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5 Years Today

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robinbird View Drop Down
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    Posted: Jul 18 2020 at 11:02am
Good morning everyone.  I'm celebrating quietly today.  Today I'm 5 years out from my diagnosis.  I can tell you I was so frightened, but reading these message boards really helped me through.  I was TNBC 2B. I took 4 doses of the adriamycin and cytoxan followed by 12 weekly treatments of taxol.  I had a lumpectomy and I didn't receive a pathological complete response so I asked to be put in a clinical trial and my oncologist said no.  He did say he would put me on Xeloda and did for about 4 months.  I had a lot of trouble with foot pain so was dialed back from the full amount. I took the medicine for 2 weeks and was off a week. I also completed 25 rounds of radiation.

I have tried to eat right, take lots of vitamins, fish oil, tumeric and others.  I did not take supplements during treatment, only after.  Always check with your doctors.  I cut out grilled or smoked food, processed foods and added a lot of veggies.  I work out when I can, walk in nature, and became much closer to God.

I just wanted to post to give others hope.  I know reading about the ladies that made it 5 and/or more years really gave me hope.  Each of you are amazing, don't let fear control you.  Walk, enjoy nature, sit and listen to the birds.  Get a hobby, get out of your head.  Read up on keeping yourself and your immune system healthy.  

God bless you!







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Plume View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Plume Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2020 at 5:39am
Thank you for your lovely and very encouraging post.  Also full of good common sense.

I have 2 more years to go to catch up with you!
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Marymom View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Marymom Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2020 at 6:41am
I have two more years too!  Congratulations...your victory is ours as well!  Godspeed to all!
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robinbird View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote robinbird Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2020 at 11:14pm
Stay strong!  You will both be there before you know it!Smile
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 20 2020 at 9:25am
Congratulations on 5 years and enjoying life. 

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote sarahtt99 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2020 at 7:33am
congratulation! My current situation is the same as you.

Do you mind if I ask more details like age and your daily routine? If not here, are you able to pm me?

Iíll finish my chemo in the next 2 months, then radiation and thatís it. Xeloda is new to me as my oncologist never mentioned this and he just told me to watch and see, no further options for me after the treatment. I am so worried as I am young and still taking care of my 2 kids (1 and 4). Any helps much appreciated.

Thanks a lot
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robinbird View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote robinbird Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2020 at 7:43pm
I had chemo, ATC and Taxol.  After that I had a lumpectomy and I still had cancer left.  I had read about Xeloda and asked my oncologist and he said it would be okay, so I took it.  It made my feet hurt and my hands swell, but my hair grew and I got through it.  I had to have the dosage dialed down several times because my feet hurt, but I continued to go to my full time job as usual.  It was very doable.

 I didn't take supplements during treatment, but started after I finished treatments.

After that, I started on D3, K2, Fish oil, vitamin C, vitamin E (which he surgeon suggested because it helps with pain where I had surgery where they checked the lymph nodes and the lumpectomy). I also take vitamin A too, but watch the doses most are too high so I take it only twice a week.  B-12 is the same way, some are far too high.  Get a normal amount and take it every day.

I don't eat meat that has been grilled and I try to eat fish, chicken, salads but have to throw in the occasional pizza! I stay away from sugar as well.

Clean eating and drinking, lots of supplements and exercise too.  Just walking a couple of miles a day helps.  I lift weights too....but not so much during COVID.

When I was 2 years out, I read on another board about long time survivors and most of them said they took lots of supplements.  I did research and found the ones that I thought were most important. 
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1maJ View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 1maJ Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 3:00pm
Hi robinbird, congrats on the 5years!  Such an important milestone.  Sounds like you were diagnosed around the same time I was.  I was 5 years out from diagnosis this past summer on July 14, and kept it pretty quiet.  I of course celebrated with my family, but decided to wait until my surgery date to fully celebrate.  I had residual cancer at the time of my lumpectomy in January 2016, and I could never get my doctor to be clear on whether the 5 year celebration mark was from time of diagnosis, or from end of treatment, so I guess I decided to wait until January :) 

I was a stage 2A, 3cm tumor, no lymph nodes involved, and had the exact same treatment you did, with Xeloda at the end when it was a brand new drug to try for TNBC.  I came on here often to chat with others going through the same, many of us trying to make a decision on Xeloda, and now I am happy that I did.

My health has been pretty good since.  I have some neuropathy in one foot, but nothing that stops me from doing everything I want to.  I have had some back and knee issues, which is nothing new for me, but currently those are in check.  I participated in the Livestrong program right from the start of radiation, and it was the best decision I could have made.  From there I joined a dragon boat team for cancer survivors, and I am not kidding when I say that I am grateful to cancer for bringing me to this awesome sport.  We actually qualified to go the Club Crew World Championships that were supposed to be held in the French Alps this past August ... but you know ... Covid 😭😭🥺🥺. But prior to that we were training hard during the winter season, and it really helped me feel healthy.  I can't say I have been good about exercising since the pandemic started, but I am buying a rowing machine now so that I can train at home, along with lifting weights.

Anyways, this group completely held me up after my diagnosis and during my treatment.  It was really important to hear the success stories, because I was scared, and Googling info on TNBC was NEVER a good idea.  I am cautiously optimistic that everything is going to be just fine.  I found that letting go of stress was really really important for me, as was letting go of things I couldn't control.  I also take vitamin D every day, took turmeric for a while, but now just drink lots of turmeric tea, but will probably start taking turmeric again since I know it is good.  I limit my sugar intake, which seems to be easier as I get older, but by no means do I deny myself of it completely.  I just have it in small amounts.  I generally eat well, and I did before diagnosis too, so the focus since cancer has been more on stress relief, being outdoors for dragon boating, and enjoying life.        
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