6 year Survivor |
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NONI 
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Joined: Aug 18 2010 Location: MASSACHUSETTS Status: Offline Points: 11 |
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 Posted: Sep 22 2010 at 2:54pm |
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AND DENISE, WHERE DID YOU GET THOSE STATISTICS, 60%??? AGAIN DEPENDS ON WHERE YOU LOOK, YOU ARE LOOKING FOR TROUBLE. I HATE STATISTICS AND AT STAGE 2 YOUR TELLING ME YOU HAVE A 40% CHANCE TO RECUR??? YOU CAN BELIEVE WHAT YOU WANT, YOU HAVE THAT CHOICE BUT LOOK SOMEWHERE ELSE BECAUSE THAT IS NOT WHAT I HEARD. WHO DETERMINES WHO LIVES AND WHO DIES. EVERYONE CAN BECOME A STATISTIC. I WOULD DISPUTE THAT, BUT PLEASE, PLEASE LET'S NOT START A NEW DICUSSION REGARDING THAT. HONEY, YOU ARE ALMOST 2 YEARS OUT AND YOUR PROGNOSIS IS EXCELLENT, I'M SURE YOUR DOCTOR TOLD YOU THAT.
I HAD ANOTHER PRIMARY BREAST CANCER 18 YEARS AFTER MY ORIGINAL, NOW I AM 7 YEARS OUT FROM THAT DIAGNOSIS. FIRST TIME STAGE 1 SECOND TIME STAGE 2. I HAD TO OBTAIN MY ORIGINAL PATHOLOGY WHICH DID NOT STATE HER2 STATUS BUT WAS ER-PR-NEGATIVE. SEVEN YEARS AGO I WAS TN SO PRESUME MY HER2 STATUS WAS NEGATIVE. MY 34 YEAR OLD DAUGHTER WAS DIAGNOSED 6 MONTHS AFTER ME WITH BREAST CANCER IN BOTH BREASTS. SHE WAS TN NOW 6 1/2 YEARS OUT. MY DAUGHTER HAD CHEMO. I DID NOT, SHOCKER BUT WAS MY CHOICE. HAD A BI-LATERAL THE SECOND,TIME FIRST TIME LUMPECTOMY WITH 6 WEEKS RADIATION.
AS YOU CAN SEE, I AM A BIT STUBOURN AND MAKE MY OWN DECISIONS. WHEN MY DEAR DAUGHTER WHO I ADORE, CHOSE CHEMO I WAS HAPPY SHE DID. I HAVE ANOTHER DAUGHTER AND 2 GRAND-DAUGHTERS...BELIEVE ME I HAVEN'T BEEN SPARED, I CAN'T TELL YOU THE COMFORT I GET FROM MY FAITH, YOU KNOW WHEN IT ALL COMES DOWN TO IT WE AREN'T GETTING OUT OF HERE ALIVE AND WHAT BETTER TO TRUST THAT IN THE END I STILL WIN.
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hhhh
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Joined: Sep 09 2010 Status: Offline Points: 150 |
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Posted: Sep 22 2010 at 4:46pm |
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thanks for your steadfast optimism, noni...means a lot.
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Daughter of one of the most amazing women in the world...
she was diagnosed 8/2010, had lumpectomy, TAC X 6, rads. 52 yrs, stage 2A (3cm, no nodes), triple neg, grade 3 |
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CTB
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Joined: Mar 24 2010 Location: Downers Grove, Status: Offline Points: 29 |
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Posted: Sep 22 2010 at 5:44pm |
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I said it in an earlier reply and I will say it again, Noni, your responses are wonderful. I am right there with you on this. Let's emphasize the positive (where does that 60% come from, I have never read it.) and stay well informed but not morose. That is my final word on this subject. Thanks again. Chris
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Dx: 12/10/09; Lumpectomy and SNB 12/28/09 2.0 cm tumor 0/5 nodes; clear margins; TC x4 ended 4/10; 33 rads ended 7/6/10
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Feb 02 2011 at 3:21pm |
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This is wonderful! We need alot of more stories like these. I hope these ladies will come on board.
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sue
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Joined: Aug 13 2010 Location: NJ Status: Offline Points: 650 |
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Posted: Feb 02 2011 at 3:41pm |
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Inspiring Noni. Thanks for sharing this. So true about the end too.
God Bless. Sue
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Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
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CST68
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Joined: Feb 02 2011 Location: Chicago Status: Offline Points: 3 |
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Posted: Feb 02 2011 at 4:04pm |
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Hi - I'm new here but just wanted to say I am a one year survivor this month. It's not long but I'm happy to have reached this anniversary!
I wish I would've discovered the TNBC site when I was first diagnosed! - Christina |
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Dx 2/18/10 at age 41, Stage 2A IDC, 3.5cm, Grade 3, 0/5 nodes, TNBC, mastectomy, AC/Taxol treatment ended 7/10 (4 AC, 4 Taxol), BRCA 1 & 2 neg.
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Feb 02 2011 at 4:14pm |
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Christina, That is great! I wish nothing buy the best of good health fffffor you.I am 3 years 3 months out this month.
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CST68
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Joined: Feb 02 2011 Location: Chicago Status: Offline Points: 3 |
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Posted: Feb 02 2011 at 4:51pm |
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Thanks Denise! Congrats on your 3 years and 3 months! Great health and happiness to you as well.
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Dx 2/18/10 at age 41, Stage 2A IDC, 3.5cm, Grade 3, 0/5 nodes, TNBC, mastectomy, AC/Taxol treatment ended 7/10 (4 AC, 4 Taxol), BRCA 1 & 2 neg.
