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teresa carter 
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Joined: Jul 12 2007 Location: United States Status: Offline Points: 8 |
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 Posted: Jul 13 2007 at 5:12am |
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I've been seeing an ENT dr along with my oncologist about my vocal chords. No, this isn't a side effect of the chemo. The cancer affected my vocal chords at the beginning and the chemo has just aggrevated it . I go every week for chemo. Every third week, I have the Avastin along with the Abraxin. It's been rough because I've been doing this since January 2007 with only 2 weeks off. I will have surgery on my left vocal chord as soon as my right vocal chord has healed which will be a slow process because of the chemo. I have a hard time swallowing, talking, and breathing. I'm a teacher and you know how we love to talk. I've had to take a leave because I can't talk for a very long period of time. Oh well, it could be worse. I've been very blessed and I'm thankful for such wonderful doctors. Teresa |
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trip2
Senior Member 
Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 13 2007 at 6:21am |
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Ah Teresa I'm so sorry you have to go every week for chemo, I can only imagine how rough it must be for you and only 2 weeks off since January?
Good grief!!
So how long will you be doing chemo and then can get going with your surgeries?
Yes it could be worse but it sure is harder when you have other things going on while trying to fight cancer.
I'm so glad too that you like and trust your docs, that makes a big difference.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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teresa carter
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Joined: Jul 12 2007 Location: United States Status: Offline Points: 8 |
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Posted: Jul 13 2007 at 7:13am |
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Pam, I will be on Abraxin thru August but I will remain on Avastin. The doc hasn't mentioned how long the Avastin will last. I will have to be off the Avastin for 3 weeks before I can have any type of surgery. This treatment makes you bleed easily. It actually cuts the blood supply off from the cancer. I will be happy to have the surgery because of my voice. I can speak but it's very faint and scratchy sounding. But, I'm still here, fighting this disease with all I've got. Teresa
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Shalom
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Joined: Jul 01 2007 Location: United States Status: Offline Points: 22 |
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Posted: Jul 14 2007 at 4:01am |
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thank you for your blog loved reading about your chrildren. My son and grandchildren are all in Hawaii it sure is a long way from FL but email and phone call help. I found taxol easer on my system…still not easy but do able. |
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Infiltrating ductal carcinoma 2cm mass & 8x5 cm extensive malignant disease grade 3
multiple sentinel lymph nodes Chemo FEC-X4 Taxol 12 weeks Surgery modified radical mastectomy no cancer found |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 14 2007 at 4:11am |
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Teresa good for you, I love your attitude.
I know sometimes these health problems can come in a clump and it just adds stress and impatience at times but we've got to keep the beast away.
Well that's good you will be thru with Abraxin at the end of August and hopefully the Avastin soon so you can move along, bless your heart.
Keep us posted, enjoy hearing from you.
Since it is difficult for you to talk right now this board may help you share your thoughts thru emails.
Edited by trip2 - Jul 14 2007 at 4:13am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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teresa carter
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Joined: Jul 12 2007 Location: United States Status: Offline Points: 8 |
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Posted: Jul 14 2007 at 9:54am |
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I am excited about being a part of this discussion group. It keeps me updated and encouraged. I feel blessed by having a great doctor that keeps a close watch on me and a great family. Now I have this group to discuss my fears. Thank you. Teresa
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HollyHopes
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Joined: Jul 14 2007 Location: Los Angeles Status: Offline Points: 26 |
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Posted: Jul 14 2007 at 10:57am |
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Hi - This is my first time to this site. Referred by Zan at breastcancer.org which I have loved.
I have IDC, Stage 1, Grade III, no nodes, Triple Neg. Completed dose dense A/C - T on June 15th and begin radiation on July 16th.
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 15 2007 at 3:56am |
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This foundation and discussion group is exciting Teresa isn't it?
You are indeed blessed and we are lucky to have you in our group.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 15 2007 at 4:01am |
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Hi HollyHopes and a warm welcome to you.
When you have a minute please vote in our polls. We're trying to gather up some information from our community on triple negs.
I see you have completed your AC, whoohoo, and onto the radiation.
I found the radiation to go very quickly for me, I hope it does for you too!
