1st Chemo Experience

 Hi.  I just wanted to share my first chemo exeperience.  I started chemo on March 19, 2009.  I am doing a clinical trial and the first set of meds I  got was Avastin, Taxatore, and Xelode (pill chemo).  They were not able to access my port (which I had placed on March 6th) because they said it was still swollen and after they tried a few times, they went to the hand. 

 The day was long, I was there almost 7 hours.  I had to see the oncologist first and then treatment and also met with a social worker and dietitian.  I felt fine during the whole treatment and so far the biggest side effect was being tired.  I am starting to get a sore mouth from the Xelode, but hopefully that wont get to bad.  They tried to fit me for a wig, because they give you a free synthetic wig, but they said I still have to much hair ( I got it cut before chemo, but I guess it still needs to be shorter).  I guess when I go there next time we will try again.

 A surgeon put it in and I am kind of concerned that its sideways because it doesnt really feel straight.  It was disappointing not to be able to use the port because the way it sounded like it should be able to be accessed right away.  Im not sure about the swelling, but Im gonna hope that was the cause because I really would be upset if the port doesn't ever work.

 Thanks for sharing those encouraging words about the long treatment.  I thought that it was extremely long treatment plan, but I talked myself in to believing that it was gonna be for the best in the long run. 

Hello Amy,

Denise,