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zacar
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Joined: Jul 09 2010 Location: Sherman Oaks,CA Status: Offline Points: 299 |
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Posted: Feb 02 2011 at 5:44pm |
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Just out of curiosity - how many of you have had several recurrences, are Stage IV and have survived more than 5 years?
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DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC
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msm082455
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Joined: May 15 2008 Location: United States Status: Offline Points: 22 |
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Posted: Feb 02 2011 at 7:05pm |
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I am the 6 year survivor, and have had no recurrances or any type of scare.
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Michele,PA,55
Dx 8-04,IDC, Gr.3,3 CM Lumpectomy w/SNB,9-04,clear margins,Triple Negative 4A/C,4TA,Rads, BRCA 1 & 2, negative |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Feb 02 2011 at 7:27pm |
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Michele, That is great as my onc. would say you are out of the woods!!!!!
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janet c.
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Joined: Jan 12 2011 Location: n.y. Status: Offline Points: 354 |
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Posted: Feb 02 2011 at 8:15pm |
 Congratulations to all the long term survivors.I think it brings hope to everyone that reads about survivors of this horrible disease.
Michele it also made me personally happy to hear that you were braca negative like me because I knew three long time survivors but they were both braca positive. Thank you for your post it made my day. I wish you a very happy, healthy, long future. 
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msm082455
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Posted: Feb 02 2011 at 8:34pm |
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Awwwwwwww..............Thanks, Janet.
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Michele,PA,55
Dx 8-04,IDC, Gr.3,3 CM Lumpectomy w/SNB,9-04,clear margins,Triple Negative 4A/C,4TA,Rads, BRCA 1 & 2, negative |
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janet c.
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Joined: Jan 12 2011 Location: n.y. Status: Offline Points: 354 |
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Posted: Feb 02 2011 at 9:04pm |
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You are very welcome!
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jody
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Joined: Nov 04 2008 Location: La Verne, California Status: Offline Points: 105 |
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Posted: Feb 03 2011 at 11:21am |
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I will be hitting my 3 year mark in about 8 weeks. I remember when I first found this sight in 2008 and I was going thru chemotherapy at the time, I remember thinking that I would NEVER get here!! The road seemed SOOOO LONG!! For you ladies who are just starting this journey, the time actually goes by quicker then you think...I know u wish you could have a snapshot of a few years down the road, but trust me the time will go by and b4 you know it you will be here too!. My three year anniversary and my 50th birthday happen at about the same time so my family is throwing a HUGE open house to celebrate LIFE! I know that you will get here...3 years seems like an eternity but it's not! My love and prayers to all of you! Jody
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diagnosed 4/16/08 stage 1, node neg TN grade 3,lumpectomy 4/30/08 chemo a/c 6 rnds, finished 9/08. Radiation begins 11/6/08 La Verne, California
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Julia
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Joined: Jun 14 2009 Status: Offline Points: 156 |
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Posted: Feb 04 2011 at 6:09am |
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I'm coming up to two years since diagnosis, and no recurrence yet (touch wood). I don't know if that qualifies me for this thread, but it sure makes me happy!
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Diag. 3/09 TNBC, IBC, 55mm.
4 rounds AC, 4 weekly Paclitaxol. Mastectomy & axillary clearance 8/09. No nodal involvement. 25 doses rads. 2 more rounds of A/C, 6 months low-dose CMF. |
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LRM216
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Joined: Mar 18 2009 Location: Marietta, GA Status: Offline Points: 1196 |
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Posted: Feb 04 2011 at 8:52am |
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I'm right with you, Julia. I was diagnosed 2/23/09. Don't know if I feel good about coming up to the two years mark, or scared poopless!
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
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Julia
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Joined: Jun 14 2009 Status: Offline Points: 156 |
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Posted: Feb 04 2011 at 2:10pm |
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High five, Linda! It's a bit freaky, isn't it? All the best.
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Diag. 3/09 TNBC, IBC, 55mm.
4 rounds AC, 4 weekly Paclitaxol. Mastectomy & axillary clearance 8/09. No nodal involvement. 25 doses rads. 2 more rounds of A/C, 6 months low-dose CMF. |
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denise07
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Joined: Jun 26 2010 Location: pa Status: Offline Points: 997 |
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Posted: Feb 04 2011 at 3:00pm |
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My friend is 9 years out from tnbc.
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Jwatrlily
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Joined: Jul 10 2010 Location: Illinois Status: Offline Points: 167 |
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Posted: Feb 04 2011 at 3:10pm |
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I agree with Noni. And, I saw that 60-40% thing myself and it was on the MD Anderson website. That "premier" cancer clinic in Texas? I guess it is a great place and maybe many of you have went there but they do a real disservice by posting that stuff. No one but God knows how long we get to survive TNBC. All you read is statistics. I'm NOT a statistic. My health and outcome is not in the statistics either. When I read the 60-40 thing I plunged to the depths of fear and despair. My Pastor had to pull me out of it. I just knew with those percentages I was a goner. I've not been back to MD Anderson website again and WON'T go there anymore. I had mammograms yesterday even though it is early too because I will be starting radiation mid-Feb and my Dr. wanted mammograms first. They were 100% ok. I have my last of 12 Taxol coming up. I plan, with the help of my Lord, to beat this thing and see all of my small toddler grandkids graduate, get married and make me a great-grandma!
Hugs everybody,
Juanita
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Diag. June 4, 2010 IDC Stage 1, Grade 3, Node 0/2 TNBC. Lumpectomy 8/9/2010 Started chemo 9/16/2010 AC x 4 every 2 weeks, Taxol x 12 weekly, 33 rads, finished 4/15/11. NED as of Sept 3, 2013
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