Go To Main TNBC Website


  New Posts New Posts RSS Feed - YAY me....heh.
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

YAY me....heh.

 Post Reply Post Reply Page  12>
Author
Netterz View Drop Down
Senior Member
Senior Member
Avatar

Joined: Oct 05 2007
Location: United States
Status: Offline
Points: 405
Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Topic: YAY me....heh.
    Posted: Dec 30 2008 at 12:01am
OK, here goes, and beleive me, I am incredibly pissed off and very angry................
 
The Pathology report from Mayo Clinic comes back with the dx of
 
Cutanious T-cell Lymphoproliferative Disorder.
 
The skin biopsy shows dermal perivascular atypical lymphoid infiltrate composed of intermediate sized lymphoid cells with monotonus cytology. Immunophenotyping shows that these are T-cells expressing CD4, but no aberrant markers characteristic of T-cell Lymphoma.
 
Molecular clonality confirms the presence of clonal T-cell population in the samples. Given these features, the apperances are consistant with Cutanious T-cell Lymphoproliferative Disorder. (AKA: CTCL)
 
Specific diagnosis include primary cutaneous CD4+ positive  small/medium T-cell Lymphoma, and an UNUSUAL mycosis fungoids and/or involvement by a systemic periferal T-cell Lymphoma. A definative complete dx will require correlation with other clinical and pathology features.
 
So.... my nurse says that the entire path report was terribly confusing, and I agree, because it lists off a ton of tests that are all letters and #, like CD4+, etc, that unless you are a pathologist, or have the Mayo Clinic Interpretation handbook, and huge words that neither of us had ever heard before, so I had her fax me the report.  Ugh.... she was sooo right.  Just when I think I have understood something that they said? It looks like they discount there very own findings in the next sentence or paragraph!!
 
Anyways...... she said that my surgeon and Onc have spoken and that I need to get an appt with the Onc right away. I am still at a loss as to why the total of biopsies that my Onc wanted, were not done.
 
From what I have read and understand of most of this, is that one of these huge painful lumps that are on the same side of the bad breast are lymphnodes, and have grown on up into my neck, and halfway around my back.  I have discovered some in my groin, on both sides, WHY did they decide not to take one or 10 out, and sent those, instead of, or along with the tiny amount that he took, from the center of my boob, right near my nipple.
 
This biopsy came from the very same cut that they tested me for IBC with, over a year ago, I had that one done on Oct 4, 2007...... have been complaining about it since,  right after I had the lumpectomy back then. I had these really weird cord like things pop up, under the front and side, that they now beleive might be deep vein thrombosis.
 
Now that my boob has shrank down so much, is now completely hard as a rock, horribly painful boob, and no one was listening to my fears of what this problem has been since I had the first surgery after DX and chemo. Everyone of my doctors had some way to poo-poo it away. It is causing nerves in my back to flare up as well. Flying off the bed at 4am because I have rolled over on it, and it feels like some one has shot me, does NOT make me happy.
 
With skin that has broken down so far from everything, I doubt very highly that I can go thru recon... because I do not have enough good skin on that side anymore, to even close the wound. I look like something from a circus freak show, one boob size H cup, and the other basically non-existant, other than the fact that my skin has pulled at it so much, that my nipple sticks out on my side.
 
YAY me. I can hardly wait to see what the next thing will be. I know that when I come on here that my posts are often crosswise and things end up in some other post.. because you are all so addictive, and everyones journy is so different in one way, and identical in another. I am going to TRY and stick to putting what is going to happen on this thread.
 
LOL, and boy do I ever ramble!!!! That was our school mascot, an older red car.. called a rambler.  
 
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
Back to Top
mainsailset View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 27 2008
Location: Washington State
Status: Offline
Points: 4879
Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 3:18am

That is incredibly frustrating not to mention dangerous.

It seems that a good portion of the problem is the 'professionals' not listening to you or explaining back to you so that you can do your job which is to advocate for yourself. They're not allowing you to be fully informed which allows them to retain control.
 
Does Mayo have a round table where you can demand that the docs gather with you for a group analysis? Because it does sound like they're hiding behind each other.
 
You have some physical issues which need immediate attention, they're literally life changing.
 
Please remember, and I know it helps me when I fly off the AMA handle, you aren't walking in the door by yourself to the doctors, you have a herd of intelligent & powerful women standing at your shoulder. You are never alone (and you are always right!).
 
