Best chemo for 3N? |
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trip2 
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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 Posted: May 30 2008 at 11:33am |
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Sdreyer, I am so terribly sorry to hear about your grandparents. It sounds like you have got things under control now for your mother.
Great idea on the voice recorder and having an extra set of ears.
Also would like to say it is a definite that you get copies of everything that has to do with your mother's diagnosis, scans, reports, path reports, whatever it is and so that you will have this to double check or make copies for other doctors.
You sure have been thru alot. Being a caretaker is hard and it takes a toll on them too. It's nice you will have your sister to help.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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paula
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Joined: Sep 23 2007 Location: Saskatchewan, Canada Status: Offline Points: 64 |
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Posted: May 31 2008 at 9:49am |
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I had 2 cycles of CEF every 3 weeks. I developed Capiliary Leakage Syndrome - Doctor's removed me from chemo. Told me I could not take chemo ever again. Had almost all of the nasty side effects. Just one of the lucky few.
Hope your treatment goes well |
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DX Feb 4, 2004
Lft NST IDC, 1.1 x 0.5 x 0.4 cm, Stage 1, GR 3, 1 of 17 nodes CEF 2 of 6 cycles 30 Rads w 6 boosts Regina, Sk Canada |
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Beth Anne
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Joined: Apr 24 2008 Location: Clairnbridge, Ireland Status: Offline Points: 376 |
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Posted: May 31 2008 at 10:15am |
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Hi Pam,
Funny how they get irritated when they don't have answers
 Mine got irritated at me for getting so sick from the Navelbine he just kept saying this dosen't have that side effect... Then I brought him the print out from the drug company that stated every side effect I had...hummm. If you look on the internet for basal cell's you can get some good information... When I first saw it on my Path I thought hummm... skin cancer???(taking me back to a month I spent in Barbados in 1981 lying on the beach every day with baby oil for sun protection???
 ) because that was the only time I had heard that before. My sister who works in the medical field told me that a basel cell is a cell that is beganing to form with irragular edges ie: typical signs of cancer cell. Again then my Onc and Rad Onc said that it was the first sign that the cancer was spreading. Now I haven't brought up any of the new information about basal cell and TNBC with my onc... he is still recovering from his irrataion with me being sick... so here to hoping that I won't have any side effects from the radiation I start on 6/4 ummmm.
Have a great weekend,
Beth Anne Edited by Beth Anne - May 31 2008 at 10:17am |
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Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08
Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: May 31 2008 at 1:45pm |
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Yeh Beth Anne, like we make all this stuff up? Shame on you for getting sick from Navelbine, that wasn't supposed to happen
Stay on the guy.
Geesh these guys/gals in white coats ought to fess up and admit maybe this SE or that SE wasn't in the books but didn't they teach them that all of their patients are different??
I tell ya Beth Anne, my eyes are about to cross reading about basal.
They seem to be squabbling amongst theirselves, (the researchers, scientists) not agreeing on what it is and how to test it and treat it.
If they can't come to a conclusion on these things what in the world are we supposed to do meanwhile? First there was basal, then I read it was 2 kinds of basal and then I read 5. Subgroups in subgoups.
 Edited by trip2 - May 31 2008 at 1:47pm |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Ronda
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Joined: Jul 31 2007 Location: United States Status: Offline Points: 587 |
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Posted: Jun 01 2008 at 12:29pm |
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Hey Emily, Did you ever get in touch with Dr. Smith? I spoke with him a couple of days ago regarding my sis, he really knows his stuff....almost as much as us
 ! He take lots of time and he's got great assistants. He was saying Avastin w/ AC+T is getting good results.
Ronda Edited by Ronda - Jun 01 2008 at 12:29pm |
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DX 3/07 IDC Trip neg, stage 2b, SN biopsy 3 node neg. No vascular invasion, Mast 4/07 AC+T DD Finshed 8/07 BRCA 1, Proph Mast 10/07. Reconst & Prophy Hyst. 10/08
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Milly
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Joined: Jun 02 2008 Location: United States Status: Offline Points: 5 |
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Posted: Jun 02 2008 at 3:28pm |
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Hi Everyone,
I've recently been dx'd w/metastasis bc that has moved to my pelvis, lumbar spine, under both arms, collarbone & neck. I was on remission w/Tamoxifen since August 2005. I learned today that I'm TN and frankly I haven't heard positive things about it so I'm finding it scary. I see my Onc on Wed., 6/4 to discuss a plan of treatment. From this forum I've written down the different treatments such as carboplatin/taxotere, carboplatin/gemzar, AC/Taxol, ACT, carboplatin/cisplatin, etc., which I plan to discuss with my Onc. Does anyone know which works better? Thank you.
