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Anyone have ACT Chemo Treatment?

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girlpower731 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 29 2009 at 7:29pm
Has anyone experienced extreme soreness to their skin during their chemo treatment time?  My most recent chemo session was this past Monday and this afternoon I started experiencing extreme soreness  on my back, neck (all the sides), some parts of my lower face etc.  I can't even get comfortable in bed.  This happened to me before as well, but I wanted to make sure others had this happen to then too.  I took some ibuprofen for the soreness/swelling that I'm feeling.
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Luv2sing Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2009 at 7:40am
Hello Tasoulla, Smile
Just wanted to share another experience with you regarding chemo and hairloss.  Prior to my diagnosis I was known for my hair.  It was long, thick and wavy ... my onc informed us with the type of regimen I was having (ACT) my hair would definitely come out.  She advised me to get it cut, my husband didn't believe her.  I didn't shave my head, but did get it cut to just below my ears (wanted it shorter, but my hairdresser wouldn't do it).  My hair started to shed two weeks after my first tx.  If I ran my fingers through it would come out.  One day in the shower while washing my hair, it all matted together and my husband ended up having to shave my head.  It was horrible. 
 
At this point I can say different people have different experiences.  My hair started to grow back during last two weeks of chemo.  Two months after chemo, I now have more than two inches of thick curly & straight hair.  My original hair color was black with some gray strands.  The new hair came back black with a cute little patch of gray in the front.
 
During the process, I learned to embrace the changes.  Fortunately, my hair loss occurred during the summer months and is now growing back in time for winter.  I eventually stopped wearing wigs and caps and just let me people see me for me.  Now my hair just looks like I decided to go short. 
 
Being diagnosed is stressful enough and I think it's better when we learn to control the things we can and accept the things we cannot ... for me ... hair growth was something I couldn't control, so I didn't stress over it.  Instead I focused my energies on things that were within my control ... like better eating habits, activity, etc.
 
I wish you calming thoughts and good days as you go forward on this journey.
Raymon
Rejoice Everday!
Dx 1/23/2009, IDC, 3cm, Stage II, Grade 3, 1/7 nodes, ER-/PR-, HER2-
, BRCA-
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2009 at 3:43am
I still have my hair as well.  Just about 1 1/2 to 2 inches in length.  It's coming out though every day.  I come it before I take a shower to minimize what goes to the drain and then after I take a shower.  I've thought about shaving it at home, having my husband do it.  It's just really hard to see it all go.  I have major bald spots atm, mostly in the back and upper top and then the sideburns on the side of my head where I primarily sleep.  I have been loving my hip hat with hair (underhair) as it has made me feel normal each day.  A couple days ago was session 3 of my dd AC treatment.  I'm thinking maybe by halloween I'll shave some off from the top.  I'm gonna try to keep the side stuff for as long as I can though so I have the option to wear a better selection of hats (if I wanted to).
 
My husband is calling me to get back to bed.  It's 4:45am here.  Talk to you later.
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Oct 20 2009 at 10:48pm
tasoulla,
 
As a hairdresser watching customers go thru hairloss, also watching my mother go thru it, then having chemo myself, I shaved my head 2 weeks after first AC tx. When I ran my hands thru my hair that morning, not a lot but more than usually came out in my hands, I knew the loss was starting. I didn't want the mess of hair all over so shaved it. The little stubs that were left didn't fall out as quickly not having the weight of any length. I wore berets because what I had was pretty heavy at the sides. Loss was greater, sooner on the top. The scalp does feel achy were the hair will start coming out next.
 
My mother went thru chemo 3 1/2 different times. The last time or two, knowing how I felt about shaving the head, she avoided the subject, preferring to hang onto her wispy strands as long as possible. I thought she looked awful with those wisps but she felt more comfortable having those than being bald...again !
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Oct 20 2009 at 4:57am
Dear Tasoulla,
Expect hair loss to start Day 15 after AC #1.
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Oct 19 2009 at 10:28pm
thank you for your reply Linda,
 
how are you feeling now and what tests and how often your are making them after finishing your treatment?
did you lost your hair immediately after starting chemo?
 
im trying to help my mum as much as i can, especially psychologically.....
 
thank you,
 
tasoulla
 
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Oct 19 2009 at 10:23pm
Dear cq,
thank you for your reply.....
you can understand fromk your experience with this disease that is very stressful ....i have lost 10 kgs in one night...
i wanted to ask you after finishing your treatment how often and what tests your making to keep you inform for your stage of health and protecting you from early diagnoses?
after you started chemo, did you lost your hair and how many weeks it took to start falling after chemo?
 
thank you very much,
 
tasoulla
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kmartin Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 11:10am
Hi Girlpower!

