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After Treatment??

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ruth07 View Drop Down
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    Posted: Mar 13 2012 at 11:33am
Hi everyone - (Im new here)
I am 44 & finished treatment 12/2011 - I was diagnosied w/ Stage 3B Inflammatory breast cancer/Triple negative in March 2011
I will be having my fist follow up since completing treatment and just wondering what to expect or ask for as far as test go - I do have a CT scan (pelvis,ab,chest) scheduled & blood work for next week - should I also be asking for a PET or bone scan to be done? 
I have heard so many different stories & of couse terrified something will be missed & end up where I started. 
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nmunoz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Mar 13 2012 at 12:54pm
Hi Ruth,

As others chime in you will find that doctors have different approaches to follow-up testing. My doctor does a lot of blood tests(from some cancer markers to vitamin D levels) at every appointment but he doesn't do regular scans. He only orders scans if you have symptoms. He doesn't like to have his patients exposed to high levels of radiation unnecessarily.

Best,

Natalia
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BamaRachel Quote  Post ReplyReply Direct Link To This Post Posted: Mar 13 2012 at 3:11pm
I'm finishing my rads on Thursday, and the only tests I will have, other than routine blood work, is a mammogram every six months.  My oncologist, like Natalia's, doesn't order scans and other tests unless there's problems.  At first I was freaked out by this, but the closer I get to the end of treatment, the more at peace I am.  I am confident that my cancer is gone, and am expecting to live a long, long time!!
DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote debB Quote  Post ReplyReply Direct Link To This Post Posted: Mar 13 2012 at 8:02pm
Hi Ruth,

Follow-up care seems to vary pretty widely by doctor. As scary as it seems, the standard of care calls for only routine blood work and mammograms. It sounds like you are already getting more than that though!

Good luck with the scans!
Deb
Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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