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kmwhope 
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Joined: Mar 23 2014 Location: MD Status: Offline Points: 62 |
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 Topic: weight lossPosted: Jan 13 2015 at 5:01pm |
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Hi There,
I finished chemo the end of Aug 14 and radiation the 16th of Oct 14..I lost about 20 pounds going thru everything and my ONC did not seem too concerned about that. To be clear I was a little heavy so I do not mind at all but then I read that weight loss is a sign of cancer and wonder why I have not put it back on even with my appetite mostly coming back. Has anyone else experienced this after treatment ..I feel pretty good and don't want to read too much into it...I would love to hear your comments...thanks ladies...Kathy
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age 58 dx Feb14 stage 1A grade 3/ had lumpectomy Mar14 1.8 clear margins no nodes// involved..4 AC/12 Taxol//Brac neg
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rosewater
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Joined: Jun 30 2014 Location: Vancouver, B.C. Status: Offline Points: 130 |
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Posted: Jan 13 2015 at 7:39pm |
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Hi Kathy, I lost 15 lbs over the course of my treatments. I finally put 2 lbs back on, and I didn't have much to lose in the first place.
Hugs, Rosewater |
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DX IDC TNBC 03/14 age 40, Stage 1, Grade 3, 2cm, 0/4Nodes, lumpectomy 04/14, DD A/C x4, Taxol x12, Carboplatin x2, BMX 10/14, rads x28 Finished Jan 14/15, Oopherectomy Jan 29/15 BRCA 2+
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Jan 13 2015 at 8:44pm |
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Hi Kathy,
I lost about 22 lbs. during my cancer treatment in 2006. My Oncologist was a bit concerned that I was losing weight, but after I finished treatment, my weight stabilized and he said that was good. I finished chemo in November and it was a few months before I began to gain weight again. I believe it was because I had gone for months not wanting to eat and losing weight and it took a while for my body to recover from the effects of chemo. If your weight has stabilized, try not to start worrying yet. I still have not gained the entire 22 lbs. back. Try to enjoy and not worry. God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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TriplePositiveGirl
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Joined: Oct 07 2010 Location: Los Angeles, CA Status: Offline Points: 667 |
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Posted: Jan 13 2015 at 10:55pm |
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Kathy,
I would not be concerned at all with losing weight while undergoing treatment. Many of us have (I lost 10 lbs and I was not overweight to begin with). If you feel you were over weight to begin with, I would look at this as a positive side effect to treatment, and continue with a healthy eating and exercise regimen to keep your body at an ideal weight. Best Wishes, Lisa |
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Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.
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kmwhope
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Joined: Mar 23 2014 Location: MD Status: Offline Points: 62 |
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Posted: Jan 14 2015 at 11:02am |
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thanks Ladies for your replies ..I do like being 20 lbs lighter and after all I've gone thru it's a nice side effect..lol I would not recommend this weight loss program..haha Here is a great year ahead for all of us with no cancer and overall good health!
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age 58 dx Feb14 stage 1A grade 3/ had lumpectomy Mar14 1.8 clear margins no nodes// involved..4 AC/12 Taxol//Brac neg
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littleradish
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Joined: Nov 02 2013 Location: California Status: Offline Points: 41 |
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Posted: Feb 17 2015 at 5:38pm |
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I lost 35lbs during treatment. My doctors were concerned but that was because I was not eating. It wasn't because of chemo really it was because I was afraid of food. I have gained about 3 lbs so far they are all really happy. I am eating but food truthfully still scares me.
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Diagnosed March 2013, TC chemo from April-July 4 rounds. Double mastectomy Aug of 2013 clear margins and no lymph nodes involved. 4 rounds of gemzar and cisplatin September to October
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susanb
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Joined: Mar 02 2008 Location: United States Status: Offline Points: 110 |
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Posted: Feb 18 2015 at 10:50am |
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I don't know how much weight I lost but I went from a size 14/16 to a 7/9. I just couldn't hold down food during most of chemo. Unfortunately it has come back. Slowly but now I am a size 12/14 and I struggle to stay there. I'd love to be a 9 again, it made buying clothing much easier, especially in thrift stores. It will take you a while to put the weight back on but don't worry it will certainly come back. The important thing for you to do now is to work out to build muscle and strengthen your bones.
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Dx June 06 stage 1 at age 46, no nodes, clean margins, Ki-67 at 54, Bilateral Mastectomy, 4 rounds AC, complete hysterectomy Aug O7. Mother and Grandmother both died of breast cancer dx in their 30's.
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JanaGail
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Joined: Jun 30 2015 Location: Tennessee Status: Offline Points: 33 |
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Posted: Jul 17 2015 at 2:39pm |
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littleradish - I so agree with you there. I was diagnosed June 12th and have lost 13 pounds since then. Im scared to death to eat. All you ever hear is how sugar feeds cancer and I was a sugar/carb junkie. The few things I do eat now are for the most part healthy. We had a birthday party at work and the sight of the cake made me naseous. I just cant eat stuff like that cause Im afraid. I am about twenty five pounds overweight so I could stand to lose some more if i do lose through chemo.
