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10 year old w/ triple neg bc

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Wendy2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wendy2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 21 2009 at 2:06pm
She's beautiful and I am in complete shock. I have a 10 yr. old daughter too. This is a grea site and we will pray for Hannah. Whatever we can do, we will. I just can't believe this. I am so sorry for you and your daughter. Children can endure so much and I'm sure, as the rest of us on here, she will be strong and courageous. All my best.
Wendy
dx 3/06 TN, taxotere/cytoxin x4; radiation x 40; mets. to lungs, lymph nodes 3/08 - to begin chemo 4/29/08 Abx/Avas., 9/08 Avastin maintenance, 1/09 - off meds to see if Avastin causing headaches
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Post Options Post Options   Thanks (0) Thanks(0)   Quote asinglerose Quote  Post ReplyReply Direct Link To This Post Posted: Apr 21 2009 at 5:43pm
Hi,
I am sorry about your daughter, I hope everything winds up ok.
I will pray for her!
 If you need to talk, I am in Florida and you can pm me and I will give you my number.
I just got done with all my treatments on April 6th.
 
 
Good luck
Aleida
Aleida
dx 8/22/08, TNBC, IDC,
Lumpectomy/10/6/08 right breast/ 8mm/
clear nodes/ clear margins/ Stage1/ TAXOTERE/CYTOXAN every 3 weeks X4/ 45 RADS!
PRAYING FOR THE BEST!!

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outnumbered View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Apr 22 2009 at 9:18am
Your family has been added to my prayer list.  If there is anything you need, please do not hesitate to PM...
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

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Post Options Post Options   Thanks (0) Thanks(0)   Quote edavmo5 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 22 2009 at 11:48am
First off, I am so sorry to hear about your daughter. Prior to this I had not heard of anyone under the age of 15.

I am a fellowship trained Surgical oncologist specializing in breast cancer. My mother has triple negative breast cancer. I carry the BRCA gene mutation...so I know the ins and outs of this disease quite well.

1. First make sure that the surgeon and pathologists agree that the pathology correlates with what was going on in your daughter's breast and that the pathology is correct. Strongly consider sending the pathology for a second opinion. If it is felt to correlate and she does have breast cancer, then...

2. She will likely be best served by a mastectomy. Take your daughter to a surgical oncologist specializing in breast cancer. They should also start with a sentinel node biopsy - this is a study to see if there is evidence of cancer cells in the lymph nodes. The surgeon and pathologists will determine whether or not an axillary dissection (removing the remainder of the lymph nodes in the armpit) is necessary based upon that test.

3. I would disagree with those recommending a pediatric oncologist. The reason is that they almost never see or deal with breast cancer. Seek out an academic / university cancer center with people specializing in breast cancer. These oncologists will have the most up to date data and infomation in caring for your daughter.

4. Given the very early age of diagnosis, she should be tested to see if she and ultimately anyone else in the family has the BRCA Gene (an abnormality in the chromosome that leads to a significant predispostion to development of breast,ovarian, and other cancers.

Good luck. If you need additional help seeking out specialists in your area let me know where you live an I can help you find a good place.

Dr E

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Nancy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Apr 22 2009 at 2:02pm
Dr E.
 
Thank you so much for making these suggestions/recommendations for this family. I was wrong suggesting a pediatric oncologist and you are precisely correct when recommending a surgical oncologist who specializes in breast cancer. Our grandson at age 3 needed a pediatric oncologist and Hannah does not.
 
I found this link for a girl in china who was dx with bc at the age of 4 with bc. We have a girl here in Altoona, PA dx with ovarian cancerat age 16, and I thought that was very young. This dx for Hannah is not one we thought we would ever read about.
 
We welcome any suggestions you may have as to TNBC, for anyone here on this site, and would also recommend that you tell your colleagues about the TNBC site. There is a wealth of knowledge/information on this site from women dx with this type of bc, and perhaps our site can become a learning tool for you and others. Many things that are not taught in a text book, or even discussed in a class room are written here.
 
Thank you for being such a caring individual and doctor.
Nancy
 


Edited by Nancy - Apr 24 2009 at 1:12pm
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 23 2009 at 6:50am
Dr. E thank you so much for your input into Hannah's diagnosis.
 
 
 
As you can see in the above post by Hannah's father they have difficullt decisons to make and of course you understand what alot of this entails.
 
They reported that the pediatric facilities are not equipped for breast cancer but the facilities for adults with breast cancer are not equipped for children and yes they are recommending a mastectomy for this young woman.
 
I am so very sorry your mother has been diagnosed and I hope she is doing well?  May I ask her treatment protocol?
Also sorry to hear about the brca1, myself and my daughters also carry this as do many in our forum.
 
