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Anyone had DCIS in one breast then TNBC in the oth

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CCRIS View Drop Down

Joined: Nov 24 2018
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    Posted: Nov 24 2018 at 8:17am
Last March it was confirmed I have TNBC. Less than 2 years ago I had DCIS
Zero stage, non invasive in my right breast. I had a lumpectomy and two weeks later had another to get clean margins. About a month later I received 4 weeks of radiation.
I had been following up with mammograms and ultrasounds and in June of 2017
I was told they were watching something in my left breast and to come back in December.
I did and was told they could not see anything and to come back in June of 2018. Well,
I went to see my radiation oncologist in December of 2017 for a followup, she performed a breast exam and looked over my scans. She agreed everything was good and I did not
need to continue to see her. In February of this year I happen to feel a pea size lump
in my left breast and thought, this can't be too bad, I just had tests and a breast exam in December. I went to my oncologist that week for a follow up and discussed what I felt.
I was sent for an ultrasound and then a biopsy. A few days later I got the news, it was cancer, triple negative. I saw my surgeon and he scheduled an MRI to find out what we were dealing with, turns out that pea size lump I felt was the tip of the iceberg. My mass was large, how could this happen from December to February? I don't think the mammogram picked up on it, (my surgeon told me I needed to have MRI's from now on and not mammograms). I started chemo, AC-T. It was a rough summer but I managed. My oncologist stopped my last 2 of 12 Taxol treatments due to my low white count and neuropathy. I was scheduled for a bilateral mastectomy on November 5th but before that my PET scan got approved. I had my scan and my surgeon told me it looked good, he took me off the schedule and sent me for another biopsy. Well, that showed some microscopic cancer so we decided to go forward with the surgery coming on November 30th.
Sorry for the long story, but I was wondering if anyone out there has had DCIS in one breast and was then diagnosed with TNBC in the other? After my surgery I am going to have 5 weeks of radiation, but I am really worried that perhaps the radiation I had less than 2 years ago on my other breast somehow contributed to the TNBC? I look forward to getting rid of the cancer, and I am praying when the surgeon checks my sentinel node, it is clear, but that also raises another question: Did the chemo get rid of any cancer in my lymph nodes? If so, I will never know at this point if there were any cancer cells in them before the chemo. I am trying to stay positive. I am 56 years old and have a lot of living left to do! Thank you.
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123Donna View Drop Down
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Joined: Aug 24 2009
Location: St. Louis, MO
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 24 2018 at 10:51am
Hello CCRIS,

There have been women who have posted who had contralateral breast cancer.  When I had my bilateral mastectomy, they found precancerous tissue in the other "good" breast.  Do you have dense breasts?  They are finding a link between dense breasts and breast cancer and contralateral bc risk.

Have you been tested for genetic risk?  There is a genetic test that will look at 30 known cancer causing mutations, just not the BRCA mutation. 

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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JennieKeaton View Drop Down

Joined: Dec 21 2018
Location: Valdosta Ga
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Post Options Post Options   Thanks (0) Thanks(0)   Quote JennieKeaton Quote  Post ReplyReply Direct Link To This Post Posted: Dec 21 2018 at 8:27pm
I had DCIS in the left breast in 2012.  Diagnosed with TN in the right in September this year.  I'm BRCA negative  
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phoebesmom View Drop Down

Joined: Oct 10 2018
Location: Austin, Tx
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Post Options Post Options   Thanks (0) Thanks(0)   Quote phoebesmom Quote  Post ReplyReply Direct Link To This Post Posted: Jan 11 2019 at 2:34am
I had DCIS in my right breast in 2006, which was TN. I had a lumpectomy and 26 rad treatments. 

I got TN in my left breast (found a lump, 7 CM) in April, 2017. I had to wait until June 2017 to have it treated because that was when my Medicare began and I had no insurance in April. I was living in Nicaragua then and came back to the states for treatment. I had a double mastectomy (my choice, doc said I could just have a lumpectomy) followed by the usual chemo, Adriamycin followed by Taxol, for 6 months. I was in remission a year this December when they found 2 nodules in my lung that 1 has increased in size from 4mm to 7mm since my last scan in June. Now my onc says it is too small to biopsy but I am having another scan in March and if it has grown, she will biopsy and then rads if it is positive. I am 66.
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