any long time survivors of tnbc?

I am trying to sort out the myriad of emotions I have experienced since finding out my scan was clear last week...combined with my up and coming 1 year anniversary of my diagnosis.  This 1 year mark reminds me of the 18-24 month period of time when it definitely would not be in my best interests to have a recurrence.  My next appointment is booked for 3 months and I am dreading it already!

 

I have never marked time before like this (with the exception of two 9 month periods when I was so excited to see my children born!)

 

I feel like the sword of Sword of Damocles is hanging over me.

 

I know I liked the even keel of my old life without the highs and lows of this disease.

 

I am doing work I love, surrounded by people I love and who love me....and yet I feel this TNBC is almost like a stalker which deprives me of the freedom of letting my guard down.

 

Sorry, if this is not what you meant....

 

Connie

 

thanks for asking your question.  I am new to this site and I find myself visiting it quite frequently-to hear straight forward answers as well as comfort.  I am stage 4 and I had tumors in both breasts, mostly in the left.  I had affected lymph nodes in the axilla area and a couple in the supraclavicular area.  No lumps in my breasts.  I am scared.  I am 43 and was dx 2 years ago.  I know my chances are great since it had mets tothe supraclavicular area (per oncologist).  Everyday, I wonder if the pain in my head is a brain tumor.  right now, I am concerned about my shoulder that has been hurting very badly.   I had a MRI on Friday, shoulder and Cspine.  When my hip hurts I think bone mets???  It's hard.  Being in remission can be great, but your mind is still wondering day in and out.  I was given Adriamycin, Cytoxan and Taxol and it worked for me thank the lord.  But I will keep checking on this site for more info.  take care

 

I am approaching my second post treatment check-up and it makes me a bit queasy but I'm glad we have them.  In between I try not to think about them but when the card comes in the mail to schedule an appointment then my tummy drops and reminds me of what we all go thru but we need to do it and it's always a relief to hear good news and then whew, as you say a vacation for 3 months.

 

I was reading your post about you and your dog Callie and I could just picture the two of you by the Golden Gate eating ice cream.  Sounds very peaceful, gorgeous and relaxing.

 

My 21 yr old daughter's name is Kali.

 

Big hug,

I'll be checking on those results next week!

 

The Goddess Kali is powerful feminine force.  She is known for getting the job done...no nonsense. 

Big hugs to you,

Cheryl51

 

I am like you and had it come back.  I was told you have to start counting all over again.  I am sorry, I know this is aggrivating but your years will soon accumulate again.