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4th recurrence looking for TNBC expert oncologists

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Passant View Drop Down
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Joined: Oct 28 2019
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    Posted: Oct 28 2019 at 10:55pm
Hi lovely ladies,

Im looking for experts in TNBC, im already based outside of the US so location is not an issue. Can be at any institute anywhere.

Also did anyone face this? Multiple recurrences at 31 even after umx?
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Oct 29 2019 at 10:37am
Dear Passant,

I am not a lovely lady but am responding to your request at the suggestion of a friend on this marvelous site. I am a Patient Advocate and have helped many hundreds of women from this site over the last 10+ years.

I will send you a PM with my phone number and will try to help, if I can, but need to talk with you. There will be no cost.

Also, I am not a medical professional so I will never tell you what treatment plan you should embark upon but I can suggest several Breast Medical Oncologists who are familiar with TNBC.

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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sophie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sophie Quote  Post ReplyReply Direct Link To This Post Posted: Oct 29 2019 at 8:01pm
Steve is our angels . He helped me find several doctors for 2nd opinions. I love him and recommend him to anyone who needs help. 

Thank you Steve for arranging me meeting dr. Valero.

Sophie 
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Oct 29 2019 at 9:52pm
Sophie, I second that!  Steve is our resident angel who has helped so many of us on this site.  His dedication is true and works tirelessly for those who need help.  Thanks Steve for all you do!

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Kellyless View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2019 at 1:34pm
Steve is a huge reason I survived a recurrence 7 years after my first go round. He got me into MD Anderson months quicker than I could myself. If I could do one thing for you and one thing only I would get you to MD Anderson - it will change your life! 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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