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Worried about reccurence

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svinayak View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote svinayak Quote  Post ReplyReply Direct Link To This Post Posted: Mar 01 2018 at 4:00am
Hi.. everyone i am new to this forum.I am diagnosed with stage 3,2years ago.
I had a dry cough from past 2-3 months.So my onco ordered a pet/ct.
Today i got my report and there are multiple ground glass lung nodules in my lungs.They also showed mild fdg uptake on nodules.My onco said right now they are so small and looked like some infection.He wants me to follow it up in 3 months with pet/ct.
I will be glad to know something from you all.
S.Vinayak
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 01 2018 at 7:52am
Do you know how big the nodules were?  They definitely could be from an infection.  Have you been sick lately?  Following up in a few months is the best way to know if there are any changes.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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svinayak View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote svinayak Quote  Post ReplyReply Direct Link To This Post Posted: Mar 01 2018 at 9:29am
They all are sub-centimetric. I have asthma and had many infections usually got cold and cough from dust.Allergic to seasonal changes.
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cheeks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Mar 01 2018 at 10:56pm
Hello Kellyless and Callitive65,
I hope you are both doing well. I've contained to read posts from the forum but haven't posted very often in a few years but here I am again too. I was diagnosed the first time in 2009. You can see by my signature the details. I have been sailing along fine and feeling less stressed and worried as the years have gone by. My oncologist at Vanderbilt had moved me into her nurse a few years ago to continue with what had become yearly appointments. February 8th was my yearly checkup for bloodwork, mammogram of my remaining right breast and a physical exam. I got the bloodwork, the mammogram and was waiting for the nurse to come into the room to see me. I'm walked the radiologist saying she needed me back down the hall for more views of a particular area. My eyes must have been huge i was so shocked! The next day was a biopsy. My husband and I went home to North Carolina and waited for the phone call. A new cancer, in the right remaining breast, micro calcifications.
Triple Negative again after 9 years. I am back in Nashville this week and have had an MRI, met with my oncologist and surgeon. The MRI is showing no other areas in the breast, chest, nodes or liver. We will know for sure after surgery which should be week after next. I had more genetic testing done about 6 months ago and I am still not showing positive for any mutations. My oncologist felt sure I would be positive for something when going back over my records. This time the rumor is smaller and a grade 2 rather than 3. I
It's so nice to read that I'm not the only one having a new TN after so many years.
Steve told me last time to enjoy the beauty of each day and I thank him for that because that's what I'm doing, staying in the moment this time and not living in fear. My name is Blair and it's nice to meet you.


Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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Kellyless View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Mar 02 2018 at 12:08am
I am sorry Blair! I'm not the lone unicorn recurrence around here anymore, and I really wish I was. And we were diagnosed at the same time the first time! They feel sure they'll find something in my genome as well, but so far nothing.
Are you doing surgery before chemo? Since doing A.C. again is not an option, and there are no studies done for our situation, talk to your oncologist about doing chemo first so you can have a way to know if whatever chemo you do is working this time. The one thing they do know is that if you can destroy all of the living cancer before surgery your odds of recurrence and long term survival is higher. Do you have a second opinion lined up yet?
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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cheeks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Mar 02 2018 at 10:38am
Hi Kellyless,

I had typed a long response and poof! I will try and remember what all i said.
My thoughts were the same about chemo first this time around and told my oncologist that's what I thought I would like to do. She said she wanted the mastectomy done first for so she could study the whole thing. She is planning on giving me Taxol and Carbo if nodes are positive at removal. Sentinel node will be removed and tested while I'm in surgery. If negative she plans on Taxatere (sp?) and Cytoxin again.
Fortunately I have a first cousin who is a radiologist at Mayo Clinic in Jacksonville, FL. She and her team are going to review everything as my 2nd opinion. I see Dr. Ingrid Mayer at Vanderbilt. My cousin said everyone she has talked to says Vanderbilt is an exec place.
The only thing I know genetically is from testing i did with 23&me for genealogy purposes. I tested positive as a carrier for Pendred Syndrome, an autosomal recessive trait. If you have the Syndrome it means deafness and thyroid issues. Some patients get thyroid cancer. Carriers aren't supposed to have any I'll effects but who know for certain. My onc. Is going to study it some more.
Environmentally, I was born at Fort Hood, TX in the 50's, lived in Oklahoma in the early 80's and was exposed to radioactive drilling fluids (mud) on a rig my husband worked. Also, had water that had been treated with the defoilient, 2-4d.
One day we might know the why to this unusual set of circumstances that would be normally be associated with BRCA mutation.
I'm glad you're no longer the line unicorn :) although I certainly wish neither of us were experiencing this particular journey again.
Please keep in touch and I'll let you know how everything is going, especially since you're ahead of me on this one.

Take good care
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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cheeks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Mar 02 2018 at 12:21pm
Kellyless,
I also wanted to mention. I am the oldest of 5, 3 sisters and 1 brother. I have 6 female first cousins and I am the only one who has had breast cancer. One did have a melanoma when she was 18 but has been fine since then. My mother had late stage 3 ovarian cancer 2 years after my initial diagnosis. She's doing fine and they have found nothing genetic for her either. I have heard my great grandmother on my mom's dad side had breast cancer but have no information other than that.
For genealogy genetic testing on 23&me and Family Tree DNA i do show a small percentage of Ashkenazi Jewish, Native American, and Sun Saharan African. Mom's dad's family were from Belize, the Cayman Islands and Roatan. We don't know about mom's mom, she was adopted but never had any cancers herself. I
I guess that about sums up what background i know.

Blair
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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Kellyless View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Mar 02 2018 at 1:30pm
I was born in Beaumont and spent my summers with my grandmother in that area. It is full of factories and refineries, as we'd drive around there's waves of foul smells pouring from these places was awful! The worst was the DuPont plant I've always wondered if that has something to do with it. I have no female relatives, my grandmother's died in 1928 and 1940 of "female problems" (thats all the info you get when you only have male witnesses, lol), I have 20 male cousins!
Taxol and Carb got me to a complete response, so not a bad option. Most people seem to tolerate it quite well. I was not one of them but I got thru it. I'm so glad you have a second opinion! In the end go with your gut. As a survivor you know your body, you'll know what's right, trust that.
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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