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Debris
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Joined: Jun 07 2010
Location: Forsyth,Georgia
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Topic: Zacar (Caryn) Posted: Jul 29 2011 at 10:44pm |
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Anyone been in touch with Caryn? She hasn't posted in quite a while, and was having such a hard time when last she posted.
Caryn, we miss you and keep you in our prayers.
Deborah.
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4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510
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Posted: Jul 29 2011 at 11:12pm |
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Deborah,
I saw Caryn post on FB that she's not doing too well. She's on a lot of morphine right now. I couldn't figure out from her post if she's doing chemo or not. I haven't seen her post in over a week. Please keep her in your prayers.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Debris
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Location: Forsyth,Georgia
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Points: 756
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Posted: Jul 30 2011 at 8:16am |
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Donna, thank you for the update.
I so wish Caryn wasn't having such a tough time. She is in my prayers.
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4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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LRM216
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Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
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Posted: Jul 30 2011 at 9:13am |
And I hold Caryn in my thoughts and prayers as well. I pray this turns around for her, she has fought so hard and been through so very much and is such a loving, caring friend to all of us.
Linda
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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MsBliss
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Joined: Apr 25 2009
Location: Lost Angeles
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Points: 722
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Posted: Jul 31 2011 at 3:51pm |
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I think I can get her phone number. Do any of you wish to try calling her?
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MsBliss
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Location: Lost Angeles
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Posted: Jul 31 2011 at 3:53pm |
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Donna, Does Caryn have a fb page? I have been so worried about her....she is all heart.
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13510
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Posted: Jul 31 2011 at 4:12pm |
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Yes Caryn has a FB page. I'll pm you the info if you want to connect to her there. I saw that she posted about 2 hours ago.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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123Donna
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Location: St. Louis, MO
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Points: 13510
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Posted: Jul 31 2011 at 4:13pm |
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Ms Bliss,
I tried PMing you but your mailbox is full.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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MsBliss
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Joined: Apr 25 2009
Location: Lost Angeles
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Points: 722
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Posted: Jul 31 2011 at 4:44pm |
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Donna, I'll make space right away....
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MsBliss
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Joined: Apr 25 2009
Location: Lost Angeles
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Posted: Jul 31 2011 at 4:56pm |
Dear Donna, I just found Caryn's facebook page....but I don't have access since I am not on facebook anymore....
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Debris
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Joined: Jun 07 2010
Location: Forsyth,Georgia
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Points: 756
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Posted: Jul 31 2011 at 6:27pm |
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I'm not on fb either. Please do let Caryn know we care for her. And thank you for any updates you can share.
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4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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janet c.
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Joined: Jan 12 2011
Location: n.y.
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Points: 354
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Posted: Jul 31 2011 at 6:59pm |
Caryn,
We love you and you are always in our prayers.
Janet
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dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds
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LRM216
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Location: Marietta, GA
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Posted: Jul 31 2011 at 8:22pm |
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The fact that she posted on FB or anywhere for that matter relieves me a bit. I hope she checks in here soon. Caryn - we miss you and care very much how you are doing.
Edited by LRM216 - Jul 31 2011 at 8:22pm
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Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Debris
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Joined: Jun 07 2010
Location: Forsyth,Georgia
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Points: 756
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Posted: Aug 03 2011 at 11:37am |
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Caryn, still praying for your recovery.
Deborah.
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4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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sue
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Joined: Aug 13 2010
Location: NJ
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Points: 650
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Posted: Aug 03 2011 at 2:13pm |
Caryn,
Still praying that you will be blessed and know peaceful times during this long journey.
Love, Sue
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Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
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123Donna
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Location: St. Louis, MO
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Posted: Aug 03 2011 at 4:46pm |
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I got this message from Caryn:
I've been in and out of the hospital. My port
closed and I had a blood borne infection. Things are not looking good.
I'm told that there is no saving me. I't's crazy but that "parp"
really messed me up. I'm going to try
some light abraxane starting next week and I need to check the brain
again. Please thank everyone for caring. Somehow I thought I'd be one
of the lucky ones and be around for awhile. Doc says I'm not ready for
hospice at all but I just hang out in my my bed most of the time.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Autumn10182001
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Location: Highland, NY
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Posted: Aug 03 2011 at 5:41pm |
I don't know what to say.. I can't handle losing anyone else.. enough already... somebody find a cure.....
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DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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TNinTN
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Location: Knoxville, TN
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Posted: Aug 03 2011 at 5:54pm |
Thank you, Donna. This is difficult news to hear. We will continue our prayers for Caryn's healing, peace, and comfort. Martin & Susan
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Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11
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CindyKS
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Joined: Feb 19 2011
Location: Kansas
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Posted: Aug 03 2011 at 6:16pm |
Thanks Donna for the update. I have been thinking of Caryn and pray for her. Cindy
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Age 42; Dx 4/10; IDC; 2.1cm; lumpectomy; ACx4-taxolx4 every 2 wks; Radx37, BRCA 1/2 neg
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123Donna
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Posted: Aug 03 2011 at 6:32pm |
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I believe Caryn is comforted by all of our prayers and well wishes. Just knowing that others care about her will help lift her spirits and keep her fighting this terrible disease. I was lucky enough to meet her in Houston at MDA. Like others I've met, I wish the meeting lasted longer. Caryn is truly a wonderful person and the love she has for her son is so apparent. They have a very close bond.
Caryn, if you read these posts I hope you know how much we all care and love you.
Hugs,
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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