Back to Top
anna921 View Drop Down
Groupie
Groupie
Avatar

Joined: Nov 12 2008
Location: United States
Status: Offline
Points: 91
Post Options Post Options   Thanks (0) Thanks(0)   Quote anna921 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 3:20am
Good grief! Is there a way you could have another pathology done with samples taken from another part?
August 2007, Stage III, 5+ cm, Grade 4F, 4 FAC with booster after 4 days, 12 weekly Taxol, radical mastectomy, 36 radiation treatments.
Houston, Texas
Back to Top
BrendaF View Drop Down
Senior Member
Senior Member
Avatar

Joined: Dec 07 2007
Location: United States
Status: Offline
Points: 401
Post Options Post Options   Thanks (0) Thanks(0)   Quote BrendaF Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 4:51am
Holy crap!  I've been so involved in my own little cocoon the past few weeks I had no idea you were going through this.  I've got no advice for you, but I do understand how it seems that at huge medical centers (I'm at Cleveland Clinic) the left hand doesn't seem to know what the right hand is doing half the time.
Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
brain, lymph, pleura, bone mets. Started Xeloda 8/24/09
Back to Top
Nancy Bell View Drop Down
Senior Member
Senior Member
Avatar

Joined: Feb 18 2008
Location: United States
Status: Offline
Points: 150
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Bell Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 6:17am
Oh Net,
I so wish you didn't have to go thru all this frustration, confusion, pain and uncertainty.  Don't you ever worry about rambling.  This is the place to come where others will definately understand the need to ramble.  I am a rambler too (I used to drive one many years ago). 
You be demanding with these medical people.  It is your life & your body.
Prayers, prayers & more prayers.
Love,
N
dx 8/17/2007 IDC Grade 3 Stage2
lumpectomy 9/19/2007
1.2cm w/extension into multiple intramammary lymph nodes
SNL 0/1
Ki-67 81%
Dose Dense AC/T completed 2/21/08
37 rads completed 5/02/08
Back to Top
Nancy View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 23 2007
Location: Altoona, PA
Status: Offline
Points: 3804
Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 7:16am
Netterz,
 
Never fear.....Connie is here!!!Wink 
 
 
I know that she can translate any of this gobbeldy gook. I have sent her an email.
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
Back to Top
BrendaF View Drop Down
Senior Member
Senior Member
Avatar

Joined: Dec 07 2007
Location: United States
Status: Offline
Points: 401
Post Options Post Options   Thanks (0) Thanks(0)   Quote BrendaF Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 7:48am

My first "serious" boyfriend drove a blue rambler.  Boy, does that bring back memories.

Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
brain, lymph, pleura, bone mets. Started Xeloda 8/24/09
Back to Top
Jessie View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 07 2007
Location: North Carolina
Status: Offline
Points: 515
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jessie Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 8:36am
Netterz ----  bless your heart !!!!!   I'm FURIOUS the onc allowed you to have the path report without his/her being with you to explain it !!!!!   And why not do mastectomies ASAP and biopsy any and all parts.  And address the areas that are particularly painful so you can at least be more comfortable for the rest of whatever further journey is in store !  Angry
 
At this point, try not to worry about recon.  Your life and comfort are soooo much more important.    Just think, with prothesises you get to chose the size you want to be and you'll look just right in your clothes !   I'm told that any further surgery for me will only that which is absolutely necessary to save my life, not for elective reasons, so recon is not in my future.  Believe me,  boobs slide down the priority scale like a greased pig on a hot August day when your life's at risk !  Shocked 
 
Dealing with the pain and frustration you're having, I'm sure, would have me beating down the surgeon's door yelling CUT THESE D--- THINGS OFF ME !!!  I'd probably even supply the butcher knife !       
 
Surely, surely the docs will relieve you soon with a diagnosis and treatment plans, and I bet Connie and Pam will lead you to some good web sites in the meantime.  
 
You're a strong woman --- and you've got some other strong women in your  corner, just as MAD !
 
Demand some answers and a PLAN !!!!
 
Jessie
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 9:33am
 Hi%20There Oh Netterz what a mess and you are NOT a circus freak!
Your are a beautiful woman with a health issue and we've got to get this fixed yesterday.
 
What is your next step?






Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Jessie View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 07 2007
Location: North Carolina
Status: Offline
Points: 515
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jessie Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 10:04am
I've been doing some reading about Cutanious T-cell Lymphoproliferative Disorder and, I swear, I'm not sure it was written in English !  Wacko
 
I just did a google search on Cutanious T-cell Lymphoproliferative Disorder.   The very first site I read talked about how confusing the subject was.  There are many, many markers involved, CDx markers.  I get the impression that the expressions of the various CD markers helps classify the type of T-cell Lympho----- disorder.  The type and location (it can be almost anywhere in the body) define the treatment and prognosis.  Chemo, radiation and surgery --- some or all three --- are called for.  Everything I read indicated how confusing and challanging for doctors this is.
 
Given its confusing and complex nature, I guess it's not surprising that the onc is dragging his feet in explaining it to you, Net,   It seems to call for a lot of collaboration between specialists to define the exact type and best plan.  I would bet you have the attention of Mayo doctors in your case. 
 
I'm so anxious to hear what your onc says about the findings.
Hugs,
Jessie
      
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!
Back to Top
Lauriejn View Drop Down
Senior Member
Senior Member
Avatar

Joined: Oct 18 2008
Location: United States
Status: Offline
Points: 178
Post Options Post Options   Thanks (0) Thanks(0)   Quote Lauriejn Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 10:08am
I've never heard of a non-hogkins lymphoma & breast cancer being located in the same area?? Especially coming from a 1 yr old biopsy tissue...
 
I'm sorry to read this Netterz!  What are the plans ??
 
Laurie
Dx Oct2008- IDC Gr 3/Stage 3C
Mastectomy 11/7/08- 6/21 nodes
Bone Mets dx Dec 2008-Stage 4
Albany, NY BRCA neg
Back to Top
Jessie View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 07 2007
Location: North Carolina
Status: Offline
Points: 515
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jessie Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 11:04am
Net,
 
I have a website for you --  http://www.clfoundation.org  -- it appears to be a forum for those with Cutaneous Lymphoma.  I didn't register so didn't get too far, but you might want to check it out.
 
Jessie
 
 
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 2:03pm
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Netterz View Drop Down
Senior Member
Senior Member
Avatar

Joined: Oct 05 2007
Location: United States
Status: Offline
Points: 405
Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 4:11pm
First off....  

Thanks to you all, you guys are the most awesome bunch of women on the planet. I am going to read thru all of the posts, and answer what I can with what I do know, but there is a lot still that I do not know, and probably wont, until I see my Oncologist.


Mainsailset:

I am not near the Mayo Clinic, my pathologist here in MI. sent it out to Mayo, to have them analyze the skin that was taken a little over a month ago. He had looked at it for several days, and wanted another set of Pathologists to look and concur with him, because what he was seeing, fit into one criteria., the CTCL, but other things about it, did not make any sense, and I am possibly dealing with more than one type of cancer, that usually do not have anything to do with each/the other. Kinda like one test was positive, but when he went to look for other known markers, they weren't there.


Anna921:

When I saw my Oncologist last, she had told me that she wanted multiple biopsy sites, and a few nodes removed, since I had around 10 back then, that were swollen and larger, than just the one that was swollen when I saw her the previous appt. a few months before. As of now, there are too many to count, they over lap each other, and differ greatly in size. My surgeon set up the surgery time, and then called me the day before, and said that he had spoke with my Onc, and that he only needed to take a single skin sample, and that he wanted me to come into his office and have it done, under local anesthesia.
So he took another skin sample, from the exact same spot that he had used when he had removed skin before when tested me for IBC over a year ag.
I had a PET/CT before I went scheduled for the multiple biopsy, and apparently nothing 'glowed' so they came to the thought that a single sample was all that was needed. So he cut a diagonal slice over the old scar from where he took the skin from before, believing that since that is where it seemed to start from, would check the same spot again, for any changes.

BrendaF:

Oh gosh.. I am not at a huge clinic, just a Cancer Center in a larger Hospital in Lansing. My Surgeon, he is at an even smaller hospital, but has a huge wall of Honers, and to be honest, he is so good, but is home hospital that I absolutely hate, but it is the closest one to my home, and all of us who have had to be involved with anything other than a ER visit at that hospital, has had a horrible time there. Our family Dr....he is a big huge lovable teddy bear, he treats us all, and he is affiliated there. If not for those two Doctors, I would never step foot in there again.
I have a couple friends who have had BC treatment at the Center I go to now, and had positive results, and were very happy. I am happy with my Oncologist too, and can not blame her for any of this really, because she came into my treatment late in the game, when I fired the other Onc I had before, when was about ready to start Rads...but there where the other issues that the previous Oncologist had not addressed back then, because 'it was not important'...that had to be taken care of before I could start rads. So shes been trying to figure out all that was wrong, and make it right.


