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123Donna 
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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 Posted: Sep 05 2010 at 11:25pm |
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Connie,
We are here with open arms whenever you want to come back. We miss you! |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Sep 06 2010 at 4:35am |
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Dear Connie,
We pray for you every day on SS thread. You are never far from my mind. Please know that love you and miss you.
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Sep 28 2010 at 10:41am |
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Dear Connie, just a note to say hello and hoping you are doing well. We continue to pray for you and your family. Just know that you are not far from our hearts.
Hugs, Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Sep 28 2010 at 11:57am |
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Connie, do you visit here and stay quiet? Hello, we love you and miss you and think about you a lot.
love, d |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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MaryinSarasota
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Joined: Nov 08 2008 Location: Sarasota Status: Offline Points: 362 |
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Posted: Sep 28 2010 at 2:45pm |
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Connie, as D said, we do love you and miss you around here. I was thinking of you the other day regarding a transcription question and well.... heck.. you must return soon.
Mary |
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53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Sep 28 2010 at 9:32pm |
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Connie, I thought of you when I lost my 15 year old Frisco, german shep mix, on Sept 2nd because I knew you would understand my pain. I hope as Denise says you silently visit us. Nonetheless, you are always in our hearts and on our minds and we miss you dearly. Terri
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Sep 28 2010 at 9:43pm |
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Terri,
So sorry about the loss of your Frisco. We lost our 14 year old lab, Katie, in July. Our pets become such a part of our family it hurts terribly when we have to say good bye to them. I know Connie would understand our loss. She has such a bond with Paco. I hope he's doing well. Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Sep 29 2010 at 11:20pm |
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Thankyou Donna. I`m so sorry about your loss of Katie also. I cling to the hope that they are young and running around playing, pain free, waiting until the day when we will be together again. Otherwise there is no such thing as heaven for me. I remember Paco had some health issues and I too really hope he is doing well.
Terri
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Sep 30 2010 at 8:51am |
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Boy oh Boy, can I relate. We lost Harry 8 years ago. I said I would never have another. We had him 14 years also. But recently I brought home the sweetest little Yorkie. We are match made in heaven. I thank the Lord for her each and every day.
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Sep 30 2010 at 8:59am |
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Carol: I am so happy to hear about your new Yorkie! They are so seet and I am sure knows that the home he has with you is a wonderful gift! I wish I had the time to do that too! They are so sweet! My neighbor has one and I guess we share her, Molly. She knows me well and always says hello at the back door. They are so knowing. Yes, I hope Paco is doing ok with Connie as well. Connie we are here for ya! Stay the course and set your sails for the north! Having pets in the family are just that, part of the family and when they hurt or pass on, we hurt too. If I couldn't imagine my Mystique or Major playing around in heaven with all the other dogs, I too would be devastated. St. Francis is the patron saint of the animals and we have special days to bring our animals to church for a special blessing. So there ya go girls, now we know that our pets are just as important to God as they are to us. Love Helen xoxo
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Oct 02 2010 at 1:23am |
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I spoke to one of Dr. Dent's colleagues who presented at ASCO Breast and asked her if Dr. Dent was here..she said she didn't know..sent her a email..if she is here I hope to say hi...
Connie, prayers continue..and my love.
all the best, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 14 2010 at 8:56pm |
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Was just thinking about Connie....
Anyone heard from her lately?
Connie, let us know how you are doing please my dear....
Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Oct 25 2010 at 9:19pm |
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Dear all,
yesterday I posted my "try to find the beauty in each day" thoughts...well, today I am delighted to tell all of you that I received a lovely card from Connie and today I was blessed with two pieces of beauty..lunch with a wonderful advocate and Connie's card. I had sent her a letter last month and enclosed some cards from various Catholic Churches in Cartagena, Colombia where I had prayed for her. I also enclosed a newspaper article from the Bahamas that I was in about BRCA. She always laughingly called me "our BRCA man" and acknowledged that I was the only Ashkenazi Jew who prayed for her in so many churches. Some of what she sent me will not be posted, at her request..but I wanted to share two things with all of you- Connie speaking of Dr. Dent, her oncologist in Toronto- "One thing I will say is that no greater advocate, compassionate, caring human being will you ever find wearing a stethoscope!" and I wrote your name on a piece of paper, but by accident I threw it away I wrote your name on my hand, but it washed away I wrote your name in the sand, and the waves whispered it away I wrote your name in my heart, and forever it will stay I believe in angels, the kind that heaven sends I am surrounded by angels, but I call them my friends Anonymous- well the author may be Anonymous but it beautifully expresses what is in Connie's heart and I believe it is meant for all of us in our marvelous TNBC Foundation family.. We love you, too, Connie.. Prayers continue, Steve p.s. don't you love that line?...the waves whispered it away and I wrote your name in my heart and forever it will stay.. whew...o.k. so now I am crying a bit...we can cry here, right? and at the same time I am truly rejoicing that I heard from Connie...her handwriting is clear and firm...thank you for writing, dear friend...I did a double take when I saw your return address label and literally screamed out, YES!!!!  I guess I was missing you just a little, huh?...For those of you who are new and may not know Connie...She is a medical transcriptionist who has devoted much of her life to helping us here navigate the cancer journey and in recent months has been battling this horrific disease. She has touched many of us with her insightful, compassionate, posts. We are all rooting for her.. Edited by steve - Oct 25 2010 at 9:20pm |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Oct 25 2010 at 9:28pm |
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Steve,
Such wondrous news about Connie. It brings such joy to hear that she has reached out and contacted you. It must be all those Catholic churches you prayed in! "I believe in angels, the kind that heaven sends I am surrounded by angels, but I call them my friends" You "BRCA man" are our angel, along with everyone else that make up this TNBCF family. |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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diane1234
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Joined: Jun 05 2009 Location: Arkansas Status: Offline Points: 292 |
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Posted: Oct 25 2010 at 9:44pm |
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Thank u for posting this. I OFTEN think of Connie. She was THE FIRST who opened her heart and mind to me when I stumbled across this board last year as a STAGE IIB....I have since crossed over into Metastatic Land. It is NICE to hear something about the ones we think SO MUCH OF. We continue to BATTLE.....I hope the beast is responding to treatments. I KNOW it is a NEVER ENDING ROLLER COASTER RIDE. I want to return the FAVOR and NOW slip her a little hope. I am KNOCKING on the door of REMISSION...Scans this past week showed CLEAN LIVER! Mediastinal Nodes CLEAN! Mammary Nodes CLEAN! We are trying to MOP up the little bit on the chest wall! Doctor said AMAZING response to treatment......OH CONNIE.....WE CAN AND WILL DO THIS.....I HAVE to believe there is SOMETHING right around the corner for us.......I pray for you Connie.....and ALL the others who battle the beast.
Steve, You too have been SO VERY KIND.....THANK GOD FOR PEOPLE LIKE YOU IN THIS WORLD THAT AT TIMES CAN BE SOOOOOOO UGLY.......
Lots of LOVE,
Diane
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dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Oct 25 2010 at 9:54pm |
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So wonderful to hear that Connie responded to you. I wish her all good things and have breathed a great sigh of relief. Not knowing how she was doing was very nerve-wracking.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Oct 25 2010 at 10:08pm |
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Yeahhhh!!!!
 Relief!!!  Thanks Steve for sharing your note from Connie.....Yes, I had tears of joy too! I am so glad that she contacted you and us through you! Thank you, thank you both!!!
Mr. BRCA you are the best, even if you do pray in Catholic churches for us Catholics... Thank you!
Mr. BRCA you are our angel for sure!
Thank you Connie for reiterating what Mr. BRCA said about Dr. Dent....wonderful, human being with a stethoscope! I needed to hear that tonight!
Love and HUGS to you both! Helen in NS
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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janinvan
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Joined: Nov 24 2008 Location: Canada Status: Offline Points: 96 |
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Posted: Oct 25 2010 at 11:27pm |
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steve,.....i'm very interested in connie's progress......
AlSO-- i sent you an e-mail about my recent 15 hour surgery...but i guess it may have gone to junk mail or designated unimportant.....janice
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Oct 26 2010 at 12:05am |
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Dear Janice,
thought I had written you the other day but it was saved as a draft..I must have gotten busy before I could hit send..I am very sorry.. just sent you an email, again, with apologies for delay.. all the best, Steve
Edited by steve - Oct 26 2010 at 12:06am |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Oct 26 2010 at 12:16am |
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Steve, thanks so much for sharing Connie's card. I love the poem, and am so glad you are back in touch.
love, d |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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