Best chemo for 3N? |
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billie 
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Joined: Mar 30 2008 Location: United States Status: Offline Points: 345 |
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 Posted: Jun 11 2008 at 7:05am |
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Hi Kimm, My name is Billie and I post for my sister Betty.
Boy, you have made some wonderful decisions and my sister and I can very much understand the big breast.
You sound so upbeat about your decisions you have made.That is wonderful to hear.If there is one thing trip 2 has taught a lot of these women,you have to not look back about the decisions that you have made and only go forward.
Do not feel that no one has read your post or that no one has benifitted,because believe me every one on this website takes away a little info. from each other.I posted on here,like you a few days before anyone acknowledged me and I thought no one wanted to hear any thing that I had to say,but not true.Miss Pammie(trip2)will be welcoming you very soon.
Kimm ,these women are so busy,every day there are 1,2,or3 that join.What a wondeful place to come to try to find answers or to help others.The amount of TNBC ladies being diagnosed everyday is a very scary thing.So any questions that you might want to ask please feel free to do so and I am sure that one of the wonderful ladies will get back to you.Hugsssssssssssss Billie
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Dawnk
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Joined: Aug 13 2007 Location: United States Status: Offline Points: 50 |
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Posted: Jun 11 2008 at 7:16am |
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Terri..thanks for responding...the option to take chemo or not seemed big enough than to worry about freezing eggs or tricking my system in menopause to trick me out of it later...and of couarse the $$$$$ and at 42 the odds of me getting prego anyway were pretty slim..
Lovin my yellow lab even more now!!
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Stage 1 Grade 3
Lumpectomy 7/07 Trial Partial Rads 8/07 Chemo 4AC 4Taxol finished 12/07 |
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Jun 11 2008 at 7:39am |
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Hi djinfl
thanks for being positive and sharing about your gf`s daughter. How old was she when sh was diagnosed? How old when she had children after chemo? I hope she is doing very well with much health & happiness!
Terri
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Jun 11 2008 at 7:44am |
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Dawn,
I know what you mean about your lab! I work for a vet & my husband & I are both animal lovers. All of our furry babies are either special needs or rescues that other people have abandoned. So being Mommy to them is a privledge!
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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Ascott
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Joined: Jun 04 2008 Location: United States Status: Offline Points: 10 |
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Posted: Jun 11 2008 at 7:46am |
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I am scheduled to start chemo tomorrow and have really been struggling with the decision to go with ACT or AT. AT seems to be a rarely used regimen but may spare me the early menopause. ACT is the standard protocal that everyone uses. I've only found 1 study that compared AC to AT and in the triple negative group there was a 3% DFS benefit to AT over AC. Has anyone used AT? 40 years old
Stage 1/1.4cm/Grade 3/no nodes
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Dawnk
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Joined: Aug 13 2007 Location: United States Status: Offline Points: 50 |
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Posted: Jun 11 2008 at 10:09am |
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I finished AC T in December. When I went in March for my 3 month checkup, the doctor said that C isn't standard protocol anymore for triple negatives...
it's up to you girl!
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Stage 1 Grade 3
Lumpectomy 7/07 Trial Partial Rads 8/07 Chemo 4AC 4Taxol finished 12/07 |
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AustinJulia
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Joined: Jun 06 2008 Location: United States Status: Offline Points: 18 |
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Posted: Jun 11 2008 at 12:20pm |
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Terri,
I'm happy that you all of your furry friends make you so happy. I am an animal lover too and could see myself working for a vet someday too if I wasn't such an emotional sap!
Everyone is so overwhelmed at dx, it would be nice if docs had more universal info to give us about stats for menopause and pointed us to counseling before we even started treatment. As we see on this site, more women survive BC than ever before and should know all of their options before making decisions. The only counseling I had was from my surgeon, and that wasn't exactly warm and fuzzy, just presenting the facts. But he was a good doc, God rest his soul, he died of a brain tumor at age 43 a few months after I finished treatment. Who would have thought?
Interesting where life can take us sometimes!
Julia
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 12 2008 at 3:55am |
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Hi Dawn, did I understand your post that your doc said that C isn't standard anymore?
How are you feeling after being finished? Got that ole energy back yet?
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Dawnk
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Joined: Aug 13 2007 Location: United States Status: Offline Points: 50 |
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Posted: Jun 12 2008 at 5:25am |
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Yes...C isn't standard at Mayo anymore.
I am tired a lot of the time..don't know if its emotional or physical. Worried that the scar tissue in my breast is another lump..I do go the end of the month for a mammo and checkup so should get some peace there...ps I was the same way before my 3 month checkup..
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Stage 1 Grade 3
Lumpectomy 7/07 Trial Partial Rads 8/07 Chemo 4AC 4Taxol finished 12/07 |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 12 2008 at 10:45am |
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Well ya know Dawn it's probably a mix of both.
I'm glad you have a check-up coming soon, let us know.!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 12 2008 at 10:59am |
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Hello Kimm, I'm so sorry I have been late welcoming you to the group.
Thank you for sharing your story. I found it interesting.
My daughter is just finishing up her reconstruction next week and I'm sure she will be glad to be done.
That's good you are comfortable with your decision. It's such an emotional thing for a woman to go thru and that's good you are happy.
I had a blateral last year and still trying to adapt I'm afraid. I wasn't a large woman but still it has hit me hard.