Breast Wishes,
Milly
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lisab
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Joined: Sep 27 2007 Location: United States Status: Offline Points: 169 |
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Posted: Jun 03 2008 at 11:22am |
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Dear Milly, I am sorry you are having to face this. I'm triple negative and have recently been diagnosed with mets to the chest wall. I was on carboplatin/gemzar at the same time as radiation. My onc and rad onc told me that was a good treatment plan and I didn't even lose any of my hair. However, I believe each one of us is very different and what works for one may not for the other. I wish I could give you a more definitive answer. Please keep us posted and good luck with your visit to the onc.
Lisa B.
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jun 03 2008 at 1:35pm |
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Milly I am truly sorry that this has happened to you.
You might want to post on the recurrence/metastasis forum for up to date info. Good for you for researching and being prepared for that Onc visit.
- Edited by trip2 - Jun 03 2008 at 1:36pm |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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kimm
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Joined: Jun 03 2008 Location: Amherst, New York Status: Offline Points: 49 |
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Posted: Jun 04 2008 at 4:28am |
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I opted for a bilat mastectomy when my cancer was only in the left. It was my choice. I was a 38 DD and the thought of trying to match an implant to this size didn't make sense. ironically i saw a plastic surgeon one month before i was diagnosed to schedule a breast reduction (be careful what you wish for). i also didn't want the stress of constantly wondering what was growing in the other breast.
my plastic surgeon put chest expanders in at the same time as the mastectomy and i go to the md every 6 wks for "fills". when you are at the size you want to be, they will take out the chest expanders and put in implants. by the way, just because you have a mastectomy does not automatically exclude you from radiation. I had both and the radiation wasn't bad at all so don't worry about it.
I am very happy with my decision to do a bil mastectomy. whatever size i end up being, at least I will be the same bilaterally
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KCinFL
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Joined: Jun 04 2008 Location: United States Status: Offline Points: 46 |
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Posted: Jun 04 2008 at 4:40pm |
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Hi everyone, my sister was just diagnosed with stage 3 TN. I haven't seen anyone indicate that they are on cyclophosphamide. Her onc told her that they've been having success with this. It's for ovarian cancer and leukemia.
Have you guys heard of this? KC |
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billie
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Joined: Mar 30 2008 Location: United States Status: Offline Points: 345 |
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Posted: Jun 05 2008 at 4:38am |
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Hi KC, Please do not be dispared,someone is going to answer your question.I too am the sister to a tnbc patient.
When I first signed up with this bunch of strong and wonderful women,I felt that because it took a while to get a response,that no one was going to respond to me,the sister.But that is in no way true.
Yesterday there was a teleconference about bc and they were suppose to also discuss tnbc and many of the ladies were linked to that.
Post again today and let them know that you need HELP.They will come running with there arms open.I promish you.
HuGGGGGGG'S Billie posting for my sister Betty
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Jun 05 2008 at 5:22am |
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Hi KC,
I also live in FL. Was diag 8/07 with stage 1 TN. My onc gave me 6 treatments of FEC which contains : cyclophosphamide, epirubicin, and fluorouracil. Their brand names are cytoxan, ellence, & 5FU. He said this is a good treatment for women with 3n but I haven`t seen alot of women on this site who have had it. I`ve seen alot of women treated with AC (which is adriamycin (spelling?) and cyclophosphamide. Both A and E are in a class of drugs called anthracyclines that can damage the heart. E is supposedly less toxic to the heart, so since I was only 41 @ diag my onc gave me that drug. Everything really depends on her specific pathology & what her onc has experience with, etc.
It`s all very overwhelming at first. I`m sorry you and your sister have to go through this but it`s great you are there for her. I wish my sis had been more!
