| Author |
Topic Search Topic Options
|
Cookie
Groupie
Joined: Feb 05 2008
Location: United States
Status: Offline
Points: 70
|
Post Options
Thanks(0)
Quote Reply
Posted: Oct 31 2008 at 9:13am |
Laurie:
Also, make sure to talk to the doctor who is putting in your port prior to insertion. Make sure it isn't put in a spot where your bra strap will bother it.
|
|
COOKIE
3-
9 Richardson
Clean Nodes
4.5 cm
Clean margins
Stage pT2, pNO, PMX (spot on right lung showed up in routine chest x-ray too small to biopsy)Lumpectomy 1/14/08
|
 |
trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 01 2008 at 9:20am |
Hi Laurie,
Absolutely you can do that. That is what I did last year, my surgeon's idea and it was a few months before I even started chemo. It is so much better since the surgeon will be right there where the port will be placed.
Let us know how you are doing!
|
|
Stage 2 2003
Stage 1 2007
BRCA 1+
|
 |
Lauriejn
Senior Member
Joined: Oct 18 2008
Location: United States
Status: Offline
Points: 178
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 04 2008 at 4:37am |
The surgeon will not put the port in the same day. We discussed at great length his reasons and I'm okay with his why he won't do it. If/when I need the port, he will put it in at that time.
So anyways, I'm moving my posting over to the talk forum and will post after the surgery sometime after Friday. I find it so bizarre that I'm looking forward to having this surgery. Praying for quick healing, no infections (ie MRSA) and no other damage done by the "beast".
To Fellow soon to be survivors: Do not let fear take over...Fear stems from thoughts however thoughts are not tangible. When you find yourself in "panic mode"- relax, breathe in- feel the breath move down into your lungs and breathe out feel it coming out your nose/mouth. Your thoughts will be quieted and calmness will return. Guaranteed!!
Peace. Laurie
|
|
Dx Oct2008- IDC Gr 3/Stage 3C
Mastectomy 11/7/08- 6/21 nodes
Bone Mets dx Dec 2008-Stage 4
Albany, NY BRCA neg
|
 |
Lauriejn
Senior Member
Joined: Oct 18 2008
Location: United States
Status: Offline
Points: 178
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 08 2008 at 11:04am |
I am home from surgery. All things considered, it went well. 3 sentinals came back positive so surgeon did full node dissection. He was very surprised how normal all the nodes looked. I had found 2 lumps around my clavical/neck the night before surgery  and surgeon biopsied day of surgery. Pathology will be back Wednesday on everything.
Sore but happy to be home!!
Laurie
|
|
Dx Oct2008- IDC Gr 3/Stage 3C
Mastectomy 11/7/08- 6/21 nodes
Bone Mets dx Dec 2008-Stage 4
Albany, NY BRCA neg
|
 |
Louise
Newbie
Joined: Aug 09 2008
Location: United States
Status: Offline
Points: 3
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 08 2008 at 12:30pm |
Hi Laurie,
My name is Louise, 53 years young, public school teacher, lumpectomy in July, Stage I TNBC Grade III....no lymph node involvement. I'm 9 weeks into 24 weeks of chemo, and I've been lucky. My side effects are easily remedied so far.
I'm writing to tell you about my 4 year old (Oct. birthday) granddaughter, Karleigh and my 6 year granddaughter, Alexis. I wait for them to ask questions and give them simple answers. If they ask another question I give them another simple answer. Karleigh wanted to know about my bald head and my Groshong catheter line. I told her I was taking medicine, and it made my hair fall out, but it will grow back. I told her the line is how I take the medicine. Alexis has two grandmothers with breast cancer..........she just tells everyone "my grandmothers have breast cancer". Karleigh recognizes the pink breast cancer ribbon and says "Look, it's the ribbon for breast cancer people." She begs her mother to buy anything with the breast cancer ribbon so she can give it to her "Wezie" (me) My 3rd graders at school also require the simplest of answers to their questions. To tell you the truth it all reminds me of explaining sex to my children when they were growing up........keep it simple when they begin to ask questions. Their questions will let you know how in depth you need to go.
Laurie............it's going to be okay. Try not to agonize over the unknown. Immerse yourself in the gestures and words of love you will experience in the coming months from family and friends. Stay away from depressing blogs....look for the positive places. I have two favorite sayings I want to share with you.....
"For every adversity, there is a seed to a greater benefit."
and..........
"Just when the caterpillar thought its life was over it turned into a butterfly."
