Daisy49 |
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alexanjb 
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Joined: Aug 20 2010 Location: Fulton, NY Status: Offline Points: 27 |
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 Topic: Daisy49Posted: Apr 11 2011 at 8:27am |
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TNBC member Daisy49 lost her fight with TN inflammatory breast cancer on April 2, 2011.
She told me that this site gave her a lot of comfort and felt that the people in her life without TNBC could not possibly understand what we go through. She was a coworker in one of our regional offices and she reached out to me in a major way, by sending funny little gifts through our interoffice mail. Things like a little chia pet dressed pink with the bc ribbon and a challenge on which one (me or the the chia) would get hair first!
Leslie went quickly when the time came; she worked right up until a few weeks before she went into hospice and died shortly after that.
She was also a spokesperson for all of us: “I’m very upset,” said Leslie Twohig, 48, of Lothian, Md., who has been taking Avastin for eight months and credits the drug with helping her survive. “How long will I be able to stay on Avastin? Are they going to take it away? I know it’s working for me. Right now I am able to enjoy my life. Every morning I wake up and wonder how long it’s going to go on.” This quote can be found all over the internet by googling her name.
Leslie was my mentor and my friend albeit long distance. She told me from the start that she felt I was going to make it past this and she was not. I always had a better chance with a diagnosis of Stage 3c than she did with Stage 4. I do hope to get past this and keep a place of honor for Leslie in my heart.
I thought some of you would like to know of her passing. I am told her family was at her side.
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Normal Mammo 11/09, Found lump 2/10,Dx IDC TNBC Negative,unilateral mod rad mastectomy,(4)AC, 12 taxol, 6 wks radiation, Stage 3c,Grade 3.8 cm tumor, 11 lymph nodes removed. Age 53 at diagnosis.
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TNBC_in_NS
Senior Member 
Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Apr 11 2011 at 9:12am |
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Thank you for posting Leslie's obituary.
Leslie was a very kind contributing member of the Triple Negative Breast Cancer Foundation. She was always there to send a kind word to those who were having testing or new chemo trials. She will be greatly missed! Most of the gals that Daisy49 (Leslie's user name on TNBCF)spoke to are also gone, but they will never be forgotten! No more pain, and numbness, no more rumbles in your ears, no more trying to go to work .....
May You Rest In Peace Daisy49 in the arms of our Lord Jesus, Amen. TNBC_in_NS, Helen |
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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SagePatientAdvocates
Senior Advisor 
Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Apr 11 2011 at 10:02am |
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Dear alexanjb-
I am glad you decided to post about Daisy49. I was particularly saddened by her obituary. Another good woman tragically shortchanged at such a young age. Our TNBC family has suffered deeply these last months with many losses. I think these tributes are so important for all of us so we can properly mourn our dearly departed.. Leslie shall be missed and remembered..May she rest in peace. Thank you for sharing Leslie’s personal information with us and how she positively impacted your life. She did that with many here. Steve
Edited by steve - Apr 11 2011 at 1:12pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Apr 11 2011 at 11:31am |
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I am deeply saddened by Daisy 49's passing. Too fast, too young, so senseless. Lee in Denver |
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Apr 11 2011 at 12:37pm |
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Thank you for letting us know about the death of Daisy49. She was always very supportive of those on the TNBC site. It sounds as though she suffered a lot. May she rest in peace and I will miss her and her posts.
God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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Pink Warrior
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Joined: Dec 11 2009 Location: Missouri Status: Offline Points: 374 |
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Posted: Apr 11 2011 at 3:39pm |
RIP sweet Daisy.
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Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 - Partial DD EC/AC Local recur 11/10 BMX 12/10 Right proph TC x 4 Rads x 33 9/11 Skin mets, mediastinal & hilar nodes Abraxane/Avastin |
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Apr 11 2011 at 4:30pm |
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Oh no, so sad. I'm so sorry to hear that we have lost yet another beautiful (and young) sister to TNBC.
I'm glad she was able to live fully up until the end of her life, even continuing to work up until she entered hospice. That's amazing and inspiring. She was always very sweet to everyone here on the site. love, Denise |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Apr 11 2011 at 8:15pm |
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I am terribly saddened to hear of Leslie's passing. As I am still attempting to deal with my own grief of losing my daughter, I thought I would be numb to any other feelings, but I find I am not. I am angry, terribly angry, that we have lost yet another wonderful woman to this heartless, nonsensical disease. My deepest condolences to Leslie's family, her children, and all those that will miss her dearly.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Apr 12 2011 at 6:51pm |
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Thank you so much for letting us know, just heartbreaking news....
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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