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2nd Opinion

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GinaMarie View Drop Down
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    Posted: Aug 17 2008 at 12:31pm
Hello Again
Its been awhile, just wanted to drop a line and say im in the middle of a fertility cycle to try and freeze embryos with my husband, last i posted my oncologist was skeptical about letting me do it, but the dr's all met and decided with trip. neg not too much risk because im not receptive to hormones. 
Went out to Brooklyn to get 2nd opinion on them telling me to have my ovaries in the next 3 weeks!!!  I almost fainted, like i dont have enough to think about right now with chemo coming up in a few weeks.
Well the dr i went to see used to run the breast oncology dept at sloan kettering and said ABSOLUTELY NOT!!  At 36 he said would be more of a detriment going thru menopause then the chemo causing more menopause, so needless to say im glad i went, this dr was one of the committe members who came up with the BRCA screening, so ladies if you ever have BRCA questions and live in the NY/NJ area, he is wonderful, check out his website, his name is Dr. Borgen.
My only problem now is im having my egg retrieval on Tuesday and it looks like only 1 good egg came from the cycle!! 
Has anyone here had cytoxan and taxotere as a treatment, that is what im getting, only 4 over 3 mos, and im just wondering how toxic to the ovaries it really is......  Please let me know if anyone has had these treatments, your input is ALWAYS greatly appreciated!!  Embarrassed
Love to all Gina


Edited by GinaMarie - Aug 17 2008 at 12:31pm
gigi
Stage 1 Grade 3 dx may 2008
2 lumpectomies, first one wrong dx of fibroadenoma!!
chemo 4 rounds ovr 3 mos Taxotere/Cytoxan BRCA 1+ Bilat mast. with Lat flap recon done 1/9/09!!! No rads!!
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 17 2008 at 2:20pm
Hi GinaMarie,
 
Good to hear from you. I found a few links as to Cytoxan and Taxotere that you might want to take a look at. Lori had both, but she had no concerns as to the effects of having more children. She feels that she is in menopause now, due to the chemo.
Nancy
 
 
 
 
 
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GinaMarie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote GinaMarie Quote  Post ReplyReply Direct Link To This Post Posted: Aug 17 2008 at 2:39pm
Hi Nancy
Great to hear from you!!!  I know i can always count on you for good sources of info!  Just reading these side effects scare the hell out of me!!  Im seriously considering just doing radiation,  because i only had a stage 1 and no lymph nodes, clear margins.  The 2nd opinion dr said chemo is good but ony reduces my chances of recurence by about 10 to 15%, those are really not great odds in my opinion, maybe im being foolish and grasping at straws but the thought of putting this poison in my body only to have this disease possibly come back is sickening!!  Especially when i dont have children yet, and desperately want one.  Did u see the story about Christina Applegate, she is refusing chemo because of wanting kids, my mom is NOT happy with me for even considering not having it, but im really scared to have the chemo, nothing scares me more in life!!!
Thank you for the sights, your the BEST!!  Your daughter is a lucky woman
Love Gina
gigi
Stage 1 Grade 3 dx may 2008
2 lumpectomies, first one wrong dx of fibroadenoma!!
chemo 4 rounds ovr 3 mos Taxotere/Cytoxan BRCA 1+ Bilat mast. with Lat flap recon done 1/9/09!!! No rads!!
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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Aug 17 2008 at 4:40pm
Hi again Gina,
 
The final decision is always up to you. It is your body, your life. You get to make that decision based on the information that you research. There are many many gals on this site who have not had that wonderful opportunity to have children. I believe I can understand that. Having 5 daughters has been the joy of our lives.
 
I believe those were the percentages that were given to Lori when faced with the decision of having or not having chemo. However, her tumor was (they thought), 5cm, and another behind the nipple area. She did not have node involvement, and they got clear margins. Lori was refusing to have chemo, and her oldest sister did not want her to put that poison in her body. Lori was terrified to have chemo. She did, and now we have to believe that the cancer is gone. If you could see her now, she is vibrant and is so healthy, and is trying to get on with her life. Will having the chemo affect Lori later in life? Only time will tell. She had Adriamyicin also.
 
It was not my intent to scare you with the links to the chemos. They are out there to inform you. I know what your Mom is feeling right now. I really do. She just wants her daughter to be cancer free, and to live to be an old lady. That's all any parent would want. How much time do you have before you have to make the decision? Have you really done all the research you need to do?
 
