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Finding TNBC Specialists

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SuCityPoint View Drop Down
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    Posted: Aug 21 2019 at 6:24am
Hi All -

First, I want to thank those of you who have walked this road, and yet still make the time to share your experiences and knowledge with those of us who are in the early stages of the journey.  It is so very helpful.

Second, I'm hoping you can help again.  I finished chemo in June with terrific response. Had a lumpectomy and sentinel node biopsy in July.  Nodes are clear; margins are close but not clear.  Right now I'm sneaking in a few weeks of feeling really good!

MO and surgeon agree that the next step should be re-excision, followed by radiation, followed by another 6 mo of chemo (Xeloda).  Initially I had been thinking of 2x mastectomy, but the surgeon said that based on the pathology she didn't think it was worth putting my body through the strains of the drastic surgery to achieve the same survivability results as the lump/rads/chemo approach.  

I'm OK with the plan, and have finally got a complete team that I like and trust, but before I proceed with this plan (and pay for a repeat surgery), I'd really like to get a 2nd opinion from a MO who specializes in TNBC. Is proton radiation better than X-ray radiation for TNBC?  Wasn't keen about another 6 mo of chemo, but OK ...  is Xeloda the right choice?   I've called Dana Farber, MD Anderson, etc.  I'm being directed to MOs who work with breast cancer, but not who specialize in TNBC.  Is there such a person, or is my quest futile, or am I not asking the right questions?  I live in Maine, so Dana Farber is not very far, and it's certainly a great facility.  And my son lives in Austin, so I can always justify a trip to TX :-)

Grateful for your suggestions, recommendations, etc.  It's a beautiful morning in Maine; hope it's the same where you are.

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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 21 2019 at 9:27am
I found this post in a previous thread.  I'm not sure if the doctors are still current at their location, but thought this might help you.

Here's what was posted in previous threads for oncologists in the northeast.  Maybe others will see this post and offer some more suggestions.

MARYLAND 

-Tatiana (Tanya) Prowell, MD 
     Johns Hopkins                                Baltimore MD 
     http://www.hopkinsmedicine.org/doctors/results/directory/profile/0012228/tanya-prowell?vip_doc=false&lastName=Prowell&nameSearch=Go&hch_doc=no&gs_doc=yes&jh_doc=yes&CLEARPAGECACHE=false&cp_doc=yes

MASSACHUSETTS 

-Eric Winer, MD          
     Dana Farber Cancer Institute                   Boston
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&pgt=Eric+P.+Winer%2C+MD&grouptype_typeid_data=1&gs=c&nxtfmt=r&display=Y&pict_id=0000262
http://www.tnbcfoundation.org/ourpeople_winer.htm

-Ann Partridge, MD    
     Dana Farber Cancer Institute                    Boston 
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&last_name=P&pgt=Ann+H%2E+Partridge%2C+MD%2C+MPH&grouptype_typeid_data=1&gs=c&nxtfmt=c&display=Y&pict_id=0000306


NEW YORK 

Tiffany Traina, MD        
        Memorial Sloan Kettering Hospital                         New York, New York 
http://www.mskcc.org/prg/prg/bios/955.cfm 


PENNSYLVANIA 

-Susan Domchek, MD           
     Abramson Cancer Center                        Philadelphia 
     http://www.penncancer.org/patients/find-a-doctor/85/
http://www.tnbcfoundation.org/ourpeople_domchek.htm

-Massimo Cristofanilli, MD     IBC - Inflammatory Breast Cancer expert) 
     Kimmel Cancer Center At Jefferson     Philadelphia
     https://www.jeffersonhospital.org:443/healthcare%20professionals/massimo-cristofanilli
     http://www.jeffersonhospital.org/related?rel=vp&to=0fa744a3-c81a-4d7d-a9e4-cf04bbed896b&ri=eb9c9510-221c-4f38-a790-7c5beeb0bd76
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote SuCityPoint Quote  Post ReplyReply Direct Link To This Post Posted: Aug 21 2019 at 10:40am
Fantastic, Donna.  Thank you very, very much!
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