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Anyone have ACT Chemo Treatment?

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girlpower731 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 9:20pm
The one thing that I wasn't prepared for as a side effect was hemmroids.  For all those that have never experienced it you are lucky, they hurt like you wouldn't believe.  I'm still having some issues with them.  I've felt really beyond my years lately with the sitz bath in the toilet and the fun bathroom sessions.  I can't wait to experience this again after having children.  But hopefully I wont have this side effect.  I talked to a bunch of woman at work that had children and they didn't experience hemmroids, so there is hope out there.
 
So a topic on my mind right now is hair.  Taxol is supposed to cause complete hairloss.  I have had my 4 AC treatments and 2 Taxol (2 left).  I have little "Spikes" of hair on my head and there is a part of my hair in the front that I never lost during treatment.  My friend (on the same treatment) has a head that is soft like a baby's behind and her last Taxol is tomorrow (not sure when all the hair left her head).  When do you think i should be seeing some hair--I'm talking something that would cover my scalp? 
 
I'm not liking the cold weather here in CT.  We have snow outside and it makes my muscle spasms/pains worse.  When I come home from work I lay in bed and have my fireplace going to keep me warm and cozy.  My life is not very eventful right now, but chemo takes alot out of you as you all know.
 
 Girlpower


Edited by girlpower731 - Dec 13 2009 at 9:21pm
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 9:10pm
Hi Donna,
 
The brochures that I received were the ones that someone mentioned from the site.  I'm assuming everyone that signed up should be getting them shortly.  The package came from NJ I believe and I'm in CT, so maybe the closeness in states got me mine sooner, not sure.
 
I can't wait to distribute them.  They even have an insert in the center that is a questionaire that can be sent back asking about what was beneficial in the pamplet and how you received it.  I wish I had it when I first got diagnosed.
 
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kag Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 8:47pm
Hi Girlpower - I had ACT - 4 AC every other week, followed by 4 Taxol every other week. 

I was able to have the infusions on Thursday and I took Friday off and was usually well enough to return to work on Monday -- I had the most difficulty with fatigue on the AC and found the Taxol to be much easier to tolerate - I was even able to work Fridays while on Taxol.  You did need to rest a lot!  
Dx 2.09 - IDC TN Stage 1, Grade 3 BRAC1+ no lymph node involvement, bilateral mastectomy 4/09;
ACT began May 14, 09 finished August 20, 09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 8:44pm
Pam,

Do you remember many months ago someone mentioned this new brochure on this forum and asked us if we'd be interested in handing them out to our oncs and healthcare providers in our area?  I pm'd and asked them to send me 50 - 100, but haven't received them.  Is this what you're referring to?  Just wondering if others received theirs.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 6:12pm
Stage 2 2003
Stage 1 2007
BRCA 1+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 4:47pm
Girlpower,
So glad you are doing okay. Well, as okay as anyone can be doing chemo. I was plagued by Thrush as well. I took Nystatin. It worked well.
You mentioned brochures, just exactly what brochures. I've been wondering how to get my hands on TNBC pamplets..is this to what you're referring? If so, tell me how I can get some, please.
Prayers,
Carol
 
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
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NED 10/24/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 4:11pm
I had Taxol every two weeks 4 times, after the same schedule of A/C.  Bone pain was tremendous, a friend that was several months ahead of me on the same regimen had told me TAKE THE PAIN MEDS.  I started Hydrocodone and it really helped a lot, with no side effects.  I would start when I got home from treatment and take it round the clock for 3 or 4 days post - then as needed.  I had way more energy if I wasn't in pain all the time, even on pain meds. 
 
I was premenapausal before chemo (45 yrs old) periods stopped during A/C, but the hot flashes didn't start until the night after my first Taxol - and they are brutal.  I started Effexor with my 2nd Taxol and it does help - I have them less often and they're shorter and less intense - which makes sleep much better. 
 