Feel free to ask questions and you should get answers and support here
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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Nancy Bell
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Joined: Feb 18 2008 Location: United States Status: Offline Points: 150 |
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Posted: Jun 05 2008 at 5:40am |
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Hi. It is so good of you to help your sister with the research. My sister-in-love(law) was and still is my biggest support person. Although I am the researcher, she was with me for every chemo session. A real blessing to not only me but all the patients that were there on those days. cyclophosphamide is the same as cytoxin which a great many of us have had, usually in combination with adriamycin. It has been the standard treatment. When you see AC & T which was what I had, the C is cytoxin. I had 4 infusions of AC followed by 4 Taxol. Finished in Feb 08. Followed by 35 radiation sessions. I completed treatment May 2,08. Just had a PET scan Tues and go in for blood work next week so we will find out how well it worked. You can get info on all of the chemo drugs at chemocare.org This forum is a wonderful place for support. Let your sister know that she is not alone and that we will be praying for her ( & you).
Nancy
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English Jan
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Joined: Sep 23 2007 Location: United States Status: Offline Points: 97 |
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Posted: Jun 05 2008 at 6:33am |
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Hi KC
Please see my post 27 Nov 2007 .. I had Cytoxan. Hope this helps. Keep us informed with good thoughts. English Jan in Florida |
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FL. 58yrs DX LIDC 8/18/07. 08/23/07 Lump+SNB Node -ve. T2.5cms clear margins, TNBC, Stage 2A Grade 3. 9/18/07 TX Cytoxan+Taxotere.Neulasta.4x3 wks.Rads 30+5 FINISHED 28th Jan 2008.
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KCinFL
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Joined: Jun 04 2008 Location: United States Status: Offline Points: 46 |
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Posted: Jun 05 2008 at 4:15pm |
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Thank you all so much for the information, and for the website on chemo. My sis started chemo yesterday and is on cyclophosphamide and doxarubicin. Right now she is very overwhelmed with all of the appointments and lingo, but I'm sure I'll convince her to come here to post and read up on treatments. I'm sure you hear this all the time, but I'm so thankful that I found you all! Thank you for the prayers too, they are especially appreciated. KC
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SusanU
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Joined: Jun 06 2008 Location: Canada Status: Offline Points: 3 |
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Posted: Jun 06 2008 at 4:24am |
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Hi - I too just finished 6 rounds of FEC for TN and you're right, I don't see much of that being taken on this site. I also had 21 radiation treatments following the chemo.
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Keynote
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Joined: Jun 06 2008 Location: United States Status: Offline Points: 2 |
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Posted: Jun 06 2008 at 6:30am |
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I had FEC, once every three weeks, 6 X's. I am in a clinical trial. My onc. said it has been used a lot in Europe.
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Terri
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Joined: Nov 12 2007 Location: FL Status: Offline Points: 578 |
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Posted: Jun 06 2008 at 10:37am |
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SusanU and Keynote, I am relieved to see some others who have had FEC like myself. I was starting to second guess my treatment since I have been finished. My onc told me that this tx is commonly used in the U.S. & Europe but hardly anyone on this site had it! Can I ask you what stage , any node involvement, and your ages? Just want to compare to my info.
Thanks!
Terri
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IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
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AustinJulia
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Joined: Jun 06 2008 Location: United States Status: Offline Points: 18 |
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Posted: Jun 06 2008 at 8:01pm |
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Terri, I had FEC for my stage 2A cancer, no nodes, grade 3, tumor 2.6cm, diagnosed in 2003. I was 39 and am now 44. I drew that treatment plan on a level 3 clinical trial. So far I am doing fine. I am in permanent menopause though and i did get a thyroid condition as a result. But I am still here and that's all that counts!
I hope you did ok on your treatment plan.
Julia
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Adrea
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Posted: Jun 06 2008 at 9:48pm |
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Good Morning - It is 1:36am and I cannot stop reading these posts. I was unable to listen to the telecast as I was receiving my first Zometa treatment and trying to see my plastic surgeon and trying to hurry up a -no way on God's green earth do we hurry- system. Hope to catch up on that some way.
I received 3 FEC and 3 Taxotere and then opted for double mast after much research. I am in the process of fills as we speak. I call it reconstriction, not reconstruction as it puts quite a squeeze on you at times! No rads. I am in a clinical trial so taking Zometa as a preventative. No mets at this time. I ran a 102 fever the day after first treatment so not looking forward to more. Hugs to everyone and God Bless, Adrea |
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