Helen,
I am not going thru/gone thru what you are experiencing.
Am very sorry to learn of your bone/lung recurrence......although it sounds like the lung diagnosis
confirmation is pending a biopsy.
I am glad you posted. Maybe now after the Holiday weekend, some one with a similar experience
may see your post and reply.
When I read your post, some thoughts did cross my mind.
With recurrent disease, a 2nd opinion re: best treatment plan is usually something to consider.
The 2nd opinion may confirm the initial plan or may give the 2 onc an opporunity to discuss the
best plan for you. If you have already had a 2nd opinion, just disregard the following.
Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center
https://www.nccn.org/members/network.asp in your area.
Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
For appointments at a NCI Center, ask for the TNBC oncologist.
http://www.cancer.gov/researchandfunding/extramural/cancercenters http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-centerAnother member has posted about her lung/liver mets experience on:
http://forum.tnbcfoundation.org/diagnosed-with-liver-and-lung-mets_topic10011_page12.html (Note: on this thread: hsrathore posted and hsrathore received replies on another thread.
Members did reply to ssrathore but on another thread.)
With regards to survival rates............
When it comes down to it, this is a discussion for you and your oncologist.
Will share some THOUGHTS since you asked.
To be honest, am wondering if there is real time current data available.
When reading anything on TNBC survival.......remember an article may have been written
in 2012 BUT study may have been based on much earlier years (for example: 2000-2005)
Also, TNBC has many sub-types.......and when some prior TNBC survival info is given.....
the different sub-types are not separated.
It is wise to remember statistics and study outcomes are numbers.
We all are unique with our own variables.
On the thread:
http://forum.tnbcfoundation.org/the-median-isnt-the-message_topic11285.htmlThe link for: The Median Isn't the Message" is included:
http://www.cancerguide.org/median_not_msg.html Some members with met. TNBC have posted on the thread "NED" and the another thread:
http://forum.tnbcfoundation.org/ned_topic9691_page3.html http://forum.tnbcfoundation.org/still-ned-with-no-chemo_topic10580.htmlhttp://forum.tnbcfoundation.org/diagnosed-with-liver-and-lung-mets_topic10011.htmlThe posts and signatures on these threads may give you some information.
One member posted above on this thread: Stage IV at start in 2008 and then NED since 2009.
(NED = No Evidence of Disease)
You may have already had the BRCA testing and Vitamin D testing.
If not consider:
Requesting a referral to a Certified Genetics Counselor for a BRCA* test consult.
Requesting a Vit D3 ** test. If your level should be low, then you and your MD can make a
plan to raise it.
*BRCA TESTING:
http://forum.tnbcfoundation.org/very-important-news-re-tnbc-brca-testing_topic8458_page1.html?KW=BRCA**VITAMIN D3: See especially page 26
http://forum.tnbcfoundation.org/vitamin-d3_topic5338_page26.htmlSending caring and good thoughts to you.....and for your scheduled lung biopsy,
Grateful for today..........Judy