I had a CAT scan about 5 days after my last Taxol and got the all clear.  I was allowed to go on vacation 4 weeks after chemo (blood test showed my anemia and immune system were better) and I started rads 5 1/2 weeks after my last chemo. I had my 1st post treatment mammogram in August - all clear - I have one every 6 months, along with an appointment with my breast surgeon.   I have my 2nd post treatment, every 3 month appt with my oncologist tomorrow - so far so good!  My energy level is still lower than before all this started - but I'm told that's to be expected after the amount and length of my treatment.  And being menapausal now doesn't help.  I have chemo induced arthritis now in my hands, feet & knees - especially my right knee.  I predict the weather like an old lady!  But no neuropathy, except my arm from the lymph node removal, and I hardly notice that any more.
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 4:09pm
Dear GirlPower,

Good to hear from you.

My wife had a reaction to Taxol. Apparently it happens to 12% people so it is quite common. The oncologist switched her from weekly Taxol to biweekly Abraxane so her schedule is identical to yours now. You should be 2 Taxol treatments away from completing chemo too?

Then after a break of 3-4 weeks, depending on how she is healing from chemo, the radiation sessions will start.

She is having all the usual side effects of chemo. Managing ok though.




Edited by unklez - Dec 13 2009 at 4:16pm
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 3:06pm

Hi Girlpower,

 
It's good to hear from you and you are almost done with your chemo, that is wonderful.
 
I had Taxol and did have bad leg pain but that isn't the case for everyone, we all respond differently.
 
Keep us updated and best wishes to you,
 
Stage 2 2003
Stage 1 2007
BRCA 1+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 12:28pm
Originally posted by girlpower731 girlpower731 wrote:


My husband bought me Yoga for the Wii, has anyone done that either in conjunction with the real Yoga classes or just by themselves?  One of the things that work affected was the ability to go to my Yoga classes due to the time it was given at.
 


Before bc, I used the WII for exercise a couple of times a week.  I really loved the Yoga on the WII because you know if you're doing the poses correctly or not.  I'm looking forward to using the WII again very soon.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 12:10pm
Hi everyone,
 
Thanks for your concern.  I am doing ok, only 2 more taxol treatments to go.  I started work again on November 2nd and I have been drained when I come home from work.  My routine consists of going to work, coming home and hopping into bed and just watching tv and then pushing myself to get the energy to do laundry. 
 
For the most part I have had muscle spasms/pain, stomach pain, the usual hot flashes and insomnia.  The steriods have been making the back side of me sore to the touch.  I have had thrush a bunch of times with this treatment.  I am happy to say for the most part, the naseau is gone--I am so thankful for that. 
 
The hip hat is a huge success at work.  People who don't know what happened just think I either got into hats or am supporting my brother through his hair loss (lung cancer stage 4).  Obviously word has gotten out at work to some, I told a couple people then you know the rest.  I'm fine with it.  Some people try and keep track of me, checking in each day to see how I'm doing (which feels nice to be honest). 
 
My husband bought me Yoga for the Wii, has anyone done that either in conjunction with the real Yoga classes or just by themselves?  One of the things that work affected was the ability to go to my Yoga classes due to the time it was given at.
 
Unklez--What symptoms did your wife have with the Taxol?  When I first started I was freaked out about having issues especially since the nurse stood there for 10 minutes making sure I was ok the first time.  Has her treatment plan altered with the new treatment--is it still every week or is she back to every two weeks?  After chemo is your wife having a 6 week break and then doing radiation?  A week after my last chemo I have to have an MRI of the breast to look again at my margins and then figure out if I need additional surgery.  If I don't we would proceed with the radiation 6 weeks later.
 
I recently got the TNBC brochures in the mail and I am excited to hand them out to the cancer centers and surgeons office.  I wish I had something like that when I started.  It would definitely have made my treatment plan easier to decide.
 
Girlpower
 
 
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 01 2009 at 5:55pm
Dear GirlPower,
How are you? Please post an update. Concerned for you...

