Are there women who survive TNB |
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Lillie 
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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 Posted: Mar 12 2010 at 8:39am |
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Dear Carol,
Thank you for asking the "what is a bump" question. I've been wondering myself. Love in Christ, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Mar 12 2010 at 9:08am |
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Carol, a bump is when you want to take an older thread and bring it to the front so it's active again. Instead of starting a new thread, we have several old great threads that new members may have not seen. I was talking to a new member who was asking does anyone survive tnbc. I bumped this thread back up so that anyone looking for new posts, can see it and read through the positive stories.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Karen W.
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Joined: Dec 29 2009 Location: Evansville, IN Status: Offline Points: 48 |
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Posted: Mar 12 2010 at 9:44am |
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Hi Carol,
I have seen 'bump' used and tried to once. How do you do it???
Thanks and have a great day!
Love,
Karen
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DX July 07; lumpectomy,Chemo 4 sesions,36Rad; DX Oct 09;36 Rad;Metastatic Clavical lymph nodes in neck; chemo pending****CHEMO NO LONGER PENDING. DR SLEDGE SAYS NO CHEMO SHOULD BE USED (4 my case)
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Mar 12 2010 at 9:50am |
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Karen, If it's an older post you're trying to find, you will probably need to use the Search button to find it. Once you do, I'd go to the last post, hit the Reply button and just type in Bump.
When new members come to this site, they see mostly other new women who've just been dx or people with recurrence. It plays into their fears that no one survives tnbc. The survivors are usually not as active on the forum and go about their lives. It's good to have a thread or two running around talking about the women who survive tn. |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Mar 12 2010 at 9:54am |
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of course you can type in anything. :)
just responding brings a thread to the fore. |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Karen W.
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Joined: Dec 29 2009 Location: Evansville, IN Status: Offline Points: 48 |
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Posted: Mar 12 2010 at 9:56am |
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Well that sounds easy... and it does help to hear the old threads. Thanks for sharing Donna!
Here is another question, I see you joined in August 09. How does the status work? I see you are considered a senior member??
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DX July 07; lumpectomy,Chemo 4 sesions,36Rad; DX Oct 09;36 Rad;Metastatic Clavical lymph nodes in neck; chemo pending****CHEMO NO LONGER PENDING. DR SLEDGE SAYS NO CHEMO SHOULD BE USED (4 my case)
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Mar 12 2010 at 1:06pm |
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Karen,
I was confused by the status also when I joined. Once you've reached 100 posts, you become a Senior Member. |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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vickyann
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Joined: Sep 25 2008 Location: Texas USA Status: Offline Points: 127 |
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Posted: Mar 12 2010 at 5:36pm |
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tnbc
Hello everyone!
27 months and no recurrance!!!!
Yeah!!!!!!
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Vickyann
Dx Christmas/07 Stage2 Grade 3 no nodule braca neg lung nodule no growth TAC x 6 no rad finished chemo June 08 reconstruction 12/09 |
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Bernadette
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Joined: May 23 2009 Location: Ontario Status: Offline Points: 5 |
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Posted: Mar 14 2010 at 10:33pm |
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I found a lump for christmas 2007. The biggest problem I have had to overcome was to trust that I am healthy again. People try to encourage by saying all the things they think you want to hear. Sometimes its hard to listen because you don't feel what they say to be true. What you have to do is read between the lines. They love you . They care about you. They wish you health and happiness. I AM A SURVIVOR. I have stuff I do that has nothing to do with hospitals, doctors, medicine, appointments etc. I have returned back to work full time. I AM A SURVIVOR AND all these people who are here talking with you are survivors . We are the statistics and there is NO OPTION except surviving. Keep on living to your fullest.
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Carol (Tenn)
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Joined: Aug 06 2009 Location: Paris,Tennessee Status: Offline Points: 2707 |
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Posted: Mar 15 2010 at 6:08am |
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Good Morning.....
Donna is so right. But I do wish the survivors would come on once in awhile and let everyone know how they are doing.
I have a question....my first diagnosis was June 2008...my recurrance was July 2009...Will I have my 2nd year anniversary this summer or my first???
Love and Prayers,
Carol
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St 2 Gr 3, A/C/T, DD
Radiation x35 Rec chest wall 07/09 Radiation x28 NED 10/24/11 NED 10/5/12 NED 03/15/13 |
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HairSprayMom
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Joined: Mar 20 2009 Location: Alabama Status: Offline Points: 137 |
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Posted: Mar 15 2010 at 12:36pm |
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TNBC IIIb Metaplastic Carcinoma 2.7 cm tumor in chest wall.
2 yrs 5 months and I am not only surviving, but thriving!
XO, Regina
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39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy!
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Lisa L
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Joined: Jul 06 2007 Location: United States Status: Offline Points: 146 |
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Posted: Mar 15 2010 at 5:57pm |
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Survivor here - checking in! I am at 4 1/2 years from dx, and NED, yes people do survive triple negative.
