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Zacar (Caryn)

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    Posted: Jul 29 2011 at 10:44pm
Anyone been in touch with Caryn? She hasn't posted in quite a while, and was having such a hard time when last she posted.

Caryn, we miss you and keep you in our prayers.

Deborah.
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 29 2011 at 11:12pm
Deborah,

I saw Caryn post on FB that she's not doing too well.  She's on a lot of morphine right now.  I couldn't figure out from her post if she's doing chemo or not.  I haven't seen her post in over a week.  Please keep her in your prayers.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: Jul 30 2011 at 8:16am
Donna, thank you for the update.

I so wish Caryn wasn't having such a tough time. She is in my prayers.
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 30 2011 at 9:13am
And I hold Caryn in my thoughts and prayers as well.  I pray this turns around for her, she has fought so hard and been through so very much and is such a loving, caring friend to all of us.
 
Linda
 
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MsBliss Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 3:51pm
I think I can get her phone number.  Do any of you wish to try calling her?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MsBliss Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 3:53pm
Donna,
Does Caryn have a fb page?  I have been so worried about her....she is all heart.

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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 4:12pm
Yes Caryn has a FB page.  I'll pm you the info if you want to connect to her there.  I saw that she posted about 2 hours ago. 

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 4:13pm
Ms Bliss,

I tried PMing you but your mailbox is full. 

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote MsBliss Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 4:44pm
Donna,
I'll make space right away....
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MsBliss Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 4:56pm
Dear Donna,
I just found Caryn's facebook page....but I don't have access since I am not on facebook anymore....Unhappy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 6:27pm
I'm not on fb either. Please do let Caryn know we care for her. And thank you for any updates you can share.
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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Post Options Post Options   Thanks (0) Thanks(0)   Quote janet c. Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 6:59pm
Caryn,
We love you and you are always in our prayers.
Janet
dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 31 2011 at 8:22pm
The fact that she posted on FB or anywhere for that matter relieves me a bit.  I hope she checks in here soon.  Caryn - we miss you and care very much how you are doing.

Edited by LRM216 - Jul 31 2011 at 8:22pm
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: Aug 03 2011 at 11:37am
Caryn, still praying for your recovery.

Deborah.
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Aug 03 2011 at 2:13pm
Caryn,

Still praying that you will be blessed and know peaceful times during this long journey. 

Love,
Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 03 2011 at 4:46pm
I got this message from Caryn:

I've been in and out of the hospital. My port closed and I had a blood borne infection. Things are not looking good. I'm told that there is no saving me. I't's crazy but that "parp" really messed me up. I'm going to try some light abraxane starting next week and I need to check the brain again. Please thank everyone for caring. Somehow I thought I'd be one of the lucky ones and be around for awhile. Doc says I'm not ready for hospice at all but I just hang out in my my bed most of the time.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Autumn10182001 Quote  Post ReplyReply Direct Link To This Post Posted: Aug 03 2011 at 5:41pm

I don't know what to say..  I can't handle losing anyone else.. enough already... somebody find a cure.....

DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNinTN Quote  Post ReplyReply Direct Link To This Post Posted: Aug 03 2011 at 5:54pm
Thank you, Donna. This is difficult news to hear. We will continue our prayers for Caryn's healing, peace, and comfort.
Martin & Susan
Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote CindyKS Quote  Post ReplyReply Direct Link To This Post Posted: Aug 03 2011 at 6:16pm
Thanks Donna for the update.  I have been thinking of Caryn and pray for her.
 
Cindy
Age 42; Dx 4/10; IDC; 2.1cm; lumpectomy; ACx4-taxolx4 every 2 wks; Radx37, BRCA 1/2 neg
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 03 2011 at 6:32pm
I believe Caryn is comforted by all of our prayers and well wishes.  Just knowing that others care about her will help lift her spirits and keep her fighting this terrible disease.  I was lucky enough to meet her in Houston at MDA.  Like others I've met, I wish the meeting lasted longer.  Caryn is truly a wonderful person and the love she has for her son is so apparent.  They have a very close bond.

Caryn,  if you read these posts I hope you know how much we all care and love you.

Hugs,

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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