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Hi girlpower,
 
How did your treatment go?  I would think you would be fine for Thanksgiving.  These chemos have a cumulative effect about them.
 
Some people I've known absolutely sailed thru their Taxol.  My daughter worked everyday while on that drug.  When I had Taxol I developed leg pain, we are all different in how we react.
 
 
Stage 2 2003
Stage 1 2007
BRCA 1+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Nov 24 2009 at 12:13pm
Dear GirlPower,

How was your first Taxol?

My DW had a reaction and was switched to Abraxane.


Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Nov 23 2009 at 8:31am
Girlpower,
I had taxotere and found it to be much easier on my stomach. But I did have problems with thrush. I used Nystatin to keep that at bay. I really think you will be fine for Thanksgiving.
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 23 2009 at 7:11am
I am having my first taxol treatment today.  i'm a little freaked out about it.  I'm starting to associate food at chemo with wanting to vomit, not a good thing.  Oh and my side effect that was not expected (at least by me) is hemroids, I have one.  I was introduced to my first "sitz bath" by my mom. 
How have others reacted to Taxol treatment?  Mine is a 3 hour ordeal every 2 weeks.  Do you think I'll have an appettite for Turkey this week or is my stomach going to be all messed up?
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 30 2009 at 6:05pm
I will talk to the nurse on Monday.  I think that I've mentioned it in the past, I truly think it's b/c I missed the steroid Decadron.  My original Onc had a different script for taking the meds than my current onc so the bottle isn't labeled with the right directions.  And as you all know, chemo brain takes over which isn't the best.  I'll make a better note to take it correctly and to put something on a calendar for next time.
 
I went to yoga today and the fire alarm went off twice.  Now this is at my nearby hospital that I do the yoga.  It was right during meditation time which wasn't the best.
 
I'm starting work again on Monday to a position I had about 6 months ago.  Does anyone have any words of wisdom for starting the job?  I know the people pretty good and my new boss (old boss laid off after I left earlier this year) knows about my health and he actually knows about my brother too since I found out he had cancer while I was still working there.  I'm going to do my best to take it easy.  I'm hourly so I just wont get paid if I go home sick.  I'm ok with that.  My health comes first.
 
Tonight I'm going to have my husband shave some of my head.  I'm gonna keep what's left of the front of my hairline and parts of the sides/back of the head but get rid of the top stuff.  Each night I go to bed with the night cap on and it turns all around on my head and I wake up with hair in my face coming out of the cap.  I should probably just get rid of it all (minus the side burns and back) but I'm just not there yet.  Maybe I'll surprise myself tonight, who knows.  I'll keep you all updated.
 
I am truly grateful for this website and the people that share their lives on it.  All of us here truly have a bond that is hard to understand if you have never been through this "hurdle" in your life.  I look forward to being able to help others, as others are helping me understand and get through these rough patches that we call life. 
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Luv2sing Quote  Post ReplyReply Direct Link To This Post Posted: Oct 30 2009 at 2:12pm
While I did swell from the steriods, there was no "skin soreness".  Did have areas that were (or are) numb.  I had a port-a-cath and that area would be sore, but only because my skin is funky sensitive.  Definitely let your doc know. 
Raymon
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Dx 1/23/2009, IDC, 3cm, Stage II, Grade 3, 1/7 nodes, ER-/PR-, HER2-
, BRCA-
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Post Options Post Options   Thanks (0) Thanks(0)   Quote vickyann Quote  Post ReplyReply Direct Link To This Post Posted: Oct 29 2009 at 10:22pm
Hair loss
Not having to shave WAS GREAT lol
Vickyann
Dx Christmas/07
Stage2 Grade 3
no nodule braca neg
lung nodule no growth
TAC x 6 no rad
finished chemo June 08 reconstruction 12/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Oct 29 2009 at 9:38pm
Dear GirlPower,
 
DW has not experienced this. It sounds worth looking into. Please call your oncologist asap.
 
What pre-meds were you given and what oral meds are you taking?
 
 
 
 
 
 
 
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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