Clinical behavior of a cohort of patients with TN |
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trip2 
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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 Topic: Clinical behavior of a cohort of patients with TNPosted: Jun 24 2008 at 6:39am |
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This is a small study. "Background: In recent times, there have been publications on the clinical characteristics of breast cancer that is negative for ER, PR and Her2, triple negative BC, but its behavior patterns are not clear We present the descriptive analysis of a cohort of triple negative patients at our hospital"
If you guys would prefer I can stop putting up these articles or studies. I know some of them are upsetting and I always hesitate.
Hugs to you all,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Cheryl51
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Joined: Dec 31 2007 Location: El Cerrito, CA Status: Offline Points: 314 |
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Posted: Jun 24 2008 at 7:19am |
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I, for one, appreciate your research, Pam. I'm one of those who likes to know about what I'm dealing with. I feel like folks can either choose to open up these articles or not.
So, thanks.
Cheryl51
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Sadie Rose
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Joined: Mar 28 2008 Location: United States Status: Offline Points: 96 |
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Posted: Jun 24 2008 at 10:03am |
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Pam,
I really appreciate you resrearch too. I feel you help me stay updated on current issues I might not have time to find.
I can remember times when I needed to take a break from reading new information, but I can make that choice whenever I want.
Warmly,
Sadie
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Christie1
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Joined: Apr 25 2008 Location: United States Status: Offline Points: 15 |
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Posted: Jun 24 2008 at 6:39pm |
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Pam,
I'm with Cheryl, I appreciate the research you do , and for those who don't want to read your posted studies, they don't have to open them. I try to keep up on the research, but you find studies that I don't always have the time to find. So yes, even though they can sometimes be depressing, I feel we can't give up hope. The more research the better!
Christie
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DX 4/05 WHILE PREGNANT AT AGE 34, 1.9 CM IDC, TN, GRADE 3, BRCA1+, 21 NEG LYMPH NODES, B/L MAST W/ RECONST., 4 CYCLES AC CHEMO, PROPHYLACTIC SALPINGOOPHRECTOMY, MARRIED 11 YRS W/ 3 BOYS, 9, 5, AND 2.
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Beth Anne
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Joined: Apr 24 2008 Location: Clairnbridge, Ireland Status: Offline Points: 376 |
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Posted: Jun 24 2008 at 8:00pm |
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Hi Pam,
It's all good with me... I just don't have time to do the research that you are doing... So keep up the great work!
The facts are the facts we all have to take the good with the bad!
 Beth Anne
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Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
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Jessie
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Joined: Aug 07 2007 Location: North Carolina Status: Offline Points: 515 |
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Posted: Jun 25 2008 at 4:40am |
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Oh Miss Pam, you do us all a great service by posting the interesting websites you find ---- don't stop !!!
 Jessie
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IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06, systemic MRSA post surgery septic shock, heart attack triple bypass 1/07 no chemo due to infections and heart issues so far NED! |
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English Jan
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Joined: Sep 23 2007 Location: United States Status: Offline Points: 97 |
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Posted: Jun 25 2008 at 5:23am |
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Pam,
I appreciate all your loving hard work researching this for me/us... If we have coped with diagnosis and treatment, I'm sure that I can cope with research good/bad/in different. Most of the time I can't understand a damn thing and even reading the conclusions iare like a hieroglyphs. Always gives more questions than answers ... So 46% alive with NED after 15 months!!!!!! Why not the full 6.5 years follow up? mmmmmm 15 months from when? Dx? Chemo end? radiation end? Surgery end? So 54% had something, of which 8 died. Is that your understanding Pam? Do I have to have p53 levels done now? If I'm p53 positive or negative then what? Where the ones who had reoccurances p53 pos/neg. many holes not answered .. perhaps we can put a questonaire together Pam and contact them. Can we offer to join their "study" group when they expand the testing? Many thanks, this is good ..let's get a dialogue going with these researchers. Be not afraid. Love and Light English jan |
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FL. 58yrs DX LIDC 8/18/07. 08/23/07 Lump+SNB Node -ve. T2.5cms clear margins, TNBC, Stage 2A Grade 3. 9/18/07 TX Cytoxan+Taxotere.Neulasta.4x3 wks.Rads 30+5 FINISHED 28th Jan 2008.
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Beth Anne
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Joined: Apr 24 2008 Location: Clairnbridge, Ireland Status: Offline Points: 376 |
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Posted: Jun 25 2008 at 3:25pm |
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Hi Jan, Was the test for p53 just a blood test they will do for you??? Or do we need to have the gene doc's do it? I was thinking about asking my onc about it but I wasn't sure if it was somthing that doc's are getting on board with or not.
There is just so much new information out there I never know what to take to the doc's and what to just sit back and see how the reseach progresses.
Beth Anne
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Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 26 2008 at 5:50am |
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English Jan, oh how I would love to sit around a table with some of these people and ask questions. You are right, how do you take the darn article or study? Beth Anne, my lab does not do the p53 test but I noticed that some women do have it done at pathology time. I don't know why that is so I would suggest you ask your doc next time you go in and let us know what he says.
Or I could ask for that matter but don't go in for a couple of months yet. We'll find out.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Netterz
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Joined: Oct 05 2007 Location: United States Status: Offline Points: 405 |
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Posted: Jun 26 2008 at 6:23am |
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Hrmmmmm, interesting.......but am not buying it. They left some serious crater sized holes in this bit of info. I too would love to sit with these people and put some questions to them.
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T-Neg diag.5/07-40yo
Stage IIIa Grade III 7/26 +nodes ax. 4-A/C pre-lumpectomy 2 Taxol post +Tissue involvement Finished Rad 4/08 DX of Advanced CTCL 2/09 Lansing,MI |
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