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sunbearz 
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Joined: Jan 02 2008 Status: Offline Points: 295 |
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 Posted: Feb 01 2008 at 5:44pm |
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Well, the new position is a little boring ,but Im in my own world with no stress and that was my purpose.Almost brain dead feeling.I know its where I need to be right now-not where I was 2 wks ago.Guess I need to remember how it took all of you and my family to dig me out of that hole.Work is a good distraction.
I am seeing an attorney next week to discuss a will and disability. I dont have it at work so have to go Govt wise.
I dont need it now, who knows 6 months from now.It would be awful to start some treatment and then all of a sudden couldnt work.
As the Girl Scouts say "Be Prepared".
Im doing fine and feel good.Have to mow the grass tomorrow-yes in FL were still mowing.The flowers and trees are blossoming.Too cold to go to the beach 56 degrees tonite 74 tomorrow.I know, poor me. But thats cold here.
Im all ready for Mon rads.I will bless you all at Church on Sun.This should be interesting going to a Catholic Church for the first time.Need to meet up with that Saint Blaise.Im sure Ill have a funny story to tell.
 Jill
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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Sadie-Rose 2
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Joined: Jan 15 2008 Location: United States Status: Offline Points: 24 |
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Posted: Feb 02 2008 at 5:13am |
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Good Morning Sunbearx,
Hope you slept well last night. It will be interesting hearing about your visit to the Chatholic church. We know that when people pray for you or send you positive energy it reaches you. It sounds wonderful to have grass to mow and flowers. Where I live we are in the rainy season, but spring will burst with color. Sending you positive thoughts~~~~~~~~ Warmily, Sadie Edited by Sadie-Rose 2 - Feb 02 2008 at 6:38pm |
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cg---
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Joined: Jul 20 2007 Location: Canada Status: Offline Points: 1379 |
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Posted: Feb 02 2008 at 5:43am |
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Dear Jill,
Just remember not to sit too close to the front....so you can watch what everyone is doing!
One Sunday, my 3-year-old son (using his church whisper - 3 octaves lower than playground voice), asked if he could change religions? I made the mistake of asking why in the middle of mass....and he replied "My knees hurt...I want a religion with no kneeling". Naturally, everyone around us heard and started laughing!
Connie cg---
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sunbearz
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Joined: Jan 02 2008 Status: Offline Points: 295 |
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Posted: Feb 02 2008 at 6:16pm |
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Thanks Sadie, Too funny cq,
Lets see if I got. Sit in back row, dont kneel, might not be able to get up.
Dont talk too loud.Im just going to soak it all in and hope my family does also. Feel the presence of God and bless you all . Thats good enough for me.Im taking all of you with me and to the beach after.Since that ole groundhog showed its face.
 Warm wishes
Jill
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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sunbearz
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Posted: Feb 03 2008 at 7:31pm |
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Ok Ladies you are all Blessed and prayed for. I forgot myself.The Catholic church was great.Friendly people.I was blessed by Saint Blaise-the throat saint.Tomorrow is rad number 1.I sure hope they know what their doing.
After number one is over ill feel better.I just have to remember its all for the cure and 10 years is hope for all . Gotta go for 5 more.
 Jill |
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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Sadie
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Joined: Sep 25 2007 Location: United States Status: Offline Points: 97 |
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Posted: Feb 03 2008 at 7:46pm |
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Hi Sunbearz,
I'm sure you got blessed too! I am glad you felt received at the church. There was a lot of positive energy in one room for you.
How many radiation treatments do you have to do? We'll all journey with you.
Hope you have a restful evening.
Warmly, PS Did you catch the Freudian slip in your post?
Sadie Edited by Sadie - Feb 03 2008 at 7:50pm |
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sunbearz
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Posted: Feb 03 2008 at 8:03pm |
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Yes Sadie, I caught the slip.
4 weeks -not too long as it is a delicate area.
Thanks for being there with me.
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 04 2008 at 4:13am |
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Good morning Jill,
We will be with you today.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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sunbearz
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Joined: Jan 02 2008 Status: Offline Points: 295 |
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Posted: Feb 04 2008 at 2:33pm |
 Hey Trip, Thanks. Went through rad #1.Thinking This big machine is going to make me better,Do they have the right angles,Is the tech paying attention as it was 5.00.I was consoling a lady who this was her first time, saying this is a piece of cake, you wont feel a thing. She came out saying "thanks youre right".
I drove home and a song came on the radio,SEALS, Kiss from a rose, and had tears in my eyes.I was thinking about being a kid again.
Dont know what Im feeling, happy there is something for me and also feeling what this does to my family.I can take it, but how do they hold it together seeing me go through this again.
Jill
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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trip2
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Posted: Feb 05 2008 at 7:14am |
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Jill,
Being the woman we are always more worried about our family than ourselves. It's ok sweetie, you are in one of those times which I cannot fully understand but talk to us and we'll be here for you.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Feb 05 2008 at 8:39am |
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Jill,
I have always viewed my family as fans while I'm in the game fighting the good fight. They don't wan't to see us hurt, they want to see us win....problem is this isn't a game anyone wanted to go to and we're fighting frickin' lions!!! Good thing they don't have Saints!
Your spirit will carry you through!