Love the username!

I, too, had scalp pain during hair loss. I also was stupid and went outside to visit a friend and added sunburn to the scalp pain...

Anyway, my hair follicles actually oozed a bit during the hair loss days...my onc had never seen this. It might have been the sun!

The pain did not last. It was temporary and annoying for about 2 weeks, then once the hair fell out, disappeared.

So hang in there, and use a gentle shampoo...it will stop soon.

Kathy
Found Lump, 2/8/08
Bx IDC, Stage 2, Grade 3, TN
Lumpectomy, axillary node dissection 3/11/08
4/33 positive nodes
TAC x 4, AC x 1
RT x 33-finished 10/14/08
BRCA 1 & 2 Negative
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cg--- Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 9:52am
Dear Tasoulla,
 
How very kind of you to post for your mother. 
 
I was diagnosed at age 53 (left-sided 3-cm tumor with 3 positive nodes and vascular space invasion) in May 2007.  I had dose dense AC 4 cycles followed by Taxol 4 cycles. 
 
Many breast cancer centers in the United States have continued to use the dose dense AC + T, and AC + 12 weekly.  I do not think there have been any trials completed comparing the two at this point.
 
I would like to think I got the 'gold standard' of chemotherapy for my TNBC back in 2007 and the fact they are still using the combination at major centers should give you a little comfort to know your mother will be receiving the same.
 
If you have any questions please do not hesitate to ask and hopefully we will be able to help you support your mother.
 
Love,
Connie
 
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 8:50am
Maryjahn -
 
We all trust our oncologists, that is how it should be.  All the best to you.
 
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 8:47am
Tasoulla -
 
That is exactly what my oncologist had me undergo - I had 4 DD AC every two weeks, and then I was to have DD Taxol every two weeks. I had the first Taxol and developed neuropathy right away of feet and fingertips, so for the remaining three courses onc switched me to Taxotere (every three weeks), and the neuropathy dissapated and never worsened.
 
Please also note that a prior poster stated that her doctor said AC does nothing for breast cancer.  Please remember that is her doctor's opinion only.  AC & T is recognized as a gold standard of care for triple negs. and is widely used.  While I can only pray that I am one of the recipients of this combo that will show positive benefit, I too trust my oncologist and her knowledge and the many others oncs that also suggest this regime.
 
All good wishes to you and your mom,
Linda


Edited by LRM216 - Oct 18 2009 at 8:48am
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 6:17am
 
[/QUOTE]
Compared to AC..Taxol is really ugly!!!  Between the T and the neulasta I feel 110!  Every bone seems to hurt, my joints are crying and my feet feel like they are someone elses.........not whining here but I do not like these side effects one bit!  Have had no nausea but feel everything else times 2!  Nails hurt but no splits or loss yet but wouldn't be surprized when that starts...I will take AC over this anytime....
 
susied
[/QUOTE]
Is Neulasta the shot they give you to boost your white count? I only had that once and it didn't bother me. I had no joint pain with any of the treatments, I consider myself very lucky!!
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 5:34am
Dear Tasoulla,
See my reply to your previous post please.

http://www.tnbcfoundation.org/tnbc/forum/forum_posts.asp?TID=5017&KW=&PID=40900#40900

Love,
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 5:27am
Hello,
 
my mother age 53 was recently diagnosed with an aggressuie breast cancer, triple negative, lympho nodes 7/35.
the whole situation is a shock for us and changed our lives....
she will start the dose dense chomo treatment and i wanted to ask for your opinion.
what is better to make the dose dense( anthracyclines every 2 weeks x4, and after Taxol every 2 weeks x 4)?
 
or is better to have the anthracyclines every 2 weeks, and every week Taxol?
 
i will appreciate your honest opinion, on an advise for a better treatment.
 
thank you
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susied Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2009 at 4:57am
Originally posted by Carol (Tenn) Carol (Tenn) wrote:

GP,
I found taxotere (what I had) was easier as far a nausea, but fatigue was bad for me. Also, thrush. That was a pain.  Some have neuropathy problems as I did. I felt like I was walking on golfballs. The balls of my feet were a little swollen. My nails split but that wasn't a problem for me, I just kept them cut short. As you said, everyone is so different. Some have worse side effects than me and some not as bad.
I hope and pray you are in the latter group.
Love, Hugs and Prayers,
Carol
Compared to AC..Taxol is really ugly!!!  Between the T and the neulasta I feel 110!  Every bone seems to hurt, my joints are crying and my feet feel like they are someone elses.........not whining here but I do not like these side effects one bit!  Have had no nausea but feel everything else times 2!  Nails hurt but no splits or loss yet but wouldn't be surprized when that starts...I will take AC over this anytime....
 
susied
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Oct 17 2009 at 6:24pm
Dear MaryJahn,

It sounds like you have done your homework and researched the subject well. You also obviously have found good doctors and trust them. If a mastectomy is what's needed then you need to go forward and get it done. Good luck with the treatment. Please keep us posted on how things are going.