Best wishes and keep us posted HollyHopes,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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fd411
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Joined: Jul 04 2007 Location: United States Status: Offline Points: 62 |
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Posted: Jul 15 2007 at 8:18pm |
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Hello,
I'm Ferne and here's my story so far. I was diagnosed April 2006 with Invasive Ductal Carcinoma, Grade 3 with extensive necrosis and positive nodes confirmed by biopsy (right breast and axilla) May - August 2006: Neoadjuvent Chemo: 6 rounds TAC. September 2006: Lumpectomy with Axillary Node Dissection. Final pathology showed 6/18 positive nodes. Stage IIIA. November 2006 - January 2007: 28 Rads to whole breast, axilla, chest wall and supraclavicular nodes with 5 boosts. May 2007: metastases to both lungs, chest wall, pleural lining, supraclavicular nodes. July 2007: Skin Metastases to right breast and axilla on left side. I'm hoping to start Chemo soon. Either Xeloda and Avastin or Carboplatin and Taxol. Best wishes to all of you |
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teresa carter
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Joined: Jul 12 2007 Location: United States Status: Offline Points: 8 |
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Posted: Jul 16 2007 at 2:03am |
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I'm sorry you've been through so much. You're attitude sounds so strong and positive and that will definitely see you through this. I'm on Avastin which is not too bad. It made my blood pressure sky rocket but other than that it's manageable. Good luck to you. Teresa |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 16 2007 at 3:36am |
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Hello Ferne and a big welcome to you.
Thank you for joining our community, this is all very exciting that we have a place now for triple negs.
Bless your heart you have had quite a time of it over the last year or so.
Keep us posted on when you will start your chemo and how you are doing.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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sportress
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Joined: Aug 13 2007 Location: United States Status: Offline Points: 18 |
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Posted: Aug 13 2007 at 4:34pm |
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I also have adenoid cystic carcinoma, dx'd in july 2002 at 42 yrs old. I had for 4 yrs complained about constant pain in my breast in one spot, mammos & US every 3 months, always told it was caffiene consumption, or bad discs in my back, or neuropathy, etc. saw every kind of neuro doc etc. Finally a lump big enough for THEM TO BELIEVE ME something was wrong...funny how now it was ALL MY FAULT. I constantly reminded them that i had been complaining for 4 full years. I had a stereotactic biopsy. Surgery with a breast surgeon who had treated and knew what ACCB was. I had a 1.6cm tumor stage 1 grade 3 triple neg. I had a lumpectomy and SNB, with a negative node. I immediately developed lymphadema.
I contacted the American Cancer Society and Mayo about ACCB who both said NO CHEMO IS OF ANY BENEFIT, ACS also mailed me a chapter from the book Diseases of the Breast that stated NO CHEMO. I refused chemo, despite the dire warning of the oncologist who told me...I have not heard of this cancer before at all, but want to hit you with all the chemo we have, if you refuse you will be dead or dying in 2 months, he also told me i had to go back and have a radical mastectomy because lumpectomy and SNB were useless, i needed cancer surgery and that meant removal of everything all the way to the ribs....hmmmm he did not even want to accept the research that i had done on ACCB. I refused chemo and his radical mastectomy and still smile everyday because of it.
I unfortunately was not so smart about radiation,
 and i regret it with every painful breath i take. i have numerous severe health problems since radiation...personally blame 99% of it on the fact that the rad onc i was assigned to WAS A PROSTATE SPECIALIST. he had no clue but wanted to use me as a experiment for writing a paper since ACCB is so rare. I suffered 3rd degree burns and massive nerve damage, which was the least of my problems. I lost 2 full cup sizes of breast tissue due to shrinkage, i went from a normal D with a tiny lump to an abnormal small B. I had plastic surgery to restore my damaged breast back to normal size of D.it will be 5 yrs since i had surgery on aug 22, 2007. I see my surgeon for the last time this coming wednesday. As i was in 2002 and still am, single, no partner, kids, family, close friends. I live in Seattle, Washington
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Donna
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Joined: Aug 09 2007 Location: United States Status: Offline Points: 9 |
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Posted: Aug 14 2007 at 1:07pm |
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Hi Lucky, I was dx w/ invasive metastatic ductal carcinoma of the left breast and had 2 nodes positive for metatstatic carcinoma. I was misdiagnosed for 2 years cause no one in my family had breast cancer. The dr. said it was probably just a fibroid so not to worry, that was 2004 and then in 2005 it was larger but still, I was told not to worry, I suggested a possible biopsy, but was told it wasn't necessary cause it was definitaly a fibroid. Even after the nodes enlarged, I was told it was cat scratch. HAHA right, since I hadn't been scratched by a cat. Well my cat scratch was stage 3 grade 2b cancer. Hope this helps, still learning about this cancer my self.