Please vote in our poll if you like, we have some amazing women here for support or whatever. Edited by trip2 - Jun 12 2008 at 11:00am |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Ascott
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Joined: Jun 04 2008 Location: United States Status: Offline Points: 10 |
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Posted: Jun 12 2008 at 4:59pm |
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Hi Dawn,
If cytoxan isn't the standard at the Mayo Clinic what are they using instead for early stage 3-'s? |
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PaminFL
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Joined: Jun 14 2008 Location: United States Status: Offline Points: 4 |
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Posted: Jun 14 2008 at 4:56pm |
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This is not really pertaining to chemo... but it is a treatment for triple negs that I am probably going to be doing. I am believed to be triple negitive at this point and am awaiting to be screened for a clinical trial. I was told that before chemo starts, that I would be put on a "dialylisis type" of machine for about 4 hours where the machine will remove my blood, filter out the white blood cells then return my blood back into my body. At that point, they will make a vaccine with my white blood cells. Then while I'm going through chemo, they would inject my white blood cells directly into the tumor on my breast. My doc says it has a high success rate so far when being used to treat lung cancer. She says this might help from cancer reoccurance due to the fact hormones not working on those with triple neg. Here's more info that I found on the internet. www.dendritic.info Anyone ever hear of this? What are your thoughts on it? Also, do you know of anything to help triple negs besides chemo, masectomy and radiation? Any help would be greatly appreciated! Pam |
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English Jan
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Joined: Sep 23 2007 Location: United States Status: Offline Points: 97 |
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Posted: Jun 14 2008 at 6:05pm |
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PaminFl,
Never heard of this one .. which area of Florida are you in? I'm in Englewood, 35 miles south of Sarasota. Intrigued ..tell more. How big is your tumor? Thanks English Jan |
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FL. 58yrs DX LIDC 8/18/07. 08/23/07 Lump+SNB Node -ve. T2.5cms clear margins, TNBC, Stage 2A Grade 3. 9/18/07 TX Cytoxan+Taxotere.Neulasta.4x3 wks.Rads 30+5 FINISHED 28th Jan 2008.
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PaminFL
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Joined: Jun 14 2008 Location: United States Status: Offline Points: 4 |
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Posted: Jun 14 2008 at 6:46pm |
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Jan,
I live in Sebring (middle of the state - about an hour east of Bradenton). I am being treated at Moffitt in Tampa. I am 34 years old and my tumor is about 2.8 cm with sentinial node believed to be positive for cancer (waiting for more results). I am stage 2 Grade 3. I will definately be starting chemo soon (not sure which kind - so much info to absorb). I just got my port in on Friday. The only thing about this clinical trial is that I believe they can only take people who are not already doing chemo - due to when they initially take the blood (white blood cells) they need for the white blood cells to be up (as that is what they are collecting) and being on chemo lowers these cells??
Pam
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AustinCarol
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Joined: Jun 12 2008 Location: United States Status: Offline Points: 45 |
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Posted: Jun 14 2008 at 8:04pm |
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Hi Pam,
Cancer is dangerous because the cells are fast growing and spread and distrub normal organ function. Most cells in the body only "occasionally" divide. Chemo kills cells doing cell division which the cancer is trying to do a lot of. However chemo kill all types of cells doing division and some areas of the body is always doing a lot of cell division. Bone marrow is one part which does a lot of cell division too, so the chemo interferes with the red and white blood cell production. Then the cell counts go down. Every chemo session, they'll look at your blood count before the treatments. If they are too low, you will have to wait before the next treatment. Hair is also a rapid cell divider, which is why most chemos causes temp hair loss. The mouth lining is another, so chemo causes mouth sores. Saving blood cells for use later makes a lot sense. Any time the white cells count is "down" (too low), you can catch a bug disease easily. Should be an interesting trial. I hope it and the whole treatment work very well for you. Here's to being one who only has light & easy chemo side-effects.  -Carol |
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Dx 01/06 DCIS LB (age 47) TN Stage 2a; High grade; MBRS 9/9; 4 cm; nodes neg; BRCA-
Tx neoadjuvant AC4 + T4 dose dense; Lump 06/06; 35 rads (7 boosts) 08/06 |
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KCinFL
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Joined: Jun 04 2008 Location: United States Status: Offline Points: 46 |
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Posted: Jun 15 2008 at 8:12am |
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Pam, Moffitt is a terrific facility. I haven't heard of the treatment that you are doing, but please keep us posted on how it goes. Let us know what chemo you will be doing as well. I'm in Brandon, about 30 minutes outside of Tampa.
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Inherited BRCA1 mutation 5385INSC from my mom. Sister Linda dx with TNBC 5/23/08. Mom is a 22 year breast cancer survivor.
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billie
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Joined: Mar 30 2008 Location: United States Status: Offline Points: 345 |
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Posted: Jun 15 2008 at 8:25am |
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Hi Paminfl,
Im'm sorry I have not hered about that dendritic.info.
What about you Miss Pammie (trip2)!!!!!!!
Boy, does this sound interesting.And most of all it sounds like the places that I have read about that do the testing on the tumors to determine what type of chemo you will receive.
What makes this sound like it would work is that they are consistienly saying that every one is different and no 2 people should receive the exact same as the other.To use something that is from your own body does sound very very promishing.
So Pam in fla. Please keep us posted on how this moves along.And I hope that you can find more information on it,as all these wonderful ladies say,be ready to ask questions.Lots of HuGGGGGGGs Billie Posting for my sister Betty
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djinfl
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Joined: Jun 09 2008 Location: United States Status: Offline Points: 9 |
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Posted: Jun 15 2008 at 8:46am |
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Hi Pam
I went to Moffitt also for my Mastectomy and reconstruction. I was stage 1 grade 3 and had 4 doses of A/C. So please keep us informed on your progress. I'm up near Ocala deb |
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