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Bone and lung mets

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helen p View Drop Down
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    Posted: Sep 01 2013 at 8:50pm
Hello Everyone,
I'm looking for some information from anyone who is going or has gone through this process. I was originally diagnosed back in May 2010 stage 3, no lymph node involvement. Went through 16 rounds of chemo, 4 adriamiocin and 12 taxol.
Last week I was diagnosed with bone and lung mets. I'm scheduled for a lung biopsy next week and chemo on 9/ 11.
What should I expect? What are the survival rates? Anything you can give me info on I would appreciate.
Thank you
Helen
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Grateful for today View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2013 at 1:33am
Helen,

I am not going thru/gone thru what you are experiencing.
Am very sorry to learn of your bone/lung recurrence......although it sounds like the lung diagnosis
     confirmation is pending   a biopsy.

I am glad you posted.   Maybe now after the Holiday weekend, some one with a similar experience
may see your post and reply.

When I read your post, some thoughts did cross my mind.
With recurrent disease, a 2nd opinion re: best treatment plan is usually something to consider.
The 2nd opinion may confirm the initial plan or may give the 2 onc an opporunity to discuss the
best plan for you.   If you have already had a 2nd opinion, just disregard the following.
   Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center      
   https://www.nccn.org/members/network.asp        in your area.

   Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
   For appointments at a NCI Center, ask for the TNBC oncologist.
   http://www.cancer.gov/researchandfunding/extramural/cancercenters      
   http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center

Another member has posted about her lung/liver mets experience on:
http://forum.tnbcfoundation.org/diagnosed-with-liver-and-lung-mets_topic10011_page12.html
(Note: on this thread: hsrathore posted and hsrathore received replies on another thread.
                                         Members did reply to ssrathore but on another thread.)

With regards to survival rates............
When it comes down to it, this is a discussion for you and your oncologist.
Will share some THOUGHTS since you asked.
To be honest, am wondering if there is real time current data available.
When reading anything on TNBC survival.......remember an article may have been written
   in 2012   BUT study may have been based on much earlier years (for example: 2000-2005)
Also, TNBC has many sub-types.......and when some prior TNBC survival info is given.....
    the different sub-types are not separated.
It is wise to remember statistics and study outcomes are numbers.
We all are unique with our own variables.

On the thread:
http://forum.tnbcfoundation.org/the-median-isnt-the-message_topic11285.html
The link for: The Median Isn't the Message" is included:
http://www.cancerguide.org/median_not_msg.html

Some members with met. TNBC have posted on the thread   "NED" and the another thread:
http://forum.tnbcfoundation.org/ned_topic9691_page3.html
http://forum.tnbcfoundation.org/still-ned-with-no-chemo_topic10580.html
http://forum.tnbcfoundation.org/diagnosed-with-liver-and-lung-mets_topic10011.html
The posts and signatures on these threads may give you some information.
One member posted above on this thread: Stage IV at start in 2008 and then NED since 2009.
(NED = No Evidence of Disease)

You may have already had the BRCA testing and Vitamin D testing.
If not consider:
   Requesting a referral to a Certified Genetics Counselor for a BRCA* test consult.
   Requesting a Vit D3 ** test. If your level should be low, then you and your MD can make a
        plan to raise it.
*BRCA TESTING:
   http://forum.tnbcfoundation.org/very-important-news-re-tnbc-brca-testing_topic8458_page1.html?KW=BRCA
**VITAMIN D3:     See especially page 26
    http://forum.tnbcfoundation.org/vitamin-d3_topic5338_page26.html

Sending caring and good thoughts to you.....and for your scheduled lung biopsy,
Grateful for today..........Judy
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cheeks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Sep 07 2013 at 12:57am
I would like to bump this post... as Judy suggested it may have been missed over the holiday weekend or would have better response under the recurrence section.

Blair
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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dldlogan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dldlogan Quote  Post ReplyReply Direct Link To This Post Posted: Sep 07 2013 at 3:55pm
Helen,
I'm sorry to hear of your diagnosis.  I see in 2010 you were Stage 3.  Is that because of the size of your tumor?  I'm confused because you said you had no lymph node involvement.
 
I see you had the same chemo treatment I had.  How did they diagnose the bone and lung spots as cancer?  I have spots on my lungs from before I had BC.  What were the results of the biopsy last week? 
 
I pray you have a good outcome and know you are not alone.
 
Lots of Love,
Diana
Diagnosis 6/25/12
Biopsy 7/20/12
Mastectomy 8/15/12
IDC 1.9 cm TN Gr 3 Stage I
Chemo Start 9/27/12 ACT
Done 3/7/13
BRCA Neg
Reoccurence-Lung 12/3/13-Biopsy 12/16/13 Brain MRI 2/20/14 Stage IV
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