Heather (myjourney) did IVF and now she is taking chemo. Perhaps you might want to pm her. Also, you can start a new topic just to ask the gals who have not had children, how they arrived at their decision as to chemo.
 
I just Googled Christina, and they don't say what type of bc she has. If it is IDIS, then that is probably why she would be just having rads, and not chemo. Just keep researching Gina, and when you have made your decision it will be right for you. You will know. Lori did.
 
Many hugs sweetie,Hug
Nancy
 
 
 
 
 
 
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Terri View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Terri Quote  Post ReplyReply Direct Link To This Post Posted: Aug 17 2008 at 7:53pm
Hi Gina,
 
I was 41 when dx last year. I had been married less than a year and we were just starting to talk about whether we wanted a child.  Neither one of us had been married before or had children and I was young and healthy (I thought) for my age.
 
We didn`t have alot of time to decide about fertility bc my surgeon never brought it up and my onc wanted to start chemo ASAP. I was stage 1 with no node involvement. My husband felt his priority was to treat me and save my life, not worry about a life that didn`t even exist yet. I felt like that too plus I felt it would be selfish of me to bring a baby into the world who maybe would not have a mommy growing up.
 
On the other hand I had my Mom who desperately wanted a grandchild and I was her only hope. (My sister doesn`t want kids at all). So that put pressure on me and I still feel  guilty that I let her down. She even asked me if the dr`s would allow me to have a baby then get chemo!! In her defense, she didn`t know alot about it back then. Of course I was always her first priority and she says she accepts that she will never have a grandchild.
 
It`s so unfair to have this choice taken away from us!! Sometimes I see happy families and feel we are missing something. But my husband and I  love eachother alot and waited a long time to find eachother.  The two of us are a family.  (And all our sweet animal children).
 
It`s a very personal choice but I wouldn`t have sacrificed chemo to have a child. It may not sound like alot but 10-15% more chance of survival to do chemo sounds like alot to me!! I think my onc said it would give me 5-10%  better chance and I jumped on board!!  It may be poison but I visualized it as poison only to cancer. The sicker I felt the more I thought the chemo was saving me.  
 
So read up on triple neg so you can make the best informed decision for yourself. Good luck and keep us updated. Hug
 
Terri
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED
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krisa View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Aug 17 2008 at 10:18pm
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Edited by krisa - Oct 09 2008 at 7:37am
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GinaMarie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote GinaMarie Quote  Post ReplyReply Direct Link To This Post Posted: Aug 18 2008 at 3:08am
Thank you ladies, all of you for your input!!!  Nancy, Terri, and Krisa, im just so conflicted right now, of course i want to be on this earth for many many more years, i just want to make the BEST decision all around, for myself and for a possible future with a child, everyone keeps telling me i can always adopt and for some thats a wonderful option but i cant help but think i just want my own child.  My husband is NOT happy with me either right now and says he doesnt need a child without a mother in 5 years so i see his point too, god forbid i would never want my child to grow up without a mother!!  I just want some more solid evidence that by doing this chemo it really decreases my chances of recurrence, i would be SICK if i did this only for it to come back within 2-5 yrs.  Im rambling, im sorry but my head is just a mess right now, ive been hit with so many life altering decisions at 36 in the past month, its amazing im not in a straight jacket yet!!!  Love u all for your comments, keep them comingThumbs%20Up
gigi
Stage 1 Grade 3 dx may 2008
2 lumpectomies, first one wrong dx of fibroadenoma!!
chemo 4 rounds ovr 3 mos Taxotere/Cytoxan BRCA 1+ Bilat mast. with Lat flap recon done 1/9/09!!! No rads!!
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cg--- View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cg--- Quote  Post ReplyReply Direct Link To This Post Posted: Aug 18 2008 at 4:17am

Dear Terri,

You never let anyone down. I am a mother of two wonderful children whom I do not believe will ever have children - I would bet the farm they will not (great loss to the world - but then I am prejudiced!) They are kind and nurturing, intelligent, loving, and with humor in their hearts (so necessary when considering having a child). They include me in their lives, share their experiences, call for advice regarding my "grandpups", first call is to me when their "little ones" are out of sorts, we talk about going to "school" (my son's little guy should be in reform school he is so bad, one belongs in finishing school, and one should be in remedial classes), report on the vet visits. I get to buy toys, clothing, baby-sit when they go on vacation....YUP..for all intents and purposes I have taken on another role in their lives and if no one ever calls me "nana" (my preference if anyone cared or could actually talk), then the furious wags of their tails, kisses, and when they crawl on my lap to be cuddled.....sure makes me feel how I imagine a "nana" might.  I even have playpens (to keep Chihuahuas safe from the huge feet of my 120 pound German Shepherd).
 
