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Chemo Starting on June 7 - questions and comments

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tracyinva View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tracyinva Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 10:41am
My bones hurt so much today. I want to cry. Its day 3 after my wbc booster shot. please tell me it get easier. i dont even want to get out of bed.
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins

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Charlene View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 12:02pm
I'm so sorry, Tracy.  Take a painkiller, if you have them.  If you don't, call the doctor to get something!  This will pass, but it sucks while you're there.  Try to sleep.
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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tracyinva View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tracyinva Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 8:57pm
Charlene,

I took a pain med it seems help 70 percent.  Could the pressure just from putting on a sports bra cause my bones to ache that much? I mean the pressure because I tried to walk for thirty min on the treadmill out my house and took the top off and thats when it all started. I guess I will know for next time. I think today today is my lowest WBC and should be on its way back up tomorrow. Its rainy an wet here but  I am happy just to get some fresh air for two days even if I just view the scenery.
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 2 grandsons Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 9:51pm
hi I don't know if you are having the same pain that I had or not .But it hurt me for my clothes to tough me. I call my onocoglist and he told me to take clariton you can get that over the counter it help a lot of course ask your doctor first. he told me it was my white blood cells building back up .It really did hurt now my nostills are started to hurt but I go t the doctor tomorrow so they can decide if they can give me my next dose Monday or if they need to change something
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tracyinva View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tracyinva Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 9:56pm
I think my sports bra might have been over top of my port wire it caused some reaction. I'm going to take another clariton before bed.


Did you ever feel like yours was like a big sunburn? I guess I learned what I can wear and just start wearing loser clothing.

Everyday I learn something new on how to handle this chemo process....
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 2 grandsons Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 10:03pm
I do know what you mean.I think okay I am not going t have any more problems till next treatment then something else happens.I have also had problems sleeping.I think that so far the muscle hurting has been the worst.Yes I wake up red and burning but it easy up they told me it was the steroids
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tracyinva View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tracyinva Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 10:12pm
have you had any nausea at all? I have not had to worry about that all. I am pretty much symptom free except from the steroid shot (which burns beyond belief) and then the aftermath with the muscle pain
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 2 grandsons Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 10:21pm
no I felt like I might was going to get sick and took a nausea med and I didn't get sick but I think that I had just drank my water to fast and I have found out if it is cold it better.I have not gotten any sores in my mouth yet thet gave me a popscicle while I was taken the pick stuff they said it helps I also suck on ice while taken it. I do appericiated you talking to me this is all scary and it makes where you don't seem quite as along even though I know I am not it helps to be able to talk to some one that is just getting started'
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tracyinva View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tracyinva Quote  Post ReplyReply Direct Link To This Post Posted: Jun 10 2013 at 10:50pm
They gave me muguard. Ask for that if they haven't. They gave me a free sample. It was 2 big bottles. It tastes horrible and its like Novocaine for your mouth but creates a seal all all over your tongue and whole mouth for while. You just have to wait an hour to eat after you swish it around. That is supposed to really help prevent sores
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 2 grandsons Quote  Post ReplyReply Direct Link To This Post Posted: Jun 11 2013 at 1:37am
okay I will ask about it so far no sores . Not sleeping again tonight
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 2 grandsons Quote  Post ReplyReply Direct Link To This Post Posted: Jun 11 2013 at 5:21am
I am glad I go to the doctor today my tailbone hurts so bad.It throbs like a toothache .Took aother claroiton hope it helps
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tracyinva View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tracyinva Quote  Post ReplyReply Direct Link To This Post Posted: Jun 12 2013 at 11:07pm
Hey how is you tailbone holding up?