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elainejwang
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Joined: May 01 2015 Location: NY Status: Offline Points: 4 |
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Posted: Aug 04 2015 at 11:37am |
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am i the only one gaining weight? actually my weight went up and down to normal. it's the end of my first chemo cycle. second one starts on friday. i gained 10 pounds 2 weeks ago and went back to normal today. my reaction to side-effect is not bad. plus doc said i'd gain some weight through whole chemo treatments. i guess it all depends on individuals.
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Annie
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Joined: Dec 19 2008 Location: Canada Status: Offline Points: 887 |
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Posted: Aug 04 2015 at 5:01pm |
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Hi elainejwang, Yes, it is very common to gain weight while on chemo as your doctor said. I gained at least 12 pounds perhaps a little more. It came off sometime after all the treatment ended. Glad that you are not having too many side effects. That is great. Take care and wishing you all the best with the remaining treatment. Love, Annie |
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Annie TNBC Stage IIA Gr 3 1cm lesion 2/5 lymph nodes+ lumpectomy,FEC & D 30Rads finished(08/2009) BRCA- Chronic Cellulitis due to Radiation-- L.Mastectomy Jan 2012
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Aug 04 2015 at 10:09pm |
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Elainejwang,
What type of chemo are you on? The first time I had Cytoxan/Taxotere and lost some weight from the surgery and chemo. Nothing tasted good and all I could eat was bland food. The second time I had Gemzar/Carboplatin and had no digestive issues. I ended up gaining about 10 pounds. Sometimes the steroids they give you to help with the nausea can cause weight gain. Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Tamara
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Joined: Jun 24 2014 Location: Buffalo, NY Status: Offline Points: 162 |
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Posted: Aug 06 2015 at 9:40pm |
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With the steroids - I gained 15 pounds. Had AC/Taxol and finished chemo October of 2014. Just lost the 15 pounds. Forced into menopause from the chemo.
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Tadpole
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Joined: Aug 09 2015 Status: Offline Points: 8 |
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Posted: Aug 22 2015 at 3:04pm |
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What about the food is scaring you?
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Penny
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Joined: Dec 28 2016 Location: Sacramento Status: Offline Points: 197 |
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Posted: Dec 31 2016 at 1:02pm |
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I have just gotten my results and have started this journey. I don't understand why the weight gain at all. I have never heard gaining weight while on chemo. When I asked my MO he said it varies. But is it because of the steroids or the chemo? I am confused. I hate to be vain but I feel very sad that we have to go through all of this and gain weight (something that is really important to me and I have worked so hard to maintain all my life). Is there something I can do to mitigate this chemo weight? Most on the TNBC forum say no weight gain but others have experienced it. Just wondering. I am sure I will come to you all a lot over the next 6 months.
thanks everyone - Penny
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susanb
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Joined: Mar 02 2008 Location: United States Status: Offline Points: 110 |
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Posted: Dec 31 2016 at 2:25pm |
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Everyone responds differently to chemo. I met women who breezed through with almost no side effects. I was a puke machine. So YMMV. Exercise if you can (I was too sick to even think about it) and drink as much water as you possibly can. Eat as healthy as you can. Don't worry about weight gain until after treatment and then you can work on losing it. Your main job right now is to beat cancer, everything else takes aback seat to that.
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Dx June 06 stage 1 at age 46, no nodes, clean margins, Ki-67 at 54, Bilateral Mastectomy, 4 rounds AC, complete hysterectomy Aug O7. Mother and Grandmother both died of breast cancer dx in their 30's.
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Jacklin
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Joined: Dec 26 2015 Location: Canada Status: Offline Points: 559 |
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Posted: Dec 31 2016 at 10:02pm |
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Hi Penny,
I think we've all grown-up with the idea in our minds that when someone has chemo, they're nauseous and possibly vomiting a lot. Nowadays, the anti-emetics (anti-nausea drugs) are so good that I had 1 small wave of nausea after my first chemo and that was it, no further nausea or vomiting. The chemo drugs will impact each person differently, one person gains weight while someone else on the same drugs loses weight. Each person is unique and therefore experiences chemo differently. I agree with Susanb - drink lots of water to keep yourself hydrated, exercise every day if you can, eat as nutritiously as possible and don't worry about weight gain now, that is something you can consider after all of treatment is finished, it's not a priority right now. If I may be so bold - I suspect that right now, your weight is something that you feel you can control right now in the midst of everything that's happening to you, leaving you feel like you have no control at all? I did that too in the very beginning but quickly found that chemo took over and weight was no longer an issue, my health was, the gift that each day was as was my wonderful husband and family. Focus on the positives that each day gives you, for the fact that you woke up this morning, that you were able to take a breath of air, etc. Take care of you right now so that you can beat the cancer. Keep posting here, we've all been there and will do our best to support you as best we can. Take a deep breath, take another deep breath, see how much better that feels? We're here for you Penny. You can do this!