Donna
Stage 3
Grade2b
2 nodes 25% each Edited by Donna - Aug 14 2007 at 1:10pm |
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Donna
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Aug 15 2007 at 6:46am |
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Oh Donna, I'm so sorry this happened to you, how awful you had to wait so long for them to take notice!
Are you in treatment now?
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Melaniesmom
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Joined: Aug 10 2007 Location: United States Status: Offline Points: 14 |
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Posted: Aug 17 2007 at 11:31am |
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Hi I'm Melaniesmom - Amy.
I felt a lump on March 16, had ob/gyn appt on 3/20, She felt a 6 x4 lump. Had a mamm & ultra 4 cm, biopsy April5, result 4/9, got real drunk on Easter Sunday - sorry Jesus I just had a bad feeling about the results.
IIa, grade 3, tumor 3.9 cm influtrating ductal carc.
Mast 4/23 of leftie
5/30 start A/C - 4 rounds
 neutro 2xs donevaction til 8/20 to decide taxol or taxotere
start following week
no idea about 3 of rads - onc says 4 -5 wks
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Melaniesmom
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Joined: Aug 10 2007 Location: United States Status: Offline Points: 14 |
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Posted: Aug 17 2007 at 11:35am |
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I had a SNB - 10 taken - 5 in breast tail and 5 more - all neg. Hoping for no swelling ever!
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KIM39
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Joined: Jul 26 2007 Status: Offline Points: 10 |
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Posted: Aug 27 2007 at 3:32pm |
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Hi
I have inflammatory breast cancer thats triple negative and believe me I understand your frustration. My type is also rare, I have placed my faith in my oncologist to know what shes doing because I can find little info thats helpful. I hope you have found a doctor you trust.  Are you being treated in a comprehensive cancer center? |
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HollyHopes
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Joined: Jul 14 2007 Location: Los Angeles Status: Offline Points: 26 |
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Posted: Aug 27 2007 at 3:48pm |
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dears,
i have stage II, grade III IDC with no nodes. i completed A/C and T (dose dense) and have 3 more rads to go...out of 34....
a woman in my support group (breast cancer, not family support system) died Friday. i am quite devastated.
i live alone. boyfriend of 12 years (who is now fancying younger, more fit and disease free women) lives 1000+ miles away. older child (dtr) in grad school in NYC and younger child (son) first year in college locally. i live in Los Angeles.
i feel very sad right now. Edited by HollyHopes - Aug 27 2007 at 3:48pm |
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IDC/Stage II/Grade III/ 1.5cm/no nodes/lumpectomy/AC&T dose dense/35 rads/reconstruction surgery #1 May09/reconstruction surgery #2 Sept10
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BeeCee
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Joined: Aug 26 2007 Location: United States Status: Offline Points: 20 |
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Posted: Aug 27 2007 at 9:07pm |
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Hi, I just joined this site yesterday and I'm so glad I found it. I have already gotten so much good info here as well as encouragement. It's hard to put into words how you feel when everyone around you thinks that because you are done with your tx, that you are over the cancer! I don't feel like I will be over it until I pass that 5 year mark. For now, seems like I am watching and waiting. If I said this to my family and friends, they would be shocked and I wouldn't want to make anyone feel bad. So, if I speak my mind here, I think you all will understand.
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Bonnie, age 63, Dx on 8/7/06 IDC stage 1 grade 3, triple neg, lumpectomy x2 of L breast, 8 nodes neg, 4 x AC & 4 x Taxotere, bone scan 2/07 (neg), 33 rads, Tx finished 5/7/07, Mammo 8/9/07 (normal)
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