Chemotherapy is the only thing effective on TNBC |
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kittycat78 
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Joined: Jan 24 2010 Location: Virginia Status: Offline Points: 13 |
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 Posted: Feb 02 2010 at 8:42pm |
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I start my chemo Thursday. I am on AC/T and I am supposed to lose my hair around the start of he second dose (2 weeks after first). I found a wig shop here that took my insurance, and I was billed nothing. I have Anthem and I am allowed 3 hair prostethises a year at $400.00 each. I was lucky and got three in December and now I can get three more. I have also gotten a wig from Ebay (it was new from China) I only paid 20.00. If you go to the cancer society or a look good feel good meeting then you are allowed to have one free wig. I was also allowed a free leisure bra after my dbl mastectomy.
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IDC/TNBC/StageII/ Lymph node negative/Lumpectomy/5 cm tumor with positive margins/ Bilateral Mastectomy/ Nuclear Grade 3/ upcoming Red Devil 5 doses/ Tax five doses/ 10 Weeks Radiation/ 31 years old
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Feb 04 2010 at 9:04pm |
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bumped up for Scott..
all the best, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Feb 04 2010 at 10:36pm |
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Brad & Kerry:
Well you are off to the races!
Usually 14 days after the first infusion our hair starts to fall out. It many be prudent to wait until it starts then go have it shaved. That is what I did. Also, get a wig (prothesis) while Kerry still has her hair that way they will match up the color...
We are rooting for you as you begin your chemo journey. Take lots of water with you to keep you hydrated, a good book, or tunes with a headset, warm snuggly (it is cold in the rooms) and most importantly, RELAX.....Go with the flow so to speak... Post Friday night when you get a chance to let us know how you made out tomorrow...
Your sisters and brothers on the journey are here waiting....xoxo Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Feb 05 2010 at 12:52am |
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Dear Kerry and Brad, Cristy and Scott,
take a laptop and some dvds with you and buy a splitter from Radio Shack...so you can both listen at the same time... that really helped my daughter and I...to be honest she did not stay up for a complete movie once in the four months but somehow it helped her relax and it helped her and I take our minds off the chemo a bit.. hugs to all, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 05 2010 at 6:28am |
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Hi Brad and Kerry,
Yes pack you guys a bag of things, your laptop, Ipods, book or paper, pen/paper, water, snacks. Maybe you could go out and pick up some lunch and bring it back for Kerry then eat together. We used to do that.
Yes Helen is right, around week two the hair will start coming out. She will find it probably on her pillow or shoulders, down the front of her shirt and in the shower, oh my gosh!
There are plenty of headwear links in the TNBC News/Resource section.
Two off the top of my head are http://www.headcovers.com
They are also located in Ardmore, OK But think they are online only, not sure.
Also http://www.tlcdirect.org has very reasonably priced headwear.
My Oncologist is also at Tulsa, what hospital are you guys going to? Do you live in OK? I'm down in the SE corner where there is nothing.
 Good luck with the treatment and keep us updated.
 These ladies make beautiful scarves and they will give your wife one free. Edited by trip2 - Feb 05 2010 at 6:29am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Kerry OK
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Joined: Jan 17 2010 Location: Oklahoma Status: Offline Points: 44 |
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Posted: Feb 05 2010 at 9:15am |
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Thanks to all,
We appreciate the good info. I did check on the pre-meds ,crash cart, and other things and yes they will be there. Thanks sooo much. We didn't sleep very good last night. Kerry has a headache since yesterday. She is being treated for TMJ. (jaw problems) We plan on leaving later this morning, it's an hour and fifteen min. trip. Chemo is at 2: 30. We are going to have lunch with our daughter (Kayla) and son-in-law (Kyle).Our son (Kyle) and his girlfriend (Kylie)have to work. Did you get the names correct. It took me awhile, but we have a great family. Kayla is expecting our first grandchild in July. We found out the same day Kerry was dx. That really seems to help on the tough days , like TODAY!!!We just want this over and gone!!!! But we never tought that there would be so much love and support. When I got up and turned on the computer, there you guys were giving your love and support.