God bless you and your family,
:)Louise
|
 |
trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 08 2008 at 3:49pm |
Hi Laurie,
So glad you are home! Let us know when you get your results Wednesday. More waiting huh??
|
|
Stage 2 2003
Stage 1 2007
BRCA 1+
|
 |
Nancy
Senior Member
Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 08 2008 at 5:05pm |
louise,
I did a search and I did welcome you...but that was months ago. So...welcome back 
My daughter Lori teaches second grade and she loves it....absolutelty loves it!! Her stats are at the bottom of my post.
Your favorite sayings are keepers, and you sound as though you have a great attitude. Your answers to your granddaughters are right on target. Keep it simple...and if they want to know more....they will ask.
If you need any tips for the chemo, even though you are 9 weeks in to it, we have chemo and rad tips which are from the gals here on the site. Just go to the TNBC New, Resoruces & Tips Forum, and click on the last page which right now is page 17. They are yousr for the printing. Also, if you have any tip which is not already there, please tell me and I will add it/them. Always room for more, as every little bit of advice coming from one of you ladies is the best advice anyone can get.
Please post and tell us more about yourself.
Hugs,
Nancy
|
|
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
|
 |
Nancy
Senior Member
Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 08 2008 at 5:08pm |
Laurie,
So glad to hear that you are home. Take care of yourself, rest and let us know the results of the pathology report. We will be sending inspirational thought you way.
Many hugs,
Nancy
|
|
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
|
 |
Louise
Newbie
Joined: Aug 09 2008
Location: United States
Status: Offline
Points: 3
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 09 2008 at 5:53am |
Hi Nancy,
Thank you for your message. I stayed away from the internet for some time.........but, now I'm looking around again at the proactive sites. I appreciate the lead about the Resources and Tips Forum..........I'm headed that way right now. I will be doing 6 1/2 weeks of radiation at MD Anderson when I'm finished with chemo......hopefully, the end of February.
So, I'll appreciate advice concerning radiation. I hope your daughter is staying ahead of TNBC. I understand it affects young women more than people "my age". I admire these young women who are battling cancer while raising families and/or working. They are my heroes.
God Bless!
Louise
|
 |
Lauriejn
Senior Member
Joined: Oct 18 2008
Location: United States
Status: Offline
Points: 178
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 09 2008 at 6:32am |
Thank you for the welcome homes!!
Hospital sent over a home healthcare nurse to check up on me this morning. I guess I'm healing very quickly and very well. The nurse asked a few times the operation date- no swelling, bruising and not a lot of fluid build-up. She believes the drains may come out this week. WOOOHOOO.
I'm off to enjoy a walk before it gets November appropriate.
Peace. Laurie
|
|
Dx Oct2008- IDC Gr 3/Stage 3C
Mastectomy 11/7/08- 6/21 nodes
Bone Mets dx Dec 2008-Stage 4
Albany, NY BRCA neg
|
 |
trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 09 2008 at 11:53am |
Wow Laurie, how nice that a healthcare nurse came to check up on you.
I've certainly never had anything like that. I'm so glad you are healing quickly. That would be great if you can get your drains out this week.
|
|
Stage 2 2003
Stage 1 2007
BRCA 1+
|
 |
Lauriejn
Senior Member
Joined: Oct 18 2008
Location: United States
Status: Offline
Points: 178
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 12 2008 at 10:08am |
Hi Pam. I feel like I'm healing quickly. and hope the drains come out prior to the portacath being put in- next week for some much needed sleep. I've started a new posting on TNBC Talk area- posted the results of pathology.
Peace. Laurie
|
|
Dx Oct2008- IDC Gr 3/Stage 3C
Mastectomy 11/7/08- 6/21 nodes
Bone Mets dx Dec 2008-Stage 4
Albany, NY BRCA neg
|
 |
trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 12 2008 at 4:27pm |
Alrighty laurie I will check it out, I am so behind in reading the forum!
Hugs
|
|
Stage 2 2003
Stage 1 2007
BRCA 1+
|
 |
Alison4ox1
Newbie
Joined: Nov 15 2008
Location: United Kingdom
Status: Offline
Points: 12
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 15 2008 at 4:16am |
I have been diagnosed with Triple Negative Breast Cancer, initially size was 1.3 cm but after MRI sizing 5 cm. 1 node involved but no spread to other organs bone scan clear, liver scan clear and lung and heart clear. Having neoadjuviant chemo (FEC x 4 then possible Tax x 4) then surgery and then radiotheraphy.
Very Frightened have up and down days sometimes just sit and cry why me. Then I look at my 3 girls and want to fight.
No breast cancer in family as far as I can find could I be the first and do I need to be checked for the gene.
Love to hear from anyone with some positive words because everything I seem to read is so negative, frightened for when treatment stops and how to notice signs of recurrence.
