing. I've been a lacto-ovo vegetarian for many years, but don't drink milk. In fact, last night I had pasta with pesto. Couldn't quite do without the parmesan. Have also wondered if goat cheese is maybe better...
Pat
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Age 57, Diagnosed May 2008, Stage II; gr. 3; 4 A/C, 3 Taxol; lumpectomy Sep. 30, 2008; Radiation Oct. 28, 2008.
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Diamond2Wheels
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Posted: Nov 21 2008 at 12:22pm |
Jacqui,
Yes, it is because it comes from an animal, and animal products (meat & diary) help cancer grow.
Huggs of Love,
Tia
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Diamond2Wheels
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Posted: Nov 21 2008 at 12:31pm |
Pat,
To me cheese is cheese and I love the texture, the aroma and the flavor of cheese. It is so difficult for me to not have cheese...but it comes from a cow or a goat...it is still an animal and difficult to digest for us and easy for the cancer to feed on...and think about when someone gets a cold....if you stay away from dairy there is less mucas, which in turn gives you a rush of sniffles and also makes cancer grow!
I will try to get the ingredients from the Raw Chef for what he turns into a cheese flavor...his burgers are awsome...no meat and it comes with gravey! MMMmmmmm.
I have not heard of th UN-Cheese Cookbook...since there is no Cooking involved...but it is essentially a cook book since it has to be classified somewhere where us non meat eaters what to find new ways to create veggies! Thanks, I'll look for it!
Huggs of Love, 
Tia
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anna921
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Posted: Nov 21 2008 at 1:00pm |
I'm kind of a pseudo vegetarian. Didn't ever want to go that route, but radiation took my ability to eat meat totally away from me. Chemo aready pulled my sweet tooth and made me cut out the coffee and milk, but I'll draw the line on cheese.
In a way it's good that I can't drink milk because I'm not too keen on the growth hormone additives. I tried the soy milk, but that did not go down too well. What I'm doing, since I don't want the growth hormones, I do buy imported cheese, not from England, but continental Europe. There, adding the growth hormone outlawed and the cheese and butter are more pure and much better.
Since I can't eat no more meat, I did some research to find out what I can take for the protein I need; my Oncologist recommends a protein rich diet since it helps keep the immune system strong. It looks like a grain from South America, Quinoa, has all the amino acids and it's cheap too. It is totally tasteless and because of it, can be fixed any which way. Sometimes I have it 'sweet' by adding orange juice, cinnamon and raisins, and sometimes with salt, pepper and different vegetables.
It's quite hard to find foods without preservatives and when it's there, it's terribly expensive.
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August 2007, Stage III, 5+ cm, Grade 4F, 4 FAC with booster after 4 days, 12 weekly Taxol, radical mastectomy, 36 radiation treatments.
Houston, Texas
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Diamond2Wheels
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Posted: Nov 21 2008 at 1:17pm |
Anna
Quinoa is great! It also comes in flavors. It sounds to me like food is becoming boring. lol I always thought the regular 'pedestrian' food was boring until my eating habits had to change...whoosh like wildfire I dove into raw food like a freight train flying in a tunnel. I'm ok with it since I love olive oil so much and my salts have changed as well I use celtic sea salt only since it has so many minerals in it.
I think I am going to try to get a recipe to post on here for everyone to take a taste! (that is if he'll allow me...everything is so secretive!)
Meanwhile, here is my morning smoothie:
1-coconut (slice top off-I usually do this with a hammer and with a good thickness of a knife on the opposite of the blade) then pour the juice into a blender. Scoop out the meat (mmmm that part is so yummmy) place in blender.
1- whole bag of either baby spinach or a bunch of kale (take your time blending this into the juice of the coconut & the coconut meat.
1 or 2- banana's according to how thick you would like it...for added sweetness you can add either
2 -3majool dates (pitless)
or honey (preferably raw)
Blend it up and drink up!
Huggs of Love,
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