I love their fur babies because they love their babies....we have another common thing to love which still widens the circle of family - so these members have tails and fur (no discussions about who they look like) - mind you my daughter's one has a stubborn disposition just like my husband!
 
I was buying winter coats for them (we are in the east and we have very cold winters) and my husband was taken back by the price of the clothing (as all men are) to which I promptly replied "Well, at least we don't have to start a college fund ..."
 
A truly sane realist....
 
Connie
 
 
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Terri View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Terri Quote  Post ReplyReply Direct Link To This Post Posted: Aug 18 2008 at 5:23am
Connie,
 
You are always making me feel better or helping me with something these days Smile 
I LOVE your outlook on being a Nana to their fur babies!  We do refer to my mom as Nana with ours and she gets a kick out of it. I think she was just so ecstatic when I finally got married and thought I`d have a little one soon due to my age, then BAM- BC ruins it all !! She just needs time to digest it all. In the meantime she does babysit sometimes and adores our babies, especially my 16, 15, & 14 year old kitties who I have had since kittens.
 
I can picture you picking out little coats LOL I have a sweater for our Bassett Hound but here in FL she only gets to wear it for a few weeks a year. She wears a pink one because everyone thinks she`s a boy and it`s bad for her ego! She is CLEARLY a petite girlie dog!
 
I can`t believe your German Shepherd  is 120 lbs! Ours is 75 lbs and he seems big to me. My husband & I say he is the only normal one of the bunch. All the others have either behavioral or health issues and are very high maintenance. (for example our Springer Spaniel is on thyroid, incontinence, and arthritis meds and has to eat prescription allergy food). They found the right people to live with  Tongue .  I work for a vet and we would do anything for them!
Thanks again Connie for your great outlook onlife!!
Terri
 
 
 
 
 
 
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED
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cg--- View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cg--- Quote  Post ReplyReply Direct Link To This Post Posted: Aug 18 2008 at 6:10am

Dear Terri,

My beloved Paco is with me for a reason...his brothers, sisters, all weigh 65-70 pounds,(he was the largest of the litter). They are working dogs, drug, protection, police departments, etc., AND THEN...Paco who could be a poster dog for the breed with perfect markings, form, hips, EXCEPT Paco is "special". It took me a year to train him to "go" in our back yard, and six more months to go on any other piece of grass but his. He is noise shy, has been attracted to our vacuum since he was a puppy.  He is afraid of the Chihuahuas, has had more private lessons (with German Shepherd trainer) than a concert pianist....I figure it cost me $200 in lessons just for him to figure out "sit and stay". He requires more patience than even Job (he was the guy with all the patience everyone always talks about) and my daughter always says "I am real glad we were born first...because of all his special needs." He was bred for stamina and endurance (his grandmother was grand champion in retrieval over in Germany) - which translates to mean I have one arm 3 inches longer from throwing him things so that he may fetch and satisfy this innate drive!
 
But Paco's special gift is loving and caring for me. Even when the adults in my life could not comfort me when I was most sickest - Paco always knew without words what I needed (from helping me up when I was too weak to speak), to nudging people out of the room when I did not want to visit, from barring people from the room if I was sleeping, or cutting a visit short if he sensed I was tiring (husband could not pick up on the subtle clues - and social convention does not allow the rudeness of asking someone to leave) - but 120 pounds of fur gently telling you the meeting was over leaves no room for debate. 
 
I know someone with colon cancer, and her daughter is so unkind, does not visit, does not help, does not comfort, provide support....and breaks this woman's heart ......believe me her broken spirit would be comforted by the unconditional love, affection, and loyalty of a dog.
 
"Our perfect companions...never have fewer than four feet."
 
So, dear Terri, you already have quite a large brood!
 
Connie
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