NancyB: Thanks hun, I will keep you posted on what I find out, because  your issues greatly resemble mine back in the early stages, and I sincerely hope that what I have been thru, will help you if yours ends up being the same as mine, before it gets so far out of hand like mine has. I wish I would have started taking pictures long before I did, so it would be recorded. Since CTCL has so many variants, and in my case, things going on that no one has ever seen before, At least you can take my information to your Oncologist and get the proper testing and treatment before you end up like me down the road. I was so happy when the IBC report came back negative, but wanted to know what was going on, and its taken me over a year to get it addressed. Was a year last Oct 4th.


Nancy: Thank you, Connie has given me some things to look at, and hopefully when I go to see my Oncologist, she is also Hematologist as well, I think I will be in good hands this time around, far better than the last oncologist that almost killed me twice!


BrendaF: A blue one huh?? How cool!!! Ours was red, so much fun and memories!


Jessie: I got the pathology report from my Surgeon, he is upfront and on the ball, and knows that I will dig up my own information anyways. I read my very first result of Cancer, cracked the envelope I was to pick up from the Hospital before my appt with him. I already knew inside my head and heart that I had cancer, but needed to see it on the paper myself....to make it real, to sink in, even tho several of the words they use?? I have to look up and find out what they mean..and I could care less about a recon job, they can have them both, and as far as ordering a new set..at 42..and huge boobs..they been peeking at my feet for along time!! I don't remember perky boobs!!!!!! LOL......... I think I was beyond a DDD when I graduated HS..and then when I got preggerz..they swelled up like balloons, and then never went away! My major concern at this point, is how much damage this has done, while its gone misdiagnosed. Knowing I had 7 positive nodes and one that did not have clear margins of the 26 he took out, that is what bothers me the most.


Pam: LOL, I know this, but I see the stares and what not, when you have an H on one side, and maybe a B on the other, is rather odd looking. Not to mention the way it feels, like I am severely lopsided, its messing with my shoulders, neck and back. I am at the point now, where I just want them both gone!! Its a good thing that I have a huge twisted sense of humor, or I would be nuts.

And once again, You are the greatest!! The amount of info housed in your brain amazes me. I think you should have your own Ph.D!!


Jessie: Yes.. on the pathologists report, it does say at the end, that they are interested and appreciate being involved with my case, and want pertinent updates. My Oncologist is also a Hematologist and a few other Ph.D's behind her name, shes very good. The report lists several CD's, and a bunch of other letters and numbers, and have no idea how they relate and to what. I would guess by the time I get to her on the 5th, she will have had time to sort thru them all, and hopefully make some sort of sense out of it. There are 17 markers listed in one single section. Talk about brain scramble!!


Lauriejn: I think I may have confused you somewhat, he just cut a new sample from the same place he took the sample a year ago, they werent using an old sample, this one was fresh cut. I think that the Mayo agrees with you that it is extremely odd, and unusual, and has peaked there interested parties. The path report mentions that the findings sort of contradict themselves, Genomic DNA, clonal receptor gamma gene rearrangements detected... Kinda words that make your brain hurt.


You are all such a fantastic joy to have here, I always have my brother with me on these appts, and he usually lightens the mood right from the start with some kinda joke or something, and sets everyone in a more comfortable setting. But I always have this picture of a large group of women behind me, listening and ready with answers to questions I might not think of to ask. You truly are amazing, incredible, fantastic women.

I do love you all Red%20Heart
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
Back to Top
sibu View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 27 2008
Location: FL
Status: Offline
Points: 660
Post Options Post Options   Thanks (0) Thanks(0)   Quote sibu Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 6:41pm
Ramblers? My high school mascot was the "Maroons."