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Dx 8/05 age 43
mast & lat flap 10/05 Triple neg BRCA neg IDC 4.5cm rt br 0/1 sen node 6 A/C 5 Taxol, 25 rads 11/05-6/06 Central Illinois Currently NED |
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marthac
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Joined: Jul 24 2009 Status: Offline Points: 17 |
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Posted: Mar 16 2010 at 1:19am |
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Question: NED - what does it stand for? No Evidence of Disease??
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DX:Nov'06 Stage3 TNBC,5cm-TX:chemo,mast,rad,complete response
DX:Jan'11 BRCA1, Stage4 TNBC,CTC24 TX:Avastin/Taxol @56 days"near complete response', CTC=ZERO Hair gone,but going strong,loving life |
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marthac
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Posted: Mar 16 2010 at 2:04am |
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I saw this posted the other day by a friend of a friend on facebook. It was not related to cancer, but another kind of disappointment and questions about my friend's future. I found it helpful. Perhaps it can help when those times of doubt about cancer recovery and life options keep you awake...
Your current situation reminds me of something Mother Teresa said one time. It was shared by John Kavanaugh who had once asked her to pray for him. It goes like this;
News of Mother Teresa's spiritual turmoil didn't shock Kavanaugh, who once sought her counsel as he pondered his future. He wasn't sure if he should return to America to become a university professor or if he should stay abroad and work with the poor. Kavanaugh asked her to pray for clarity. "I was surprised when she said she wouldn't pray for clarity," he said. "She said what I needed was trust." Kavanaugh responded to her that he assumed she had always had clarity; that she always had known what she was supposed to be doing. "She said that she never had clarity; that all she had was trust." Contine to trust in Him and in yourself. Clarity may never come but that will not hinder you from fulfilling the desires of your heart for His Kingdom. |
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DX:Nov'06 Stage3 TNBC,5cm-TX:chemo,mast,rad,complete response
DX:Jan'11 BRCA1, Stage4 TNBC,CTC24 TX:Avastin/Taxol @56 days"near complete response', CTC=ZERO Hair gone,but going strong,loving life |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Mar 16 2010 at 2:06am |
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Dear Martha C-
yes NED=No Evidence of Disease an acronym even better than LOL or OMG  my daughter, is now 5.5. years out...NED!!!! Yes, there are women who survive TNBC and tragically some don't.. all the best, Steve Edited by steve - Mar 16 2010 at 2:08am |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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dmwolf
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Joined: Jan 22 2009 Location: Berkeley, CA Status: Offline Points: 3619 |
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Posted: Mar 16 2010 at 10:16am |
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A: >60%
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Genie
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Joined: Apr 30 2008 Location: San Antonio Status: Offline Points: 390 |
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Posted: Mar 16 2010 at 5:20pm |
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2 years since diagnosis. NED so far, Praise God! 69 and going strong! My sister and niece still show no signs of the disease after 7 and 8 years. God is great and good!
Genie |
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
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Karen W.
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Joined: Dec 29 2009 Location: Evansville, IN Status: Offline Points: 48 |
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Posted: Mar 16 2010 at 7:21pm |
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I didn't know TNBC had been around for 7 and 8 years. Thank you for sharing!
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DX July 07; lumpectomy,Chemo 4 sesions,36Rad; DX Oct 09;36 Rad;Metastatic Clavical lymph nodes in neck; chemo pending****CHEMO NO LONGER PENDING. DR SLEDGE SAYS NO CHEMO SHOULD BE USED (4 my case)
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Karen W.
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Joined: Dec 29 2009 Location: Evansville, IN Status: Offline Points: 48 |
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Posted: Mar 16 2010 at 7:23pm |
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I like it... NED! Woo Hoo!
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DX July 07; lumpectomy,Chemo 4 sesions,36Rad; DX Oct 09;36 Rad;Metastatic Clavical lymph nodes in neck; chemo pending****CHEMO NO LONGER PENDING. DR SLEDGE SAYS NO CHEMO SHOULD BE USED (4 my case)
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Genie
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Joined: Apr 30 2008 Location: San Antonio Status: Offline Points: 390 |
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Posted: Mar 16 2010 at 10:19pm |
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Karen W.,
Back when my niece and sister were diagnosed, they weren't calling it TNBC. They were just informed that they were estrogen-, progesterin-, and her2-. My niece was diagnosed first at age 38, my sister at age 60 and myself at age 67. We have all tested negative for the BRAC 1 & 2 genes. They elected to have lumpectomies while I went for the bilateral mastectomy due to having a pre-cancerous lump removed 10 earlier. I have never regretted my decision - with no reconstruction and with the protheses, I am perky all the time and don't worry about the effects of gravity taking their toll.  Last February it was discovered that I had 2 large (over 2" each) nodules in my thyroid. The biopsy showed cells that are precursors of cancer so I had a total thyroidectomy in April. I think we all worry at times that our cancer will return but I have chosen to live my life to the fullest and enjoy being alive. Stay positive - it helps! Genie |
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC |
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