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Oct 17 2009 at 4:47pm
My oncologist is the best in the business and got into it after losing several members of his family to cancer. He does work at one of the best teaching hospitals and is very reputable and I completely trust him.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Oct 17 2009 at 4:38pm
The tumour under my nipple is too large to do a lumpectomy.  I think it goes all of the way under it which requires mastectomy.  The only way to save my nipple is to try and shrink the tumors, then and only then would I have even the slightest chance of a lumpectomy.  The surgeon is notorius for saving the breast and wants to do a skin saving procedure, he's the best in his field and head of the breast cancer dept. at City of Hope and he also works at Huntington Hospital Cancer division in Pasadena which was voted the number 1 hospital in the nation.  I am very lucky to have him.  I did a lot of research and all of the sites including Mayo Clinic's site says my tumor location plus 2 tumors rules out a lumpectomy:(.  By the time they clear the margins there won't be anything left.
 
 
I am following the Breastcancerchoices.org protocol for Iodine.  I am taking intraveniously 2 x per week large quantities of Vit.C, D3, Magnesium and minerals.  I am taking enzymmes.  I am taking homeopathic remedies.  I am drinking green tea 3x per day known to cut off the supply to cancer cells.  I am only eating things listed in the book: Anti Cancer A New Way of Life--although I don't eat meat ever.   It's recommended by tnbc on the alternative site and it is changing the way that I view my cancer.
 
I am not sure yet what the procedure is called--I will ask my doctor because I need to make that appointment soon after the results from all of my tests are in.


Edited by maryjahn - Oct 17 2009 at 4:41pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Oct 17 2009 at 3:25pm
GP,
I found taxotere (what I had) was easier as far a nausea, but fatigue was bad for me. Also, thrush. That was a pain.  Some have neuropathy problems as I did. I felt like I was walking on golfballs. The balls of my feet were a little swollen. My nails split but that wasn't a problem for me, I just kept them cut short. As you said, everyone is so different. Some have worse side effects than me and some not as bad.
I hope and pray you are in the latter group.
Love, Hugs and Prayers,
Carol
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 17 2009 at 3:15pm

This question may sound odd for some, but I've been on the pill for a long time and haven't been off it in a while.

Here is my situation:
Sept 28th Got Lupran shot (to suppress ovaries to keep them safe)
Sept 29th Had first AC treatment DD
Oct. 10th Got my period (horrible migraine like you would't imagine - common for me when have period)
Oct 13th Pretty much done with period
Oct 15th It's back!  How does this happen?  Call it spotting, breakthrough bleeding, whatever, has this happened to anyone during chemo?
Oct 17th Still here and looking to buy some real estate property (jk)
 
I thought when it went away it wouldn't come back 2 days later.  The last time I had something like this happen, I think I was 11.  Other than the inconvenience, this seems ok, right?  I'll mention it on Monday when I get my blood drawn (I'll stop by my nurse).
 
Also stuff to mention--
 
My scalp hurts with the hair loss.   A 15 year survivor pal of mine didn't have this happen to her so I guess I'm the lucky one.  Also, with Adriamycin and Cytoxin, is it normal for my skin to hurt and be tender, specifically my back and my neck all around--soft to the touch.
 
I'm hoping the scalp thing subsides soon as I can't even think about putting on a wig or alternative wig.  I am just using my night cap atm (it's the weekend and no one is around but my husband).  When I go out, I'll throw on a hat from headcovers.  Out of curiosity, has anyone tried the eyebrows from that site, either the 3 day tattoos or the makeup?  My Look Good Feel Better for Tuesday just got cancelled so I was looking forward to that with my new hair loss, now I have to scramble to figure things out.  The next one isn't for another month.
 
When I get to the next type of Chemo in late November -- Taxol, is it usually easier on the side effects having just this chemo and not AC?  I am still having it DD.  I know everyone is different, but any thoughts would be appreciated.  Thanks.
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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