My big issue is constipation now. I fix it with ducolax overnight.   That does not help fully nd if I take 2 I have horrid side effects.   
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins

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tracyinva View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tracyinva Quote  Post ReplyReply Direct Link To This Post Posted: Jun 12 2013 at 11:09pm
And sleeping still my medport site.   I have a problem getting comfortable.   The port is right above my heart.   It just still feels really bruised.   
Diagnosed 4/29
Lymph nodes clear on MRI on 5/20
2x2 statge 1 or 11A
AC and T 6/9 - 9/13
final mri- no lymph 4mm or less residual
Lump right side on 10/16
7 nodes taken - all clear - clean margins

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MLindaG View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MLindaG Quote  Post ReplyReply Direct Link To This Post Posted: Jun 12 2013 at 11:45pm
tracy, I didn't have constipation  but what came out was hard and they looked like rabbit poop! LOL ........I took stool softener daily as well as Metamucil.  You might try adding the stool softener and see if that helps and possibly the Metamucil or something similar. Drink lots of water as well.  The biggest problem is it stirred up my one hemerroid - very painful and some slight bleeding!

 I also had a lot of pain and I too was uncomfortable at my port site........it lasted much longer than they said it would.........they had told me 2 weeks but for me it lasted at least a month.......then the pain finally went away!  I still have my port in.........I think when I go to my next onc appt. he said we would talk about getting it out.  :)  Through all this I actually have learned to sleep on my back!  I would take Tylenol to help me get to sleep.  

Good luck -  You are doing great so far!!  
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Natalie Quote  Post ReplyReply Direct Link To This Post Posted: Jun 13 2013 at 12:51am
Awwe you girls are going through it with the side effects. Tracy please try doing Miralax, it does take a few days to get regular if really backed up. Luckily during Chemo my issues actually went the other way. If you have been backed up already for a bit, I would stronly suggest Magnesium Citrate solution oral (at the pharmacy over the counter).
My son who I care for (long story) recently had a bout of horrible constipation, his gastro had me give him 2 capfuls of Miralax in the evening and 1 bottle of the aMagnesium Citrate solution the next morning. A couple of hours after the drink he went HUGE. Was told to go to 1 capful Miralax in a.m. & p.m after that.
FYI his Gastro said that things like Ducolax & Sennecot are addicting to the Colon so be careful.
My port hurt for a while also after being placed, I did a cold pack over it.
Feel better girls.
Natalie
TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Jun 13 2013 at 1:03am
I used lots of dried fruit, prunes and cherries to help the constipation when I went thru tx. On this site is a recipe for what I think was called " magic pudding" that many said did the trick for them. Look it up in search, I'm sure it is archived somewhere. It has been years since it has been mentioned.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 2 grandsons Quote  Post ReplyReply Direct Link To This Post Posted: Jun 13 2013 at 1:44am
my tailbone finally quit hurting.I did sit on a icepack and took a pain pill last night.Doctor visit went good.Go for my next round Monday.then a shot on Tuesday.then I hope I don't have any problems  my daughter is wanting to take me to the beach a couple of days .We have had this trip plan since last year hope this don't interferr. try eating sourkrat and drinking the juice.
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Grateful for today View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Jun 15 2013 at 12:58am
Question if "Power Pudding" = 'Magic Pudding".
Kirby referred above to "Magic Pudding".     "Power Pudding" is mentioned at:
    http://forum.tnbcfoundation.org/the-chemo-tips_topic3101.html
"Here's a good solution from Mainsailset.
My oncologist told me that we should all be having 5 small servings of fruit a day. Years ago I discovered 'power pudding' which is the gift of the gods. ............
Simply put: buy up all your favorite dried fruits (try to get unsulfured apricots) pour them all into a kettle. Cover with distilled water. Simmer until water has evaporated. You may need to add extra water. Cool. Put into blender, again add more water if blender starts to moan. I put the fruit into the refrigerator & freezer for storage.
Every day put 1-2 tablespoons on morning cereal, and then throughout the day, every day, use on meat, potatoes, ice cream. Goes with everything and is nice to find something that actually works, and is not one more chemical to add to our bodies."

Grateful for today.......Judy

Addendum:
RE: Above link.   Mention is made of various vitamins and supplements.   
As usual, always check with your oncologist about vitamins/supplements before taking
especially when on chemo or radiation.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MarCat Quote  Post ReplyReply Direct Link To This Post Posted: Aug 09 2013 at 4:24pm
Hi Natalie - I also am on ACT regimen.  4 cycles of AC then they will check for tumor shrinkage.  Then will be on Taxol.  Mary
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