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Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16
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Penny
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Joined: Dec 28 2016 Location: Sacramento Status: Offline Points: 197 |
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Posted: Jan 01 2017 at 1:12pm |
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Hi Jacklin,
Thank you for your post. My weight should not even be a worry, but that is what I am focused on. I feel guilty worrying about it too. I am so glad my cancer was caught so early and I am moving forward quickly with an action plan. I actually stopped and stumbled when the weight conversation occurred with my MO. I couldn't believe it. I am sure he thought if very sad that that was my focus. I am grateful to wake up, and live. The word "control" is probably the best way to describe what I am trying to do. The fact that I literally have no control (and have had none since the screening mammogram came back questionable). I live in a controlled world (happily), so this has been bad. Maybe that is what I am supposed to be learning. I don't know. I do know that I am not "connecting" with my MO, he makes statements and when I ask to expand, he moves on not really working with me to help me understand things. Making decisions and assumptions without really letting me be part of the process. I don't know, I am tired of the worry and I really appreciate all of the responses on this site. Thank you for listening to my fear and helping me understand what I am walking towards. Penny :)
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DX IDC, TNBC 12/7/16 (age 55), Stage 1a Grade 2, .6cm, 0/1 nodes, Lumpectomy & node dissection 12/22/16, BRCA1&2 negative 1/23/17 Chemo TC. Chemo completed 3/28/17. 30 RADs completed 6/6/17.
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Jacklin
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Joined: Dec 26 2015 Location: Canada Status: Offline Points: 559 |
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Posted: Jan 01 2017 at 10:54pm |
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Hi Penny,
Speaking from my perspective, I would say it's essential that you connect with your MO. I am able to have any conversation with mine and will suggest things, ask questions until I am satisfied. You should not have to leave his office without understanding anything. Is someone able to go to your appointments with you? For me, we took a tape recorder so that we could listen to what was discussed so that I didn't have to take notes at the same time. You need to be a part of the decision-making process at every step. Perhaps another MO is needed here? Is there another one at the centre where you're receiving treatment? I don't know how the system works in the US so I might be barking up the wrong tree here. I apologize if I made you feel guilty about controlling your weight. I totally get what you're doing, honestly. No judgement passed here. You're at a time where everything has gone hay-wire, nothing is the same as it was, your whole life just got thrown into a blender at high speed and you're trying to catch a breath of air in there somewhere. When do you start chemo? Or are you having surgery first? The waiting part of diagnosis was the most difficult for me because I was 'let's go, get this treatment going because this cancer is growing inside of me, let's kill it, yesterday!" Of course you're tired, your brain is working on over-drive. Sleeping is probably disrupted and you feel groggy before the day even starts. You're normal and know that we've all been there. We're here to help support you as best as we can, so go ahead and ask your questions. There are some wonderful people here who helped me when I was initially diagnosed and started treatment. Keep on posting, don't be afraid of any thoughts or feelings you're having, they're you and they're normal. Much strength for each day, ok? J
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Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Jan 02 2017 at 12:05pm |
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Penny,
I agree with Jacklin about you should feel comfortable with your Onc. I've seen 6 oncologists throughout the years. I switched to one onc when my first one took a sabbatical. She was in the same practice and I thought it would be easier than switching to another cancer center. I did not connect with her at all. She was very dismissive and cold. The last visit with her, she didn't even examine me - had my clothes on the entire time. Just typed at her computer, then left. I fired her and moved on to a top oncologist at another facility. Best decision ever. The top breast oncologist was warm and funny and spent as much time with me as I needed. My advice - if you don't feel comfortable with your medical team, find another one. I viewed my doctors as a team. They needed to be understanding and willing to answer all my questions. If they were arrogant and dismissive, I didn't have a place for them. There are too many wonderful doctors who are caring and considerate to consider staying with one who treats you badly. It's ok to fire them and find a better one. Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Penny
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Joined: Dec 28 2016 Location: Sacramento Status: Offline Points: 197 |
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Posted: Jan 02 2017 at 12:13pm |
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HI Donna
Thanks for the advice. Even before the beginning of treatment I can do that? My oncologist has NEVER examined with w/o clothes on. Stares at his computer and makes assumptions on my care. Answers questions very basically. I am supposed to start in a few weeks and am afraid delaying will be bad for me. I didn't know there were breast oncologist. Maybe I need to do more research. I will keep you posted - Thanks!!! Penny
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DX IDC, TNBC 12/7/16 (age 55), Stage 1a Grade 2, .6cm, 0/1 nodes, Lumpectomy & node dissection 12/22/16, BRCA1&2 negative 1/23/17 Chemo TC. Chemo completed 3/28/17. 30 RADs completed 6/6/17.
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