Look forward to hearing from you again and my best wishes to your mother.
Stage 2 2003
Stage 1 2007
BRCA 1+
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Sunris View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Sunris Quote  Post ReplyReply Direct Link To This Post Posted: May 08 2009 at 10:31am
Your daughter needs nothing but your love, a great oncologist, faith in God, and TONS or encouragement to be normal & positive. I believe that even at her age, she can be positive and be one of the ones that people will look up to and say " I admire you" , or "you helped me see hope" ....ya know ?

Don't get me wrong here, I'm totally astonished at her DX @ age 10.... But I just truly feel that because she is a child we freak out worse ( naturally)...just as I too would do.... however, we have to strongly be positive for these children and encourage them to be their own advocates etc... I think it helps them from being scared / depressed, etc...

Much luck & love to your family...
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susied View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susied Quote  Post ReplyReply Direct Link To This Post Posted: May 08 2009 at 11:37am
I am blown away by the awfull news for you and your daughter......I agree with the suggestions to run don't walk to a peds ocnologist....
 
Please know you are all in my prayers and in my heart ,
 
Blessings,
Carole
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Shelley View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Shelley Quote  Post ReplyReply Direct Link To This Post Posted: May 08 2009 at 12:37pm
I can't claim to be an expert on BC but I am pretty well versed on kids.  I am a teacher and a school counselor.  I also had BC this year.  The kids were great and I was alway up front to what was happening with me.  A couple things to tell you about letting your daughter know...  She is definitely aware that something is going on.  Kids are an expert at reading their parent's emotions and sensing that something is happening around them.   When telling kids bad or overwhelming news, they say to be honest and upfront with info.  You do not have to give tons of details, just the basics.   Have you contacted St. Judes??  They are a wealth of information about Children's Cancers.
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susied View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susied Quote  Post ReplyReply Direct Link To This Post Posted: May 08 2009 at 2:16pm
Oh, St Jude's....what a good idea.....even a phone call might point you in the proper direction if they don't treat BC in kids........please try that
 
susied
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: May 08 2009 at 2:44pm
I have been following Hannah's blog, the link I posted above everyday.
She had her mastectomy yesterday and was doing well.  They moved it up a day so that she could be home for Mothers Day.
 
She has the above blog and she also has a group in FB if you guys would like to check in once in awhile.
She sounds like a real trooper.Heart
 
PS  She has been diagnosed with Invasive Secretory


Edited by trip2 - May 08 2009 at 2:46pm
Stage 2 2003
Stage 1 2007
BRCA 1+
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Bunnysmama View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bunnysmama Quote  Post ReplyReply Direct Link To This Post Posted: Jun 03 2009 at 9:02am
I just came across this article on msnbc.com, and I'm assuming this must be the same story.  Quite honestly, I'm shocked at how short the story is and, even more importantly, how it basically brushes off everything she's going through and says she's trying to find the bright side.  Is that all they could find to say?!?
 
 
Here's the text of the article in case the link doesn't work:
 

10-year-old girl battles rare breast cancer

California girl coping with side effects of chemotherapy and mastectomy

LA MIRADA, Calif. - A 10-year-old Southern California girl with an extremely rare, adult form of breast cancer says she's sad that her hair is gone but she's trying to remain brave.

Hannah Powell-Auslam, of La Mirada was interviewed Wednesday on ABC's "Good Morning, America."

She was shown getting her hair shaved off rather than waiting for chemotherapy to make it fall out. Her family also got buzz cuts.

The fifth-grader complained of itching in April. Her mother discovered a lump, and that led to a diagnosis of breast cancer. Hannah has had a mastectomy.

Hannah says she tries to find a bright side to things as she battles her illness and the side effects of chemotherapy. She says she's still a kid even though she's fighting an adult disease.

Dx 11/06 @ age 37
IDC
Stage I, Grade 3
BRCA2+
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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 03 2009 at 9:11am
I agree.
 
Here is Hannah's blog if some of you would like to check up on her,
 
 
She has been recovering from her mastectomy pretty well.  Really quite the trooper and such a precious young lady.
Stage 2 2003
Stage 1 2007
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Wendy2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wendy2 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 03 2009 at 12:12pm
saw her on good morning america today. wow - what a child. can't imagine with how i feel right now - God bless her and may she recover completely!
wendy
dx 3/06 TN, taxotere/cytoxin x4; radiation x 40; mets. to lungs, lymph nodes 3/08 - to begin chemo 4/29/08 Abx/Avas., 9/08 Avastin maintenance, 1/09 - off meds to see if Avastin causing headaches
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