Alison
|
 |
anna921
Groupie
Joined: Nov 12 2008
Location: United States
Status: Offline
Points: 91
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 15 2008 at 5:00am |
I'm sorry we frightened you Allison, but we're so used to discussing side effects and other issues that have crept up, we do forget that there are women who are just starting out. Look at it this way, isn't it already positive that were still here to discuss what we went through? We've beaten it, and so will you.
We all have those up and down days and basically, it's healthy to have them. If you wouldnd't be scared, you wouldn't have a fighting spirit and you'd be worse off. I wollop in self-pity and so does everyone else with the same condition. I ask 'why me' and so do all the women here. But when we're done, we say 'cancer will not kill me, I won't allow it.' You look at your girls and say 'cancer will not take away my joy seing them, I will fight tooth and nail and not give in to the intruder'. I kept telling myself, and still do "cancer will not kill me, when I'm around 105 and not too steady on my feet nymore, I might get run over by the city bus, but cancer will not kill me."
When did you start your treatment? Are there any side effect from the chemo you've not anticipated and have a hard time coping with? Let us know so we can help you work through it all.
|
|
August 2007, Stage III, 5+ cm, Grade 4F, 4 FAC with booster after 4 days, 12 weekly Taxol, radical mastectomy, 36 radiation treatments.
Houston, Texas
|
 |
sibu
Senior Member
Joined: Jun 27 2008
Location: FL
Status: Offline
Points: 660
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 15 2008 at 5:04am |
|
Welcome Alison!
Glad you found us. You are in good company.
We all have days where we sit and cry why me!
We can all be encouraged that the majority of women who have tnbc, are out there living full lives and not on these boards. I would guess that we are more likely to reach out for support during down times, when we are in a frightened state.
I have 3 children, too, and indeed they are the motivation to keep going some days.
Hugs to you and yours, Donna
|
|
Donna, age 42
Dx IDC 12/06, 5/18 Nodes + BRCA1+
Double mast. 1/07
Chemo 6 X TAC 6/07, rads 10/07
Hyst./Recon. 12/07
|
 |
Nancy
Senior Member
Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3814
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 15 2008 at 7:20am |
Dear Alison,
Your tumor is the same size as my daughter Lori's. However, they found another one behind the nipple after an MRI. Lori's feelings were the same as yours....why me....how me? She could not function for at least 5-6 weeks after dx.
TNBC responds very well to chemo Alison, as all the gals here will tell you. Lori's stats are at the botom of my post. We have tons of info here on the site, and Pam (trip2) posts new info every day. Lori had the BRCA testing and she is negative, However,what they are finding is TNBC gals may have other mutations. We have a topic on the "TNBC Talk" forum titled "First diagnosis received-Lumpectomy or Mastectomy", and you might want to read the posts there. The more info you have...the better decisions you will make.
We have gals on the site who are 7, 10, 14, 17 20 years out from dx. You are going to have the support of some incredibly intelligent, caring and loving women as you begin this journey.
I have 2 links to articles which you may want to read as to the Taxol/Taxotere.
You also will want to have your D levels checked. This is very important. Here is the link for the correct test.
I want to give you some directions for the resources on the site, which are from the gals on the site. They are for your daily life.
At the top of every page you are on, are the words..about tnbc...about us...tnbc events..forums.
Please click on forums and then click on "TNBC News, Resources and Tips".
Then go to page 11, and click on "Directions on how to access our many resources". There is a to the left of it. This will tell you exactly how to retrieve the information. There is another one for directions for adding your signature also. You may want to print these out to read. The chemo and rad tips, after surgery tips, and books to read are also on that forum, and are always on the last page.
You have definitely come to the right place Alison, and we will be here for you every day that you need us...just ask.
Hugs,
Nancy
|
|
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
|
 |
Alison41
Groupie
Joined: Nov 15 2008
Location: United Kingdom
Status: Offline
Points: 64
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 15 2008 at 7:59am |
Thanks Anna sorry I did not mean that this website scared me it was others this one seems very positive and I shall be keeping up to date.
The first bout of chemo was not as bad as I thought no sickness at all but I did take the anti sickness drugs just in case.
The type is FEC combination of 3 drugs after 3 sessions they are going to do another MRI to see if the Tumor is shrinking or not.
I would like to keep in contact.
Thanks for the support.
Ali
|
 |
Alison41
Groupie
Joined: Nov 15 2008
Location: United Kingdom
Status: Offline
Points: 64
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 15 2008 at 8:01am |
Hi Nancy
What are the D levels not been asked about this one?
Ali
|
 |
trip2
Senior Member
Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 15 2008 at 11:59am |
Hello Alison and welcome.
Please just jump in with any questions or comments anytime.
As far as genetic testing the best thing is for you to talk to a certified genetic counselor. You can learn about this on http://www.facingourrisk.org
|
|
Stage 2 2003
Stage 1 2007
BRCA 1+
|
 |