Pam, we now live in Stillwater, we had lived in the Tulsa area for 15 years. I am a retired coach and teacher. We moved, so I could help my brother on the family farm. We still go to St. Francis and docters in Tulsa. Kerry's oncologist is Dr.Panicker, at the Cancer Care Associates near 91st and Mingo. We like him. He is following the treatment prescribed from M D Anderson. Sorry for so much rambling but this forum helps me as much as it does Kerry.
Thanks again
Brad
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DX 11/11/09, IDC, <.5cm, 0-2 Nodes, Stage I, Grade 3 TNBC, Lumpectomy 11/27/09, Age 53 Treatment begins 2/5/10, 12 wkly doses Taxol, 4 doses every 2 wks of A C Then 6 wks Rads
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Feb 05 2010 at 10:10am |
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My prayers and thoughts are with you both. Safe trip and uneventful infusion. Enjoy all the K's hugs Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Feb 05 2010 at 10:11am |
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Brad,
Wishing you and Kerry the best today. Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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MsBliss
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Joined: Apr 25 2009 Location: Lost Angeles Status: Offline Points: 722 |
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Posted: Feb 05 2010 at 5:19pm |
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Dear Kerry and Brad,
Thinking of you both. It sounds like you are in good hands and will get through this just fine. It was wonderful that you wrote to your forum family so early this morning even with so much on your plate! Thank you for thinking of us! Ms Bliss |
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Kerry OK
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Joined: Jan 17 2010 Location: Oklahoma Status: Offline Points: 44 |
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Posted: Feb 05 2010 at 7:33pm |
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Friends,
We are 1 week down and 23 more to go! So far today Kerry is feeling really good~we hope that continues with no major complications. The nurses were so helpful and so nice, we felt that we were in good care. We can only pray that it continues to be that way. Thank you for all of your kindness and support.
Brad and Kerry
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DX 11/11/09, IDC, <.5cm, 0-2 Nodes, Stage I, Grade 3 TNBC, Lumpectomy 11/27/09, Age 53 Treatment begins 2/5/10, 12 wkly doses Taxol, 4 doses every 2 wks of A C Then 6 wks Rads
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Feb 05 2010 at 8:51pm |
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Thanks for letting us know, Brad...
Kerry, The two best things about chemo are- it will kill hopefully any cancer cells you may have the treatment does end ................. From what I can see...you are blessed to have Brad in your life and he is blessed as well that you are in his....and I am sure the support from your children will continue as well...So, you are surrounded with love... Kerry, you are going to make it through this...your hair will grow back....and you will get your life back....it will be a tough, tough journey but I know you will triumph... Please feel free to lean on us...we shall always be here for you.. all the best, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Mar 19 2010 at 5:14pm |
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A friend sent me this link on an expert talking about circulating tumor cells and the hope of detection and treatment.
http://www.ecancermedicalscience.com/tv/?play=117 |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Mar 19 2010 at 7:02pm |
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Thank you Donna.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Kerry OK
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Joined: Jan 17 2010 Location: Oklahoma Status: Offline Points: 44 |
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Posted: Mar 19 2010 at 9:42pm |
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Kerry's Krew update She has 7 treatments down and 5 more of weekly Taxol, then the 12 weeks of FEC. (every 3 weeks) We had a rough time with week 3 and 4, mostly from a stomach virus and the medications got doubled up. Doctors do make mistakes, but it was my fault for being gone that day. Since then, only being tired and slap happy bald are the biggest problems. She is starting to get use to the bald part and her wig looks REALLY good!!! I have been very busy with my company and have had to rely on family and friends for help. There are many bad things that come with this thing called CANCER, but family and friends are surely the BEST things that come about. We thank the family and friends on this web site for making our jouney as best as can be expected.
Thanks for being with us
Brad
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DX 11/11/09, IDC, <.5cm, 0-2 Nodes, Stage I, Grade 3 TNBC, Lumpectomy 11/27/09, Age 53 Treatment begins 2/5/10, 12 wkly doses Taxol, 4 doses every 2 wks of A C Then 6 wks Rads
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SagePatientAdvocates
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Posted: Mar 19 2010 at 10:54pm |
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Thanks for the update, Brad....
Our positive vibrations and prayers continue for Kerry... all the best to you and your Krew!! Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Mar 20 2010 at 6:48am |
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Pam....so good to see you posting again....welcome back!!
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Mar 20 2010 at 2:39pm |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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