Ronda
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DX 3/07 IDC Trip neg, stage 2b, SN biopsy 3 node neg. No vascular invasion, Mast 4/07 AC+T DD Finshed 8/07 BRCA 1, Proph Mast 10/07. Reconst & Prophy Hyst. 10/08
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sunbearz
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Posted: Feb 05 2008 at 5:33pm |
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So true ronda,I think I convinced my family to please go on with your lives so I know what normal is and can follow.I know what my life is,help me to remember what I used to be like. Just as I go to work to be distracted, I want to come home to the same.
Caring and concern is good and the special things my family does for me.
But for me to be ok, they have to be ok, otherwise Iwill focus on them and wont worry about me.
They are my cheerleaders
 . I think its harder on those we love, than us. We know what we have to do. They dont. jill
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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sunbearz
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Joined: Jan 02 2008 Status: Offline Points: 295 |
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Posted: Feb 07 2008 at 6:11pm |
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Didnt see this coming, but things are looking up. 1st week of radiation, throat is. feeling better,even though the Dr said it could get worse before its over.Tumor marker is going down slowly. Feel great.
Want to get back on the Doxcil as it looks like my cancer hates that drug.
Yea!Just what I wanted to see for others and myself.A Chemo with no side effects.
Keep the Faith ladies, I am
jill
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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Sadie
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Joined: Sep 25 2007 Location: United States Status: Offline Points: 97 |
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Posted: Feb 08 2008 at 1:23am |
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Jill,
I am so glad your throat is feeling better. Doxcil sounds like the drug of choice for you. How are you feeling energy wise?
Hope you have a lovely weekend.
Warmly.
Saie
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 08 2008 at 5:02am |
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Jill I'm so very glad to hear your throat is feeling better.
I meant to tell you my middle name is Jill, I love that name, wanted to switch it when I was little but mother wouldn't let me.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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sunbearz
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Joined: Jan 02 2008 Status: Offline Points: 295 |
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Posted: Feb 08 2008 at 3:12pm |
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Im doing so much better,Energy wise Im fine .With one day off its like freedom, The rads make me sleepy right after, but tonight being Fri, I feel sooo good.Im really optomistic about the next three weeks.
That big ole machine over my face freaks me out shooting beams to my throat.But 2 minutes later Im outta there.
Going out with my daughter to look at houses.She wants to buy one, so its a mother and Daughter day. Unfortunately Sunny Fl isnt so sunny tomorrow.Which reminds me of all the people whose lives were uprooted by the tornados.My heart and prayers go out to them as I sit in my safe home.
Hey Pam, good thing you werent names Jill, then you would be Jillybean, jillybear,jilda,and the old "Wheres Jack"?Well my answer is I took Jack up the hill, cracked his head open and wrapped it with brown paper ,and as far as I know Hes still up
there.As you can see Im getting my humor back. So nice to laugh.
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip triple neg brca-gemsar Abraxine 2008 -gemsar/taxol combo Taxotere ,Ixempra,liver, lung Mets Testosterone |
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Barb T.
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Joined: Jan 10 2008 Location: United States Status: Offline Points: 30 |
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Posted: Feb 12 2008 at 1:11pm |
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Gosh, the discussion re: disability has been very informative for
me. I'm currently receiving disability, have been for just over a
year. I rec'd it very quickly after signing up for it. I
was diagnosed with Stage IV in 2/06. Tried to keep working but
was unable because of all the side affects from the various
treatments. However, I have always felt guilty about taking
it. I've never 'taken' anything in my life. Always gave
110% at work. Reading your responses makes me feel so much
better.
I do have a question. When I signed up for SS disability, I was also receiving disbility from my State government job. I thought that was running out. However, it keeps going. Does anyone know if this is going to cause me problems? I still haven't figured out why I continue to receive from the State. I didn't work there that long. But, when I send in the forms every 3 mos. as instructed, they keep approving. It's all been very helpful since I have to pay a lot of medical expenses out of pocket. However, beginning to worry there could be problems down the road. That's the last thing I need in my life. Thanks! Barb T. |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 13 2008 at 4:11am |
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Jill this is such good news to hear you are continuing to feel better.
The mother-daughter day to look at houses sounds fun. Did she find something?
I had a "do our nails" day last week with my 21 yr old and enjoyed
the spontaniety of just jumping up and going.
I've never hadmy nails done before, that was fun.
Oh dear I never thought about what they could do with the name Jill. Think I'd take Jillybean over Pammie!
Thru high school everyone called me by my last name so I got over it. It is fantastic to see your sense of humor back, hugs and big wishes for smooth sailing thru the rest of those rads, Edited by trip2 - Feb 13 2008 at 4:13am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Cookie
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Joined: Feb 05 2008 Location: United States Status: Offline Points: 70 |
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Posted: Feb 13 2008 at 6:24am |
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Here is a great site I came across. Go there and put in your profile and Johns Hopkins will give you statics, advise, answer your questions. Everything is geared for you personally. Pass this site on to everyone you know that has bc.
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shellieh51
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Joined: Oct 10 2007 Location: United States Status: Offline Points: 218 |
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Posted: Feb 13 2008 at 2:08pm |
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Thanks Cookie - I will definitely log in to this site.
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dx 11/6/2006 1.5cm IDC, Gr3, TN, BRCA-, lump, partial breast rads 1/2007, 4 AC, 12 wkly Taxol. Completed tx 8/2/2007. NED 12/2007. Malignant parotid tumor 4/2008. Clear head 4/09 & bones 11/08 -
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