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a virus to the rescue?

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    Posted: Nov 09 2019 at 5:48am
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strongtogether View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote strongtogether Quote  Post ReplyReply Direct Link To This Post Posted: Nov 10 2019 at 2:09am
That would be so great.
I have also read about a possible vaccine. Does anyone know anything about these two avenues?

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Plume Quote  Post ReplyReply Direct Link To This Post Posted: Nov 10 2019 at 12:27pm
Thanks for the article, strongtogether.  I like to think that if enough research were done, someone somewhere will find something that could give us a bit of reassurance.

Goodness knows it's been hard enough having the diagnosis and the treatment without being told "that's it, there is nothing else to give you!"

I must admit that that was when I freaked out, when I realised at the end of radiotherapy that I wouldn't go on to have injections or pills like the other less unfortunate people.

It was the only time in the last 2 years when I felt utter despair and didn't care whether I lived or died.  BUT, I have now fortunately got over that phase!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote strongtogether Quote  Post ReplyReply Direct Link To This Post Posted: Nov 10 2019 at 3:02pm
@plume 
Have you considered a clinical trial? 
This one seems reasonable.  It is phase III, which I understand means that it's safe, and it has proven effect. Since standard of care is to do nothing, this would appear to be a good idea. Your thoughts?

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Nov 11 2019 at 10:28am
21 injections over 2 years, That's a commitment! The challenge would be finding a convenient facility participating in the trial. You wouldn't want to travel great distances 21 times. Especially knowing there's a 50% chance you're receiving a placebo. 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Plume Quote  Post ReplyReply Direct Link To This Post Posted: Nov 11 2019 at 2:59pm
Hi strongtogether, I've only just seen your post and I found it very interesting because I have never ever seen the sort of criteria that have to be passed to be included in a clinical trial.

However, I agree with kellyless's remarks.  If I felt "short changed" in anyway about my treatment or if I felt that recurrence was inevitable, then I would go for whatever was on offer, regardless of cost or convenience.

You will be glad to know that I have truly left behind those feelings of despair and the accompanying depression.  Of course, I still think that recurrence is possible at any time and that I need to be vigilant at all times with regards to anything "unusual" happening in my body.  I concentrate these days on keeping myself in good physical and mental condition:  nutrition, excercise, sleep, meditation, etc.  I make sure I keep all my follow-up appointments.

I find it quite satisfying to be able to keep my side of the bargain.  The other side of it is, I guess, in the hands of fate or chance or God or maybe even my doctors!


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Post Options Post Options   Thanks (0) Thanks(0)   Quote Marymom Quote  Post ReplyReply Direct Link To This Post Posted: Nov 11 2019 at 4:26pm
After treatment, I was like the Peggy Lee song...Is That All There Is!  I think it is common for us...because we have no maintenance options.  Then I realized I did have options.  Those options were led by none other than me!  I read about supplements, diet, exercise and the faith I have always had...just got stronger.  The words,” Be Still” became my focus.  I was still and listened and learned.  My attitude today...is wow I really came through that.  So, today I see you all, hear you all and celebrate you all!  Now I hear the Helen Reddy song, “ I am Woman Hear me Roar” I guess I changed my tune!  So, on that note...love you all and I pray for all those on this site everyday.  I think sharing on this site is so important...we know we are just downright normal!💙
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Post Options Post Options   Thanks (0) Thanks(0)   Quote FullTilt Quote  Post ReplyReply Direct Link To This Post Posted: Nov 11 2019 at 9:37pm
This is a very exciting result from the first patient in their Phase 2 trial using a monoclonal antibody CCR5 inhibitor (Leronlimab)! If you are interested in getting into this trial call me or email me and I will help. Ryan 785-332-5588 rwshay@hotmail.com 

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Post Options Post Options   Thanks (0) Thanks(0)   Quote strongtogether Quote  Post ReplyReply Direct Link To This Post Posted: Nov 12 2019 at 5:16pm
Originally posted by FullTilt FullTilt wrote:

This is a very exciting result from the first patient in their Phase 2 trial using a monoclonal antibody CCR5 inhibitor (Leronlimab)! If you are interested in getting into this trial call me or email me and I will help. Ryan 785-332-5588 rwshay@hotmail.com 


That's really interesting fulltilt.  I see it is used in the metastatic setting. Are there any plans for trials on M0 patients?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote FullTilt Quote  Post ReplyReply Direct Link To This Post Posted: Nov 12 2019 at 7:38pm
 Strongtogether,

Right now it is just for metastatic cancer but I believe it could work for non metastatic cancer also. This may be a great breakthrough treatment! It is an early result but I have met with the doctors involved with this trial and they are very excited!

Here is an interview which may explain more:



Can you please help me post this as a new topic on this forum?

Call me (Ryan) at 785-332-5588 or email me at rwshay@hotmail.com

Share this on your forum please.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote FullTilt Quote  Post ReplyReply Direct Link To This Post Posted: Nov 12 2019 at 11:28pm
strongtogether,

Just out today in press release treatment for recurrent TNBC:


This program will allow TNBC patients who are not eligible under the ongoing Phase 1b/2 clinical trial to receive leronlimab (PRO 140). Under this protocol, patients with locally recurrent or metastatic triple-negative breast cancer who had progressed within six months or less on latest chemotherapy will receive leronlimab (PRO 140) combined with a treatment of physician’s choice.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote strongtogether Quote  Post ReplyReply Direct Link To This Post Posted: Nov 12 2019 at 11:33pm
I'm not sure I understand. 
The trial is for metastatic cancer. I understand that you have met the doctors and they are excited, but there would need to be a different trial before people who are not Metastatic can join it. 
Is that your personal phone number that you have shared?
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