I never really knew what that meant. Is it: a) what your doctor does to you once he sees your path report or b) the "what if we were on a desert island" game Brenda and her boyfriend played in the back of that blue Rambler. :)

No words of wisdom, just much love and support your way.
Donna, age 42
Dx IDC 12/06, 5/18 Nodes + BRCA1+
Double mast. 1/07
Chemo 6 X TAC 6/07, rads 10/07
Hyst./Recon. 12/07
Back to Top
Netterz View Drop Down
Senior Member
Senior Member
Avatar

Joined: Oct 05 2007
Location: United States
Status: Offline
Points: 405
Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2008 at 7:02pm
The older cars where much better back seat adventures. Now that there are just as many women who design cars.....the back seats are much smaller, and much less functional for those back seat adventures. If you even think of trying much in a car front or back....
A)you are going to either hit your head on something REALLY hard,
 
B)set the side airbags off that you can not hide from your parents(which disables some cars completely, resulting in it having to be towed somewhere)
 
C) Something is going to be poking you in the butt, those new seat belt 'applicators' are a friggin killer!
 
PS: These are stories that I have been told.....not a live experiment completed by me. I can not even remember sex.. but I sure do hope all the tales they tell about riding a bike are true! 
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 31 2008 at 5:58pm
Lol I have to laugh Net at your story about the Ramblers and am fascinated that there are more than I would think in this forum that
rememner them.
 
One of my best girlfriends had a green one.  If I recall I believe she told me the back seat layed down, no first hand knowledge of this but that's what she told me. lol
 
Well ya know Net, I am not that smart whatsoever but ya know after reading what some of these women go thru with their bad experiences with docs and I myself seeing how hard it is to find a new Onc,  I wish I could be a good Onc and we all could come to my clinic and look at things from a more understanding prospective.
 
I know there are good Oncs out there, some of you have great docs from the sounds of it.  Is anyone of them taking patients? 
Egad!  Egad fits with the Rambler. lol
 
Ok no I haven't been drinking anything stronger than green tea and diet coke.
 
We will always be here for you Netterz
 
Hugs
 Doctor 
 
 
 
 
 
 
 






Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
Netterz View Drop Down
Senior Member
Senior Member
Avatar

Joined: Oct 05 2007
Location: United States
Status: Offline
Points: 405
Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Dec 31 2008 at 6:26pm
Well, mom and I are here all alone for NYE...seems kinda quiet, but nice, the kids are having a party, and my brother and his family headed north, his barn roof fell in on about $150K worth of toys and equipment in it, so he is trying to get the 4ft of snow off the roof of his cabin there, and figure out how he is going to deal with his barn roof.
 
But they are getting a little snowmobiling in, so not all work. I am pretty sure he is well into his cocktails by now, in front of a fire inside the cabin. Poor guy cant catch a break at all lately... but that does not stop the brother/sister ragging on each other. Mom took another wipe out today, so I told him he can no longer leave on a holiday weekend, has to go the week before or after, but thank god his mechanic was working at the shop today for a bit, he came and helped me get her up.
 
So we are each having a wine cooler, wooohooooooo we live such an exciting life, we told my daughter we were going to be flashing boobie off the deck, and nakid snow angels in the yard... told me we were both going to get arrested, and said its a good thing shes got some cash stashed to come bail us out!!!!!!!!
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
Back to Top
sibu View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 27 2008
Location: FL
Status: Offline
Points: 660
Post Options Post Options   Thanks (0) Thanks(0)   Quote sibu Quote  Post ReplyReply Direct Link To This Post Posted: Jan 01 2009 at 7:08am
Naked snow angels?!?!?!?!?!? Love it love it love it.


Donna, age 42
Dx IDC 12/06, 5/18 Nodes + BRCA1+
Double mast. 1/07
Chemo 6 X TAC 6/07, rads 10/07
Hyst./Recon. 12/07
Back to Top
Netterz View Drop Down
Senior Member
Senior Member
Avatar

Joined: Oct 05 2007
Location: United States
Status: Offline
Points: 405
Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Jan 01 2009 at 10:47am
LOL, it was kinda funny, when I took mom in to put her to bed, I still have to help her lift her legs on into the bed, then she kinda slides on over to where she feels comfortable, and said.. here is my snowangel, about as close to the ground as I am gonna get! Even at 70...she still cracks me up, because she gets looped of one drink, always has...if she makes it to 2 drinks..... lordy.... god only knows what might come out of her mouth!!
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
Back to Top
 Post Reply Post Reply Page  12>
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 11.05
Copyright ©2001-2016 Web Wiz Ltd.